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    • 36 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 12 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 14 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 20 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 20 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 21 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 12 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 12 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 14 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 15 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 18 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 18 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 19 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 19 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    Which provider(s) do you regularly use for your other non-diabetes health needs? (Please do not include your diabetes care providers in your responses.) Select all that apply.

    Home > LC Polls > Which provider(s) do you regularly use for your other non-diabetes health needs? (Please do not include your diabetes care providers in your responses.) Select all that apply.
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    If you were misdiagnosed with another condition before being diagnosed with T1D, were you experiencing diabetes-related ketoacidosis (DKA) when you were eventually diagnosed with T1D?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    46 Comments

    1. Ahh Life

      How do I provide thee? Let me count the ways?

      Cardiologist,
      Dermatologist,
      Endocrinologist,
      Gastroenterologist,
      Ophthalmologist,
      Orthopedist,
      Otolaryngologist,
      Podiatrist,
      Urologist

      I seem to have so many high-priced specialists on a full-time employment program. Sigh!

      5
      4 years ago Log in to Reply
    2. Christine Gran

      Neurologist for migraine.

      4 years ago Log in to Reply
    3. Janice Bohn

      Gosh I do not know if I am an anomaly but here is my list;
      Internist (primary care)
      Neurologist
      Oncologist
      Cardiologist
      Ophthalmologist

      4 years ago Log in to Reply
      1. Janice Bohn

        Oops forgot Endocronologist
        Dermatologist

        1
        4 years ago Log in to Reply
    4. m.d.oberg@outlook.com

      I use Mayo Clinic, Rochester, MN, for any surgery, other treatment.

      4 years ago Log in to Reply
    5. AimmcG

      I have MS as well so I see a Neurologist as well.

      4 years ago Log in to Reply
    6. John McHenery

      I am British living in the UK and health needs/supplies are covered by the UK National Health Service

      1
      4 years ago Log in to Reply
    7. Patricia Dalrymple

      Dentist anyone?

      4
      4 years ago Log in to Reply
    8. Karington Johnston

      Gynecologist
      Neurologist (I also have epilepsy)
      Optometrist (seeing is hard 😉 )
      Dentist

      4 years ago Log in to Reply
    9. GLORIA MILLER

      Cardiologist,
      Dermatologist
      Urologist
      Allergist
      pulmonologist

      4 years ago Log in to Reply
    10. Kathleen Juzenas

      Oncologist
      Cardiologist
      Nephrologist
      Dermatologist
      Dentist
      Podiatrist
      Audiologist

      4 years ago Log in to Reply
    11. Amanda Barras

      I have only seen my Endo 1x a year for the last 4 years after my primary I did have moved and I never bothered to get a new one because I’m healthy otherwise.

      1
      4 years ago Log in to Reply
    12. JoAnn

      Podiatrist

      4 years ago Log in to Reply
    13. Elissa Macher

      Podiatrist 2x a year.

      1
      4 years ago Log in to Reply
    14. Annie Wall

      I answered that my endocrinologist pretty much takes care of all my needs but forgot to add ophthalmologist who also does a diabetes check in addition to glaucoma and macular degeneration (though no retinopathy!). But this will change soon because my endo is retiring and my new endo does not do primary care so I’ll have to add that!

      4 years ago Log in to Reply
      1. Sue Martin

        Three years ago, my Opthomologist saw that my optic nerve was swollen and she asked me to go get an MRI. She said she would call the ER and tell them I was on my way.
        Long story short, I was diagnosed with a brain tumor, not diabetes related. It was benign but I spent nearly 50 days in the hospital and rehab. My brain is doing very well now. We consider that my Opthomologist saved my life.

        Routine checkups are very important!

        5
        4 years ago Log in to Reply
      2. Annie Wall

        Sue Martin, I wanted to reply to your reply but only can reply to my own. I hope you see this. Your story is remarkable. Let that be a lesson to all of us.

        4 years ago Log in to Reply
    15. Patricia Kilwein

      Other specialists for Asthma, recent knee replacement, and cardiologist.

      4 years ago Log in to Reply
      1. Patricia Kilwein

        Also forgot dentist and ophthalmologist. 🙄

        1
        4 years ago Log in to Reply
    16. Sondra Mangan

      Cardiologist and Dermatologist

      4 years ago Log in to Reply
    17. Henry Renn

      I have providers in 3 different health care organizations. My urologist is for prostate health not reproduction.

      4 years ago Log in to Reply
    18. Sue Martin

      and a Chiropractor and dentist.

      1
      4 years ago Log in to Reply
    19. Scott Doerner

      And a seizure neurologist

      4 years ago Log in to Reply
    20. Kim Davis

      I have many specialist MDs: cardiology, rheumatology, renal( non T1D), pancreas clinic, retinal specialist, dermatology, neurology, & orthopedic ( back, hands, shoulders, hips). After 43 years, I now have many appointments; but are all located in one medical center

      4 years ago Log in to Reply
    21. Bob Durstenfeld

      Let’s see,neurologist, gastroenterology, cardiologist, pain management doctor, dermatologist, physical therapist, pharmacist,

      4 years ago Log in to Reply
    22. Rich Lawrence

      Podiatrist, Neurologist, Orthopedic Hand Specialist, Rheumatologist.

