Subscribe Now

* You will receive the latest news and updates on your favorite celebrities!

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 4 hours, 44 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 4 hours, 45 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 4 hours, 46 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 1 day, 1 hour ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 1 day, 1 hour ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 1 day, 1 hour ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 1 day, 1 hour ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 1 day, 4 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 1 hour ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 2 hours ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 2 hours ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days, 3 hours ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 4 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 5 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 5 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 2 days, 16 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 2 days, 16 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 2 days, 16 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 20 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 2 days, 20 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 3 days, 13 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 3 days, 13 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 3 days, 21 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
    • 3 days, 21 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Hmmm... I'd almost welcome it, another challenge to enjoy?
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • Submit a Question
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Clinics
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
      • Portal
      • Health Equity
        • Heal Advisors
      • Join Us
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partners
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Donate

    If you have gone through menopause (or you expect to in your lifetime), what is one question you have about menopause and T1D? If you have already experienced menopause, what is one thing you wish you had known about menopause and T1D – or an unanswered question you still have? Please write your question in the comments!

    Home > LC Polls > If you have gone through menopause (or you expect to in your lifetime), what is one question you have about menopause and T1D? If you have already experienced menopause, what is one thing you wish you had known about menopause and T1D – or an unanswered question you still have? Please write your question in the comments!
    Previous

    Talking about issues of discrimination because of a person's race or ethnicity can be difficult and experiences based on one's race and ethnicity are very personal. If you identify as a person of color, have you ever felt discriminated against in your T1D care because of your race or ethnicity?

    Next

    For people who use an automated insulin delivery system (e.g., Tandem Control-IQ, Medtronic SmartGuard Auto Mode, Omnipod 5 SmartAdjust, etc.), when you first started using the system, did you notice changes in your blood glucose patterns while adapting to the new system?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

    Related Stories

    Blood Sugar

    How You Can Detect & Delay Type 1 Diabetes Before Symptoms Start 

    Ginger Vieira, 1 day ago 8 min read  
    T2D

    Why Your Heart Health Matters if You Live with Diabetes 

    Ginger Vieira, 1 week ago 5 min read  
    2023 Publications

    Association Between Health Insurance Type and Adverse Outcomes for Children and Young Adults With Type 1 Diabetes and Coronavirus Disease 2019 

    T1D Exchange, 1 week ago 1 min read  
    Meet the Expert

    Meet the Expert: Pursuing Beta-Cell Transplant with Temporary Immunosuppression  

    Jewels Doskicz, 3 weeks ago 6 min read  
    2023 Publications

    Institutional Barriers to the Successful Implementation of Telemedicine for Type 1 Diabetes Care 

    T1D Exchange, 3 weeks ago 1 min read  
    Insulin & Meds

    Perceptions About Nasal Glucagon in Young Adults and Caregivers 

    Caitlin Kelly, 3 weeks ago 6 min read  

    57 Comments

    1. Linda Pease

      Does menopause effect your sugar levels as you go thru it?

      1 year ago Log in to Reply
      1. Jillmarie61

        Yes, quite a bit. And lack of your hormones will play a big part in it. Even with HRT, it’s still not good enough especially when they have to wean you off of pergestrone at some point.

        1 year ago Log in to Reply
    2. M C

      Symptoms of a low BG were not dissimilar to experiencing a hot flash: Had to do more BG testing as I didn’t have a CGM at the time to know which I was actually experiencing.

      2
      1 year ago Log in to Reply
    3. Jillmarie61

      Having a great HgA1c since I first started pumping in 1979-80, then going into menopause when I hit 50, I wish they had told me my basal rate setting would have to go thru a major readjustment and my HgA1c would have gone to hell. None of the Endos I saw told me that. I was accused of purposely not taking care of myself for more than 11-12 years and told it was my fault. To this day I still get quite angry with them and the whole HRT/Diabetes/ control issue that they seem to know nothing about or deny.

      4
      1 year ago Log in to Reply
    4. Mary Dexter

      How to keep from being written off by doctors with the comment “You’re old and fat. “

      5
      1 year ago Log in to Reply
    5. Kristen Clifford

      I haven’t gone through menopause yet, but sometimes I think I might be experiencing perimenopause. (I’m 38.)

      1 year ago Log in to Reply
    6. Eva

      First, I’d like to know how the fluctuations in hormones (estrogen, progesterone’s, etc) affect blood sugar, sleep, and other bodily function.
      Second, I’d like to know what can be done to mitigate any changes related to live an active, healthy life.

