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    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 11 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 13 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 19 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 20 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 13 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 14 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 15 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 19 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    If you have ever had extra supplies from a device, you no longer use, what did you do with those extra supplies? (Check all that apply)

    Home > LC Polls > If you have ever had extra supplies from a device, you no longer use, what did you do with those extra supplies? (Check all that apply)
    Previous

    How many people in your immediate family — your parents, siblings, or spouse — live with type one diabetes?

    Next

    If you have ever had extra supplies from a device, you no longer use, what did you do with those extra supplies? (Check all that apply)

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    38 Comments

    1. Molly Jones

      I usually keep them as a backup device is good to have.
      I have donated a device and it’s supplies now that I have a few.
      I have also had to throw away test strips well expired as they are used but not frequently.

      2 years ago Log in to Reply
    2. Lawrence S.

      This question has always interested me because I have always wanted to donate extra supplies from a device I no longer use. However, I am concerned about breaking laws by giving prescription items to others. I’ve always thought that it was illegal to give prescription items to others. I would also be concerned about opening myself to lawsuits if something or someone had problems with something I gave away.

      5
      2 years ago Log in to Reply
    3. Gary Taylor

      Kept some, gave some away, and, after a while, tossed out the old supplies I had kept.

      1
      2 years ago Log in to Reply
    4. Jim Andrews

      With today’s supply chain issues I will continue to hold onto any extra supplies. I have actually paid cash for extra supplies in case of interruptions in supply or delivery.

      2 years ago Log in to Reply
      1. Louise Robinson

        And any of us who are Medicare recipients are wise to lay in a bit of back-up supplies as my experience is that Medicare is very quick with denials and also in granting approvals for any kind of change. They’ve taken longer than anticipated for me and required multiple follow-ups with my DME provider and my endo’s office. Best to anticipate the worst and hope for the best. Our lives depend upon it.

        2 years ago Log in to Reply
    5. Yaffa Steubinger

      I rarely have extra supplies but when I do, I give them to my two grandsons who have T1 diabetes.

      1
      2 years ago Log in to Reply
    6. Patrick Burner

      Local free clinic

      1
      2 years ago Log in to Reply
    7. Sherolyn Newell

      The only extra I have had was G6 over patches when I switched to G7. I gave them to someone using G6.

      2
      2 years ago Log in to Reply
    8. Katrina Mundinger

      Keep them but mostly because I don’t always know the best way to dispose of them!

      2 years ago Log in to Reply
    9. Shelly Smith

      I keep some as a backup until they’re no longer usable; then I throw them away.

      2 years ago Log in to Reply
    10. Jane Cerullo

      Gave to Endo office for someone who can use.

      1
      2 years ago Log in to Reply
    11. Glenda Schuessler

      I give them to my Endo office, though I try not to have extra supplies by ordering only what I anticipate needing.

      2 years ago Log in to Reply
    12. Mike S

      I did donate a bunch of extra test strips once (to endo’s office), but wish I could figure out what to do with old Omnipods. I ended up with 3 extra boxes when they switched me to the new system a few months ago, but none of the usual places want them/can take them. I hate to throw them away knowing how much they cost. (Thankfully I only paid the co-pay, but still it hurts to see them wasted.)

      2
      2 years ago Log in to Reply
      1. Bob Durstenfeld

        Contact insulin pumpers online

        2 years ago Log in to Reply
      2. ChrisW

        I have also been unable to find resources that can accept my extra supplies. The resource mentioned by Bob no longer exists.

        2 years ago Log in to Reply
    13. Jian

      I have a support group for type 1 women only and if someone in our group needs something we let the facilitator know and she keeps track of who might need supplies or have extra. you cannot advertise prescription items online for free or Facebook. may restrict you. so beware of that.

      1
      2 years ago Log in to Reply
    14. Mick Martin

      I’ve personally handed items that I no longer needed to other diabetics that wanted them, and I’ve also handed unwanted products to my local Diabetes Centre [that’s Center, for my American cousins. 😉 ) where they’ve been handed to other diabetic patients.

      2 years ago Log in to Reply
    15. Karen Tay

      I’ve given them to the Endocrinologist office to share with those in need

      1
      2 years ago Log in to Reply
    16. KIMBERELY SMITH

      I am looking for someone

      2 years ago Log in to Reply
      1. Bob Durstenfeld

        Contact insulin pampers on line

        0
        2 years ago Log in to Reply
    17. Louise Robinson

      When I transitioned to Tandem from Medtronic, I kept a one month supply of Metronic cartridges and infusion sets and donated what I had left via my endocrinologist’s office. I recently benefitted from such a donation to them when I was having difficulty with the Tandem XC infusion sets and wanted to try out the Tru-steel and AutoSoft30 sets before initiating any DME order change. My endo’s office had several samples of each with different cannula lengths to let me try. I have since changed from the AutoSoft XC set to the AutoSoft 30 set which is giving me better absorption and lasts the full 3 days. The XC was creating absorption problems on Day 3. I received too many occlusions with the Tru-steel and because of the steel cannula, one needs to be extra careful not to put pressure on the site.

