If you are a parent of a person with T1D, which best describes your situation? If you have more than one child with T1D, please select all that apply and check back for tomorrow's question!

Activity
- 4 hours, 23 minutes ago
  
  eherban1 likes your comment at
  If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
  All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
- 4 hours, 24 minutes ago
  
  eherban1 likes your comment at
  If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
  Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
- 4 hours, 24 minutes ago
  
  eherban1 likes your comment at
  If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
  as long as it doesn't require immunosuppression, I'm interested
- 12 hours, 49 minutes ago
  
  Karen Newe likes your comment at
  How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
  Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
- 14 hours, 37 minutes ago
  
  KarenM6 likes your comment at
  Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
  None of these. I'm not interested and have not even heard of some of them. The fewer gadgets the better.
- 14 hours, 37 minutes ago
  
  KarenM6 likes your comment at
  Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
  How about “None of the above”?
- 14 hours, 37 minutes ago
  
  KarenM6 likes your comment at
  Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
  None of these
- 20 hours, 30 minutes ago
  
  John Barbuto likes your comment at
  How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
  I agree with Molly. I’m moderately concerned because if I were extremely or very concerned, I just wouldn’t participate. I’m concerned for others who are brave enough to risk their own health for the sake of research and helping others.
- 20 hours, 31 minutes ago
  
  John Barbuto likes your comment at
  How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
  Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
- 1 day ago
  
  lis be likes your comment at
  How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
  Our collective lack of concern about the long term ought to put us at the top of the transplant list.
- 1 day ago
  
  lis be likes your comment at
  How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
  Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
- 1 day ago
  
  lis be likes your comment at
  How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
  Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
- 1 day ago
  
  Natalie Daley likes your comment at
  How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
  Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
- 1 day, 1 hour ago
  
  ChrisW likes your comment at
  Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
  Well the first person in this trial has been insulin-free for over 1-1/2 years and has been feeling fine. All 12 participants in this trial so far are off of insulin. The trial is now going to include people with t-1 diabetes and some kidney damage as this immunosuppressant (tegoprubart) has shown no toxic effects to islet cells or to kidneys. I will keep watching as the trial progresses. This question only asked if we had heard about it. I didn't see the question as an advertisement.
- 1 day, 1 hour ago
  
  ChrisW likes your comment at
  How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
  Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
- 1 day, 1 hour ago
  
  Brian Vodehnal likes your comment at
  How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
  Concern is relative to outcome. Getting a five year reprieve on the daily management of T1D might be worth it.
- 1 day, 2 hours ago
  
  Bonnie kenney likes your comment at
  How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
  Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
- 1 day, 2 hours ago
  
  Bonnie kenney likes your comment at
  How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
  Moderately as this is for others. I don't imagine being offered this myself.
- 1 day, 2 hours ago
  
  Bonnie kenney likes your comment at
  How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
  Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
- 1 day, 3 hours ago
  
  atr likes your comment at
  How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
  Our collective lack of concern about the long term ought to put us at the top of the transplant list.
- 1 day, 3 hours ago
  
  atr likes your comment at
  How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
  Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
- 1 day, 3 hours ago
  
  atr likes your comment at
  How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
  I just love your comments. 😃
- 1 day, 3 hours ago
  
  atr likes your comment at
  How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
  Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
- 1 day, 3 hours ago
  
  Gerald Oefelein likes your comment at
  How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
  Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
- 1 day, 3 hours ago
  
  Gary R. likes your comment at
  How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
  Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
Clear All

If you are a parent of a person with T1D, which best describes your situation? If you have more than one child with T1D, please select all that apply and check back for tomorrow’s question!

If you’re a parent, how many of your children have T1D? Feel free to share more about your family’s situation in the comments, and how many other children you have without T1D!

Sarah Howard

Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

8 Comments

Kristen Clifford

I AM the child with T1D, and I’m 38! LOL.

4 years ago Log in to Reply
DiabetesC

👀

4 years ago Log in to Reply
Lakesha McDonald Kee

I am a parent with T1D and now have a child with T1D.

4 years ago Log in to Reply
Mary Dexter

I am not a child. Diagnosed at age 48.

4 years ago Log in to Reply
Yaffa Steubinger

I don’t have a child with T1 but I passed on my T1 autoimmune gene to two of my grandsons.

4 years ago Log in to Reply
Bob Durstenfeld

I am the grandparent of a child who is four, but was diagnosed at 18 months. Within the first month if DX she was on a Tandem pump with diluted insulin and a Dexcom CGM. THE follow app has been indispensable for our family.

2

4 years ago Log in to Reply
Sue Herflicker

I have 2 T1D son’s diagnosed at age 23 months and 4 years old. Both are now 35 and 27. I was diagnosed LADA at the age of 56. And my brother was diagnosed at age 4 now 57.

4 years ago Log in to Reply
kflying1@yahoo.com

Not yet – though I have 4 children who have been diagnosed as pre-diabetic.

4 years ago Log in to Reply

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Trending News

If you are a parent of a person with T1D, which best describes your situation? If you have more than one child with T1D, please select all that apply and check back for tomorrow’s question!

If you’re a parent, how many of your children have T1D? Feel free to share more about your family’s situation in the comments, and how many other children you have without T1D!

If you have experienced diabetes stigma, in what situations has it happened? (Select all that apply.)

Sarah Howard

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8 Comments

If you are a parent of a person with T1D, which best describes your situation? If you have more than one child with T1D, please select all that apply and check back for tomorrow's question! Cancel reply

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