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    • 3 hours, 5 minutes ago
      Jeremy Hanson likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      And sometimes I dream that I’ve run out of insulin and cannot get prescription refilled.
    • 4 hours, 58 minutes ago
      ConnieT1D62 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I providee an answer of low BG. But with that said, it is usually a false alarm (compression low from Dexcom sensor) With the stable bedtime BG and a TSlim X2 pump using CIQ and Sleep Mode, I consistently sleep between about 85 and 110 every night. The key to this is going to bed with a stable BG (85-110) and not having any IOB.
    • 5 hours, 2 minutes ago
      ConnieT1D62 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      While middle-of-the-nght alerts are frustrating and irritating, I'm no longer terrified of dying from an extreme low in the middle of the night, so technology is still a win for me!
    • 6 hours, 39 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 6 hours, 40 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
    • 6 hours, 41 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 6 hours, 42 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yeah. Totally agree! This is totally unnecessary and extremely annoying.
    • 6 hours, 42 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
    • 6 hours, 51 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 6 hours, 52 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
    • 6 hours, 53 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yes, I appreciate device improvements but some are just plain annoying and make a difficult journey Worse, not better. And the main complaint is unnecessary alerts the user cannot adjust.
    • 6 hours, 54 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
    • 6 hours, 54 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yeah. Totally agree! This is totally unnecessary and extremely annoying.
    • 7 hours ago
      Wanacure likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Why isn't going to the bathroom not on this list?
    • 7 hours, 4 minutes ago
      Wanacure likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 7 hours, 19 minutes ago
      TEH likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
    • 7 hours, 43 minutes ago
      Steven Gill likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My pump, "I need to BG! I need to BG!" Such a cry baby it is!
    • 8 hours, 36 minutes ago
      Robin Melen likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 9 hours, 23 minutes ago
      Mick Martin likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 9 hours, 25 minutes ago
      Mick Martin likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yes, I appreciate device improvements but some are just plain annoying and make a difficult journey Worse, not better. And the main complaint is unnecessary alerts the user cannot adjust.
    • 9 hours, 50 minutes ago
      Anneyun likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 10 hours, 32 minutes ago
      Sue Martin likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 11 hours, 3 minutes ago
      T1diabetic likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 11 hours, 4 minutes ago
      T1diabetic likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
    • 11 hours, 25 minutes ago
      Velika Peterson likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I stopped using those sites and paid more attention to rotation of available ones.
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    If you were misdiagnosed with another condition before being diagnosed with T1D, were you experiencing diabetes-related ketoacidosis (DKA) when you were eventually diagnosed with T1D?

    Home > LC Polls > If you were misdiagnosed with another condition before being diagnosed with T1D, were you experiencing diabetes-related ketoacidosis (DKA) when you were eventually diagnosed with T1D?
    Previous

    Which provider(s) do you regularly use for your other non-diabetes health needs? (Please do not include your diabetes care providers in your responses.) Select all that apply.

    Next

    Were you misdiagnosed with another condition before you were diagnosed with T1D?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    21 Comments

    1. Melissa Yuruckso

      I was admitted to the hospital with hypertakacardia.My heart rate was 190. Doctors told me they had to treat the hypertakacardia so when routine bloodwork came back 3 days later.( I was in ICU) my blood glucose was over 700. They removed my glucose IV from my arm and started looking at symptoms. I was diagnosed Type 1 11/22/1988.

      11 months ago Log in to Reply
    2. RegMunro

      I’m not sure what the Gatooma Government Hospital (Zimbabwe) diagnosed me of back after my 1965 motor car accident, but they missed diabetes!

      11 months ago Log in to Reply
    3. Donna Condi

      I was misdiagnosed with Type2 diabetes and asked to go on insulin four years later because the pills I was given could not keep my blood glucose in control.

      11 months ago Log in to Reply
    4. Shelly Engel

      I was diagnosed with anxiety disorder, and treated as if I did drugs or was an alcoholic. I had a couple visits to the ER with extreme stomach pain, before finally being diagnosed with type 1 diabetes at age 42

      11 months ago Log in to Reply
    5. mbulzomi@optonline.net

      Sorry, but there is no selection for “N/A”.

      11 months ago Log in to Reply
    6. Christine Gran

      My son wasn’t exactly “misdiagnosed” but the doctor I took him to see did not think to test his blood sugars right away. He was stumped by the symptoms I reported and then suggested that we could run some labs. The results were reported to us three days later when the results had already come back the next day. He had already been in DKA which explained his symptoms

      11 months ago Log in to Reply
      1. trisha moynihan

        Frustrating! 🙁

        11 months ago Log in to Reply
    7. Jane Cerullo

      I was misdiagnosed as type2 when my fasting BS was only 130 and then 139. Quickly needed insulin a few months post diagnosis. I’ve posted before that as a nurse I was not comfortable with first diagnosis. I was always on the thin side and had no other symptoms like high BP or cholesterol. Took awhile but then was properly diagnosed with LADA.

