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    • 2 hours, 2 minutes ago
      ConnieT1D62 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 2 hours, 44 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I always bring extra infusion sets and CGM sensors in case of accidental tear out. With Tandem pump, a charger is also essential. I forgot mine in my last weekend away. I use a Dexcom G6, so don't need to finger stick, but always bring my meter & strips just in case, and extra lancets as sometimes my non-diabetic family members like me to check their BG. I always take a vial and syringes in case of pump failure. For overnight trips also bring juice boxes/ glucose tabs and glucagon in case for lows. Hard to travel light as a T1D, especially with those GIANT Dexcom sensor inserters! 🧳🧳🧳
    • 3 hours ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 3 hours ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Just did this and brought almost all of these things. Didn’t think to pack an extra transmitter tho. But, did have 3 ways of administering insulin, plus CGM and regular meter. So, I knew I was good. I choose “loaner pump” too but really it’s an old pump that still works. I actually had to use it the week before my trip for a pump failure emergency, so glad I have it.
    • 3 hours, 16 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Having been a Boy Scout when I was young taught me to be prepared for anything. I tend to over pack for everything. So, I pack just about everything listed. However, I never considered taking one of my old insulin pumps. I'll consider it. But for a 7 day trip, I'm not sure. I guess it depend upon where I'm going.
    • 3 hours, 17 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 3 hours, 17 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Ughhh the extra CGM sensor is the worst. It takes up an unnecessarily large amount of space.
    • 3 hours, 19 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      It is WAY TOO MUCH stuff to be prepared away from home. Generally, half my suitcase. And even more stuff if it is a two-week trip. You missed snacks and glucose tabs.
    • 4 hours, 39 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 4 hours, 39 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Ughhh the extra CGM sensor is the worst. It takes up an unnecessarily large amount of space.
    • 4 hours, 41 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I'm really surprised at the low percentages of people that take extra supplies. We don't carry an extra pump and haven't used one long enough to have old extras. But even though we are, in general, very light packers, we always make sure we have extra D-supplies, in case a sensor fails or is ripped off, a bottle of insulin gets damaged, etc. But it also depends on WHERE we are going. On an overseas trip of any length we'd always take an extra transmitter. But we'd be unlikely to take one on a domestic trip unless we were going for several weeks. We always take pens even on an overnight trip ever since my husband flew to NYC on a day trip with some buddies, his pump failed, he had not brought pens for back-up and his BG soared! I see the burden of carrying extra supplies as the price to pay for insurance that nothing will actually fail.
    • 4 hours, 42 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Glucose tabs and snacks.
    • 4 hours, 42 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I take twice as much pods, CGM supplies as I know I will need. It is a pain to carry all that junk but necessary. We never know when a pod or sensor will fail. I also take syringes just in case my pump fails which it never has in the almost three decades I have used one. I also carry a few Baqsimi just in case I have a severe low. I carry more insulin than I know I will need since I broke a bottle once when overseas and almost ran out on another foreign trip.
