sdimond

Activity
- 1 month, 2 weeks ago
  
  Nevin Bowman likes your comment at
  If you use a CGM, at what glucose level is your “high” alert set? If you use multiple alert schedules, select the number that is your “high” alert at midnight in your local time zone.
  Time in range is just the new way to present terrible glucose control as something good. Most doctors have no idea how to teach you to maintain actually normal blood glucose: that is around 83 with few excursions above 125. Read Richard K. Bernstein's "The Diabetes Solution."
- 1 month, 3 weeks ago
  
  JuJuB likes your comment at
  If you use a CGM, at what glucose level is your “high” alert set? If you use multiple alert schedules, select the number that is your “high” alert at midnight in your local time zone.
  My high alarm is set at 120. any time spent above that level is damaging!
- 1 month, 3 weeks ago
  
  Nevin Bowman likes your comment at
  If you use a CGM, at what glucose level is your “high” alert set? If you use multiple alert schedules, select the number that is your “high” alert at midnight in your local time zone.
  My high alarm is set at 120. any time spent above that level is damaging!
- 1 month, 4 weeks ago
  
  Rob Smith likes your comment at
  When you’re experiencing high blood glucose, what symptoms do you typically experience? Select all that apply!
  Looking at my CGM I see that my high for the day was 94. I seldom get above 125. This is low carb eating and MDI.
- 3 months, 1 week ago
  
  Eva likes your comment at
  If you have never used a hybrid closed loop system, which of the below potential benefits of these systems would be most important to you?
  I eat low carb and do MDI. My most recent A1C was 5.0 and I seldom have a glucose reading above 125. When a hybrid closed loop system can get to that level of control I'll be interested. The ADA standard of care and their advice to eat loads of carbs actively harms diabetics.
- 7 months, 4 weeks ago
  
  Bekki Weston likes your comment at
  Adults with T1D: Do you take a statin, and do you have high cholesterol?
  See the BMJ paper: The effect of statins on average survival in randomised trials Conclusions: Statin treatment results in a surprisingly small average gain in overall survival within the trials’ running time. For patients whose life expectancy is limited or who have adverse effects of treatment, withholding statin therapy should be considered.
- 10 months ago
  
  sweetcharlie likes your comment at
  Which emotions do you most often feel when your blood sugar is above 250 mg/dL (13.9mmol/L)? Choose all that apply to you.
  I seldom get as high as 125. Low carb for the win!
- 10 months, 2 weeks ago
  
  JOAN ULMER likes your comment at
  How much do you think your blood glucose levels impact your overall mood? (For example, being more likely to cry or feel sad when low, feeling irritable when glucose levels are high, etc.)
  I went with tight control from diagnosis and for 15 years kept my A1C in the 5.2 - 5.4 range. Eight years ago I tightened things up and got my A1C below 5.0. In six months I realized that I felt much better than I had in years. I think the reduced standard deviation plays a large role in that. High blood sugar is anything over 125.
- 10 months, 2 weeks ago
  
  Wanacure likes your comment at
  If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
  I do MDI. For the last 7 years my A1C has averaged around 4.8. I have no reason to believe that a closed loop automated system could do that well.
- 10 months, 3 weeks ago
  
  Jordan Harshman likes your comment at
  If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
  I do MDI. For the last 7 years my A1C has averaged around 4.8. I have no reason to believe that a closed loop automated system could do that well.
- 10 months, 3 weeks ago
  
  Scott Rudolph likes your comment at
  If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
  I do MDI. For the last 7 years my A1C has averaged around 4.8. I have no reason to believe that a closed loop automated system could do that well.
- 11 months ago
  
  Kate Kuhn likes your comment at
  What are three foods that raise your blood glucose the most dramatically despite your best efforts to count the carbs, pre-bolus insulin, and manage the impact?
  I'm firmly in the low carb camp. Less than 40 grams a day, mostly in the form of green high fiber vegetables. No grain based products, and no seed oils.
- 11 months, 1 week ago
  
  Kris McDonald likes your comment at
  When eating a food that you are not very familiar with, how often do you look up the nutritional information for the food you are about to eat?
  I eat less than 40 grams of carbs per day, no grain, and no seed oils. If I eat out, it is usually salad with meat or fish and I carry my own salad dressing made with real olive oil.
- 11 months, 1 week ago
  
  sweetcharlie likes your comment at
  When eating a food that you are not very familiar with, how often do you look up the nutritional information for the food you are about to eat?
  I eat less than 40 grams of carbs per day, no grain, and no seed oils. If I eat out, it is usually salad with meat or fish and I carry my own salad dressing made with real olive oil.
- 1 year, 1 month ago
  
