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    • 5 hours, 10 minutes ago
      AnitaS likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Only "illness" that makes it really difficult to control my blood sugar is getting steroid injections into my cervical spine or fingers. I leave my basal rate on my pump at 250% and need much higher bolus doses and many "extra" doses if my blood sugar remains really high. I tell the MD's that it turns my insulin into tap water and try to avoid it, experience with having gotten these injections over the past few years has helped, but having blood sugars of 400-500 despite much higher basal and bolus dosing is so frustrating!
    • 5 hours, 11 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 11 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 11 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 11 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 11 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 11 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 11 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 11 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 11 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 11 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 11 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 11 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 11 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 11 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 11 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 11 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 11 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 11 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 11 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 11 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
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      Randell Cole has commented in the same post you commented in :
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      Randell Cole has commented in the same post you commented in :
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    • 6 hours, 17 minutes ago
      Randell Cole has commented in the same post you commented in :
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      Randell Cole has commented in the same post you commented in :
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    In the past 5 years, have you participated in a T1D research study that tested out a potential new device, drug, process, or other intervention?

    Home > LC Polls > In the past 5 years, have you participated in a T1D research study that tested out a potential new device, drug, process, or other intervention?
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    38 Comments

    1. sweet charlie

      T1D for 69 years… but rejected because 90 years OLD !!

      11
      8 months ago Log in to Reply
      1. Patricia Dalrymple

        Ahh Sweet Charlie, good for you. I’m sure you have been through a lot but congratulations for hanging in there and everything that takes!!

        2
        8 months ago Log in to Reply
      2. Lorri McLuckie

        You’re amazing!

        2
        8 months ago Log in to Reply
      3. Meerkat

        Keep up the good work! You are awesome!

        2
        8 months ago Log in to Reply
      4. Mick Martin

        Well done on reaching such a good age whilst having T1D, sweet charlie.

        I would add, however, that it’s not just people of advanced years that get turned down/rejected. I very well recall asking my consultant about a pancreas transplant and was turned down as being “too old” at the age of 23. lol. Apparently, Israel had had success with pancreas transplants in the early 1980s, and it ‘sparked’ something in me to want to ‘give it a go’. (I was selected for Islet Cell Transplantation, too, but on attending the hospital that it was being performed at was ‘deselected’ as I’d already developed diabetes-related complications and, as it was still an experimental procedure, they needed to show how effective it could prove to be.)

        8 months ago Log in to Reply
      5. Sherrie Johnson

        Sweet Charlie we are seeing technology catch up. I am Type 1 diabetic for 62 years age 75. Keep going strong šŸ‘

        1
        8 months ago Log in to Reply
    2. Molly Jones

      Not in the last five years.
      I keep my eyes on clinical trials and hope to participate in a phase 2 next year for a new drug that sounds very hopeful.

      1
      8 months ago Log in to Reply
    3. Maggie Morgan

      Participated in a study recently that was trying out different adhesives for the Dexcom G7. Was very fun and interesting to be a part of it! I am very excited for the new and improved version of the device.

      4
      8 months ago Log in to Reply
      1. Jana Wardian

        I was in that study as well! Great problem to solve. Adhesives have to be sticky enough without triggering an allergic reaction.

        1
        8 months ago Log in to Reply
    4. Brian Vodehnal

      I tried to do an Islet injection trial but my blood is O+…they only wanted type A and B…didn’t explain why only those blood types qualify.

      1
      8 months ago Log in to Reply
    5. Tom Caesar

      I thought about a Alzheimer’s drug study but decided against participating. Figured I tortured my body enough over these past 50 years as a type 1!

      8 months ago Log in to Reply
    6. GLORIA MILLER

      I am in the Joslin Diabetes 50 Year Medalist Study and have been since the early 2000s. They have learned a lot why some of us are able to survive so long with or without complications. We have a few who have passed 75 years with diabetes. I go to Boston periodically for them to take blood and all for their research. Once I die they will take parts for more research before returning the body for cremation or burial.

      6
      8 months ago Log in to Reply
      1. Janis Senungetuk

        I’m also a participant in the Medalist study and have consented to postmortem donation. Forty years ago when I first attempted to donate my body for medical study/education at the local level, University of Wisconsin School of Medicine and Pubic Health, there was no interest. Joslin appears to be the only one with a T1 longevity study.

        1
        8 months ago Log in to Reply
    7. Andrew Aronoff

      I’ve been diabetic for over 50 years and I’ve never been involved in a research study. One reason may be that I’m an American living in France, but that doesn’t explain much, since studies occur in France, too. I wish I could have contributed and remain available if I’m compatible with a study’s criteria.

      8 months ago Log in to Reply
    8. Lawrence S.

      I attempted to sign up for a few. But, once I turned 65 years old, it seems that I am excluded from many studies.

      2
      8 months ago Log in to Reply
    9. Mark Schweim

      I have applied for many trials but have never been accepted into one.