    • 4 hours, 43 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      A while back I went to the UK for a choir tour. I had just acquired a CGM, a G4 Platinum, specifically as a safety measure for the trip. I don't bring second meter any more, but this was before the Dexcom was trusted for bolusing, so I was still meter-dependent and felt I needed an extra just in case. As it turned out I DID need it, but not for myself. There was another, newly dx'd, T1 on the trip and she lost her meter when she left her bag on the bus or some such. So I was able to come to the rescue. It was possible to buy a replacement of course but European/Brit ones are calibrated in moles rather than mL so that was still a glitch--she used mine for the remainder of the trip.
    • 4 hours, 43 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Just did this and brought almost all of these things. Didn’t think to pack an extra transmitter tho. But, did have 3 ways of administering insulin, plus CGM and regular meter. So, I knew I was good. I choose “loaner pump” too but really it’s an old pump that still works. I actually had to use it the week before my trip for a pump failure emergency, so glad I have it.
    • 4 hours, 45 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      It is WAY TOO MUCH stuff to be prepared away from home. Generally, half my suitcase. And even more stuff if it is a two-week trip. You missed snacks and glucose tabs.
    • 7 hours, 41 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Skin prep pads.
    • 7 hours, 41 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Glucose tabs and snacks.
    • 7 hours, 42 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Additional (i.e. beyond what I usually carry with me) glucose tablets and a dose of Baqsimi.
    • 7 hours, 42 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 8 hours, 28 minutes ago
      Flo Bachrach likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I take twice as much pods, CGM supplies as I know I will need. It is a pain to carry all that junk but necessary. We never know when a pod or sensor will fail. I also take syringes just in case my pump fails which it never has in the almost three decades I have used one. I also carry a few Baqsimi just in case I have a severe low. I carry more insulin than I know I will need since I broke a bottle once when overseas and almost ran out on another foreign trip.
    • 8 hours, 56 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Having been a Boy Scout when I was young taught me to be prepared for anything. I tend to over pack for everything. So, I pack just about everything listed. However, I never considered taking one of my old insulin pumps. I'll consider it. But for a 7 day trip, I'm not sure. I guess it depend upon where I'm going.
    • 8 hours, 57 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 8 hours, 58 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I agree that it depends on where the trip is. My decision point is how long would it take to get replacement supplies and what are the effects of a delay. I’m MDI Tresiba which lasts >24 hours, which significantly reduces the urgency to replace background insulin. For NYC, I brought nothing extra. For my trip to a third world country- I brought one, and only one, extra of each supply including a CGM receiver. Dexcom wasn’t available where I went and I worried if something happened to my phone, I wouldn’t be able to download the software if I bought a replacement phone.
    • 8 hours, 58 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I'm really surprised at the low percentages of people that take extra supplies. We don't carry an extra pump and haven't used one long enough to have old extras. But even though we are, in general, very light packers, we always make sure we have extra D-supplies, in case a sensor fails or is ripped off, a bottle of insulin gets damaged, etc. But it also depends on WHERE we are going. On an overseas trip of any length we'd always take an extra transmitter. But we'd be unlikely to take one on a domestic trip unless we were going for several weeks. We always take pens even on an overnight trip ever since my husband flew to NYC on a day trip with some buddies, his pump failed, he had not brought pens for back-up and his BG soared! I see the burden of carrying extra supplies as the price to pay for insurance that nothing will actually fail.
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    Have you ever used any therapies in addition to insulin delivered under the skin? For example, inhaled insulin, type 2 diabetes drugs, etc. Tell us about your experience in the comments!

