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  • Activity
    • 3 hours, 17 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 3 hours, 18 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 5 hours, 14 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 5 hours, 30 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 16 hours, 40 minutes ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 20 hours, 29 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 20 hours, 32 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 21 hours, 13 minutes ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 21 hours, 14 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ‘delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 21 hours, 16 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 21 hours, 21 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 21 hours, 22 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 21 hours, 23 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 21 hours, 24 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 21 hours, 24 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 22 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 22 hours, 11 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 22 hours, 23 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 22 hours, 24 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 23 hours, 39 minutes ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 1 hour ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
    Clear All
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    If you’re a parent, how many of your children have T1D? Feel free to share more about your family’s situation in the comments, and how many other children you have without T1D!

    Home > LC Polls > If you’re a parent, how many of your children have T1D? Feel free to share more about your family’s situation in the comments, and how many other children you have without T1D!
    Previous

    For insulin pump users: On average, how often do you take insulin using a different method other than through your pump? (E.g., giving an injection, using inhaled insulin, etc.)

    Next

    If you are a parent of a person with T1D, which best describes your situation? If you have more than one child with T1D, please select all that apply and check back for tomorrow's question!

    Sarah Howard

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    34 Comments

    1. karolinamalecki7@gmail.com

      I dont have children yet. I was diagnosed last year at 26 and my biggest fear is passing this on. Curious if youd do a question about parents with type 1 and how that impacts their children (ie mom with t1D vs dad with t1d and how many kids have it). Thanks for all you do!

      9 months ago Log in to Reply
      1. Jneticdiabetic

        First of all, good job getting through your first year with T1D! 🙂
        Hopefully the responses to this question (with most T1Ds not reporting passing it on to their kids) will be reassuring.
        Scientists are still learning, but this article provides some rough stats on the rates of T1D Moms & Dads passing on T1D to their kids:
        https://www.webmd.com/diabetes/diabetes-type-1-genetics

        9 months ago Log in to Reply
    2. Randi Niemer

      I have three kids in their mid twenties who do NOT have T1D.

      9 months ago Log in to Reply
    3. Dan Riggs

      I have 2 kids and they both have T1D. I only have one other family member on boths sides with T1D, a cousin on my Dad’s side of the family.

      9 months ago Log in to Reply
    4. GLORIA MILLER

      I have one son without diabetes. He is 50 years old. I have T1 but his father does not.

      9 months ago Log in to Reply
    5. Joan McGinnis

      I have one child with T1D. I have 5 siblings, 3 with type 1, and 1 with type 2. Only one of the children other than mine has developed type 1. And none of the grandchildren. No parent with Type 1

      9 months ago Log in to Reply
      1. Joan McGinnis

        None developed before age 18

        9 months ago Log in to Reply
    6. Mig Vascos

      Two children none with T1D. One has T2D bit because was overweight and not exercising. Once she lost 40 pounds , retired from computer work, and began exercising, the problem was resolved.

      9 months ago Log in to Reply
    7. Gary Taylor

      I have T1D, diagnosed at 18. My wife and I have 3 children. The oldest of the three was diagnosed with T1D at the age of 23. She now has two daughters and she will have them screened for T1D often as they grow. (I also have a friend with T1D. Both his father and his son have it. )

      1
      9 months ago Log in to Reply
      1. AnitaS

        I am a little surprised that your daughter has her kids screened for diabetes as I would think she could test their blood sugar occasionally with her blood glucose meter.

        9 months ago Log in to Reply
    8. Kristine Warmecke

      I’m the oldest of 3 sibling’s, the middle child was finally diagnosed at 7 months old with T1D, I was diagnosed at age 11 and the youngest was diagnosed with T2D in his early 20’s. Both my parent’s are now T2D, my Father was just diagnosed several months ago.
      My middle sibling has 3 daughters, the oldest of whom was diagnosed at 23 months old, the youngest is still in a study because her cord blood is antibody positive; she has not been diagnosed yet.

      9 months ago Log in to Reply
    9. Sue Herflicker

      I have 3 boys. My oldest and my youngest are both T1D’s. My middle child has hashimoto disease. I was diagnosed at age 57 LADA .