      1
      8 months ago Log in to Reply
    10. Carol Meares

      Sweet Charlie, perhaps they could do a study on how a T1D 90 year old can inspire T1D’s of all ages to do our best and live well. You are the carrot;)

      4
      8 months ago Log in to Reply
    11. betsy valian

      I think @ 68 I hit the ceiling for age in studies, they all seem to be for younger T1D’s? šŸ™‚

      5
      8 months ago Log in to Reply
      1. kristina blake

        I agree. AS a 68 year old woman myself, I get screened out of most of the surveys as well.

        2
        8 months ago Log in to Reply
    12. Mick Martin

      That really depends on what YOU mean by “T1D research study”!

      I was the first person in the area that I live to ‘Trial’ the Medtronic/MiniMed 640G insulin pump, and dependent on how well it appeared to work, it determined whether more people would be allowed to use it.

      8 months ago Log in to Reply
    13. Judith Marged

      I have completed several clinical trials for T1D meds, but they were all more than 5-years ago.

      8 months ago Log in to Reply
    14. Steve Rumble

      I am currently participating in a study of an app that tracks carbs and insulin (I must enter that data) and makes recommendations based on a plan I have completed regarding amount of bolus to take at meals or when BS is too high. DreaMed Diary is the name I believe.

      8 months ago Log in to Reply
    15. Sherrie Johnson

      I am a Joslin 50yr medalist I go every three years for the study. I’ve added a new test every year I’m not sure how all this information is processed and if it does lead to new medications or treatments

      1
      8 months ago Log in to Reply
      1. Janis Senungetuk

        Me too.

        8 months ago Log in to Reply
    16. Natalie Daley

      I’m 75 and have been diabetic for 35 years — 30 on insulin after my endocrinologist realized this wasn’t Type 2. I’m two old apparently for any studies, but aren’t they curious how I got to be too old? My T1D brother, my role model, died at 67, and he was 4.5 years older than I am.

      1
      8 months ago Log in to Reply
    17. rick phillips

      I usually get to test new meters.

      8 months ago Log in to Reply
    18. George Lovelace

      T1 58 yrs, Pumping 24 Yrs. Been on Dexcom since 2009, now on G6 with Tandem CIQ and getting Best Numbers since 1963

      8 months ago Log in to Reply
    19. Anneyun

      Sweet Charlie you are inspiration to us all! Good to know long life can be had by TD1s.

      8 months ago Log in to Reply
    20. AnitaS

      I look for studies to participate in but I haven’t matched any yet, at least in the studies that are in my location. For instance, I get matched based on age , gender and such but I don’t have the medical problems that the study is intended for. Example: macular degeneration or kidney problems.

      8 months ago Log in to Reply
    21. Sondra Mangan

      I have attempted but turn 73 this week and am usually outside the range of ages for the trial.

      8 months ago Log in to Reply
    22. Tina Roberts

      I’ve tried, but for some reason I never qualified.

      8 months ago Log in to Reply
    23. Carrolyn Barloco

      I signed up for the Dexcom adhesive study but have not received any follow up.

      8 months ago Log in to Reply
    24. Phyllis Lewis

      I would be willing but they all seem to think I’m too old

      8 months ago Log in to Reply
    25. Christina Trudo

      I seem to have aged out of the upper limits for many studies. (Often that’s 64 or 65.)

      8 months ago Log in to Reply
    26. Jneticdiabetic

      Not in the past 5 years, but I previously participated in an early closed loop study and have participated in multiple blood draw studies.

      8 months ago Log in to Reply
    27. M C

      Had a bad experience at one time when I had volunteered to provide myself as a subject in a research study, and found myself being treated poorly (like, I, by being there at their request, was a burden on the staff). They treated the patients poorly, did not communicate, and made the experience miserable. After I removed myself, and explained the experience to the research head, I was asked if they could use my experience as a learning tool for the staff going forward on how to treat the volunteer patients properly and professionally – To which I agreed.) – Since then, I have not raised my hand again to assist in any research projects. Not willing to subject myself to poor treatment again, regardless of promises to the contrary.

      8 months ago Log in to Reply
    28. Wanacure

      When I was a college student, at least a couple of times a year I volunteered for research of all kinds as advertised in the classified section of the student newspaper. Sometimes there were notices on bulletin boards. Sometimes I was renumerated. One of the studies was a national study of people with diabetes complete with a control group; it had significant findings. Now I’m In the ACT study regarding dementia involving the University of Washington in Seattle and Kaiser Permanente. Every year I’m tested for memory, plus some physical measurements such as ability to rise from a sitting position to standing without using my hands. And for a week or two I keep detailed records of how much I exercise, what I eat, social activity, etc. The payoff? No funeral costs since I’m donating my brain for physical effects of dementia (often called Alzheimer’s) and the rest of my body organs to medical science. Note: I have not been diagnosed with dementia…yet. If I’m one of the group that does not develop ā€œAlzheimer’sā€ that will still hopefully provide valuable info. Another payoff: this yearly check on my lifestyle motivates me to exercise, follow a healthy diet, and try to avoid social isolation.

      8 months ago Log in to Reply
    29. PamK

      I would like to, but I can never find a study in my area. Guess I just live in the wrong place!

      8 months ago Log in to Reply

    In the past 5 years, have you participated in a T1D research study that tested out a potential new device, drug, process, or other intervention? Cancel reply

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