    Home > LC Polls > Have you ever used any therapies in addition to insulin delivered under the skin? For example, inhaled insulin, type 2 diabetes drugs, etc. Tell us about your experience in the comments!
    Previous

    For people who use an automated insulin delivery system (e.g., Tandem Control-IQ, Medtronic SmartGuard Auto Mode, Omnipod 5 SmartAdjust, etc.), when you first started using the system, did you notice changes in your blood glucose patterns while adapting to the new system?

    Next

    For insulin pump users: If you were to spend 4 hours away from home but still in your local area (e.g., an afternoon of running errands around town, or going out for dinner and a movie), would you bring a backup insulin delivery method, such as supplies for a pump site change, an insulin pen, syringes, etc.?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    63 Comments

    1. ConnieT1D62

      I have been on very low dose of Victoza for several years. For me it works better than Symlin (aka amylin, the other beta cell hormone) to control emotional stress eating patterns and has helped me to maintain BMI within what is normal for my petite height and bone structure. Victoza does not cause unpredictable hypoglycemia like Symlin did when I was on it.

      1
      10 months ago Log in to Reply
      1. elsa.kaminsky@gmail.com

        This reminds me of another thing that baffles me, that researchers from T1DExchange can hopefully help our community understand: How is Symlin approved for T1 by the FDA, while Victoza/Ozempic are not? Aren’t these all GLP-1 RAs? Symlin has a much less user friendly duration of action and the requirement that it be taken with meals feels like a big step backwards when we have modern insulins and delivery systems like pumps that allow us to live our lives on our own schedules instead of eating only three meals per day. Is it true that someone on an FDA review panel freaked out about the possibility of increased hypoglycemia in T1 on these drugs? To me, that makes no sense. I had a higher A1c, higher insulin needs, and frequent unpredictable hyperglycemic excursions without Victoza or Ozempic, and I had a lot more hypos without these meds because I had to give so much more insulin for corrections. It also boggles the mind to see the package inserts on these drugs say that they have never been studied for use with insulin, when they clearly have been: There are many published studies in T1. I would love to hear from anyone who knows more about this—particularly given that P&T committees at PBMs and other entities use package inserts and FDA approvals as justification for their decisions, which dictate our access to prescription medications.

        1
        10 months ago Log in to Reply
      2. Ms Cris

        I too was on Victorza, off label, low dose with great success…and then is started inducing severe gastroparesis. I was so upset, both my endocrinologist and gastroenterologist tries to make it work, but i had to stop. Symlin does ok, better than nothing.

        10 months ago Log in to Reply
    2. Molly Jones

      I chose No as I was incorrectly diagnosed with T2 and don’t remember what pills I used with no effect on my blood glucose for approximately two months.
      I have not been prescribed anything besides insulin delivered subcutaneously for this condition.

      10 months ago Log in to Reply
    3. gary rind

      have been using Metformin for a long time. sugars ran wild overnight which may have been caused by taking Lantus 1x per day in the morning.
      was using Trulicity for a while but that didn’t do anything.

      10 months ago Log in to Reply
    4. Patricia Dalrymple

      I too chose No but was misdiagnosed as T2 and was on pills for less than a year and told my doctor I needed insulin. That’s when I went to a specialist. Found one taking new patients after going through 3 rejections. It was a long time ago, 2000, but I think it was something like glyburide.

      10 months ago Log in to Reply
    5. Kevin McCue

      I currently use Afrezza in addition to T-slim pump with CIQ. Doc wants me to bolus with the Afrezza and rebolus to cover meals. It usually works well as the onset is quick but the falloff is quick, requiring additional meds to finish the meal spike.

      10 months ago Log in to Reply
    6. Lyn McQuaid

      My answer is no but I am interested in getting some inhalable insulin to use for times such as pump failures or miscalculations of policies that result in extra high blood sugar.

      10 months ago Log in to Reply
      1. Lyn McQuaid

        That should have read “miscalculation of boluses “. I am dictating to Siri and apparently she does not know the word boluses! 🙂

        3
        10 months ago Log in to Reply
    7. Janice Bohn

      Only when 1st misdiagnosed as T2. I Was prescribed Metformin which did nothing for me

      10 months ago Log in to Reply
    8. Valentina Potempa

      I was using Afrezza ( inhaled insulin) and loved it! Unfortunately, I developed asthma like symptoms when using it and had to stop the therapy.

      10 months ago Log in to Reply
      1. Judith Marged

        Sorry to hear that you can no longer take Afrezza. I have been on it for several years with great control. My asthmatic like symptoms were caused by the metacresol in Tresiba, Toujeo, and Levemir. The only ‘long-acting/intermediate-acting’ I can take is Novolin or Humulin N.

        10 months ago Log in to Reply
      2. Wanacure

        Metacresol! I’m gonna have to google that. Find out why it’s put in pharmaceuticals if harmful to humans. (This question in response to Judith’s comment.)

        10 months ago Log in to Reply
    9. Patricia Kilwein

      Was on Tresiba for a long-acting insulin. Still taking metformin.

      10 months ago Log in to Reply
    10. Carolann Hunt

      Can’t use inhaled insulin due to asthma

      10 months ago Log in to Reply
    11. AnitaS

      No, but I want to get Afrezza. My insurance won’t cover it but I may get help from my physicians assistant who specializes in diabetes in getting a reduced prescription for out-of-pocket-cost. I have an appt. with her tomorrow.

