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    • 3 hours, 5 minutes ago
      KSannie likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      **cannula
    • 9 hours, 23 minutes ago
      Kathleen Juzenas likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I find a using the T-Connect app I have the main features needed, CMG, bolus, battery level and remaining insulin.
    • 10 hours, 15 minutes ago
      Kathy Hanavan likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 13 hours, 16 minutes ago
      TEH likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 13 hours, 17 minutes ago
      TEH likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 13 hours, 25 minutes ago
      atr likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 13 hours, 27 minutes ago
      atr likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 13 hours, 39 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      Mostly pump because I want to quickly see insulin on board. Tandem on IPhone when holding my great-niece while she sleeps since getting my pump out of my pocket always wakes her ☺️. Dexcom app if not in need of insulin.
    • 13 hours, 39 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      usually the pump; sometimes my phone.
    • 13 hours, 39 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump (Tandem X2). Since I have to carry a work phone close to 247, I don't want to deal with two phones (device overload!). As I go about my day, looking at my pump meets my needs, I can decide to bolus etc - and edit the bolus. For more in depth data review and analysis, I use the TConnect.
    • 13 hours, 40 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I read it from my pump.
    • 13 hours, 40 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      On my insulin pump
    • 13 hours, 40 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump. Keep it simple.
    • 13 hours, 42 minutes ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      Do you realize what you have just said: "Obscurantism, gobbledegook, and pointillism used not as an art form but as a 'Gotcha!' of legal/financial determinism?"
    • 13 hours, 44 minutes ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      How much of this is intentionally misleading? My mail order prescription service says that can’t possibly know the cost of a medication until after it’s been shipped, which is too late to cancel or return, of course, and makes it impossible to comparison shop.
    • 13 hours, 45 minutes ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      I have an MA in writing and lit, but gobbledegook is gobbledegook. The fancy term is obscurantism.
    • 13 hours, 46 minutes ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 14 hours, 1 minute ago
      Lawrence S. likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 1 day, 11 hours ago
      Sarah Berry likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump
    • 1 day, 12 hours ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      One nice thing about a watch for readings is that, while it is normally redundant, you can be separated from your phone. For example, when you are in water.
    • 1 day, 12 hours ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    • 1 day, 13 hours ago
      Kathy Hanavan likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I selected “other” because my preference (smart watch, mobile phone, or pump screen) depends on circumstances. Watch for a quick and discrete view; pump if I’m preparing for a profile or activity adjustment or bolus, mobile phone if just a food bolus.
    • 1 day, 13 hours ago
      John Barbuto likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    • 1 day, 14 hours ago
      Gerald Oefelein likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    • 1 day, 14 hours ago
      Laurie B likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I’m curious about the reasoning behind using a dedicated reader. Could someone please enlighten me?
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    How many people in your immediate family — your parents, siblings, or spouse — live with type one diabetes?

    Home > LC Polls > How many people in your immediate family — your parents, siblings, or spouse — live with type one diabetes?
    Previous

    How many people in your family — grandparents, aunts, uncles, cousins, parents, siblings, spouse, etc. — live with type 2 diabetes? Share who in the comments!

    Next

    If you have ever had extra supplies from a device, you no longer use, what did you do with those extra supplies? (Check all that apply)

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    " At T1D Exchange, we’re proud to announce our Medical and Research Advisory Team — an accomplished group of leaders in endocrinology, research, and quality improvement. Together, they are redefining what’s possible in type 1 diabetes (T1D) care through rigorous data analysis, innovative research approaches, and real-world implementation. Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. T1DX-QI is a remarkable resource for centers that are using continuous process improvement to improve the quality of care for people living with diabetes.”  “Diabetes centers working with T1DX –QI have done amazing work using QI methodology to make care accessible and equitable for all people with diabetes,” she said. “It’s inspiring to be a part of a collaborative in which centers have been creative and thoughtful with initiatives to address individual and systemic challenges to care, improving clinical outcomes as well as the patient experience."  Looking ahead, Dr. Sherr highlighted the opportunity to build on the existing strong foundation. “I’m very excited to be working as a Medical Advisor for T1D Exchange,” she said. “It’s a privilege to help shape what comes next for a group that’s already doing such impactful work.”  “Sharing what’s happening in clinical practice, benchmarking across centers, and understanding outcomes is how we figure out what’s working, what’s not, and where we go next,” she said.      The future of T1D care   With this team’s vision and expertise, T1D Exchange is positioned to accelerate progress in T1D care — bridging research and real-world practice to drive meaningful, measurable impact.  Together, we look forward to advancing innovation and improving outcomes for everyone affected by type 1 diabetes.   "

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    23 Comments

    1. Molly Jones

      I am the only one with T1D, but 75% of my immediate family have autoimmune issues.

