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    • 16 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 4 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 13 hours, 46 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 15 hours, 13 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 15 hours, 13 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 15 hours, 13 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 17 hours, 26 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 17 hours, 27 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 17 hours, 27 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 18 hours, 9 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 19 hours, 32 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 21 hours, 30 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 14 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 14 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 19 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 21 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 21 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
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    How long does it typically take for your durable medical equipment or pharmacy supplier to obtain prior authorization or chart notes from your T1D health care provider’s office?

    Home > LC Polls > How long does it typically take for your durable medical equipment or pharmacy supplier to obtain prior authorization or chart notes from your T1D health care provider’s office?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    37 Comments

    1. Joan McGinnis

      Varies considerably sometimes comes on time as supposed to and I dont have to call other times I call and it depends on the person answering knowledge I think. Especially variable on sensors as I dont think they know what they are talking about

      3 years ago Log in to Reply
    2. Ahh Life

      I am not sure is the only answer I can give to automated systems. They ricochet like a pin ball machine from 1 day, to 4 months, to occasionally getting a notification a half year later. ¯\_( ͡⚈ ︵ ͡⚈)_/¯

      3
      3 years ago Log in to Reply
    3. Lawrence S.

      It seems to vary. Sometimes, I have to contact my supplier, then my doctor’s office to get the ball rolling. There have been occasions where I’ve waited two to three weeks.

      3 years ago Log in to Reply
    4. GLORIA MILLER

      My doctor’s office tells me they have faxed the info as soon as they get the request but the medical supplier always seem to lose it. I make three or four calls each time to the doctor’s office and supplier each to get things rolling again. That is why I like to have a stock pile since I know how unreliable they are.

      6
      3 years ago Log in to Reply
      1. Marsha Miller

        Same for me!

        1
        3 years ago Log in to Reply
    5. Amy Jo

      My experiences with DME suppliers have been abysmal. Switched from Edgepark to Byram several years ago but had the same issues – took FOREVER to get the correct paperwork to the correct people, and I had to personally call multiple times to follow up (which was never fun or efficient with all the automated menus that don’t even apply). It was the most frustrating part about diabetes!! I just switched to Advanced Diabetes Supply last month and the experience was phenomenal – I went straight to a live person when I called, and they had a person assigned to me that would check in periodically with updates. So far, it has been a fantastic change.

      1
      3 years ago Log in to Reply
      1. Lawrence S.

        I changed from Byram to Edgepark several years ago because Byram NEVER got my order correct, or on time. I was constantly getting shorted, and/or incorrect substitutions from Byram. Edgepark at least gets the orders correct, although not always timely.

        3 years ago Log in to Reply
    6. Tom Caesar

      Had to check other as my experience puts comuication with Dr staff ranges from immediate to weeks. Occasionally I’ve been told docs faxed several times only for supplier to insist they’d not received paperwork. Once I hand carried chart notes from one location to another to insure it was done. Don’t know who is at fault but things get tense for me to see my supplies dwindle as I consider being forced back to multiple injections. Medicare rules only delay the prompt receipt making it a race between getting what’s needed before being out completely. I’ve been type one going on 54 years, what’s so hard to realize I will continue to require tools to treat it?

      5
      3 years ago Log in to Reply
    7. Jim Cobbe

      I answered 1-2 weeks but would add the delays seem to usually have been within the supplier’s bureaucracy, not those of the doctor’s office or the Medicare Advantage plan. and things seem to have been better recently. The exception is prosthetics and orthotics which can take up to 2 months.

      1
      3 years ago Log in to Reply
    8. Marsha Miller

      I said other. Sometimes it takes 3-5 days, sometime 2 weeks and I have to call them and bug them…
      Either way, I always feel it’s too long. It seems 2 business days should be reasonable.

      2
      3 years ago Log in to Reply
    9. Chip Brookes

      My tandem pump supplies come from Byram. Re-supply always means there will be a major production getting approval to ship.

      My Dexcom supplies are provided by US Medical. Always a smooth experience. For some reason US Med. is not an authorized supplier for Tandem products for Medicare patients. Go figure.

      3 years ago Log in to Reply
    10. mbulzomi@optonline.net

      Only once with getting my DEX supplies, I was told by the operator they needed the Doctors chart notes. I just don’t understand why they needed his notes. (They, meaning the US FDA or other regulatory body), I guess they must think you can be cured with T1D, or you can change to pills (For me over 54 years.) or just stopping the medications??? Do you think Qualified Doctors really look at those notes? Most likely some clerk that just checks off a box.