      11 months ago Log in to Reply
    8. Sherolyn Newell

      When I was misdiagnosed with T2, my A1C was over 14, so I wouldn’t be surprised if I had DKA. I didn’t have any DKA symptoms though. I got my A1C down around 8 by basically starving before I got an endo appointment. Tests showed T1D. She did say it would be interesting to know if I was throwing off proteins when I had A1C of 14.

      11 months ago Log in to Reply
    9. Mark Schweim

      I was misdiagnosed with both viral and bacterial infections for over 6 months prior to my T1D diagnosis.
      When my T1D was diagnosed, I definitely had DKA with a lab reported Blood Acetone level of nearly 3% and somehow I not only survived but I never even lost consciousness. All the documentation the Hospital had available at the time said that a blood acetone level of only 2.5% was 100% fatal with survival listed as impossible.

      1
      11 months ago Log in to Reply
      1. Patricia Dalrymple

        This is where I wish I had the heart emoji to click on. One tough person!

        1
        10 months ago Log in to Reply
    10. Bonnie kenney

      I had all the classic symptoms. They knew as soon as I walked in the door. 1974!

      11 months ago Log in to Reply
    11. Bob Durstenfeld

      I was not misdiagnosed. But my son’s doc could not fathom that he could develop T1D at age 8months and was convinced it was something else.

      11 months ago Log in to Reply
    12. Carol Meares

      I am unsure because I was never diagnosed with DKA but I did lose a lot of weight (~15#) and could barely climb a flight of stairs. I never was admitted to the hospital. I was given a glucose tolerance test then told to wait until I felt like driving home. They put me on metformin. I was 38. Back then adults didn’t get type 1:-/. I was put on insulin around 6 months later. It was more than one doc visit which were 3 months apart. The Doc’s words were that 10% of type 2 diabetics had to go on insulin.

      11 months ago Log in to Reply
    13. Amanda Barras

      I was 4 years old. The first thing my doctor tested in office was my urine when my mom brought me in sick. He walked back into the room with an quick and accurate dx just based on my ketone level alone. A trip to the hospital and immediate admittance for a week for treatment and stabilization.

      11 months ago Log in to Reply
    14. Pauline M Reynolds

      Unsure because when it was confirmed through C-Peptide test that I had Type I, I was also suffering from hyperthyroid symptoms, so felt unwell and wasn’t tested for ketones.

      11 months ago Log in to Reply
    15. Lyndsey Escobar

      After 3 physicians and 5 appointments my son was misdiagnosed with cyclical vomiting syndrome (vomiting from high blood sugar, in hindsight). Took him in for an unrelated test weeks later and they tested his fasting glucose at 289.

      11 months ago Log in to Reply
    16. Anneyun

      When I was admitted to the hospital I was drifting in and out of consciousness. I had lost 20 lbs in about a week, and as an already skinny 14 year old I went down to 72 lbs. I don’t ever remember hearing the word ketoacidosis, but I remember waking up once to find some nurses sniffing my breath and commenting on the symptomatic smell.

      11 months ago Log in to Reply
    17. kristina blake

      My story was unfortnately all too common. I was 30 years old, recently retired ballet dancer. I had gone from my working weight of 110 lbs (I’m 5’6″) to 95 lbs. No D of any type in my family. But since I was 30 years old, I was Dx’d with T2D, told to watch my weight and restrict my food intake (which is why the comment about having been a ballet dancer comes in). This was when the types were still “juvenile” and/or “adult” onset. Still felt awful. A few weeks later I was found by a neighbor in a DKA coma. She called my day job to say I wouldn’t be coming in, mentioning that she couldn’t rouse me. Lucky me, I worked for a large city fire dept with EMS. They dispatched from HQ and I got the correct Dx in the ED.

      11 months ago Log in to Reply
      1. KarenM6

        Hi kristina!
        I remember your story from other posts and it still blows my mind that the doctors told you to restrict your food intake given your job and height and weight. I just am lost for words.
        I’m so glad your neighbor found you in time and called your work/EMS!!!

        10 months ago Log in to Reply
    18. Patricia Dalrymple

      Misdiagnosed with T2D at age 42 and was basically accused of being anorexic. I am 5’6” and weighed 110lbs down from 120 usual weight at the time. They asked me if I thought I looked good. I said NO – I look like hell. Help me. Put me on pills, starved myself, walked stairs, but at least went from 10 A1C to 8. I knew I needed insulin, begged to get into Endo, and he is the one I credit for correctly diagnosing and pushing me towards a pump.

      10 months ago Log in to Reply

    If you were misdiagnosed with another condition before being diagnosed with T1D, were you experiencing diabetes-related ketoacidosis (DKA) when you were eventually diagnosed with T1D? Cancel reply

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