      4
      1 year ago Log in to Reply
    7. Patricia Dalrymple

      I was thrown into it about 7 years after my LADA T1D. Had to have a hysterectomy. I remember asking my doctor if he had ever done surgery on a T1D and he laughed and said many. However, in the hospital they about killed me by not knowing what to do with food and insulin. This was before I was on the pump and back in 2009, so I think things are better now. I do not remember relating issues to it. I was just happy not to have a menstrual cycle. My hot flashes were rare.

      1
      1 year ago Log in to Reply
    8. Kathy Hanavan

      I did not experience any major changes unless I got a really bad night sleep. I did use HRT which might have mitigated any effects.

      1
      1 year ago Log in to Reply
    9. Jana Venditte

      No, real concerns. No hot flashes or anything.
      Unknown if being T1D just allowed me to know, somedays are better than others. Just keep going.

      1 year ago Log in to Reply
    10. Shannon Barnaby

      I’m in the transition now. I’d like to know how people managed their blood sugars when their hormones wildly change with seemingly no warning.

      3
      1 year ago Log in to Reply
    11. Karen Taylor

      I had a lot of issues with blood sugar changes. Mainly during the night with extreme lows and at that time I did not have a cgm.

      1
      1 year ago Log in to Reply
    12. Karen Taylor

      However I ended up taking hormones and still do to this day. It has made a world of a difference.

      1 year ago Log in to Reply
    13. Patricia Kilwein

      When going through it all the hot flashes were the worst of it. Had to monitor blood sugars to make sure I wasn’t going into a high. Would often joke about being able to thaw our driveway at -20° while having a hf!

      4
      1 year ago Log in to Reply
    14. Judith Marged

      The one thing I would suggest is to confirm a low prior to taking something for it, especially in the middle of the night. I would wake up sweating, think I had a low, took a glucose tablet, and wake up with a high. There were also times I would go from 40 to 300 and back down to normal without eating or taking any insulin. So, be prepared for anything.

      9
      1 year ago Log in to Reply
    15. Maureen Helinski

      After menopause I did hormone replacement but it still affected my BG’s every month. The way I did the pills was estrogen and only at the end the progesterone so it almost mimicked a regular cycle. After being on a pump a few years I stopped the hormones in order to manage the BG. Then at a late age( late 60’s) I got the hot flashes. Women have a hard time with everything.

      3
      1 year ago Log in to Reply
    16. Mary Boudousquie

      I am post menopausal but still having night sweats. Wish I had known that the lack of sleep that occurs from these sweats does affects my blood sugars making it more difficult to manage.

      3
      1 year ago Log in to Reply
    17. Ms Cris

      I’m more anxious about perimenopause than menopause. My regular PMS days are already crazy, 5-7 days of 20-25% higher basal rate and, higher carb ratios, etc.

      Will the peri- phase be more of that, more often?
      Do nighsweats coincide with insulin resistance?
      So many questions…

      2
      1 year ago Log in to Reply
    18. cynthia jaworski

      No real problems. Hormone fluctuations were no worse than all the years of being brittle. I was not prepared for the weight gain, since I had always been trim. Everyone assumes I am a t2 these days.

      1
      1 year ago Log in to Reply
    19. sayounger@verizon.net

      Do I expect a significant change in my TDI ?

      1 year ago Log in to Reply
    20. Joan Plog

      Became diabetic long after menopause completed

      1 year ago Log in to Reply
    21. Irene Blanchard

      I entered menopause 20 years ago, and do not remember any major problems as a T1D. The insulin delivery system by syringe may not have been the best system during the time; however, my peaks and valleys of blood sugars could have been caused by menopause and not specifically just by the insulins.

      1 year ago Log in to Reply
    22. lis be

      The tough thing for me, in perimenopause, is having no way to predict what will happen when. I will have a week or 2 of blissfully controlled readings, and then a week or 2 where I have to adjust every half hour. During that time, my body seems super sensitive to insulin for a part of the day (shooting me low for the same amount of carbs) and then other times it seems to not notice the insulin at all and shoot me high. I suspect in time researchers will find out that our bodies process carbs/ protein/ fat differently during perimenopause and someone will think to write some general guidelines to help navigate how to dose insulin. I cannot afford the IQ pump, maybe that solves it?
      In general, I feel many doctors are not trained in what happens to all women (in varying degrees) during perimenopause and menopause, and they seem to be especially ignorant of its potential effects on diabetics.

