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    • 12 hours, 34 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 12 hours, 37 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 12 hours, 37 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 12 hours, 38 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 12 hours, 46 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 14 hours, 39 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 14 hours, 39 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 14 hours, 41 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 18 hours, 42 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 20 hours, 44 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 21 hours, 26 minutes ago
      Anita Stokar likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 21 hours, 30 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 21 hours, 53 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 21 hours, 54 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 21 hours, 54 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 21 hours, 55 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 21 hours, 56 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 21 hours, 59 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 22 hours, 2 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 22 hours, 3 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 22 hours, 16 minutes ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 22 hours, 29 minutes ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 22 hours, 45 minutes ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 10 hours ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
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    If you live with autoimmune disease other than T1D, which were you diagnosed with first, T1D or your other autoimmune disease? Share in the comment what your other autoimmune disease is if you have one!

    Home > LC Polls > If you live with autoimmune disease other than T1D, which were you diagnosed with first, T1D or your other autoimmune disease? Share in the comment what your other autoimmune disease is if you have one!
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    If you have moved away from your T1D care provider, how challenging was it to find a new T1D care provider who was accepting new patients?

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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    54 Comments

    1. Leigh French

      Giant cell arteritis

      3 years ago Log in to Reply
    2. Robin Melen

      Systemic lupus erythematosus

      3 years ago Log in to Reply
    3. Shannon Barnaby

      Celiac, hypothyroidism

      3 years ago Log in to Reply
    4. Pauline M Reynolds

      Hashimoto’s thyroiditis diagnosed about five years after T1D. Polymyalgia Rheumatica about 15 years after T1D. Enteropathic arthritis 25 yrs after T1D.

      3 years ago Log in to Reply
    5. Eva

      hypothyroidism – 20 years after T1D diagnoses

      3 years ago Log in to Reply
    6. Kelly Steiner

      Hashimotos

      3 years ago Log in to Reply
    7. Phyllis Lewis

      Thyroid disease

      3 years ago Log in to Reply
    8. Amanda Barras

      1988 – T1
      2001 – Hypothyroidism

      3 years ago Log in to Reply
    9. Jneticdiabetic

      Hashimoto’s thyroid disease about 14 yrs after T1D diagnosis (& following birth of my 2nd child).

      3 years ago Log in to Reply
    10. Kathleen Juzenas

      Hypothyroidism
      Rheumatoid arthritis 22 yrs after T1d diagnosis

      3 years ago Log in to Reply
    11. kilupx

      I answered BEFORE though the real answer is before and after. I had hypothyroidism and mild psoriasis for decades before I developed LADA. Five years after that I got rheumatoid arthritis.

      3 years ago Log in to Reply
    12. Lori Lehnen

      Psoriasis-1972
      T1D-2021

      3 years ago Log in to Reply
    13. Chrisanda

      Hashimoto’s disease a few years after T1D.

      3 years ago Log in to Reply
    14. Natalie Daley

      Hashimoto’s Syndrome and genital scleroderma, both after T1D

      3 years ago Log in to Reply
    15. Drina Nicole Jewell

      Chronic Urticaria (chronic hives)
      Ive had this for as long as I can remember. My dad said they started shortly after he brought me home from the hospital as an infant.

      3 years ago Log in to Reply
      1. Drina Nicole Jewell

        I was diagnosed with type 1 in 2000

        3 years ago Log in to Reply
    16. AnitaS

      I got hypothyroidism a few years after being diagnosed T1-diabetic

      3 years ago Log in to Reply
    17. Kathy Morison

      I have more than one other autoimmune disease. I was first diagnosed with hyperthyroid because of a goiter, they killed that with radioactive iodine and then I became hashimoto. Lupus was happening but it wasn’t truly diagnosed until later in my life but then diabetes came after that.

