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    • 12 hours, 46 minutes ago
      Greg Felton likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 13 hours, 18 minutes ago
      ConnieT1D62 likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      One time I was explaining that a new pump would be too expensive at the time because my deductible had just started over.. and she asked if I had insurance and I said yes….. then she said “then it should be free with insurance.” 🤦‍♀️ She may know a little about the challenges of living with diabetes, but she knows nothing about how insurance works or how costly T1D supplies are.
    • 13 hours, 36 minutes ago
      Steve Rumble likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 14 hours, 7 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I am an RN. Been going to same doctor for about ten years. Took me six years to train him. I am very well read when it comes to my LADA. He trusts my judgement and gives me excellent parameters to make decisions. Recently had a bad case of Covid. Insulin needs changed dramatically. Getting back to normal but he made sure I had scripts to cover my ups and downs with insulin needs.
    • 14 hours, 8 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Mine acknowledges the struggles and challenges that go along with managing T1D in my daily life. She gives suggestions as to what may or may not help and has often asked me I how I handle situations so she can give suggestions to other T1D patient's.
    • 14 hours, 9 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 14 hours, 34 minutes ago
      Jubin Veera likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      The hard spots are fairly frequent with the pump infusion sets. Especially if I go past 3 days which I try to avoid! I don’t think I ever got one from injections. I try heat and massaging to treat them and they normally go away after a day or so. Once I had a large area that I had to treat with antibiotics.
    • 14 hours, 36 minutes ago
      Magnus Hiis likes your comment at
      Have you experienced any symptoms of physical sexual dysfunction as a result of having diabetes, or having diabetes-related complications?
      I’m 79. My last orgasm was springtime about 3 or 4 years ago. When I complained of ED, my PCP Rxd 3 to 5 (60-100 mg) sildenafil tablets by mouth about one hour prior to sexual activity. This alone hasn’t worked to bring me up to former sexual capacity that I had 10 years years ago. I’m still considering consulting finding a doctor who’ll prescribe a safe but effective way of administering testosterone or an anabolic steroid in a dose low enough to avoid causing cardiovascular problems but high enough to restore normal ability that I had up to my sixties. My present doctors say it can’t be done, but there are doctors who advertise otherwise. Analogs of the hormone insulin can be delivered in small safe doses, why not testosterone?
    • 1 day, 6 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      We are all so very different, and trying to say that all of us with T1 understand what it's like for another who has the same hill to climb is unproductive. Having a health care provider with T1 may often be helpful just because there's apt to be more knowledge about the specifics. How we respond to the disease is such a personal matter, that I really don't think there are any guaranteed benefits beyond the grasp of the factual. Finding a doc with the same general attitude about the disease does feel good, and sometimes that's all I hope for after working hard to make peace with the disease for 70 years. Asking my doc to "get it" used to be almost my mantra, but I've come to realize that the ones who don't just see us as unruly childrenchildren
    • 1 day, 6 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Both my endocrinologist and my nurse practitioner are great. They compliment me on the way I take care of my life and health and make aure I get all the supplies I need managing all the paperwork Medicare and insurance requires. My nurse practitioner who works with me on managing the pump has her own opinion about the pump settings based on her technical knowledge which is different than what I do with my settings based on living with them. She has thru the years learned to respect what I do and is surprised with how my settings work. So we are now at peace. Both very supportive.
    • 1 day, 9 hours ago
      pru barry likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 9 hours ago
      mojoseje likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I said yes but that refers to my nurse practitioner who sees me every other visit, if not more often. The doctor may know how hard I try but perhaps takes my efforts for granted.
    • 1 day, 12 hours ago
      Anneyun likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      How can someone without the disease really understand what it is to live with it? I have never had a doctor with T1D in 60 years.
    • 1 day, 12 hours ago
      Bruce Schnitzler likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 12 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My endo is young, very empathetic, thorough, always asks for my input, and does research. I am blessed too. have him, and the one before for over 25 yrs.
    • 1 day, 12 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 13 hours ago
      lis be likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 1 day, 13 hours ago
      Daniel Bestvater likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 13 hours ago
      TEH likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I have no clue what my T1D health care provider understands about my daily challenges and I don’t know about his daily challenges either. Not sure why I should care as long as I have access to information how to best take care of myself.
    • 1 day, 14 hours ago
      Jeff Marvel likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 14 hours ago
      Richard Wiener likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 2 days, 5 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Hi Connie, I still have my glass syringe and show it off occasionally. We boiled the needle and syringe every morning and sharpened the needle with a file. I was diagnosed at age 6 in 1963. Life is so different now! Then, my diet was extremely limited as was my exercise. Now, I am very active and eat pretty much as I please. I maintain an A1C in the low 6s (6.2 was my last).
    • 2 days, 5 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Connie and Beth, I was diagnosed in Nov 1962, age 10. During the early years I developed lumps and indentations on my upper thighs from my injections. In fact, I was able t o spot other t1 kids in my junior high school based upon the lumps in their upper arms.. (I eventually met up with them and learned that I was correct.) By the time I reached my twenties, these indentations had more or less disappeared, but I still have remnants of the lumps. I wish I could say that the layers of tissue now deposited on my legs disguises them, but they don't. I think the changes in insulin have been responsible for this improvement: the isolation and purification of animal insulins were refined, and then the various human clones were game changers in many ways.
    • 2 days, 5 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Yes in my upper arms when I was a petite and skinny child in the 1960s with T1D. In those days we used glass syringes with stainless steel 1/2 inch long heavy gauge needles. My mother would jab me in the upper arms, it hurt like the dickens, and I developed several hard nodules. I was diagnosed at age 8 in December 1962 and after the initial two months of her jabbing me in the upper arms, I took over giving my own "shots" and started self injecting via site rotation in my thighs for several years. Eventually the lipohypertrophy in my upper arms resolved and I never injected there again until many years later as an adult on MDI using disposable syringes with very short and fine gauge needle tips. Periodically I would give my tired pin cushion thighs a rest and take a break for a few months or a couple of years and rotate injections in my abdomen or upper arms. Have been using a pump for over 20 years now and rarely use MDI unless I am taking a pump break for a short period of time. Happily, I no longer have lumpy sites.
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    If you’re a parent, how many of your children have T1D? Feel free to share more about your family’s situation in the comments, and how many other children you have without T1D!

