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    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 8 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 10 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 14 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 15 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 16 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 16 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 10 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 10 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 12 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 14 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 14 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 15 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 15 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    If you’re a parent, how many of your children have T1D? Feel free to share more about your family’s situation in the comments, and how many other children you have without T1D!

    Home > LC Polls > If you’re a parent, how many of your children have T1D? Feel free to share more about your family’s situation in the comments, and how many other children you have without T1D!
    Previous

    For insulin pump users: On average, how often do you take insulin using a different method other than through your pump? (E.g., giving an injection, using inhaled insulin, etc.)

    Next

    If you are a parent of a person with T1D, which best describes your situation? If you have more than one child with T1D, please select all that apply and check back for tomorrow's question!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    34 Comments

    1. karolinamalecki7@gmail.com

      I dont have children yet. I was diagnosed last year at 26 and my biggest fear is passing this on. Curious if youd do a question about parents with type 1 and how that impacts their children (ie mom with t1D vs dad with t1d and how many kids have it). Thanks for all you do!

      4 years ago Log in to Reply
      1. Jneticdiabetic

        First of all, good job getting through your first year with T1D! 🙂
        Hopefully the responses to this question (with most T1Ds not reporting passing it on to their kids) will be reassuring.
        Scientists are still learning, but this article provides some rough stats on the rates of T1D Moms & Dads passing on T1D to their kids:
        https://www.webmd.com/diabetes/diabetes-type-1-genetics

        4 years ago Log in to Reply
    2. Randi Niemer

      I have three kids in their mid twenties who do NOT have T1D.

      4 years ago Log in to Reply
    3. Dan Riggs

      I have 2 kids and they both have T1D. I only have one other family member on boths sides with T1D, a cousin on my Dad’s side of the family.

      4 years ago Log in to Reply
    4. GLORIA MILLER

      I have one son without diabetes. He is 50 years old. I have T1 but his father does not.

      4 years ago Log in to Reply
    5. Joan McGinnis

      I have one child with T1D. I have 5 siblings, 3 with type 1, and 1 with type 2. Only one of the children other than mine has developed type 1. And none of the grandchildren. No parent with Type 1

      4 years ago Log in to Reply
      1. Joan McGinnis

        None developed before age 18

        4 years ago Log in to Reply
    6. Mig Vascos

      Two children none with T1D. One has T2D bit because was overweight and not exercising. Once she lost 40 pounds , retired from computer work, and began exercising, the problem was resolved.

      4 years ago Log in to Reply
    7. Gary Taylor

      I have T1D, diagnosed at 18. My wife and I have 3 children. The oldest of the three was diagnosed with T1D at the age of 23. She now has two daughters and she will have them screened for T1D often as they grow. (I also have a friend with T1D. Both his father and his son have it. )

      1
      4 years ago Log in to Reply
      1. AnitaS

        I am a little surprised that your daughter has her kids screened for diabetes as I would think she could test their blood sugar occasionally with her blood glucose meter.

        4 years ago Log in to Reply
    8. Kristine Warmecke

      I’m the oldest of 3 sibling’s, the middle child was finally diagnosed at 7 months old with T1D, I was diagnosed at age 11 and the youngest was diagnosed with T2D in his early 20’s. Both my parent’s are now T2D, my Father was just diagnosed several months ago.
      My middle sibling has 3 daughters, the oldest of whom was diagnosed at 23 months old, the youngest is still in a study because her cord blood is antibody positive; she has not been diagnosed yet.

      4 years ago Log in to Reply
    9. Sue Herflicker

      I have 3 boys. My oldest and my youngest are both T1D’s. My middle child has hashimoto disease. I was diagnosed at age 57 LADA .

      4 years ago Log in to Reply
    10. Yaffa Steubinger

      My two kids have one of my autoimmune diseases but 2 of my grandkids got my T1. We’re fun when we all go out to eat together. Food arrives and 3 insulin pens come out. 😉

      4 years ago Log in to Reply
      1. AnitaS

        That is funny about the three insulin pens coming out. I had sort of a similar situation years ago at a Thanksgiving meal. My sister’s boyfriend, my cousin and myself, all of us type 1, brought our syringes at the same time too. LOL

        4 years ago Log in to Reply
    11. Pauline M Reynolds

      I have Type 1, but none of my children have it. However, three of my children have Type 2.