      3 years ago Log in to Reply
    18. Ms Cris

      *Hashimoto’s Thyroiditis
      *Raynaud’s disease
      *Undifferentiated Connective Tissue Disease (with symptoms and blood markers of Sjogrens, RA, SLE)
      *Rosacea (they now know it’s autoimmune, but I’ve had it treated since teens)

      3 years ago Log in to Reply
    19. Carl Robertson

      Addison’s disease 12 years prior to T1D

      3 years ago Log in to Reply
    20. Melinda Lipe

      I’m not sure. Always T1D, but also frozen shoulder and arthritis.

      3 years ago Log in to Reply
    21. ellencherry

      I said T1D, but I was actually DX with both T1 and Hashimotos at the same time.

      3 years ago Log in to Reply
    22. Lynn Smith

      Hashimoto’s 31 years after T1D and then Celiac disease 15 years after that.

      3 years ago Log in to Reply
    23. Lauren Carey

      Celiac

      3 years ago Log in to Reply
    24. Kathryn Keller

      Celiac about 6 months after T1D

      3 years ago Log in to Reply
    25. Dan Diehl

      Hashimoto’s thyroiditis

      3 years ago Log in to Reply
      1. Marsha Miller

        Do you take med for this? I am approaching that.

        3 years ago Log in to Reply
    26. pru barry

      Graves disease after 68 years as a T1D. I almost immediately asked to have my overactive thyroid removed, and now I’m back to just one autoimmune abnormality (that I know of), short of having to take a daily dose of levothyroxine in pill form. No diet restrictions! Such an easy disease, it’s almost lovable :^) !!!

      1
      3 years ago Log in to Reply
    27. Wanacure

      Are food allergies autoimmune? Before I was diagnosed w/ T1D, thru skin tests I was found allergic (stuffy nose, sore throats, hay fever) to walnuts, pollens, cat dander, etc. But by then our beloved pet cat was treated as a family member & allergy was regarded as “sketchy” medicine, so my brother & I got by with gargling hot dilute salt water (+ smidgen baking soda) and antihistamine capsules at bedtime. My little brother’s symptoms were so bad he had to go thru the trauma of
      a tonsillectomy (a then accepted medical practice). Decades after T1D onset, my bro’ and I were diagnosed with celiac disease. Before celiac diagnosis I was diagnosed with arthritis, and then a persistent but controllable itchy skin rash and a few melanoma. (I see a great dermatologist yearly.) Our mom was asthmatic, our pop bothered by psoriasis, died of colon cancer. I was long ignorant that cancer and arthritis were autoimmune diseases. Some environmental factors we can’t control, some we can (smoking, alcohol, exercise, job environment, diet, sun exposure, nuclear radiation from bomb tests/reactor leaks). Was your pregnant mom’s shared blood filled with stress hormones while you were a fetus? Was she financially and emotionally secure? Epigenetic trauma, like slavery? Bondage? Poverty? Intermarriage? War refugee? Racism? High cancer and diabetes diagnoses among South Pacific Islanders often blamed on US nuclear bomb tests. Remember Bikini Island? Hiroshima? Nagasaki? Now think Chernobyl? Three Mile Island? Fukushima?

      3 years ago Log in to Reply
      1. sweet charlie

        OMG!!!

        3 years ago Log in to Reply
    28. Don (Lucky) Copps

      Hypothyroidism

      3 years ago Log in to Reply
    29. Andrew Seville

      I was diagnosed with Coeliac disease first.
      I’m told celiac and diabetes go hand in hand.

      3 years ago Log in to Reply
    30. Kristine Warmecke

      T1D 1982
      Moyamoya Disease (officially diagnosed) 2012
      Hashimoto’s 2021

      3 years ago Log in to Reply
    31. Sherolyn Newell

      About a year after the T1D, I started having joint pain. When my annual blood draw showed very low WBC, my PCP was doing every test in the book to figure out why. At that time, I asked him to throw in the rheumatoid arthritis test as well. It came back positive.

      3 years ago Log in to Reply
    32. Becky Hertz

      I was diagnosed with rheumatoid arthritis after my T1D diagnosis, however, I haven’t had any sequelae from the ra diagnosis.