      9 months ago Log in to Reply
    10. Yaffa Steubinger

      My two kids have one of my autoimmune diseases but 2 of my grandkids got my T1. We’re fun when we all go out to eat together. Food arrives and 3 insulin pens come out. 😉

      9 months ago Log in to Reply
      1. AnitaS

        That is funny about the three insulin pens coming out. I had sort of a similar situation years ago at a Thanksgiving meal. My sister’s boyfriend, my cousin and myself, all of us type 1, brought our syringes at the same time too. LOL

        9 months ago Log in to Reply
    11. Pauline M Reynolds

      I have Type 1, but none of my children have it. However, three of my children have Type 2.

      9 months ago Log in to Reply
      1. Pauline M Reynolds

        That is, three of my five children.

        9 months ago Log in to Reply
    12. Mary Dexter

      My daughter has PCOS. I was diagnosed with LADA at age 48.

      9 months ago Log in to Reply
    13. mbulzomi@optonline.net

      I have two daughters and a son; however, none have T1D or T2D. They range in age 47-42 years old.

      9 months ago Log in to Reply
    14. Sherrie Johnson

      Our daughter developed gestational diabetes in her first pregnancy and then after she delivered it went away no future problems

      9 months ago Log in to Reply
    15. Becky Hertz

      I marked, have children, no diabetes, but my child is not biological so even if they did have diabetes it might skew the results. Biological would have been a good addition to this question.

      9 months ago Log in to Reply
    16. Lori COLLINS

      Type 1 since 1979, one non-diabetic daughter who is now 29. I maintained very tight control w/ multiple daily injections and was delighted to give birth to a healthy 7 pound baby! I think an insulin pump and CGM would make pregnancy very manageable for women today.

      1
      9 months ago Log in to Reply
    17. Kathleen Juzenas

      I have no children but I have 15 nieces and nephews, none of whom have T1d. Out of my 22 great-nieces and great-nephews, however, one has T1d.

      9 months ago Log in to Reply
    18. Steve Rumble

      My wife was also T1D and our daughter had gestational diabetes.

      9 months ago Log in to Reply
    19. Steve Rumble

      I have 2 children, neither has T1D, though one had gestational diabetes.

      9 months ago Log in to Reply
    20. Bob Durstenfeld

      I have 3 sons, the oldest has T1D and his oldest daughter has T1D. I have T1D and two out of three brothers have T1D. It is the normal in my family.

      9 months ago Log in to Reply
    21. Juha Kankaanpaa

      I have two children, one has T1D

      9 months ago Log in to Reply
    22. Lyn McQuaid

      My father had T1D and I have it but, thankfully, my children (ages 19 and 15) do not.

      9 months ago Log in to Reply
    23. Senait Isayas

      Both my kids are T1D…my son dx at 2yrs old and then nine months later my daughter got dx at 9month old. We don’t have any T1D or autoimmune disorders on both side of our family. Both are thriving, they’re on Omnipod 5 and Dexcom

      9 months ago Log in to Reply
    24. Carrolyn Barloco

      My father developed T1D in his 40s, I was 30, my sister’s son when he was 13.
      We have three grown children, none with T1D.

      9 months ago Log in to Reply
    25. kflying1@yahoo.com

      My 4 kids are have all been diagnosed as prediabetic, and none of the knuckleheads’ will try to take the steps from becoming a full fledged needle junkie like I am. It’s pretty discouraging.

      1
      9 months ago Log in to Reply
      1. Michelle Noll

        I’ve had T1D since age 5. I have two kids ages 10 and 5, neither have diabetes, yet.

        9 months ago Log in to Reply
    26. Wanacure

      Has any progress been made on finding specific genes that predispose for diabetes? Last I heard no one gene had been identified. With the rise in genealogical research and DNA home tests available, I suggest another question: Have you found ancestors with diabetes?

      9 months ago Log in to Reply
    27. marmcs@yahoo.com

      2 without, I was diagnosed at 30.

      9 months ago Log in to Reply
    28. Jneticdiabetic

      I was diagnosed with T1D at 18, had two children in my 30s (aged 12-13) with my non-diabetic husband. Neither have T1D. My oldest has Celiac. Both have been screened for T1D antibodies under the TrialNet study and were negative. I’ll admit, I still need worry about it. If they complain of thirst, I do a fingerstick BG to be sure.
      My mother has T1D, but was diagnosed many years after me in her 50s. We have several autoimmune conditions on my maternal side.

      9 months ago Log in to Reply

    If you’re a parent, how many of your children have T1D? Feel free to share more about your family’s situation in the comments, and how many other children you have without T1D! Cancel reply

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