Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 13 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 14 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 14 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 56 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 2 hours, 19 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 4 hours, 17 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 19 hours, 40 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 19 hours, 42 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 19 hours, 43 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 19 hours, 43 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 19 hours, 52 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 21 hours, 44 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 21 hours, 45 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 21 hours, 47 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 3 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 4 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 5 hours ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    What is your perception regarding telehealth?

    Home > LC Polls > What is your perception regarding telehealth?
    Previous

    If you have used Telemedicine, what do you believe is the biggest advantage it provides?

    Next

    For caregivers of kids with T1D, do you have any special accommodations available from your child’s school? For adults with T1D, did you have special accommodations when you were in school?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    Advocacy

    Blue Circle Health: A Free Virtual Program Expanding Support for Adults Living with Type 1 Diabetes 

    Michael Howerton, 3 days ago 4 min read  
    News

    Thyroid Eye Disease (TED): What You Need to Know 

    Jewels Doskicz, 5 days ago 4 min read  
    News

    Immunosuppressants in T1D Research: Expert Opinions from Diabetes Pharmacist Diana Isaacs 

    Jewels Doskicz, 1 week ago 5 min read  
    2025 Learning Session

    The 2025 T1DX-QI Learning Session: Driving Better Diabetes Care 

    Sarah Howard, 2 weeks ago 7 min read  
    Lifestyle

    Barriers to Care in Aging: Voices from the T1D Community 

    Jewels Doskicz, 3 weeks ago 7 min read  
    Lifestyle

    When T1D Becomes a Calling: Stories From our Team 

    Jewels Doskicz, 4 weeks ago 11 min read  

    49 Comments

    1. Glenda Schuessler

      Used this method for an appt. with my Endo in June. While it meant I didn’t have to drive the 4 hours, I didn’t have the quality interaction I have come to appreciate in face to face encounters. I prefer in-person and have requested that for my next appt. if it is available.

      5 years ago Log in to Reply
    2. Bob Durstenfeld

      I have had two endo appointments, a neurology appointment, and a cardiology appointment. They work for the interaction, but the lack of a physical exam leaves me unsatisfied. It also means a trip to the phlebotomist to get blood work done.

      5 years ago Log in to Reply
    3. Faith Lumsden

      Used it, did not like it. Was moreof an acute situation and was just via telephone, not zoom. Could not convey enough of the issue to get help.

      5 years ago Log in to Reply
    4. Sean Gallagher

      I have used it and I like it as an alternative, when necessary, to an office visit. I prefer an office visit when it is safe and practical.

      5 years ago Log in to Reply
    5. Nevin Bowman

      Not a huge fan, but I have used it in the past.

      5 years ago Log in to Reply
    6. Rose Lentzke

      I’ve used it, but prefer face to face visits with my physicians.

      5 years ago Log in to Reply
    7. Thomas Hatton

      I am not afraid of discussing an issue with my doctor over a video chat, but I don’t see how a doctor can see my BP, listen to my heart and lungs, or take a blood sample. I am concerned about the security of the video link. I doubt I will be using it.

      5 years ago Log in to Reply
    8. Annie Wall

      I like the opportunity that telehealth affords, especially when I go away from home for several months. I can get a visit in for Medicare purposes and I like being able to discuss with my provider things that are on my mind. That being said, I prefer to meet in person and get my a1c done and any other in-person things I need.

      5 years ago Log in to Reply
    9. Elissa Macher

      I’ve used it. But am not comfortable with it.

      5 years ago Log in to Reply
    10. Tb-well

      Telegraphy has a place in care. I have used it and I do like it, but I am looking to do two in person and 2 telehealth visits with my Endocrinologist. I do not see a go often as I generally don’t get sick. I see my endo the most out of all of my doctors.

      5 years ago Log in to Reply
    11. Donald Stitt

      I have used it, but feel that in person meetings with your care taker offer better quality.

      5 years ago Log in to Reply
    12. Larry Martin

      I have used it because in March doctors were only seeing emergency patients in my area. I thought it was very impersonal and there was not blood pressure and heart rate tests of course. Really just a move people in and get them out and get paid by insurance.

      5 years ago Log in to Reply
    13. Megan L

      It’s been my only option lately, so I’ll deal with it for now. But I look forward to in-person visits again.

      5 years ago Log in to Reply
    14. Jonathan Strait

      I’ve used telehealth a few times, and outside of discussing blood test results (and really even including that) it seems quite POINTLESS. After each interaction my reaction was “couldn’t they have just emailed me that?” LOL

      5 years ago Log in to Reply
    15. Rebecca Lambert

      I have not used it. Not because I am hesitant but because I haven’t felt I needed to. I think some appointments can be handled effectively through telehealth.