      1
      10 months ago Log in to Reply
      1. Susanne Bagley

        Call Afrezza direct–they authorized a great deal with a mail order pharmacy in Florida that made it affordable. I love it for bringing high BS down quickly.

        1
        10 months ago Log in to Reply
    12. Richard Vaughn

      I was diagnosed in 1945, but I was then diagnosed with insulin resistance in 1998. Many type 1 diabetics have some insulin resistance. I had gained a lot of weight after stating Humalog in the late 1990s. I had used animal insulins prio to that time. I used Avandia that caused some weight oss. Then I started Metformin in 2010. I then lost all the weight I had gained. I am not overweight now, and the insulin resistance is under control.

      2
      10 months ago Log in to Reply
      1. sweet charlie

        how old were you in 1945, at the start???

        10 months ago Log in to Reply
    13. Kathy Hanavan

      I tried Afrezza and really liked how quickly it worked to bring down highs, but if I used it for meals, I tended to get low quickly so stopped using it.

      1
      10 months ago Log in to Reply
      1. Wanacure

        Sheesh! I use lispro (Humalog brand) as pre-meal bonus, and I get a too-quick-low, if time is longer than 15’ from time of bolus to time I start eating. So I usually prepare meals first (which can take 20’ to 50’), then I inject.

        10 months ago Log in to Reply
    14. KCR

      Afrezza is great for resolving high BGs!

      2
      10 months ago Log in to Reply
    15. Louise Robinson

      After retiring to Florida 20 years ago, I was letting my PCP handle my Type 1 diabetes (dx’d in 1976) because the closest endocrinologist was over 1 hour’s drive away. As my control began to slip (higher A1c’s) and my incidence of serious hypoglycemia episodes increased, his solution was to tell me to reduce/eliminate my NovoLog and increase my Lantus dosage. He also prescribed Avandia for me. After 2 weeks of taking Avandia and having even more serious hypoglycemic events, I advised him I would no longer take it. I never felt comfortable with his approach to my diabetes as it made no sense to me but deferred to his being a doctor. I remained under his care until 2010, despite my continued misgivings. In 2010, my husband I were on vacation in Idaho, I was hospitalized there with a severe hypo episode. After returning home from an aborted vacation, this PCP advised me to keep on doing what he’d told me. At that point, I realized that he would kill me if I continued under his care and self-referred to an endo in Tampa, about 75 minutes drive away. That endo re-educated me about insulin to carb ratios and reduced my Lantus dosage by 25%. My PCP was either too arrogant to recognize that treating my diabetes was beyond his capabilities or too ignorant. Within 6 months under the new endo’s care I transitioned from MDI to an insulin pump. I had resisted pumping for years. I also found myself a new PCP.
      Bottom line, I’ve learned to trust my gut. Not all doctors know what they are doing.

      5
      10 months ago Log in to Reply
      1. William Bennett

        I had similar problems for years under PCP care. “You’re doing fine let’s not change anything.” Kept me on R/NPH (aka the “Eat Now or DIE” regimen) for 20 years, long after analog insulin and carb counting were standard of care. When I finally got a referral to Joslin, the endo said “Yeah, you’re not doing too bad considering your regimen doesn’t make any goaddamned sense.” Put me on Lantus-Novolog and carb-counting classes and my life changed.

        3
        10 months ago Log in to Reply
    16. Amy Jo

      Took an oral agent very briefly when I was in the process of being diagnosed. Don’t even remember which one, maybe glyburide or glipizide.

      10 months ago Log in to Reply
    17. Natalie Daley

      After five years on a Draconian diet, my A1C was 12 something. I tried Diabinase, which did nothing and was then placed on 70/30 insulin, which I used until I saw an endocrinologist and started on a regimen of slow and rapid insulins.

      10 months ago Log in to Reply
    18. Erin Cassidy

      Was taking Victoza and now I’m on Ozempic in addition to my Omnipod pump. It’s been so helpful with keeping highs level and curbing my appetite. I’ve been able to lose weight because of it.

