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  • Activity
    • 4 hours, 12 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 4 hours, 13 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 6 hours, 9 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 6 hours, 25 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 17 hours, 35 minutes ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 21 hours, 24 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 21 hours, 27 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 22 hours, 8 minutes ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 22 hours, 9 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 22 hours, 11 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 22 hours, 16 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 22 hours, 17 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 22 hours, 18 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 22 hours, 19 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 22 hours, 19 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 22 hours, 55 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 23 hours, 6 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 23 hours, 18 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 23 hours, 19 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
    Clear All
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    Which provider(s) do you regularly use for your other non-diabetes health needs? (Please do not include your diabetes care providers in your responses.) Select all that apply.

    Home > LC Polls > Which provider(s) do you regularly use for your other non-diabetes health needs? (Please do not include your diabetes care providers in your responses.) Select all that apply.
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    46 Comments

    1. Ahh Life

      How do I provide thee? Let me count the ways?

      Cardiologist,
      Dermatologist,
      Endocrinologist,
      Gastroenterologist,
      Ophthalmologist,
      Orthopedist,
      Otolaryngologist,
      Podiatrist,
      Urologist

      I seem to have so many high-priced specialists on a full-time employment program. Sigh!

      5
      6 months ago Log in to Reply
    2. Christine Gran

      Neurologist for migraine.

      6 months ago Log in to Reply
    3. Janice Bohn

      Gosh I do not know if I am an anomaly but here is my list;
      Internist (primary care)
      Neurologist
      Oncologist
      Cardiologist
      Ophthalmologist

      6 months ago Log in to Reply
      1. Janice Bohn

        Oops forgot Endocronologist
        Dermatologist

        1
        6 months ago Log in to Reply
    4. m.d.oberg@outlook.com

      I use Mayo Clinic, Rochester, MN, for any surgery, other treatment.

      6 months ago Log in to Reply
    5. AimmcG

      I have MS as well so I see a Neurologist as well.

      6 months ago Log in to Reply
    6. John McHenery

      I am British living in the UK and health needs/supplies are covered by the UK National Health Service

      1
      6 months ago Log in to Reply
    7. Patricia Dalrymple

      Dentist anyone?

      4
      6 months ago Log in to Reply
    8. Karington Johnston

      Gynecologist
      Neurologist (I also have epilepsy)
      Optometrist (seeing is hard šŸ˜‰ )
      Dentist

      6 months ago Log in to Reply
    9. GLORIA MILLER

      Cardiologist,
      Dermatologist
      Urologist
      Allergist
      pulmonologist

      6 months ago Log in to Reply
    10. Kathleen Juzenas

      Oncologist
      Cardiologist
      Nephrologist
      Dermatologist
      Dentist
      Podiatrist
      Audiologist

      6 months ago Log in to Reply
    11. Amanda Barras

      I have only seen my Endo 1x a year for the last 4 years after my primary I did have moved and I never bothered to get a new one because I’m healthy otherwise.

      1
      6 months ago Log in to Reply
    12. JoAnn

      Podiatrist

      6 months ago Log in to Reply
    13. Elissa Macher

      Podiatrist 2x a year.

      1
      6 months ago Log in to Reply
    14. Annie Wall

      I answered that my endocrinologist pretty much takes care of all my needs but forgot to add ophthalmologist who also does a diabetes check in addition to glaucoma and macular degeneration (though no retinopathy!). But this will change soon because my endo is retiring and my new endo does not do primary care so I’ll have to add that!

      6 months ago Log in to Reply
      1. Sue Martin

        Three years ago, my Opthomologist saw that my optic nerve was swollen and she asked me to go get an MRI. She said she would call the ER and tell them I was on my way.
        Long story short, I was diagnosed with a brain tumor, not diabetes related. It was benign but I spent nearly 50 days in the hospital and rehab. My brain is doing very well now. We consider that my Opthomologist saved my life.

        Routine checkups are very important!

        5
        6 months ago Log in to Reply
      2. Annie Wall

        Sue Martin, I wanted to reply to your reply but only can reply to my own. I hope you see this. Your story is remarkable. Let that be a lesson to all of us.

        6 months ago Log in to Reply
    15. Patricia Kilwein

      Other specialists for Asthma, recent knee replacement, and cardiologist.

      6 months ago Log in to Reply
      1. Patricia Kilwein

        Also forgot dentist and ophthalmologist. šŸ™„

        1
        6 months ago Log in to Reply
    16. Sondra Mangan

      Cardiologist and Dermatologist

      6 months ago Log in to Reply
    17. Henry Renn

      I have providers in 3 different health care organizations. My urologist is for prostate health not reproduction.

      6 months ago Log in to Reply
    18. Sue Martin

      and a Chiropractor and dentist.

      1
      6 months ago Log in to Reply
    19. Scott Doerner

      And a seizure neurologist

      6 months ago Log in to Reply
    20. Kim Davis

      I have many specialist MDs: cardiology, rheumatology, renal( non T1D), pancreas clinic, retinal specialist, dermatology, neurology, & orthopedic ( back, hands, shoulders, hips). After 43 years, I now have many appointments; but are all located in one medical center

      6 months ago Log in to Reply
    21. Bob Durstenfeld

      Let’s see,neurologist, gastroenterology, cardiologist, pain management doctor, dermatologist, physical therapist, pharmacist,

      6 months ago Log in to Reply
    22. Rich Lawrence

      Podiatrist, Neurologist, Orthopedic Hand Specialist, Rheumatologist.

