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    • 1 hour, 36 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo's office.
    • 1 hour, 37 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their "portal." Whether I get a timely response depends on whether there is a reliable nurse to respond.
    • 1 hour, 52 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      When I saw my endo a year ago, I wasn't able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can't get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I'm on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.
    • 1 hour, 53 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      On hold or actually talking about the issue and calling back to ensure someone follow's up as everyone seems to be over their head. Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.
    • 4 hours, 13 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.
    • 11 hours, 22 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 11 hours, 23 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 13 hours, 19 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 13 hours, 35 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day, 7 hours ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
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    Do you (or your loved one with T1D) typically eat gluten-free?

    Home > LC Polls > Do you (or your loved one with T1D) typically eat gluten-free?
    Previous

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    How long does it typically take for your durable medical equipment or pharmacy supplier to obtain prior authorization or chart notes from your T1D health care provider’s office?

    Sarah Howard

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    24 Comments

    1. Janice Bohn

      Most of the time I am gluten free because I typically do not eat bread or pastas. But only as a help to blood sugars.

      3
      5 months ago Log in to Reply
    2. Lena Selbrand

      No, why should I? I am not gluten intolerant, even been tested for it. I see no reason to omit more products from my diet.

      3
      5 months ago Log in to Reply
    3. Lawrence S.

      I have been diagnosed with Celiac disease for about 15 years. So, I have to eat gluten-free. I have not strayed from the diet.
      I DO NOT recommend that anyone eat a gluten-free diet unless they are diagnosed with Celiac disease or some gluten allergy. If it is not necessary, there is no reason to eat gluten free. I find the gluten free diet to be overly restrictive, and much, much more stressful than dealing with Type 1 Diabetes. There are so few foods that I can eat, further complicated by irritable bowel syndrome.

      2
      5 months ago Log in to Reply
    4. cynthia jaworski

      my husband is gluten-intolerant, so I eat the same gluten-free carbs as him. I eat carbs rather sparingly.

      5 months ago Log in to Reply
    5. Ms Cris

      I eat about 95% grain free, because I am so intolerant of carbs! I therefore, by default, eat gluten free. Gluten is a protein I tolerate just fine. I miss it.

      5 months ago Log in to Reply
    6. Patricia Kilwein

      Only if carbs, fiber content and protein are there. Otherwise it’s a pass.

      5 months ago Log in to Reply
    7. Eva

      My antibodies to gluten were tested a few years back due to 23andme saying I was at risk for Celiac disease. But it was negative. Yet, I tend to stay away from bread, pasta and other processed forms of food cause my blood sugar is much easier to manage without having so many carbs. I’m happy eating plain whole foods.

      1
      5 months ago Log in to Reply
    8. E24murph@gmail.com

      My 5 year old was just diagnosed with celiac disease last week. Our household is going mostly gluten-free but not entirely. He is not the one with T1D. I am.

      5 months ago Log in to Reply
    9. Carolann Hunt

      We ate gluten free for a year and it made no difference so we’re eating gluten again. No celiac dx

      2
      5 months ago Log in to Reply
    10. MARIE

      Yes, by default, because we eat a very low carb diet to control blood sugar and maintain a high time-in-range.

      5 months ago Log in to Reply
    11. kflying1@yahoo.com

      Being a t1D carries many diet restrictions – thank God that for me gluten isn’t one of them.

      5 months ago Log in to Reply
    12. Jeff Balbirnie

      Yup But not for me. There a whole bunch of allergies in the house

      5 months ago Log in to Reply
    13. Toddrich

      I answered No, but I do avoid bread since most commercially made bread has so much sugar, right Subway?

      5 months ago Log in to Reply
    14. kristina blake

      No. I avoid most starchy carbs (trying to be low carb to lose weight in addition to my T1D). When I read the nutrition info on gluten free items, they often have more carbs than I like to ingest. Substituting rice for wheat doesn’t work for me.