      5 years ago Log in to Reply
    16. James Merrick

      I have used it and found it not nearly as good as in person visits. Doctors at Millennium health here in Florida charge the same the same for office and tele visits. Outrageous!

      5 years ago Log in to Reply
    17. Stephanie Richardson

      I have used it and while it went fairly well during the visit and saved 4 hours of driving, I was charged an extra fee for using the service and the office staff did not follow up with me as promised to give further information about pump settings as the doctor said they would rather than discussing it during the face to face meeting. It was a little rushed. If a provider is going to offer this service they will have to be diligent about following through and also give patients the same time they would give face to face.

      5 years ago Log in to Reply
    18. Anthony Harder

      I’ve used it. It works ok. I prefer in person visits, but that’s a personal, not a technical limitation, preference.

      5 years ago Log in to Reply
    19. Tom Caesar

      After one telephone visit I much prefer face to face appointments. Guess we communicate better in person and have more productive sessions. By phone alot didn’t get dealt with. Will risk exposure to see my caretaker in office.

      5 years ago Log in to Reply
    20. Beth Franz

      Used it 3x in 2020 (first time using it) and I loved it! The appointments weren’t T1D-related but I plan for my wellness check (and after going in for labwork a couple days’ prior) to push for televisit since the lab work follow up was just a conversation anyway. Also loved that BCBS for my 3 visits had no copay.

      5 years ago Log in to Reply
    21. Mig Vascos

      I have used it but I feel that is useful just for renewing prescriptions as Medicare’s rules require a doctor’s visit every 3 months to cover insulin and pump supplies. It’s not a replacement for actual problems since many times you need more in depth check up or tests perform at the lab or simply the doctor to see you. I Have problems with my legs and need to see my podiatrist in person. Soon I’ll need to get my retina check up and that can only be done in person. So telemedicine is a patch not a solution.

      5 years ago Log in to Reply
    22. Amanda Barras

      Saves me a 45 min drive into town to see my Endo. I liked it and was super fast with no long wait in waiting room or actual treatment room. On and off the phone in 10 min.

      5 years ago Log in to Reply
    23. Rose Ryder

      I have used it, like it yet it is not the same experience as F2F.

      5 years ago Log in to Reply
    24. cynthia jaworski

      It seems appropriate for some visits but not all. I don’t like going out to a doctor’s office if I am really not well.

      5 years ago Log in to Reply
    25. George Hamilton

      I have used it three times this year with very satisfactory results. All I needed was information sharing and resulting medication. Clearly there are limitations. Many office appointments need close visual examinations or treatment – open wounds, ultra-sound, etc. Even if your computer camera or phone camera is well-focused, it won’t reveal every nuance of what is happening. So my conclusion is “it works well for most of my visits.

      5 years ago Log in to Reply
    26. Patricia Dalrymple

      I’m very healthy and don’t need too many doctors. I have felt comfortable going to my primary once per year and my Endo without going virtual. Blood tests are really the worst and can’t do those virtually.

      5 years ago Log in to Reply
    27. Kathleen Begbie

      Yes and no.

      5 years ago Log in to Reply
    28. connie ker

      You cannot do labs , get a flu shot or prolia shot from your computer. I am not against telehealth, just have not used it and hope that I won’t have to use it. Vaccines are promising!

      5 years ago Log in to Reply
    29. Janet Wilson

      You didn’t have an “I have used it and I DON’T LIKE IT”; which was the case for my T1 son. He prefers in-person visits. As for me, I prefer telemed visits because I don’t have to fight the traffic to get there. lol

      5 years ago Log in to Reply
    30. Germaine Sarda

      I have used it and it works for the meantime due to Covid, but it’s not the same since my Endo can’t check my feet, blood pressure, etc., that are important. I am thankful we can at least see each other virtually, but I look forward to in-person appointments.

      5 years ago Log in to Reply
    31. Jodi Greenfield

      Since my Endo is a 2-hour drive away and we only discuss lab results and her recommendations, telehealth is perfect for me.

      5 years ago Log in to Reply
    32. Tracy Chalecki

      I like a mix of both. I like not having to travel, but it is good to do in-person too.

      5 years ago Log in to Reply
    33. Donald Cragun

      I have used it and I do not like it.