  KSannie likes your comment at
  How useful is the time in range measurement to you as a tool for assessing your T1D management and making changes to your routine?
  Normal blood glucose for human beings is 83. Standard deviation from that number tells you how consistent your control is. A TIR based on the notion that it is acceptable to get to 180 is hazardous to our health.
- 1 year, 2 months ago
  
  Ramaswamy K. has commented in the same post you commented in :
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  I am a type 1 diabetic for about 40 years. I follow intensive insulin therapy. I have noted that that weather conditions affect the insulin intake quite drastically. Has there been any research findings on this?
- 1 year, 2 months ago
  
  PamK has commented in the same post you commented in :
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  Why is a cure so difficult to find?
- 1 year, 2 months ago
  
  Randy Campbell has commented in the same post you commented in :
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  What are the causes of increases in blood sugar levels that are not connected to food or activity. My blood sugar levels will just increase while I'm sitting & If I don't catch it, it will go into the 200s. Very frustrating
- 1 year, 2 months ago
  
  KarenM6 has commented in the same post you commented in :
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  Hi Don - I didn't find an HCT number that Jneticdiabetic mentioned on the UVA school of medicine site. But, I did see an HSR# of 220300. Then I went to "clinicaltrials.gov" (thanks to Jneticdiabetic!!) and searched. This website does list the study you are looking for with the 220300 being an NCT# (not HSR as listed on the "med.virginia.edu" website.) In my opinion and if it were me, I would think it is legit. But, that is me. I hope that helps!
- 1 year, 2 months ago
  
  Jneticdiabetic has commented in the same post you commented in :
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  Hi Don. All clinical trials in the US need to be registered at clinical trials.gov and are assigned an NCT number. You can search that website using key words, study site, etc to confirm legitimacy. The website will provide an overview of the study. If you are interested in possible participating in the study, you will be asked to sign a detailed consent form that spells out the details so you can make an informed choice if you want to proceed. Hope this helps! 😊
- 1 year, 2 months ago
  
  Molly Jones has commented in the same post you commented in :
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  Autoimmune conditions can be prevalent but variant in families. No one else has type 1 diabetes in mine, but many others: Addisons, Lupus, MS, we all share thyroid conditions. Would there be a way to genetically test and prevent this from happening at birth?
- 1 year, 2 months ago
  
  Don (Lucky) Copps has commented in the same post you commented in :
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  Is the University of Virginia (UVA) Study Title: Adaptive Behavioral Control (ABC) in a Closed-Loop System: A Randomized Crossover Clinical Trial legitimate? I was approached today via email about a 6 month clinical study. The person I spoke with indicated I would receive 6 months of Dexcom CGM Transmitters and sensors. When I asked why I had to use those supplied by UVA her answer was "it is a controlled study." It sounds legitimate, but I'm a little unsure? Does the name Principal Investigator: Sue Brown, MD ring a bell with anyone? There is a payment to participants of $400/6 month study with partial payment if I drop out during the study. UVA will download an app onto my phone allowing UVA's WIP application to download my Dexcom readings and suggest tweaks to my basal and bolus settings. My readings will be reviewed with suggested adjustments every 14 days. This is all in the name of tighter control. Can anyone verify this study?
- 1 year, 2 months ago
  
  KarenM6 has commented in the same post you commented in :
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  I agree with you GiGi. (And, I'm sorry you spent so long taking a medication you didn't need.) We know that studies can be problematic if there isn't a variety of people involved, but how to fix that is a huge question. I tried to sign up for some studies a long time ago but was turned away because of my diabetes. So, whatever study it was had no data for diabetics. And, each of us is SO different in SO many ways! It's annoying to be placed in an actuarial table and made to conform to something that doesn't fit!
- 1 year, 2 months ago
  
  KarenM6 has commented in the same post you commented in :
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  How do scientists choose what problems/questions to study?
- 1 year, 2 months ago
  
  lis be has commented in the same post you commented in :
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  if you cure type 1, how will big pharma top executives pay for their luxury sports cars and condos?
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