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    • 2 hours, 29 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 2 hours, 31 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 2 hours, 32 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 2 hours, 32 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 2 hours, 41 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 4 hours, 33 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 4 hours, 34 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 4 hours, 36 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 8 hours, 36 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 10 hours, 38 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 11 hours, 20 minutes ago
      Anita Stokar likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 11 hours, 24 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 11 hours, 48 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 11 hours, 48 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 11 hours, 48 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 11 hours, 49 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 11 hours, 50 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 11 hours, 53 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 11 hours, 54 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 11 hours, 57 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 11 hours, 57 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 12 hours, 10 minutes ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 12 hours, 23 minutes ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 12 hours, 39 minutes ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
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    If you have ever had extra supplies from a device, you no longer use, what did you do with those extra supplies? (Check all that apply)

    Home > LC Polls > If you have ever had extra supplies from a device, you no longer use, what did you do with those extra supplies? (Check all that apply)
    Previous

    How many people in your immediate family — your parents, siblings, or spouse — live with type one diabetes?

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    If you have ever had extra supplies from a device, you no longer use, what did you do with those extra supplies? (Check all that apply)

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    38 Comments

    1. Molly Jones

      I usually keep them as a backup device is good to have.
      I have donated a device and it’s supplies now that I have a few.
      I have also had to throw away test strips well expired as they are used but not frequently.

      2 years ago Log in to Reply
    2. Lawrence S.

      This question has always interested me because I have always wanted to donate extra supplies from a device I no longer use. However, I am concerned about breaking laws by giving prescription items to others. I’ve always thought that it was illegal to give prescription items to others. I would also be concerned about opening myself to lawsuits if something or someone had problems with something I gave away.

      5
      2 years ago Log in to Reply
    3. Gary Taylor

      Kept some, gave some away, and, after a while, tossed out the old supplies I had kept.

      1
      2 years ago Log in to Reply
    4. Jim Andrews

      With today’s supply chain issues I will continue to hold onto any extra supplies. I have actually paid cash for extra supplies in case of interruptions in supply or delivery.

      2 years ago Log in to Reply
      1. Louise Robinson

        And any of us who are Medicare recipients are wise to lay in a bit of back-up supplies as my experience is that Medicare is very quick with denials and also in granting approvals for any kind of change. They’ve taken longer than anticipated for me and required multiple follow-ups with my DME provider and my endo’s office. Best to anticipate the worst and hope for the best. Our lives depend upon it.

        2 years ago Log in to Reply
    5. Yaffa Steubinger

      I rarely have extra supplies but when I do, I give them to my two grandsons who have T1 diabetes.

      1
      2 years ago Log in to Reply
    6. Patrick Burner

      Local free clinic

      1
      2 years ago Log in to Reply
    7. Sherolyn Newell

      The only extra I have had was G6 over patches when I switched to G7. I gave them to someone using G6.

      2
      2 years ago Log in to Reply
    8. Katrina Mundinger

      Keep them but mostly because I don’t always know the best way to dispose of them!

      2 years ago Log in to Reply
    9. Shelly Smith

      I keep some as a backup until they’re no longer usable; then I throw them away.

      2 years ago Log in to Reply
    10. Jane Cerullo

      Gave to Endo office for someone who can use.

      1
      2 years ago Log in to Reply
    11. Glenda Schuessler

      I give them to my Endo office, though I try not to have extra supplies by ordering only what I anticipate needing.

      2 years ago Log in to Reply
    12. Mike S

      I did donate a bunch of extra test strips once (to endo’s office), but wish I could figure out what to do with old Omnipods. I ended up with 3 extra boxes when they switched me to the new system a few months ago, but none of the usual places want them/can take them. I hate to throw them away knowing how much they cost. (Thankfully I only paid the co-pay, but still it hurts to see them wasted.)

      2
      2 years ago Log in to Reply
      1. Bob Durstenfeld

        Contact insulin pumpers online

        2 years ago Log in to Reply
      2. ChrisW

        I have also been unable to find resources that can accept my extra supplies. The resource mentioned by Bob no longer exists.

        2 years ago Log in to Reply
    13. Jian

      I have a support group for type 1 women only and if someone in our group needs something we let the facilitator know and she keeps track of who might need supplies or have extra. you cannot advertise prescription items online for free or Facebook. may restrict you. so beware of that.

      1
      2 years ago Log in to Reply
    14. Mick Martin

      I’ve personally handed items that I no longer needed to other diabetics that wanted them, and I’ve also handed unwanted products to my local Diabetes Centre [that’s Center, for my American cousins. 😉 ) where they’ve been handed to other diabetic patients.

