If you are a parent of a person with T1D, which best describes your situation? If you have more than one child with T1D, please select all that apply and check back for tomorrow's question!

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- 2 hours, 6 minutes ago
  
  Jeremy Hanson likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  And sometimes I dream that I’ve run out of insulin and cannot get prescription refilled.
- 3 hours, 59 minutes ago
  
  ConnieT1D62 likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  I providee an answer of low BG. But with that said, it is usually a false alarm (compression low from Dexcom sensor) With the stable bedtime BG and a TSlim X2 pump using CIQ and Sleep Mode, I consistently sleep between about 85 and 110 every night. The key to this is going to bed with a stable BG (85-110) and not having any IOB.
- 4 hours, 3 minutes ago
  
  ConnieT1D62 likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  While middle-of-the-nght alerts are frustrating and irritating, I'm no longer terrified of dying from an extreme low in the middle of the night, so technology is still a win for me!
- 5 hours, 40 minutes ago
  
  Janis Senungetuk likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  I get a notice of high glucose levels that occurred several hours ago!! WHY?
- 5 hours, 41 minutes ago
  
  Janis Senungetuk likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
- 5 hours, 42 minutes ago
  
  Janis Senungetuk likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
- 5 hours, 43 minutes ago
  
  Janis Senungetuk likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  Yeah. Totally agree! This is totally unnecessary and extremely annoying.
- 5 hours, 43 minutes ago
  
  Janis Senungetuk likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
- 5 hours, 52 minutes ago
  
  KarenM6 likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  I get a notice of high glucose levels that occurred several hours ago!! WHY?
- 5 hours, 53 minutes ago
  
  KarenM6 likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
- 5 hours, 54 minutes ago
  
  KarenM6 likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  Yes, I appreciate device improvements but some are just plain annoying and make a difficult journey Worse, not better. And the main complaint is unnecessary alerts the user cannot adjust.
- 5 hours, 55 minutes ago
  
  KarenM6 likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
- 5 hours, 55 minutes ago
  
  KarenM6 likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  Yeah. Totally agree! This is totally unnecessary and extremely annoying.
- 6 hours ago
  
  Wanacure likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  Why isn't going to the bathroom not on this list?
- 6 hours, 5 minutes ago
  
  Wanacure likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
- 6 hours, 20 minutes ago
  
  TEH likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
- 6 hours, 43 minutes ago
  
  Steven Gill likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  My pump, "I need to BG! I need to BG!" Such a cry baby it is!
- 7 hours, 37 minutes ago
  
  Robin Melen likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  I get a notice of high glucose levels that occurred several hours ago!! WHY?
- 8 hours, 24 minutes ago
  
  Mick Martin likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  I get a notice of high glucose levels that occurred several hours ago!! WHY?
- 8 hours, 26 minutes ago
  
  Mick Martin likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  Yes, I appreciate device improvements but some are just plain annoying and make a difficult journey Worse, not better. And the main complaint is unnecessary alerts the user cannot adjust.
- 8 hours, 51 minutes ago
  
  Anneyun likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
- 9 hours, 33 minutes ago
  
  Sue Martin likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
- 10 hours, 4 minutes ago
  
  T1diabetic likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  I get a notice of high glucose levels that occurred several hours ago!! WHY?
- 10 hours, 5 minutes ago
  
  T1diabetic likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
- 10 hours, 26 minutes ago
  
  Velika Peterson likes your comment at
  Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
  I stopped using those sites and paid more attention to rotation of available ones.
Clear All

If you are a parent of a person with T1D, which best describes your situation? If you have more than one child with T1D, please select all that apply and check back for tomorrow’s question!

If you’re a parent, how many of your children have T1D? Feel free to share more about your family’s situation in the comments, and how many other children you have without T1D!

Sarah Howard

Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

8 Comments

Kristen Clifford

I AM the child with T1D, and I’m 38! LOL.

1 year ago Log in to Reply
DiabetesC

👀

1 year ago Log in to Reply
Lakesha McDonald Kee

I am a parent with T1D and now have a child with T1D.

1 year ago Log in to Reply
Mary Dexter

I am not a child. Diagnosed at age 48.

1 year ago Log in to Reply
Yaffa Steubinger

I don’t have a child with T1 but I passed on my T1 autoimmune gene to two of my grandsons.

1 year ago Log in to Reply
Bob Durstenfeld

I am the grandparent of a child who is four, but was diagnosed at 18 months. Within the first month if DX she was on a Tandem pump with diluted insulin and a Dexcom CGM. THE follow app has been indispensable for our family.

2

1 year ago Log in to Reply
Sue Herflicker

I have 2 T1D son’s diagnosed at age 23 months and 4 years old. Both are now 35 and 27. I was diagnosed LADA at the age of 56. And my brother was diagnosed at age 4 now 57.

1 year ago Log in to Reply
kflying1@yahoo.com

Not yet – though I have 4 children who have been diagnosed as pre-diabetic.

1 year ago Log in to Reply