      2
      2 years ago Log in to Reply
      1. Lawrence S.

        My reply is the same as yours, Molly.

        2 years ago Log in to Reply
    2. mlettinga

      My younger brother and I have type 1. I was diagnosed at 8 and was 5. I do have several 2nd cousins from my mom side who do also.

      2 years ago Log in to Reply
    3. Gary Taylor

      Myself and my oldest daughter. I was 18 when diagnosed. She was 23 when diagnosed.

      2 years ago Log in to Reply
    4. KIMBERELY SMITH

      Step dad passed away from Type 2 Dietetic

      2 years ago Log in to Reply
    5. Alyne Branson

      I am adopted and have always told doctors, etc. that when asked if anyone in my family has type 1. Now I have 2 children and neither have it. I just found out that the daughter of my birth father (biological 1/2 sister) has had type 1 since she was 6 yrs old.

      2 years ago Log in to Reply
    6. Brian Vodehnal

      Honestly anyone living with you , you’re the only one, lives with diabetes. Kinda vague on the “living” term.

      3
      2 years ago Log in to Reply
    7. Tanya Levchuk

      My older half brother and I both have type 1. He was diagnosed at 12 and I was at 8.

      2 years ago Log in to Reply
    8. Nichole Pleisch

      Myself, a parent and my fiancé

      2 years ago Log in to Reply
    9. Bob Durstenfeld

      My dad was the first, then me, then two of my younger siblings, then my eldest son, then his eldest daughter. All of us were diagnosed under age 2.

      2 years ago Log in to Reply
    10. Donal Conway

      Two cousins on my Mothers side have T1 since their before and after their teenage years. A few more developed T2 on the same side of the family. I was the first diabetes T1 diagnosed 53 years ago in my family. None of my children or Grandchildren so far have fortunately escaped the condition. I preach the gospel that there are a lot worse conditions out there that some people are unfortunately been discovered with? Diabetes is a very manageable condition to get. I am trying to prove that in a very positive and visible way.

      2 years ago Log in to Reply
    11. Mick Martin

      I selected “I am the only one in my family who lives with T1D”, which is true, but I did have a younger brother, also T1D, that died a couple of years ago.

      Other members of my extended family, two cousins, also have T1D, and 2 of my siblings have T2D.

      2 years ago Log in to Reply
    12. Carol Meares

      To be clear. My sister and I both have LADA. I put 2, counting myself.

      2 years ago Log in to Reply
    13. Lyn McQuaid

      My father is the only other person in my family with type one diabetes and we were both diagnosed right around the same age. We were both in our early 20s but when he was diagnosed in the early 1960’s, he was misdiagnosed as type two because of his age. Fortunately, when I was diagnosed in 1993, I was diagnosed correctly immediately, perhaps because of my father.

      2 years ago Log in to Reply
    14. Pauline M Reynolds

      I am the only one with Type I, but Type 2 has had its way with us. My husband, and four out of five children have/had Type 2!

      2 years ago Log in to Reply
    15. Kristen Clifford

      Pretty sure this one has been asked before

      2 years ago Log in to Reply
    16. Natalie Daley

      Live or lived? My older brother was T1D and died 13 years ago at age 67. I’m 77 and 4.5 years younger than he was, but I became T1D 17 years later than he did at age 23. I was 40.

      2 years ago Log in to Reply
    17. Lenora Ventura

      I chose I am the only one living with T1D but my dad had T1D for 40 years before a heart attack ended his journey. We had 15 years together as moral support which I greatly miss.

      2 years ago Log in to Reply
    18. Twinniepoo74

      My niece and I. I was diagnosed 1 year before my niece was diagnosed.

      2 years ago Log in to Reply
    19. Bruce Johnson

      My younger sister⁷

      2 years ago Log in to Reply
    20. Rex Franklin

      I’m the only T1D in my immediate family.

      2 years ago Log in to Reply
    21. Steve Rumble

      I answered 1 because my spouse was T1D, however she died of cancer 3 years ago, so now no one in my immediate family is T1D.

      2 years ago Log in to Reply
    22. PamK

      I wish I could have answered “Other,” but chose 1 other person. One of my parents has LADA and was diagnosed after I have had lived with T1D for over 20 years.

      2 years ago Log in to Reply

    How many people in your immediate family — your parents, siblings, or spouse — live with type one diabetes? Cancel reply

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