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    • 7 hours, 39 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 7 hours, 39 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 8 hours, 55 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 8 hours, 55 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 8 hours, 56 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 8 hours, 57 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 8 hours, 57 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 8 hours, 58 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 8 hours, 59 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 8 hours, 59 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 11 hours ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 11 hours, 38 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 11 hours, 39 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 12 hours, 22 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 12 hours, 44 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 13 hours, 7 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 13 hours, 8 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 13 hours, 8 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 13 hours, 23 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 14 hours, 24 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 14 hours, 25 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 5 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 1 day, 5 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 1 day, 5 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 11 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
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    How many people in your immediate family — your parents, siblings, or spouse — live with type one diabetes?

    Home > LC Polls > How many people in your immediate family — your parents, siblings, or spouse — live with type one diabetes?
    Previous

    How many people in your family — grandparents, aunts, uncles, cousins, parents, siblings, spouse, etc. — live with type 2 diabetes? Share who in the comments!

    Next

    If you have ever had extra supplies from a device, you no longer use, what did you do with those extra supplies? (Check all that apply)

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    23 Comments

    1. Molly Jones

      I am the only one with T1D, but 75% of my immediate family have autoimmune issues.

      2
      2 years ago Log in to Reply
      1. Lawrence S.

        My reply is the same as yours, Molly.

        2 years ago Log in to Reply
    2. mlettinga

      My younger brother and I have type 1. I was diagnosed at 8 and was 5. I do have several 2nd cousins from my mom side who do also.

      2 years ago Log in to Reply
    3. Gary Taylor

      Myself and my oldest daughter. I was 18 when diagnosed. She was 23 when diagnosed.

      2 years ago Log in to Reply
    4. KIMBERELY SMITH

      Step dad passed away from Type 2 Dietetic

      2 years ago Log in to Reply
    5. Alyne Branson

      I am adopted and have always told doctors, etc. that when asked if anyone in my family has type 1. Now I have 2 children and neither have it. I just found out that the daughter of my birth father (biological 1/2 sister) has had type 1 since she was 6 yrs old.

      2 years ago Log in to Reply
    6. Brian Vodehnal

      Honestly anyone living with you , you’re the only one, lives with diabetes. Kinda vague on the “living” term.

      3
      2 years ago Log in to Reply
    7. Tanya Levchuk

      My older half brother and I both have type 1. He was diagnosed at 12 and I was at 8.

      2 years ago Log in to Reply
    8. Nichole Pleisch

      Myself, a parent and my fiancé

      2 years ago Log in to Reply
    9. Bob Durstenfeld

      My dad was the first, then me, then two of my younger siblings, then my eldest son, then his eldest daughter. All of us were diagnosed under age 2.

      2 years ago Log in to Reply
    10. Donal Conway

      Two cousins on my Mothers side have T1 since their before and after their teenage years. A few more developed T2 on the same side of the family. I was the first diabetes T1 diagnosed 53 years ago in my family. None of my children or Grandchildren so far have fortunately escaped the condition. I preach the gospel that there are a lot worse conditions out there that some people are unfortunately been discovered with? Diabetes is a very manageable condition to get. I am trying to prove that in a very positive and visible way.

      2 years ago Log in to Reply
    11. Mick Martin

      I selected “I am the only one in my family who lives with T1D”, which is true, but I did have a younger brother, also T1D, that died a couple of years ago.

      Other members of my extended family, two cousins, also have T1D, and 2 of my siblings have T2D.

      2 years ago Log in to Reply
    12. Carol Meares

      To be clear. My sister and I both have LADA. I put 2, counting myself.

      2 years ago Log in to Reply
    13. Lyn McQuaid

      My father is the only other person in my family with type one diabetes and we were both diagnosed right around the same age. We were both in our early 20s but when he was diagnosed in the early 1960’s, he was misdiagnosed as type two because of his age. Fortunately, when I was diagnosed in 1993, I was diagnosed correctly immediately, perhaps because of my father.

      2 years ago Log in to Reply
    14. Pauline M Reynolds

      I am the only one with Type I, but Type 2 has had its way with us. My husband, and four out of five children have/had Type 2!

      2 years ago Log in to Reply
    15. Kristen Clifford

      Pretty sure this one has been asked before

      2 years ago Log in to Reply
    16. Natalie Daley

      Live or lived? My older brother was T1D and died 13 years ago at age 67. I’m 77 and 4.5 years younger than he was, but I became T1D 17 years later than he did at age 23. I was 40.

      2 years ago Log in to Reply
    17. Lenora Ventura

      I chose I am the only one living with T1D but my dad had T1D for 40 years before a heart attack ended his journey. We had 15 years together as moral support which I greatly miss.

      2 years ago Log in to Reply
    18. Twinniepoo74

      My niece and I. I was diagnosed 1 year before my niece was diagnosed.

      2 years ago Log in to Reply
    19. Bruce Johnson

      My younger sister⁷

      2 years ago Log in to Reply
    20. Rex Franklin

      I’m the only T1D in my immediate family.

      2 years ago Log in to Reply
    21. Steve Rumble

      I answered 1 because my spouse was T1D, however she died of cancer 3 years ago, so now no one in my immediate family is T1D.

      2 years ago Log in to Reply
    22. PamK

      I wish I could have answered “Other,” but chose 1 other person. One of my parents has LADA and was diagnosed after I have had lived with T1D for over 20 years.

      2 years ago Log in to Reply

    How many people in your immediate family — your parents, siblings, or spouse — live with type one diabetes? Cancel reply

    You must be logged in to post a comment.




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