      5 years ago Log in to Reply
    34. Steven Gill

      I use a commercial lab for bloodwork, the last “visit” was over the phone. While it’s odd, no big deal. I think a doctor can’t do their “doctoring” without really seeing the patient (one can say “I’m fine” but their mannerisms and appearance can also be indicative of health).I Trust this won’t be one of the “new normals.”

      5 years ago Log in to Reply
    35. ConnieT1D62

      Eh, it’s okay for some medical appointments that don’t involve hands-on assessment & interventions. I had a telehealth appt with my cardiologist in late April. On one hand it was a waste of time because he couldn’t do an EKG, or listen to my heart and chest sounds. However, I did my own BP and weight at home and sent a transmission from my pace maker so it wasn’t a total loss. When I saw him in person last month he did a thorough head to toe assessment, including asking how I am dealing with personal & COVID stress in my life. With the podiatrist – I finally got in to see him in person about two weeks ago after not having seen him since February. With stable, yet vulnerable, Charcot neuroarthropathy joints in my feet, I need to see him every 2-3 months. A telehealth visit doesn’t do it when I need him to assess for subtle structural changes and to perform nail and callous care because of the neuropathic changes in my hands and fingers.

      5 years ago Log in to Reply
    36. jenn velez

      I have used it and I don’t like it.

      5 years ago Log in to Reply
    37. Becky Hertz

      I have used it and it’s ok. I prefer face to face for my endo appointment.

      5 years ago Log in to Reply
    38. KarenM6

      I have used it and it’s a “meh” from me. It can be incredibly hard to understand the doctor when technical glitches happen. Plus, I just prefer face to face. Getting the whole body language of the doctor… the doctor being able to see my whole person… it’s just better. A good thing about it is if I have a doctor who is far away from me. The video visits saving on a long commute is awesome.

      5 years ago Log in to Reply
    39. KarenM6

      My comment below (or above?) was NOT well written… it is confusing, but there is no way to edit it. Please disregard what I said… it just echoes what a lot of other people have said.

      5 years ago Log in to Reply
    40. William Rone

      I have received 1 telehealth appointment. It was far inferior to a regular visit. I guess it was better than nothing though.

      5 years ago Log in to Reply
    41. Molly Jones

      I am not afraid of the cost of telehealth, but do not like the quality of the service. I prefer face to face medical visits much more. So many things cannot be seen or answered over a video. A robotic doctor in everyone’s house whose data is updated regularly would be the next step after face to face visits.

      5 years ago Log in to Reply
    42. Keira Thurheimer

      I have used telehealth but do not care for it. I’d much rather see my doctors face to face.

      5 years ago Log in to Reply
    43. Ronald Troyer

      It may be convenient but I don’t believe it can be as thorough.

      5 years ago Log in to Reply
    44. Annie Maley

      I have used Telemedicine with my primary care doctor. I thought it was okay, but would rather see my provider in person.

      5 years ago Log in to Reply
    45. Gordon Calley

      I have used it and found it convenient but was charged the same as an appointment in person. My Dr.’s office required it at the time. Where’s the financial motivation in that?

      5 years ago Log in to Reply
    46. Jack Branscum

      I have used it and like it, but prefer in person

      5 years ago Log in to Reply
    47. Megan Schaenzer

      I used it. It was okay but I felt less connection with my doctor.

      5 years ago Log in to Reply
    48. Bonnie Kruger

      I have used it and feel it’s a waste of time. First of all, if you’re charged the same amount it is pretty worthless especially as it doesn’t seem like you are able to do the labs that are a requirement for diabetes care. Fortunately, my Endocrinologist and I have a very good relationship, and allows me to call or text her directly if I am having a problem which is rare. My prescriptions are handled immediately by someone in the office after a conversation with her. But she has followed me for over 35 years since I was in the Diabetes Control and Complications Trial and am still seen by the EDIC once a year. https://www.niddk.nih.gov/about-niddk/research-areas/diabetes/blood-glucose-control-studies-type-1-diabetes-dcct-edic. I feel I learned a lot about how to care for myself while I have been in this. My A1C is usually right around 4.9 or 5 which for me is a little too low since I sometimes have low blood sugars and my husband has had to treat me with Glucagon. But I am learning to not be quite so fastidious with my need to control my Blood sugar. Sometimes I take a break from using Dexcom because it causes me to overtreat since I am on MDI using Fiasp and Tresiba rather than an insulin pump which I’ve never liked.

      5 years ago Log in to Reply
    49. Julie Akawie

      I have used it and disliked it. I much prefer face-to-face, as does my endocrinologist.

      5 years ago Log in to Reply

    What is your perception regarding telehealth? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]