      1
      6 months ago Log in to Reply
    23. Bruce Schnitzler

      My endocrinologist also serves as my primary care provider. I also regularly go to an out of state oncology clinic to provide testing and care for bone cancer.

      6 months ago Log in to Reply
    24. Edward Geary

      FYI, my diabetes is part and parcel of my comprehensive health care team. IDDM influences every treatment, drug, and screening.

      6 months ago Log in to Reply
    25. Carol Meares

      Dermatologist, and physical therapist and orthopedic doc. I don’t think I checked ā€œAnotherā€

      6 months ago Log in to Reply
    26. Pauline M Reynolds

      Don’t forget the podiatrist!

      1
      6 months ago Log in to Reply
    27. Denise Carter

      Also see pulmonologist, podiatrist, cardiologist, oncologist specializing in blood disorders, retina specialist, dermatologist, Ear/Nose/Throat specialist.

      6 months ago Log in to Reply
    28. sdimond

      Next question: How many of you think you get better care by having multiple providers? I get my diabetes care from my PCP and I have intentionally avoided going to an endocrinologist. My diabetic friends who go to an endo get lousy care.

      1
      6 months ago Log in to Reply
      1. LizB

        I definitely get better care from my endo. In my 15+ years with Type 1, I have never had a primary care doctor who knew anything about diabetes. When I had to get a new PCP last year due to insurance, the doctor walked into the room looking at the paperwork I filled out. She said, “You have Type 1 diabetes? You’re going to have to see someone else for that. We’re not equipped to handle that here”. The doctor I had before that wouldn’t even mention it when I saw her.

        3
        6 months ago Log in to Reply
      2. sweet charlie

        I had a VERY BAD Endo experience 35 years ago when the A1C test first started..

        6 months ago Log in to Reply
    29. KarenM6

      Also:
      cardiologist
      dentist
      audiologist

      I am considering adding a chiropractor but have not made the leap yet!

      1
      6 months ago Log in to Reply
    30. Barbara green

      Cardiologist, dermatologist

      6 months ago Log in to Reply
    31. ConnieT1D62

      I see several other providers besides my endocrine provider. However, most of my health care concerns center around T1 diabetes , hence pretty much everything I seek care for is somehow related to T1 diabetes. I see a podiatrist for diabetes foot care; an ophthalmologist for diabetes eye care; cardiologist for heart issues related to long duration T1D; a neurologist to monitor progressive nerve damage issues in my hands and fingers from T1D.

      For generic health care concerns, I see my PCP for an annual physical, sometimes twice a year if I have an issue that needs a referral; dentist at least twice a year; mammogram screenings and colonoscopies as recommended; and have been receiving chiropractic care for over 40 years as needed for periodic spinal adjustments. In my youth and younger adult years I received care from orthopedic MDs for broken bone issues.

      1
      6 months ago Log in to Reply
    32. Linda Pease

      I see a foot doctor to cut and check my feet out

      6 months ago Log in to Reply
    33. Becky Hertz

      Most of my health needs are related to the diabetes, so I found it kind of hard to answer this, but I did my best

      6 months ago Log in to Reply
    34. Ms Cris

      Physical therapist

      6 months ago Log in to Reply
    35. Bea Anderson

      Nurse practitioner or physician assistant for yearly exam.
      ENT for deafness and ongoing complications left ear.
      Vitreal retinal surgeon for WMD injection every 4-6 weeks for last 8 years.

      6 months ago Log in to Reply
    36. Bruce and Audrey Coleman

      I also see a cardiologist.

      6 months ago Log in to Reply
    37. Mary Boudousquie

      I also see a chiropractor.

      6 months ago Log in to Reply
    38. Wanacure

      I answered too low. I see a dentist every 6 months, an endocrinologist or endocrinology nurse every 2 weeks to download my Dexcom, an optometrist every year, a dermatologist at least once a year for skin cancer, an audiologist every year, and have my feet inspected and toenails trimmed every 3 months at Kaiser Permante. We have strong elected Democrat, Kriedler, regulating. Thru March 31, 2022, all claims I paid $277.85 +$216.00 for copay prescriptions= $493.85. Plus I pay KP for cheapest Medicare ā€œAdvantageā€ Plan every month, I dunno, $38? $54? We need Medicare For All, Socialized Medicine, competitive non-profit health care providers as in Helvetia…call it what you want. PLEASE VOTE IN PRIMARIES FOR CANDIDATES WHO WILL DELIVER ON THIS ISSUE.

      1
      6 months ago Log in to Reply
    39. M McSwain

      Cardiologist

      6 months ago Log in to Reply
    40. Diana L.

      Oncologist

      6 months ago Log in to Reply

    Which provider(s) do you regularly use for your other non-diabetes health needs? (Please do not include your diabetes care providers in your responses.) Select all that apply. Cancel reply

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