      10 months ago Log in to Reply
    19. Amanda Barras

      Metformin, but struggled to remember my morning dose and only marginally helped. Ozempic caused too many gastro-intestinal issues.

      10 months ago Log in to Reply
      1. Wanacure

        Metformin seems to be a very popular supplement even among people who have no diabetes diagnosis. Some people claim it helps establish their circadian rhythm…they claim they fall asleep faster and sleep more soundly and awaken fresh, well-rested. And I notice (e.g., from some PBS doctor shows) that it’s often suggested for pre-diabetics. I’ve not tried it due to possible side effect of causing irritable bowel.

        10 months ago Log in to Reply
    20. Ms Cris

      Tried Victoza to help with hunger associated with lack of amylin production. Worked great, but after 8 months it induced severe Gastroparesis and I had to stop.

      Now on Symlin, which more directly replaces amylin. Works grear for mealtimes, need less insulin, feel satiated. But once it wears off (~2hours), all the hunger comes back. So it’s still a struggle.

      Been on metformin for a few years now, I find it helps my basal rates stay more consistent throughout the day. I still have 5 programmed rate changes per day, but the differences between those rates were reduced.

      I’m also on LDN (but I have several other autoimmunes it’s helping.) This, too, reduced the crazy basal rates throughout the day. It blunts carb cravings, but not hunger. I sleep more soundly.

      10 months ago Log in to Reply
      1. Wanacure

        Cravings? Yeah, I get those from time to time. It’s not easy kicking carbohydrate addiction. But adding more fat and vegetables to each meal helped me. Stuff like pure peanut butter and tahini and almond butter (non-hydrogenated, no sugars or other stuff added) and walnuts, Brazil nuts, cashews, hazel nuts, sunflower seeds, pumpkin seeds (pepitas), almonds, butter, cream, full fat plain unsweetened yoghurt, avocados. Got a craving? Try a couple of ounces of raw turnip, raw rutabaga, raw cabbage, celery, jicama. Jicama tastes sweet but is very high fiber and very low net grams carbohydrate. Caution: adding more fats to your diet while cutting carbs may require increasing your long-acting insulin, and decreasing the fast-acting. So keep a close eye on those blood-glucose levels and let your family and your diabetes team know what you’re up to. Pump users might need to adjust their programs.

        10 months ago Log in to Reply
      2. Ms Cris

        Hi Wanacure, yes I follow a keto-ish diet, but also do not tolerate nut butters- at all- nor most legumes like peanuts. I tolerate walnuts, which is great. Chickpeas if with EVOO or in authentic hummus. Roots? Forget most of them for me! Most are not low carb enough for me, even with fat. Trust me, I’ve experimented, A LOT. We’re all different, plus I have other autoimmunes I manage with diet. It’s complicated, but I appreciate your input!

        10 months ago Log in to Reply
    21. William Bennett

      Metformin at night, since back when I was on MDI and couldn’t get a grip on Dawn Phenomenon. Pump pretty much takes care of DP now, but still taking it because it helps absorption generally. More recently, Jardiance, which has had a huge effect on attenuating excursions, both high and low.

      10 months ago Log in to Reply
    22. Denise Carter

      T1 X 51 yrs, had insulin resistance and weight gain. Started on Ozempic, a T2 drug. Insulin use dropped 40% and I dropped 45 pounds.

      10 months ago Log in to Reply
    23. Sue Martin

      When I was first diagnosed in 1985 I was on oral medicines. They stopped working about 9 months later and I was taught how to administer insulin.

      1
      10 months ago Log in to Reply
      1. Wanacure

        I wonder how many people have had a similar experience? I think it’s very misleading to give pre-diabetics and Type 2s the impression that just increasing their oral pills will enable them to indefinitely continue their typical developed-country over indulgence in sugary hydrogenated pastries, cookies, pies, icings, sauces, dressings, soft drinks, etc. Do we eat to live? Or live to eat?

        10 months ago Log in to Reply
    24. Bob Bowen

      Tried Metformin and Tirzepatide for weight loss, but no effect. Used Ozempic and had some weight loss, but switched insurance and is not covered, so had to stop.