      3 years ago Log in to Reply
      1. Pam Taylor

        Sjoghgrens

        3 years ago Log in to Reply
    33. Lawrence S.

      I said T1D first, which was diagnosed when I was 23. But, I’ve had asthma, since age 8. I also had Irritable Bowel and food allergies since age 19, (not diagnosed). Since T1D, I’ve had Celiac disease, hypothyroid, and frozen shoulders (not chronologically.

      3 years ago Log in to Reply
    34. karolinamalecki7@gmail.com

      I have hashimotos. I’ve had hashimotos for about 11 years and type 1 for 1 year. I have been euthyroid (normal thyroid levels with no thyroid medications) since then but had many auto antibodies for hashimotos.

      3 years ago Log in to Reply
    35. Yaffa Steubinger

      My 4 autoimmune diseases came in this order: Hashimoto’s Thyroiditis, Pernicious Anemia, Autoimmune Hepatitis, and T1. Lucky me

      3 years ago Log in to Reply
    36. Carrolyn Barloco

      I have vitiligo, does that count?

      1
      3 years ago Log in to Reply
    37. Jane Cerullo

      First LADA
      20 years later graves ds
      Then TED

      3 years ago Log in to Reply
    38. Sharon Gerdik

      I was diagnosed with T1D several years after surviving Thyroid Storm.

      3 years ago Log in to Reply
    39. Donna Condi

      At my first appointment with my endocrinologist I had bloodwork which showed I had Hashimoto’s thyroid disease.

      3 years ago Log in to Reply
    40. Lisa Ann Felton

      Rheumatoid arthritis

      3 years ago Log in to Reply
    41. Bea Anderson

      Hashimotos thyroid at 24 yrs.
      Suspected Autiomune Inner Ear Disease at 9 yrs. Deafness. Inner ear damaged. 3 surgeries to keep it healthy, but no hearing.

      3 years ago Log in to Reply
    42. Bruce and Audrey Coleman

      Psoriatic arthritis

      1
      3 years ago Log in to Reply
    43. jo

      I was diagnosed with Celiac disease first, then I was diagnosed with Type-1, then I was diagnosed with Autoimmune leukopenia. I hope I’m done with autoimmune diseases
      .

      3 years ago Log in to Reply
    44. Trisha Oldenkamp

      I had Graves Disease about 5 years prior to my T1 diagnosis.

      3 years ago Log in to Reply
    45. Molly Jones

      Epilepsy at 19. Hypothyroidism at 22. T1D at 31.
      After diabetes diagnosis and looking at my family’s love of autoimmune diseases I eventually asked to be tested for any autoimmune causes of epilepsy and it was found that I had extremely high GAD antibodies, above 25,000 U/mL, which showed my epilepsy also has a possible autoimmune cause as those antibodies interfere with the balance of my excitatory and inhibitory neurochemistry.

      3 years ago Log in to Reply
    46. Patricia H

      Rheumatoid Arthritis was diagnosed 6 months after my T1D diagnosis.

      3 years ago Log in to Reply
    47. Kelly Wilhelm

      Hashimotos/thyroid

      3 years ago Log in to Reply
    48. Andrea Hultman

      Hypothyroidism (not sure if it’s Hashimoto’s) and plaque psoriasis. ME/cfs, if it turns out to be an autoimmune disease. And I believe endometriosis and adenomyosis will eventually be categorized as autoimmune as well; I had surgeries to deal with both of them.

      3 years ago Log in to Reply
    49. ConnieT1D62

      Hypothyroid.

      3 years ago Log in to Reply
    50. kathy Granzow

      psoriasis/psoriatic arthritis – diagnosed with gestational diabetes while pregnant, after also getting psoriasis while pregnant.

      thanks, kids.

      3 years ago Log in to Reply

    If you live with autoimmune disease other than T1D, which were you diagnosed with first, T1D or your other autoimmune disease? Share in the comment what your other autoimmune disease is if you have one! Cancel reply

    You must be logged in to post a comment.




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