      1
      4 years ago Log in to Reply
    23. Bruce Schnitzler

      My endocrinologist also serves as my primary care provider. I also regularly go to an out of state oncology clinic to provide testing and care for bone cancer.

      4 years ago Log in to Reply
    24. Edward Geary

      FYI, my diabetes is part and parcel of my comprehensive health care team. IDDM influences every treatment, drug, and screening.

      4 years ago Log in to Reply
    25. Carol Meares

      Dermatologist, and physical therapist and orthopedic doc. I don’t think I checked “Another”

      4 years ago Log in to Reply
    26. Pauline M Reynolds

      Don’t forget the podiatrist!

      1
      4 years ago Log in to Reply
    27. Denise Carter

      Also see pulmonologist, podiatrist, cardiologist, oncologist specializing in blood disorders, retina specialist, dermatologist, Ear/Nose/Throat specialist.

      4 years ago Log in to Reply
    28. sdimond

      Next question: How many of you think you get better care by having multiple providers? I get my diabetes care from my PCP and I have intentionally avoided going to an endocrinologist. My diabetic friends who go to an endo get lousy care.

      1
      4 years ago Log in to Reply
      1. LizB

        I definitely get better care from my endo. In my 15+ years with Type 1, I have never had a primary care doctor who knew anything about diabetes. When I had to get a new PCP last year due to insurance, the doctor walked into the room looking at the paperwork I filled out. She said, “You have Type 1 diabetes? You’re going to have to see someone else for that. We’re not equipped to handle that here”. The doctor I had before that wouldn’t even mention it when I saw her.

        3
        4 years ago Log in to Reply
      2. sweet charlie

        I had a VERY BAD Endo experience 35 years ago when the A1C test first started..

        4 years ago Log in to Reply
    29. KarenM6

      Also:
      cardiologist
      dentist
      audiologist

      I am considering adding a chiropractor but have not made the leap yet!

      1
      4 years ago Log in to Reply
    30. Barbara green

      Cardiologist, dermatologist

      4 years ago Log in to Reply
    31. ConnieT1D62

      I see several other providers besides my endocrine provider. However, most of my health care concerns center around T1 diabetes , hence pretty much everything I seek care for is somehow related to T1 diabetes. I see a podiatrist for diabetes foot care; an ophthalmologist for diabetes eye care; cardiologist for heart issues related to long duration T1D; a neurologist to monitor progressive nerve damage issues in my hands and fingers from T1D.

      For generic health care concerns, I see my PCP for an annual physical, sometimes twice a year if I have an issue that needs a referral; dentist at least twice a year; mammogram screenings and colonoscopies as recommended; and have been receiving chiropractic care for over 40 years as needed for periodic spinal adjustments. In my youth and younger adult years I received care from orthopedic MDs for broken bone issues.

      1
      4 years ago Log in to Reply
    32. Linda Pease

      I see a foot doctor to cut and check my feet out

      4 years ago Log in to Reply
    33. Becky Hertz

      Most of my health needs are related to the diabetes, so I found it kind of hard to answer this, but I did my best

      4 years ago Log in to Reply
    34. Ms Cris

      Physical therapist

      4 years ago Log in to Reply
    35. Bea Anderson

      Nurse practitioner or physician assistant for yearly exam.
      ENT for deafness and ongoing complications left ear.
      Vitreal retinal surgeon for WMD injection every 4-6 weeks for last 8 years.

      4 years ago Log in to Reply
    36. Bruce and Audrey Coleman

      I also see a cardiologist.

      4 years ago Log in to Reply
    37. Mary Boudousquie

      I also see a chiropractor.

      4 years ago Log in to Reply
    38. Wanacure

      I answered too low. I see a dentist every 6 months, an endocrinologist or endocrinology nurse every 2 weeks to download my Dexcom, an optometrist every year, a dermatologist at least once a year for skin cancer, an audiologist every year, and have my feet inspected and toenails trimmed every 3 months at Kaiser Permante. We have strong elected Democrat, Kriedler, regulating. Thru March 31, 2022, all claims I paid $277.85 +$216.00 for copay prescriptions= $493.85. Plus I pay KP for cheapest Medicare “Advantage” Plan every month, I dunno, $38? $54? We need Medicare For All, Socialized Medicine, competitive non-profit health care providers as in Helvetia…call it what you want. PLEASE VOTE IN PRIMARIES FOR CANDIDATES WHO WILL DELIVER ON THIS ISSUE.

      1
      4 years ago Log in to Reply
    39. M McSwain

      Cardiologist

      4 years ago Log in to Reply
    40. Diana L.

      Oncologist

      4 years ago Log in to Reply

    Which provider(s) do you regularly use for your other non-diabetes health needs? (Please do not include your diabetes care providers in your responses.) Select all that apply. Cancel reply

    You must be logged in to post a comment.




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