      3
      3 years ago Log in to Reply
    11. Velika Peterson

      It varies. The process seemed to be a little faster between our endo and Solara Medical Supplies for Dexcom and Omnipod Eros pods. Now we’re going through Caremark and still waiting to hear back from my endo about sending prior authorization to them. It’s been 3 days since I messaged my endo about it. I hope the turnaround is faster.

      3 years ago Log in to Reply
    12. Kris Sykes-David

      Until recently, I wasn’t even aware of the need for CCS Medical to get updated chart notes from my endo. I don’t remember this being needed or asked for after several years of getting my Dexcom supplies through them. It took over a month to get this all worked out. Luckily, I had a spare transmitter, otherwise I would have been sunk. Why hadn’t they given me a heads up? So frustrating.

      2
      3 years ago Log in to Reply
    13. Sue Martin

      I use the pharmacy associated with my Endo/medical hospital complex. I don’t have any delay in getting medicines and supplies.

      1
      3 years ago Log in to Reply
    14. Janice Bohn

      Hard question to answer. My Doctor office responds to any requests in a day. My pharmacy also responds in a day.
      The durable medical supplier, manufacturer, and insurance co. seem to take weeks

      4
      3 years ago Log in to Reply
    15. Jeff Balbirnie

      Thursday/Friday forget it! Mid week 3 to 5 days to fix whatever initial screw up they made. An ugly process…

      3 years ago Log in to Reply
    16. Pauline M Reynolds

      I put 3-5 business days. Except for the time I waited 15 days to receive my insulin and test strips! It was a mix of problems due to a new P.A., pharmacy info, and on and on. Many hours spent on the phone for two weeks.

      3 years ago Log in to Reply
    17. pru barry

      I hope some people at the supply companies read our comments. It seems pretty unanimous that we have problems getting medical supplies in a timely manner, and I wonder what can be done to fix this problem. It can’t be a vendetta aimed just at people in our situation, but something that needs to be fixed. Bureaucracy is a huge dragon waiting to be slain! Let’s get behind this!

      3 years ago Log in to Reply
    18. Janis Senungetuk

      It varies from month to month because of errors committed by the 3rd party DME supplier. Medicare may be my secondary insurance but is the primary roadblock to consistent quality.

      1
      3 years ago Log in to Reply
    19. Bonnie Lundblom

      I selected 3-5 days. CCS Medical has been a wonderful DME company to work with, they usually are on top of everything and if any questions or problems they either call or email me.

      3 years ago Log in to Reply
    20. Becky Hertz

      They just need authorization from my insurance. I haven’t had any troubles thankfully.

      3 years ago Log in to Reply
    21. Jane Cerullo

      And I have to keeping reminding them to get on it. But it is what it is.

      3 years ago Log in to Reply
    22. Dave Akers

      We have to realize that the delay is not always with insurance companies. I know many HCP’s so inundated with paperwork, it may take them 1-2 WEEKS just to fill out and submit a Prior Authorization.
      Insurance companies are controlling the prescriptions more than providers unfortunately. AND when a Dr. Dream it medically necessary, insurance companies can AND WILL still deny, Deny, DENY!

      Very sad and upsetting.

      1
      3 years ago Log in to Reply
    23. cynthia jaworski

      I feel this is burdensome keep-busy work placed upon the health provider office. The office I deal with is very conscientious and prompt. I wish they were being called upon to provide health services rather than redundant paperwork.

      1
      3 years ago Log in to Reply
    24. Kristine Warmecke

      It depends on many times the DME loses them once the faxed. It also depends on the DME company. Tandem had all the paperwork from my endocrinologist within 24 hours. Then the DMR company, that was supposedly in network, called and said they were no longer in network and could not supply my new pump. When I called the insurance about it & who I was supposed to use, they were surprised since they had not dropped them.
      They were also charging a copay for pump supplies and Dexcom supplies, which didn’t have one.

      3 years ago Log in to Reply
    25. Anthony Harder

      My health care provider is not the bottleneck. It’s insurance or the DME provider.

      3 years ago Log in to Reply
    26. Steve Gold

      I have medicare. It takes a lot of time for the pharmacy to realize that real Time glucometers are covered as DME. Sometimes months.