      10 months ago Log in to Reply
    25. Donna Brownley

      Used Trulicity for a while and loved that I could lower my insulin intake and I lost weight. I had to stop using it when I went on my Tandem tslim because I guess it messes with the algorithm.

      10 months ago Log in to Reply
    26. Maureen Helinski

      Yes I used Symlin and I liked it. I stopped when I started C IQ on the Tandem pump so it wouldn’t interfere with calculations.

      10 months ago Log in to Reply
    27. Jim Cobbe

      Ten years or so ago, my endo had me use Symlin as part of a clinical trial in addition to insulin. It did not help me and I did not continue with it after the trial.

      10 months ago Log in to Reply
    28. Pauline M Reynolds

      I was initially diagnosed Type 2 and took oral meds which seemed to work until they didn’t. Then diagnosed as LADA after C peptide test.

      10 months ago Log in to Reply
    29. Tom Caesar

      First diagnosed as T1 as a teenager and a few years later saw a new Dr who couldn’t believe it and he put me on metformin for 2 months but discontinued insulin. Naturally that didn’t work and returned to insulin therapy. 20 years later another Dr added metformin thinking it would break down my insulin resistance but didn’t work any. Thank goodness for insulin! Wouldn’t still be here without it….

      2
      10 months ago Log in to Reply
    30. Bob Durstenfeld

      I have used Symlin, but Medicare does not cover it. I currently also use Metformin, Acarbose and Jardiance (SLGT-2L). I have developed insulin resistance after 60+ years with T1D and the Type 2 drugs help to keep my dose down to prevent weight gain.

      10 months ago Log in to Reply
    31. Sherrie Johnson

      Over the last 61 years I’ve been on probably every type of insulin. Ever since being on the pump and using fast acting regular I have been about 20 pounds heavier. In looking at many of your comments I’m going to ask the doctor about additional medication‘s to use seems like lots of you have had success with Met Forman. My A-1 C is are always in the 5.5 range. I need a low carb diet not very much of an appetite but still have the extra pounds. Having to do out of body chemistry does have its challenges.

      1
      10 months ago Log in to Reply
    32. Jeffrey Joseph

      I’m currently on Ozempic for weight loss, 10lbs down with unpleasant GI effects but appetite suppression.

      10 months ago Log in to Reply
    33. Susanne Bagley

      I use Afrezza when blood sugars go high. I use one of the 4 unit packages (about 2 units for me) & it brings my blood sugar down in less than 1 hour. LOVE IT!

      2
      10 months ago Log in to Reply
    34. Becky Hertz

      I’ve used Victoza, a GLP-1, in the past for insulin resistance. May be going on an SGLT-2 for my kidney.

      10 months ago Log in to Reply
    35. kristina blake

      I’m following this. I’d love to try Ozempic to get rid of about 15 extra lbs. My Endo says no – for some reason he thinks I will go into DKA – as if I am stupid enough to stop insulin? FYI, I barely eat at all, only when I am at my bg target (80).

      1
      10 months ago Log in to Reply
    36. kflying1@yahoo.com

      When I was first DXd with Diabetes14 years ago, the doctor wanted me on insulin right away, Knowing that would cost me my class 2 FAA medical, I opted to try to fight it with T2 oral drugs. After less than a year later,, having dropped from 180 pds to 110 I gave up and got grounded.

      1
      10 months ago Log in to Reply
      1. mbulzomi@optonline.net

        As a former FAA Inspector, the FAA now will allow a T2, under tight control, certified by your doctor to maintain a Private Certificate. Type III medical only. Contact your local Flight surgeon.

        2
        10 months ago Log in to Reply
    37. Sharon Gerdik

      I started using Ozempic last September to see if it would help with insulin resistance and it did. I was able to adjust basal rates and carb ratios in addition to losing weight.

      1
      10 months ago Log in to Reply
    38. Sandra Norman

      I just started on Trulicity a month ago to help lose weight, it has worked with making me feel full after a small meal, lost 5 lbs. so far. I also use Afrezza occasionally for stubborn highs and am on Tandem CIQ pump, everything is working well together.

