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    • 1 hour, 13 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo's office.
    • 1 hour, 14 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their "portal." Whether I get a timely response depends on whether there is a reliable nurse to respond.
    • 1 hour, 29 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      When I saw my endo a year ago, I wasn't able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can't get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I'm on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.
    • 1 hour, 30 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      On hold or actually talking about the issue and calling back to ensure someone follow's up as everyone seems to be over their head. Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.
    • 3 hours, 51 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.
    • 11 hours ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 11 hours ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 12 hours, 56 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 13 hours, 12 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day, 7 hours ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
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    Talking about issues of discrimination because of a person’s race or ethnicity can be difficult and experiences based on one’s race and ethnicity are very personal. If you identify as a person of color, have you ever felt discriminated against in your T1D care because of your race or ethnicity?

    Home > LC Polls > Talking about issues of discrimination because of a person's race or ethnicity can be difficult and experiences based on one's race and ethnicity are very personal. If you identify as a person of color, have you ever felt discriminated against in your T1D care because of your race or ethnicity?
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    Sarah Howard

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    11 Comments

    1. GLORIA MILLER

      I am a non-Hispanic white but I have two stepsons who are adopted from Ecuador (Hispanic) that I helped to raise. I’ve witnessed much discrimination against them.

      6 months ago Log in to Reply
    2. Mark Schweim

      Also not race related, but I was ruled by the EEOC as discriminated against by the same employer FOUR TIMES because of my T1D. Each time the EEOC fined the employer but kept the full amount of the fines with me getting absolutely none of it. Got my employment restored 3 of the 4 times, but absolutely no compensation for the income I’d lost due to the employment discrimination.

      Last time Pilgrim’s Pride was found guilty of employment discrimination against me, they told the EEOC that they’d agree to pay the added fines but I had already given them over 1.5 million “reasons to refuse to allow me to return to work for them” and when EEOC told me that, they never said how much I had ended up costing Pilgrim’s Pride in total, but the EEOC DID tell me that Pilgrim’s had paid over 1.5 million in fines for the previous 3 cases of employment discrimination they were found guilty of having committed against me!!!

      1
      6 months ago Log in to Reply
    3. Sherolyn Newell

      Interesting that 85% say non-Hispanic white. Is that because T1D hits a lot more non-Hispanic white people or because other ethnicities do not know about this website?

      1
      6 months ago Log in to Reply
      1. Samantha Robinson

        This is a great question! It is believed that T1D is more common in people who are non-Hispanic white, but the available research actually lumps together people with type 1 diabetes and type 2 diabetes. So, it’s unclear what the prevalence of T1D is by race/ethnicity on a national or international scale. But, we honestly don’t know too many details of the demographics of folks who make up our Online Community. It’s our goal to be a welcoming space for all people with T1D, so we were very interested to know more about these experiences – even if they represent a smaller portion of people in our community.

        2
        6 months ago Log in to Reply
    4. Linda Pease

      As a white person I only in encountered it in one place as a child not as an adult it was brutal experience but it shaped me to be inclusive of different races and abilities I think there are bad apples in all groups so to treat them like they are the bad apples before knowing them makes me a bad apple I have several races in my family and abilities and they are great ppl

      6 months ago Log in to Reply
    5. Mick Martin

      I am White European, but I AM a person of colour [color]. I have pinkish skin, blue-green eyes, brown hair, etc. and HAVE experienced discrimination because of my race/ethnicity. This was due to so-called “Positive Discrimination” which was proscribed in order to fill more positions, within the organisation [organization] with which I worked with more people of “ethnic minorities”.

      As for my Type Diabetes care, I don’t recall ever being discriminated against because of my race/ethnicity.

      6 months ago Log in to Reply
    6. Lawrence S.

      I was not going to respond to this question, because I am white, non-hispanic. But I am deeply discouraged by some of the responses that I have read. Some people openly ignore the facts that our country (and the world) have always discriminated against others because of their race, ethnicity, religion, etc. We are the country that had hundreds of years of slavery, committed genocide against the Native American people, hated the Irish, Italians, Middle Easterners, Hispanics, Jews, Catholics, etc. etc. Yes, racial and ethnic discrimination does occur, and we cannot stick our head in the sand, and say that it does not happen.
      Discrimination happens against people because of their diseases as well.

      6 months ago Log in to Reply
    7. Samantha Robinson

      As we stated in the post and in a previous comment, we understand that issues of discrimination are personal experiences. We do not diminish anyone’s personal feelings or experiences that they have had in their lifetimes about discrimination. However, we want to remind members of our community that sharing their own experiences can be accomplished without minimizing others’ experiences. We want comments to remain on the topic of health care discrimination. And regardless of anyone’s personal experiences, research supports that people in communities of color have faced systemic discrimination because of their race or ethnicity – and that healthcare settings are no exception to a context in which this discrimination can happen.

      We use the term “people of color” as a shorthand to ask about racial and ethnic identity. This comment section is not the appropriate space to argue about the semantics of an imperfect but widely accepted shorthand term. Comments that include arguments about semantics (that is, the meaning of the word ‘color’ and who it applies to) will be removed.

      Diminishing the experiences of others in historically marginalized communities because it is different from your personal lived experiences or arguing about the semantics of a term to put the focus back onto a historically non-marginalized group makes this comment section an unwelcoming place and takes the focus away from our goal of understanding and improving the lives of everyone with T1D.

      3
      6 months ago Log in to Reply
    8. Bea Anderson

      I understand the question, but discrimination as it pertains to a medical setting has far more heads than just our racial backgrounds. A more inclusive question for this group’s interests may have been: Have you ever felt discriminated against for any reason while obtaining your T1 care? Race, sex, age, income, and more. What everyone DOES with their feelings and T1 experiences is the beauty of this place. And I can only imagine some embarrassment to be singled out or excluded on this forum in this way. You have your statistics in hand already. And everyone is personally sensitive for good or bad to our melting pot’s situation. This is only one person’s take on today’s question. I most often love answering these daily questions and appreciate our hosts.

      3
      6 months ago Log in to Reply
      1. Samantha Robinson

        Bea, thank you for your thoughtful comment. We agree that discrimination in healthcare can occur for many reasons and not only race/ethnicity and that it’s important to explore those other areas as well. We have had some similar questions about other areas in the past and we do anticipate having more in the future. Even though these can be sensitive topics, we believe the best way to learn about how specific issues affect our community is to ask.
        We’ve had past questions specifically only apply to some members of our community and not others. Thus we were not expecting to receive the reaction that we did by asking another specific question that only applies to some members with regards to race/ethnicity.

        To your point about statistics, we actually do not have any numbers on the demographic make-up of our Online Community. When people sign up for the Online Community, they have the option to fill out profile details which include their personal connection to T1D, their gender, and their age; however, only about 50% of community members include these details on their profile. So, much of the information we have on our community is gleaned from the community’s response to previous Questions of the Day. There is nothing that we collect in any systematic way that allows us to know the representation of any group – whether that is race/ethnicity, educational attainment, socioeconomic status, or anything else within our Online Community.

        6 months ago Log in to Reply
    9. PamK

      Although I am “White,” I would like to note that I live in an area with a lot of Native Americans and have been mistaken for Native American or Hispanic. My level of care definitely changed in these instances and not for the better. I wish I could do more to change this!

      6 months ago Log in to Reply

    Talking about issues of discrimination because of a person's race or ethnicity can be difficult and experiences based on one's race and ethnicity are very personal. If you identify as a person of color, have you ever felt discriminated against in your T1D care because of your race or ethnicity? Cancel reply

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