      4 years ago Log in to Reply
      1. Pauline M Reynolds

        That is, three of my five children.

        4 years ago Log in to Reply
    12. Mary Dexter

      My daughter has PCOS. I was diagnosed with LADA at age 48.

      4 years ago Log in to Reply
    13. mbulzomi@optonline.net

      I have two daughters and a son; however, none have T1D or T2D. They range in age 47-42 years old.

      4 years ago Log in to Reply
    14. Sherrie Johnson

      Our daughter developed gestational diabetes in her first pregnancy and then after she delivered it went away no future problems

      4 years ago Log in to Reply
    15. Becky Hertz

      I marked, have children, no diabetes, but my child is not biological so even if they did have diabetes it might skew the results. Biological would have been a good addition to this question.

      4 years ago Log in to Reply
    16. Lori COLLINS

      Type 1 since 1979, one non-diabetic daughter who is now 29. I maintained very tight control w/ multiple daily injections and was delighted to give birth to a healthy 7 pound baby! I think an insulin pump and CGM would make pregnancy very manageable for women today.

      1
      4 years ago Log in to Reply
    17. Kathleen Juzenas

      I have no children but I have 15 nieces and nephews, none of whom have T1d. Out of my 22 great-nieces and great-nephews, however, one has T1d.

      4 years ago Log in to Reply
    18. Steve Rumble

      My wife was also T1D and our daughter had gestational diabetes.

      4 years ago Log in to Reply
    19. Steve Rumble

      I have 2 children, neither has T1D, though one had gestational diabetes.

      4 years ago Log in to Reply
    20. Bob Durstenfeld

      I have 3 sons, the oldest has T1D and his oldest daughter has T1D. I have T1D and two out of three brothers have T1D. It is the normal in my family.

      4 years ago Log in to Reply
    21. Juha Kankaanpaa

      I have two children, one has T1D

      4 years ago Log in to Reply
    22. Lyn McQuaid

      My father had T1D and I have it but, thankfully, my children (ages 19 and 15) do not.

      4 years ago Log in to Reply
    23. Senait Isayas

      Both my kids are T1D…my son dx at 2yrs old and then nine months later my daughter got dx at 9month old. We don’t have any T1D or autoimmune disorders on both side of our family. Both are thriving, they’re on Omnipod 5 and Dexcom

      4 years ago Log in to Reply
    24. Carrolyn Barloco

      My father developed T1D in his 40s, I was 30, my sister’s son when he was 13.
      We have three grown children, none with T1D.

      4 years ago Log in to Reply
    25. kflying1@yahoo.com

      My 4 kids are have all been diagnosed as prediabetic, and none of the knuckleheads’ will try to take the steps from becoming a full fledged needle junkie like I am. It’s pretty discouraging.

      1
      4 years ago Log in to Reply
      1. Michelle Noll

        I’ve had T1D since age 5. I have two kids ages 10 and 5, neither have diabetes, yet.

        4 years ago Log in to Reply
    26. Wanacure

      Has any progress been made on finding specific genes that predispose for diabetes? Last I heard no one gene had been identified. With the rise in genealogical research and DNA home tests available, I suggest another question: Have you found ancestors with diabetes?

      4 years ago Log in to Reply
    27. marmcs@yahoo.com

      2 without, I was diagnosed at 30.

      4 years ago Log in to Reply
    28. Jneticdiabetic

      I was diagnosed with T1D at 18, had two children in my 30s (aged 12-13) with my non-diabetic husband. Neither have T1D. My oldest has Celiac. Both have been screened for T1D antibodies under the TrialNet study and were negative. I’ll admit, I still need worry about it. If they complain of thirst, I do a fingerstick BG to be sure.
      My mother has T1D, but was diagnosed many years after me in her 50s. We have several autoimmune conditions on my maternal side.

      4 years ago Log in to Reply

    If you’re a parent, how many of your children have T1D? Feel free to share more about your family’s situation in the comments, and how many other children you have without T1D! Cancel reply

    You must be logged in to post a comment.




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