      11
      1 year ago Log in to Reply
    23. Jane Cerullo

      I developed LADA during menopause at 54. So have always been in menopause with T1D. Was diagnosed during routine office visit with DM2 but subsequently LADA. So never had any symptoms. Just woke up one day with an autoimmune disease. I did just graduate from nursing school. Maybe brought on by stress.

      1
      1 year ago Log in to Reply
    24. Chrisanda

      I went through menopause 12 years ago (still get occasional night sweats-ugh!). I did not have any significant issue with my blood sugars. I was on the Tandem pump, but not a CGM. Lucky I guess in that area.

      1 year ago Log in to Reply
    25. Layla Cull

      I went through surgical menopause 10 years ago and have been on hrt patches ever since. I require twice the recommended dose due to absorption issues. Too much abdominal scar tissue from 40+ years of diabetes. I am recovering from thyroid cancer with levothyroxine and liothyronine. This last year and seemingly suddenly I’ve gained 15 pounds of what seems to be all lower abdominal fat and I can’t seem to get it under control. I’ve never weighed this much in my life and my body aches all the time. My diabetes is in great control, A1c 6.2, this last month I’ve started to notice more unexplained super lows and sudden jumps in my sugars when nothing should be causing either. I’ve read a few articles that say the weird blood sugars can be related to menopause. How do you function with mental stability and confidence you’re doing all you can when everything you used to know suddenly goes out the door?

      1 year ago Log in to Reply
    26. Sue Martin

      I went through menopause last year with no typical menopause symptoms. I didn’t notice it made any difference on my blood sugars.

      I received a kidney transplant in Oct 2021. I’ve been getting hot flashes that my doctor said are due to my immunosuppressant medications. Also since I’ve been put on NPH instead of glargine I’ve had trouble balancing my diabetes. The pharmacists have worked with me to adjust my InPen settings but I still get unexpected blood sugars. I still need to figure out how to adjust on the fly still. My CGM said I was in the 40s but the finger stick told me I was nearly 70. I did celebrate it but I was a little discombobulated since I still had 6 units of insulin on board.

      So menopause didn’t affect my T1D but the transplant has.

      1 year ago Log in to Reply
      1. Becky Hertz

        Why did they switch you to NPH? Doesn’t make sense to me, offers less control and more chance for lows from the NPH. I know some HMO’s like putting the tire 2’s on NOH for “cost savings”. Bad medicine if you ask me.

        1 year ago Log in to Reply
    27. GiGi Roark

      My T1D had no effect on my menopausal experience. It happened to me the same way it did for my non T1D mother.

      1 year ago Log in to Reply
    28. Natalie Daley

      I was 48 and realized I hadn’t had a period in months. I was working full time, had three kids, including one who was getting married, other then a few hot flashes — got harmonies for those — didn’t have time for any other crisis. The combination was a problem.

      1 year ago Log in to Reply
    29. Angela Naccari

      I had the most noticeable problems after menopause was completely over. I started to experience sudden very low BS. (I was not on the pump at the time). Endo was no help with this. Ob/gyn was the savior. Put me on low dosage HRT (estrogen and progesterone) and the sudden lows stopped. I stayed on hormones for several years until age 66 when ob/gyn retired and new one would not prescribe HRT. Having hot flashes now but not sudden low BS.

      2
      1 year ago Log in to Reply
      1. kflying1@yahoo.com

        You’re just a precious example of how little the medical industry knows or cares about our disease. Fix a broken bone or crushed organ – the industry is great! Look for the interrelationships between our problems – wait – they are too busy affirming the rights of 8YOs to choose gender through drugs and surgery. How messed up have we become?

        1
        1 year ago Log in to Reply
    30. KCR

      I was finished with menopause before I was diagnosed with T1D and am very grateful for that.

      1
      1 year ago Log in to Reply
    31. Pauline M Reynolds

      I was diagnosed 3 years before menopause, and around menopause was diagnosed with Hashimoto’s thyroiditis. Hormones! What are they all about and how do they interact?

      1
      1 year ago Log in to Reply
    32. Tina Roberts

      I never saw that either one affected the other.

      1 year ago Log in to Reply
    33. Janis Senungetuk

      It’s been a long time, I was 51 when I started on HRT for symptoms very much like low blood sugars. Stopped the HRT two years later without further issues. I want to know why the vast majority of physicians, including specialists, are so totally clueless and dismissive when patients present glucose management problems when experiencing menopause?