    Home > LC Polls > If you’re a parent, how many of your children have T1D? Feel free to share more about your family’s situation in the comments, and how many other children you have without T1D!
    Previous

    For insulin pump users: On average, how often do you take insulin using a different method other than through your pump? (E.g., giving an injection, using inhaled insulin, etc.)

    Next

    If you are a parent of a person with T1D, which best describes your situation? If you have more than one child with T1D, please select all that apply and check back for tomorrow's question!

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    34 Comments

    1. karolinamalecki7@gmail.com

      I dont have children yet. I was diagnosed last year at 26 and my biggest fear is passing this on. Curious if youd do a question about parents with type 1 and how that impacts their children (ie mom with t1D vs dad with t1d and how many kids have it). Thanks for all you do!

      1 year ago Log in to Reply
      1. Jneticdiabetic

        First of all, good job getting through your first year with T1D! 🙂
        Hopefully the responses to this question (with most T1Ds not reporting passing it on to their kids) will be reassuring.
        Scientists are still learning, but this article provides some rough stats on the rates of T1D Moms & Dads passing on T1D to their kids:
        https://www.webmd.com/diabetes/diabetes-type-1-genetics

        1 year ago Log in to Reply
    2. Randi Niemer

      I have three kids in their mid twenties who do NOT have T1D.

      1 year ago Log in to Reply
    3. Dan Riggs

      I have 2 kids and they both have T1D. I only have one other family member on boths sides with T1D, a cousin on my Dad’s side of the family.

      1 year ago Log in to Reply
    4. GLORIA MILLER

      I have one son without diabetes. He is 50 years old. I have T1 but his father does not.

      1 year ago Log in to Reply
    5. Joan McGinnis

      I have one child with T1D. I have 5 siblings, 3 with type 1, and 1 with type 2. Only one of the children other than mine has developed type 1. And none of the grandchildren. No parent with Type 1

      1 year ago Log in to Reply
      1. Joan McGinnis

        None developed before age 18

        1 year ago Log in to Reply
    6. Mig Vascos

      Two children none with T1D. One has T2D bit because was overweight and not exercising. Once she lost 40 pounds , retired from computer work, and began exercising, the problem was resolved.

      1 year ago Log in to Reply
    7. Gary Taylor

      I have T1D, diagnosed at 18. My wife and I have 3 children. The oldest of the three was diagnosed with T1D at the age of 23. She now has two daughters and she will have them screened for T1D often as they grow. (I also have a friend with T1D. Both his father and his son have it. )

      1
      1 year ago Log in to Reply
      1. AnitaS

        I am a little surprised that your daughter has her kids screened for diabetes as I would think she could test their blood sugar occasionally with her blood glucose meter.

        1 year ago Log in to Reply
    8. Kristine Warmecke

      I’m the oldest of 3 sibling’s, the middle child was finally diagnosed at 7 months old with T1D, I was diagnosed at age 11 and the youngest was diagnosed with T2D in his early 20’s. Both my parent’s are now T2D, my Father was just diagnosed several months ago.
      My middle sibling has 3 daughters, the oldest of whom was diagnosed at 23 months old, the youngest is still in a study because her cord blood is antibody positive; she has not been diagnosed yet.