      5 months ago Log in to Reply
    15. Mig Vascos

      I’m gluten intolerant. I normally don’t eat pasta because of the amount of carbs in them, but I do love all kind of breads and pastries. Unfortunately, every time I indulge in these items, the gluten messes up my stomach. Its not really worthy.
      I’m also dairy intolerant so the variety of foods I eat without either increasing my sugar or messing up my stomach is limited.
      Preparing a meal is difficult and discouraging.

      1
      5 months ago Log in to Reply
    16. Carol Meares

      I generally eat grain free but not always. I find that I feel better when I eat no grains and it is easier to manage BS. I don’t have to worry so much about hidden gluten so I am sure I get gluten when I don’t even know it. On special occasions I will enjoy something that is not grain free. I am not a purist:) and luckily, don’t have to be.

      5 months ago Log in to Reply
    17. Becky Hertz

      Typically gluten free because typically I don’t eat bread products, pastas, etc because of the effect on my bg levels.

      1
      5 months ago Log in to Reply
    18. sdimond

      I eat 40 grams or less of carbs a day. The only grain product I eat is three corn taco shells once a week.

      1
      5 months ago Log in to Reply
    19. Wanacure

      I thought ā€œgluten-freeā€ was just another bourgeoisie food fad diet like the zen macrobiotic diet that turned out to be a hoax. Then my brother claimed he was gluten free years ago and tried to warn me. Still, I thought it was just another hoax, because he didn’t show me any western medicine lab test. This year my doctors ordered an endoscopy for me. The results convinced my doctors to recommend I go gluten free. I’d already cut out a lot of carbs to maintain better glucose control, to cut down insulin doses, and to reduce hypoglycemia risk as recommended in Dr. Richard K. Bernstein’s books, himself a T1D. I’m not on a full ketogenic diet…yet. But I’m very low carb, and don’t feel deprived at all. Nuts, seeds, butter, cream, plain unsweetened full fat yoghurt, veggies, sardines, salmon, and cheeses are very satisfying. I want to thank the people on ketogenic diets who’ve provided us with so much info in their replies on this website. I understand that the first month on a ketogenic diet I’ll pee copiously and may lose vitamins or minerals. I might have to take vitamin-mineral supplements, at least during one month transition period. Can blood tests reveal if continued dietary supplements are needed? I guess I should get a complete blood work up to find my present baseline. My present lab bloodwork doesn’t test for vitamins and minerals, just for cholesterol, HbA1c, and IGA. If I go fully ketogenic, ketones will show up in my blood and urine causing possibly causing lab techs and my doctors to freak out. They may not be very supportive. I’m pretty sure they’ll try to dissuade me. They don’t even like my low carb diet! Do ketogenic diets require vitamin and mineral supplements beyond the one month transition period?

      1
      5 months ago Log in to Reply
    20. Jane Cerullo

      Don’t have a gluten allergy that I am aware of

      5 months ago Log in to Reply
    21. Joan Fray

      Diagnosed with celiac four years ago. Probably had it most of my life. Damn internist kept saying ā€œyou’ve had Type1 for so long, of course you’re going to have problems with your stomach. Neuropathy probably. ā€œ. Got so I couldn’t eat anything but cottage cheese. Lost 15 pounds in six weeks. Finally got referred to Gastroenterologist. Grrrr!

      2
      5 months ago Log in to Reply
    22. PamK

      Our son was diagnosed with Celiac, so when he is joining us for a meal it is gluten free. We do not eat gluten free all of the time though.

      1
      5 months ago Log in to Reply
    23. Velika Peterson

      I answered “no”because we do not TYPICALLY avoid gluten. However, I have noticed that our T1D daughter’s blood glucose levels ususally do not spike when eating gluten-free food, so I occationally try to buy that.

      5 months ago Log in to Reply
    24. Mary Ann Sayers

      My GRANDDAUGHTER has celiac disease! (She was asked if any relatives had it or diabetes) She kiddingly? blamed me for getting it. I’ve had T1D since I was 7, her grandfather was dx at 70 with type 2 about 10 years ago. She knows no one is to blame.

      5 months ago Log in to Reply

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