      1
      10 months ago Log in to Reply
    39. Henry Renn

      Only for a short time many years ago. T2 had been added to my T1 dx. The drug did help even out response to insulin but then the FDA revoked approval.

      10 months ago Log in to Reply
    40. mbulzomi@optonline.net

      At least 20 years ago I was involved in a Mankind Inhaled insulin test. Us pumpers were pick because we had experience in charting. We were not allowed to Bolus, but we kept our current Basels. Mankind only had three fixed Inhaled does, 5, 10, 25-unit equivalent. We all had to have our lungs tested prior to and after testing was over. The Inhaled Insulin testing went on for a month. Needless to say, the stuff was a failure. Some of the partisan’s did have some minor lung problems. Very hard to control with limited doses that may be too weak or strong too.

      10 months ago Log in to Reply
      1. AnitaS

        Definitely seems like the origins of afrezza.

        10 months ago Log in to Reply
    41. Jennifer Edmiston

      I have been taking Invokana for about 8 years with positive results. I also take Ozempic and use Afrezza. All three are crucial tools in managing my diabetes. I’ve been able to get tighter control and stay in range over 85% of the time.

      10 months ago Log in to Reply
    42. sweet charlie

      Around 1960, at age 28, after about 7 years on the animal insulin [doing fine] my Doctor gave me some new pill to also take to see if helped.. We saw no difference, then after a few weeks, it was taken off market… I do not know what it was??

      10 months ago Log in to Reply
    43. Kelly Wilhelm

      My doc put me on Ozempic and it’s been fantastic!

      10 months ago Log in to Reply
    44. Kim Murphy

      I have in the I past but it didn’t help anything so considering it could cause bladder cancer I didn’t stay on it for very long.

      10 months ago Log in to Reply
    45. elsa.kaminsky@gmail.com

      Yes! I am type 1 and lean (lowest BMI without being considered underweight) but incredibly insulin resistant. I have a PCOS diagnosis, which may be relevant. I was first prescribed liraglutude (and titrated up to 1.8) by an endocrinologist and diabetes researcher after spending years with huge swings that no amount of pump settings changes by my previous endos helped with. Metformin did not help. I tried taking no “type 2” drugs when insurance refused to pay, and my issues returned, leading to a small eye bleed. I am upset that many doctors are unaware that 2 out of the 3 mechanisms by which GLP-1 drugs are believed to work in diabetes are applicable to type 1 diabetics who have no detectable C-peptide levels. I now take 0.5mg Ozempic and am pleased with the control. I am very worried as I contemplate pregnancy, knowing that I have to stop this medication before TTC. I am also petrified that I will not be able to obtain this medication affordably in the future due to PBM formulary changes, and the price of these meds in the US. My doctors see the CGM numbers with and without GLP-1 meds in my case and the difference is night and day. It is so disruptive to be forced to start and stop them by insurance.

      1
      10 months ago Log in to Reply
    46. Lenora Ventura

      I used the first commercially available inhaled insulin – don’t remember the name. It was bulky as all get out & was short lived. Tried Metformin for my insulin resistance but it left me with terrible stomach discomfort so it didn’t last long. Successfully taking Rybelsus and now ready to try Mounjaro! Have been able to reduce my daily insulin by 40% and have lost 30 lbs in the past 5 months!!

      10 months ago Log in to Reply
    47. Donna Condi

      Not at the same time. But I was misdiagnosed as T2 and put on T2 drugs until I asked to go on insulin because the drugs were not controlling my blood glucose.

      10 months ago Log in to Reply
    48. karolinamalecki7@gmail.com

      Answered no, but am super intrigued about inhaled insulin. I am going to ask about it at my next appointment!

      10 months ago Log in to Reply

    Have you ever used any therapies in addition to insulin delivered under the skin? For example, inhaled insulin, type 2 diabetes drugs, etc. Tell us about your experience in the comments! Cancel reply

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