      1 year ago Log in to Reply
    9. Sue Herflicker

      I have 3 boys. My oldest and my youngest are both T1D’s. My middle child has hashimoto disease. I was diagnosed at age 57 LADA .

      1 year ago Log in to Reply
    10. Yaffa Steubinger

      My two kids have one of my autoimmune diseases but 2 of my grandkids got my T1. We’re fun when we all go out to eat together. Food arrives and 3 insulin pens come out. 😉

      1 year ago Log in to Reply
      1. AnitaS

        That is funny about the three insulin pens coming out. I had sort of a similar situation years ago at a Thanksgiving meal. My sister’s boyfriend, my cousin and myself, all of us type 1, brought our syringes at the same time too. LOL

        1 year ago Log in to Reply
    11. Pauline M Reynolds

      I have Type 1, but none of my children have it. However, three of my children have Type 2.

      1 year ago Log in to Reply
      1. Pauline M Reynolds

        That is, three of my five children.

        1 year ago Log in to Reply
    12. Mary Dexter

      My daughter has PCOS. I was diagnosed with LADA at age 48.

      1 year ago Log in to Reply
    13. mbulzomi@optonline.net

      I have two daughters and a son; however, none have T1D or T2D. They range in age 47-42 years old.

      1 year ago Log in to Reply
    14. Sherrie Johnson

      Our daughter developed gestational diabetes in her first pregnancy and then after she delivered it went away no future problems

      1 year ago Log in to Reply
    15. Becky Hertz

      I marked, have children, no diabetes, but my child is not biological so even if they did have diabetes it might skew the results. Biological would have been a good addition to this question.

      1 year ago Log in to Reply
    16. Lori COLLINS

      Type 1 since 1979, one non-diabetic daughter who is now 29. I maintained very tight control w/ multiple daily injections and was delighted to give birth to a healthy 7 pound baby! I think an insulin pump and CGM would make pregnancy very manageable for women today.

      1
      1 year ago Log in to Reply
    17. Kathleen Juzenas

      I have no children but I have 15 nieces and nephews, none of whom have T1d. Out of my 22 great-nieces and great-nephews, however, one has T1d.

      1 year ago Log in to Reply
    18. Steve Rumble

      My wife was also T1D and our daughter had gestational diabetes.

      1 year ago Log in to Reply
    19. Steve Rumble

      I have 2 children, neither has T1D, though one had gestational diabetes.

      1 year ago Log in to Reply
    20. Bob Durstenfeld

      I have 3 sons, the oldest has T1D and his oldest daughter has T1D. I have T1D and two out of three brothers have T1D. It is the normal in my family.

      1 year ago Log in to Reply
    21. Juha Kankaanpaa

      I have two children, one has T1D

      1 year ago Log in to Reply
    22. Lyn McQuaid

      My father had T1D and I have it but, thankfully, my children (ages 19 and 15) do not.

      1 year ago Log in to Reply
    23. Senait Isayas

      Both my kids are T1D…my son dx at 2yrs old and then nine months later my daughter got dx at 9month old. We don’t have any T1D or autoimmune disorders on both side of our family. Both are thriving, they’re on Omnipod 5 and Dexcom

      1 year ago Log in to Reply
    24. Carrolyn Barloco

      My father developed T1D in his 40s, I was 30, my sister’s son when he was 13.
      We have three grown children, none with T1D.

      1 year ago Log in to Reply
    25. kflying1@yahoo.com

      My 4 kids are have all been diagnosed as prediabetic, and none of the knuckleheads’ will try to take the steps from becoming a full fledged needle junkie like I am. It’s pretty discouraging.

      1
      1 year ago Log in to Reply
      1. Michelle Noll

        I’ve had T1D since age 5. I have two kids ages 10 and 5, neither have diabetes, yet.

        1 year ago Log in to Reply
    26. Wanacure

      Has any progress been made on finding specific genes that predispose for diabetes? Last I heard no one gene had been identified. With the rise in genealogical research and DNA home tests available, I suggest another question: Have you found ancestors with diabetes?

      1 year ago Log in to Reply
    27. marmcs@yahoo.com

      2 without, I was diagnosed at 30.

      1 year ago Log in to Reply
    28. Jneticdiabetic

      I was diagnosed with T1D at 18, had two children in my 30s (aged 12-13) with my non-diabetic husband. Neither have T1D. My oldest has Celiac. Both have been screened for T1D antibodies under the TrialNet study and were negative. I’ll admit, I still need worry about it. If they complain of thirst, I do a fingerstick BG to be sure.
      My mother has T1D, but was diagnosed many years after me in her 50s. We have several autoimmune conditions on my maternal side.

      1 year ago Log in to Reply

    If you’re a parent, how many of your children have T1D? Feel free to share more about your family’s situation in the comments, and how many other children you have without T1D! Cancel reply

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