      3 years ago Log in to Reply
    27. ELYSSE HELLER

      I have been working since April 2022 to get my Blue Cross/Blue Shield Federal Employee Program to cover Insulet’s Omnipod 5 system. Since Insulet partnered with a company called ASPN to coordinate Health Insurance coverage, things are getting done. My Omnipod 5 is expected to arrive next week; “what a long hard road its been”. Now lets see how long I will have to wait to get an appointment with my CDE so that I can be trained on how to use the new system.

      3 years ago Log in to Reply
      1. Sandra Norman

        I have also been trying to get Insulet’s Omnipod 5 system since April. I was told 3 weeks ago from ASPN that everything was approved and it was forwarded to Pill Pak (Amazon) for shipping. Nothing- I spent several hours on hold with both ASPN and Pill Pak -ASPN said they sent the prescription 3 weeks ago and Pill Pak said they do not have it. My doctor also sent it directly to Pill Pak last week after they asked me to have him send it directly to them and ASPN also says they sent it again. PIll Pak still denies having it. This is such a ridiculous run around – I’ve never had this much trouble getting any supplies-very frustrating!!

        3 years ago Log in to Reply
    28. Patricia Kilwein

      Issues have always been the suppliers…..not my Dr office when there is an issue. Lately it’s because of Medicare transition.

      3 years ago Log in to Reply
    29. Melissa Yuruckso

      The approval time has varied from already having it when I placed my refill to having my supplier (Byrum)delay my delivery because of communication issues . I have had to contact my endocrinologist and have the team straighten out the red tape. I’m on Medicare so you can’t reorder until you’re down to less then 10 days. That is an unreasonable assumption considering all the paper trail mazes.

      3 years ago Log in to Reply
    30. Wanacure

      Like Sue Martin, I have zero complaints for the same reason. My doctors, specialists, labs, pharmacists are all in one organization. If a doctor writes a prescription, I can pick it up the same day within an hour. If I request a refill I have the choice of picking it up or having it mailed in 2 to 3 days. No problems with Dexcom or Byram. I’m on the cheapest Medicare Advantage plan at Kaiser Permanente. I guess my doctors, pharmacists, nurses, dietitians, support techs are computer savvy and know how to cut red tape. We have a very aggressive state health commissioner and a very aggressive state attorney general who look out for little guys like me. That’s why I put up yard signs and send politicians emails and phone calls at city, county, state and national levels. I’ve personally lobbied at all levels of government with organized progressive left wing groups. I’ve contributed $5 here , $25 there. Over decades I’ve donated to Public Citizen, People for the American Way, League of Women Voters, public broadcast radio and TV stations, Green Peace, 350.org, anti war groups, Dr. Faustman at Harvard, Juvenile Diabetes Research Foundation, etc. I can’t donate much, but I give what I can. It’s not enough to complain, you’ve got to join an organization and sometimes get out and demonstrate on the sidewalk or in the street. First time is scary. But you make friends with wonderful people.

      3 years ago Log in to Reply
    31. Wanacure

      Did I forget to mention Physicians for a National Healthcare System? Common Cause? Southern Poverty Law Center? Drug Policy Alliance? Credit Unions? Food Co-ops and Farmers Markets? Whole Washington? Union of Concerned Scientists?

      3 years ago Log in to Reply
    32. Melinda Lipe

      I just made my first order on Medicare, and it was delivered about 2 days later, after they listed all those things they’d have to confirm!

      3 years ago Log in to Reply
    33. Cheryl Seibert

      I chose 3-5 business days. Sometimes it is less than that and sometimes more. The delay is often the supplier says “We sent a fax last week with no response (well why didn’t they retry?) or the medical office says they never received a fax request (which I’ve confirmed was sent”. Once I call both places DURING business hours and have them refax the request, then it seems to work. I don’t try to fix whatever the technical or staffing problem is causing the problem. That would take more time than just calling my doctor’s office ahead of time and saying to watch for the incoming fax. LOL!

      3 years ago Log in to Reply
    34. PamK

      It doesn’t seem to take more than a week or two, but I really don’t know for sure.

      3 years ago Log in to Reply

    How long does it typically take for your durable medical equipment or pharmacy supplier to obtain prior authorization or chart notes from your T1D health care provider’s office? Cancel reply

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