      5
      1 year ago Log in to Reply
    34. Becky Hertz

      My menopause was early (familial) and short. I think I had 3 hot flashes. Happened before I had a CGM, no real odd bg issues.

      1 year ago Log in to Reply
    35. Katrina Mundinger

      Hot flashes–have to check my BG to see if I’m low or it’s a hot flash. 😉 (Still on Medtronic CGM so can’t always rely on it.)

      Have used a Mirena IUD since about 2005 and never had periods while on that so I have no idea when “menopause” actually occurred for me. Just had it removed about a month ago and am waiting another day or 2 to see if I have a period or not. I’m probably past it…

      6
      1 year ago Log in to Reply
    36. Randi Niemer

      Wish I knew that night sweats were exactly the same as my low bs sweats!

      3
      1 year ago Log in to Reply
    37. Andrew Carpenter

      Is there such a thing as “Womenopause”? This question wasn’t multiple choice…. As a Man who has been crazy in love with a girlfriend going through menopause. What could I have done to show the right kinda support? When at the time MY blood sugar was way outa wack. Any books to learn from?? To this day, I feel I let her down…

      3
      1 year ago Log in to Reply
    38. kflying1@yahoo.com

      As modern political thought goes, does your question affirm their are no biological differences between XX and XY people? How silly to deny the new medical science!

      1 year ago Log in to Reply
    39. Molly Jones

      Would it be worthwhile, helpful or harmful to have your “youthful” pre menopause hormone levels tested and continue these as lifelong supplements for many purposes: bone health, weight, collagen?
      I have yet to reach menopause, but my mother and her sisters all doubled in weight immediately after menopause and needed help with bones.

      2
      1 year ago Log in to Reply
    40. Tb-well

      As a guy I kind of want to know what it changes with diabetes.

      1 year ago Log in to Reply
    41. Kristine Warmecke

      What, if any, affect will going through menopause have my blood sugars? Since I’ve already gone through chemical induced menopause due to breast cancer and have the chance to go though it again (lucky me) will the affects on my T1D management be same?

      2
      1 year ago Log in to Reply
    42. KarenM6

      I would love _any_ information!
      My PCPs, Endos, and OB/Gyns have given me no information despite me asking over and over and over.
      I’ve had comments like “you won’t need HRT”, “hormonal testing is not necessary”, and “you’re in for a bumpy ride” and “I don’t know”… and, if I ask about how my blood sugars will be affected with all the hormonal changes and hot flashes, they can’t tell me.
      So, menopausal woman get short shrift from OB/Gyns in general… after all, babies are way more fun than hormonally challenged women… But, we do need and deserve proper care and answers to our questions. And then, add T1D on top of it and it’s just like hearing crickets.
      Uh oh… I think I’ve gone all “grumpy cat” for which I apologize… I would just like a doctor to help is all.

      2
      1 year ago Log in to Reply
    43. Alyne Branson

      My one question is “How long will this last?” I realize no one has the answer but premenopause has so many parts that mess with diabetes control. For about 2 yrs now I’ll have me steal cycles for a few months then they’ll stop for a few months. Months I had my period would have a week or two of high blood sugars. I used to have a separate basal rate for the week before my period but now I don’t know if I am going to have my period or if something else is causing the highs. I wake up with hot flash and scan my CGM thinking it’s a low. I don’t sleep well and am tired all the time which adds to less time in range. I’ve been gaining weight while reducing my carb intake drastically. This seems harder to manage than either one of my pregnancies. For me there haven’t been any patterns in blood sugars to address the problem with a change in basal. Just is day by day…just wish I knew the end date.

      4
      1 year ago Log in to Reply
    44. Marsha Miller

      I had absolutely no BG issues at all! Menopause was a breeze for me. It was the same with my mom, so I guess I have good genes! Counting my blessings!

      1 year ago Log in to Reply
    45. Ruth Chapman

      This is the most discussion I’ve seen/heard, despite asking various health professionals over past few years. Thank you ladies! Diagnosed t1 6 years ago and have always experienced wild changes in bg/insulin requirements every few weeks – but sometimes fairly stable for a couple of months, and no patter to the changes. Told it was honeymoon, but still experiencing this now. BG used to drop with monthly cycle which stopped for past few years. And past couple of years I’ve had hot flashes day/night, difficulty sleeping, exhausted, sudden weight gain and an extra layer of fat that won’t budge no matter what I do. Also muscle/joint aches and pains. Tried 2 different hrt options. Symptoms got worse when started the progesterone, so had to stop and no longer on hrt. Told diet and exercise help. I’ve always been pretty active and eaten balanced diet, mainly preparing my own meals from fresh ingredients so when I looked at guidance there was nothing I could change. Any advice on menopause and t1 would be most gratefully received.