      2 years ago Log in to Reply
    18. TomH

      First and foremost, please don’t trash anything extra you may have! Find an outlet, may not be FDA sanctioned, but someone somewhere can use your extra supplies! I’ve built up a small backup from replacements for my own use (CGM sensors/pods that went bad). However, I’d tried Lyumjev (didn’t work out) plus had a couple of extra glucose meters, test strips, lancets, and carriers that I donated to an org intended for help to Ukraine. Hopefully, it helps kids/adults in need. I served in the military overseas and saw directly how great the need can be, both peace and war environments. If you have extra, please find an outlet for insulin, meters, test strips, et al…whether here at home or overseas…please don’t trash the stuff!

      1
      2 years ago Log in to Reply
    19. Gerald Oefelein

      When transitioned from MiniMed to the t:slim x2, I donated my remaining MiniMed supplies to an organization in North Carolina: CR3 Diabetes Association. https://cr3diabetes.org

      2 years ago Log in to Reply
    20. Jennifer Wilson

      Combination. If applicable, I kept a little as backup. If I had a large quantity, I gave most to my endocrinologist’s office to distribute to patients where possible.

      2 years ago Log in to Reply
    21. Kristi Warmecke

      I’ve given them to T1D friends and family that use them; donated some things to a medical mission group; shared with others in the T1D woman’s group I’m a part of.

      2 years ago Log in to Reply
    22. Joindy23

      I recently changed the insulin supplies I’m using (my choice). I donated all unopened boxes of syringes I no longer use to a charity called “Insulin For Life”. Glad to do it !

      2 years ago Log in to Reply
    23. Cynthia Schneider

      Gave them to my endocrinologist

      2 years ago Log in to Reply
    24. Janis Senungetuk

      I’ve donated supplies that were sent to the Ukraine thru Insulin for Life, donated boxes of glucose test strips and loads of lancets to a local Senior Care service organization and most recently shipped all of my Animus Vibe pump supplies to a Facebook contact who uses them for cortisone infusion. I had originally asked my Diabetes Educator if she could accept extra DME supplies for patients in need. She told me the HMO wouldn’t allow her to do that, very sad.

      2 years ago Log in to Reply
    25. Carol Meares

      Gave them to my Endo

      2 years ago Log in to Reply
    26. Brad Larson

      Through my T1D social network, found someone in NoCal that could use my pump supplies.

      2 years ago Log in to Reply
    27. Becky Hertz

      Have to my endos office

      2 years ago Log in to Reply
    28. Bea Anderson

      When switching to a new device/company, I use up any remaining supplies that go with the previous device. Just makes sense, even if I’m in a hurry to try the new thing.

      2 years ago Log in to Reply
    29. Anita Stokar

      I donated to friends, kept some for myself and donated to a diabetes organization: syringes, blood test strips, lancets, insulin, blood glucose meters

      2 years ago Log in to Reply
    30. Jeff Balbirnie

      The meters ceased to function entirely, their strips stopped being manufactured, or were “unusable” out of date. The lockbox and eventually the trash… found a bunch of OLD meters… unsure what’ll happen to them yet. The huge Ames is my “favorite”…

      2 years ago Log in to Reply
    31. Steven Gill

      While I’ve offered to fried and people I don’t know, I’ll not let anything go to waste. Aware of expiration on pens and insulin but make a point everything gets used.

      2 years ago Log in to Reply
    32. T1D4LongTime

      Donated them to my endo in case someone needed an emergency supply or for training purposes.

      2 years ago Log in to Reply
    33. Steve Rumble

      I recently switched from Dexcom G6 to G7 and still have a supply of G6 components. I am not sure how I feel about the G7, primarily due to the VERY frequent loss of signal! Happened occasionally with the G6 but not nearly as frequently as I experience now.

      2 years ago Log in to Reply
    34. PamK

      To clarify: I kept them for a year or two, just in case, and then donated them to an organization that helps T1Ds in underprivileged countries.

      2 years ago Log in to Reply

    If you have ever had extra supplies from a device, you no longer use, what did you do with those extra supplies? (Check all that apply) Cancel reply

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