      2 years ago Log in to Reply
    15. Karen Tay

      I’ve given them to the Endocrinologist office to share with those in need

      1
      2 years ago Log in to Reply
    16. KIMBERELY SMITH

      I am looking for someone

      2 years ago Log in to Reply
      1. Bob Durstenfeld

        Contact insulin pampers on line

        0
        2 years ago Log in to Reply
    17. Louise Robinson

      When I transitioned to Tandem from Medtronic, I kept a one month supply of Metronic cartridges and infusion sets and donated what I had left via my endocrinologist’s office. I recently benefitted from such a donation to them when I was having difficulty with the Tandem XC infusion sets and wanted to try out the Tru-steel and AutoSoft30 sets before initiating any DME order change. My endo’s office had several samples of each with different cannula lengths to let me try. I have since changed from the AutoSoft XC set to the AutoSoft 30 set which is giving me better absorption and lasts the full 3 days. The XC was creating absorption problems on Day 3. I received too many occlusions with the Tru-steel and because of the steel cannula, one needs to be extra careful not to put pressure on the site.

      2 years ago Log in to Reply
    18. TomH

      First and foremost, please don’t trash anything extra you may have! Find an outlet, may not be FDA sanctioned, but someone somewhere can use your extra supplies! I’ve built up a small backup from replacements for my own use (CGM sensors/pods that went bad). However, I’d tried Lyumjev (didn’t work out) plus had a couple of extra glucose meters, test strips, lancets, and carriers that I donated to an org intended for help to Ukraine. Hopefully, it helps kids/adults in need. I served in the military overseas and saw directly how great the need can be, both peace and war environments. If you have extra, please find an outlet for insulin, meters, test strips, et al…whether here at home or overseas…please don’t trash the stuff!

      1
      2 years ago Log in to Reply
    19. Gerald Oefelein

      When transitioned from MiniMed to the t:slim x2, I donated my remaining MiniMed supplies to an organization in North Carolina: CR3 Diabetes Association. https://cr3diabetes.org

      2 years ago Log in to Reply
    20. Jennifer Wilson

      Combination. If applicable, I kept a little as backup. If I had a large quantity, I gave most to my endocrinologist’s office to distribute to patients where possible.

      2 years ago Log in to Reply
    21. Kristi Warmecke

      I’ve given them to T1D friends and family that use them; donated some things to a medical mission group; shared with others in the T1D woman’s group I’m a part of.

      2 years ago Log in to Reply
    22. Joindy23

      I recently changed the insulin supplies I’m using (my choice). I donated all unopened boxes of syringes I no longer use to a charity called “Insulin For Life”. Glad to do it !

      2 years ago Log in to Reply
    23. Cynthia Schneider

      Gave them to my endocrinologist

      2 years ago Log in to Reply
    24. Janis Senungetuk

      I’ve donated supplies that were sent to the Ukraine thru Insulin for Life, donated boxes of glucose test strips and loads of lancets to a local Senior Care service organization and most recently shipped all of my Animus Vibe pump supplies to a Facebook contact who uses them for cortisone infusion. I had originally asked my Diabetes Educator if she could accept extra DME supplies for patients in need. She told me the HMO wouldn’t allow her to do that, very sad.

      2 years ago Log in to Reply
    25. Carol Meares

      Gave them to my Endo

      2 years ago Log in to Reply
    26. Brad Larson

      Through my T1D social network, found someone in NoCal that could use my pump supplies.

      2 years ago Log in to Reply
    27. Becky Hertz

      Have to my endos office

      2 years ago Log in to Reply
    28. Bea Anderson

      When switching to a new device/company, I use up any remaining supplies that go with the previous device. Just makes sense, even if I’m in a hurry to try the new thing.

      2 years ago Log in to Reply
    29. Anita Stokar

      I donated to friends, kept some for myself and donated to a diabetes organization: syringes, blood test strips, lancets, insulin, blood glucose meters

      2 years ago Log in to Reply
    30. Jeff Balbirnie

      The meters ceased to function entirely, their strips stopped being manufactured, or were “unusable” out of date. The lockbox and eventually the trash… found a bunch of OLD meters… unsure what’ll happen to them yet. The huge Ames is my “favorite”…

      2 years ago Log in to Reply
    31. Steven Gill

      While I’ve offered to fried and people I don’t know, I’ll not let anything go to waste. Aware of expiration on pens and insulin but make a point everything gets used.

      2 years ago Log in to Reply
    32. T1D4LongTime

      Donated them to my endo in case someone needed an emergency supply or for training purposes.

      2 years ago Log in to Reply
    33. Steve Rumble

      I recently switched from Dexcom G6 to G7 and still have a supply of G6 components. I am not sure how I feel about the G7, primarily due to the VERY frequent loss of signal! Happened occasionally with the G6 but not nearly as frequently as I experience now.

      2 years ago Log in to Reply
    34. PamK

      To clarify: I kept them for a year or two, just in case, and then donated them to an organization that helps T1Ds in underprivileged countries.

      2 years ago Log in to Reply

    If you have ever had extra supplies from a device, you no longer use, what did you do with those extra supplies? (Check all that apply) Cancel reply

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