      1
      1 year ago Log in to Reply
    46. Cheryl Seibert

      Does menopause affect my insulin sensitivity?
      Does menopause cause more BG fluctuations?
      Does menopause often result in a permanent change in basal patterns?

      1
      1 year ago Log in to Reply
    47. Amy Schneider

      I went through menopause at age 51, which I understand is a good age for a diabetic.

      1 year ago Log in to Reply
    48. PamK

      1) The changes it would cause to my blood sugars and how to regulate this, if possible.
      2) The lack of knowledge in the healthcare community about how menopause effects blood sugar – – I saw both an Endocrine and a Gynecologist and both tried to tell me that menopause should have no affect!

      1
      1 year ago Log in to Reply
    49. Kelly Wilhelm

      I was diagnosed at 49 and was already in menopause due to a complete hysterectomy at 41. So I don’t know the impact of T1 on menopause as it’s all I’ve ever known!

      1 year ago Log in to Reply
    50. Elizabeth T.

      Can menopause be the trigger for onset on T1D?

      1
      1 year ago Log in to Reply
      1. Ruth Chapman

        I’ve also wondered about this.

        1 year ago Log in to Reply
    51. Phyllis Biederman

      Having a cgms at the time would’ve helped me discern hot flashes from low bug’s. Instead it required lots of fingersticks!

      1 year ago Log in to Reply
    52. Faith Stilts

      I had a few hot flashes at first but mainly no problems (my mother was the same), just sad it was over. I always wanted another baby. I know that lows can feel like panic attacks so I always had to check to make sure if I was really low. Does any part of menopause act like that. Hot flashes similar to lows?

      1 year ago Log in to Reply
    53. Patricia H

      The only difficulty I experienced following a hysterectomy at age 50 was the inability to tolerate hormone replacement therapy due to uncontrolled blood sugars at that time.

      1 year ago Log in to Reply

    If you have gone through menopause (or you expect to in your lifetime), what is one question you have about menopause and T1D? If you have already experienced menopause, what is one thing you wish you had known about menopause and T1D – or an unanswered question you still have? Please write your question in the comments! Cancel reply

    You must be logged in to post a comment.

    This site uses Akismet to reduce spam. Learn how your comment data is processed.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2023 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    2019 Publications

    0 Stories Related

    2020 ADA

    10 Stories Related

    2020 ADCES

    0 Stories Related

    2020 ATTD

    0 Stories Related

    2020 EASD

    0 Stories Related

    2020 ISPAD

    7 Stories Related

    2020 Publications

    0 Stories Related

    2021 ADA

    11 Stories Related

    2021 ADCES

    0 Stories Related

    2021 ATTD

    4 Stories Related

    2021 ISPAD

    8 Stories Related

    2021 Publications

    21 Stories Related

    2022 ADA

    11 Stories Related

    2022 ADCES

    4 Stories Related

    2022 ATTD

    10 Stories Related

    2022 ISPAD

    0 Stories Related

    2023 ADA

    12 Stories Related

    2023 ADCES

    2 Stories Related

    2023 ATTD

    7 Stories Related

    2023 Publications

    16 Stories Related

    ADA

    17 Stories Related

    ADCES

    2 Stories Related

    Advocacy

    23 Stories Related

    ATTD

    17 Stories Related

    Blood Sugar

    2 Stories Related

    Conditions

    8 Stories Related

    COVID-19

    6 Stories Related

    EASD

    0 Stories Related

    General Publications

    40 Stories Related

    Get Involved

    11 Stories Related

    Insulin & Meds

    17 Stories Related

    ISPAD

    1 Stories Related

    Journal of Diabetes

    21 Stories Related

    Lifestyle

    15 Stories Related

    Lifestyles

    1 Stories Related

    Meet the Expert

    28 Stories Related

    Mental Health

    12 Stories Related

    News

    35 Stories Related

    Our team

    23 Stories Related

    Partner Content

    7 Stories Related

    Press Release

    7 Stories Related

    Question of the Day

    28 Stories Related

    Research

    73 Stories Related

    Stories

    18 Stories Related

    T2D

    3 Stories Related

    Technology

    26 Stories Related

    Uncategorized

    2 Stories Related

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    • Clear All
    • Sort By

    • Select Category