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    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 7 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 9 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 13 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 15 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 15 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 16 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 10 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 10 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 11 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 13 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 13 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 15 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
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    What is your perception regarding telehealth?

    Home > LC Polls > What is your perception regarding telehealth?
    Previous

    If you have used Telemedicine, what do you believe is the biggest advantage it provides?

    Next

    For caregivers of kids with T1D, do you have any special accommodations available from your child’s school? For adults with T1D, did you have special accommodations when you were in school?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    49 Comments

    1. Glenda Schuessler

      Used this method for an appt. with my Endo in June. While it meant I didn’t have to drive the 4 hours, I didn’t have the quality interaction I have come to appreciate in face to face encounters. I prefer in-person and have requested that for my next appt. if it is available.

      5 years ago Log in to Reply
    2. Bob Durstenfeld

      I have had two endo appointments, a neurology appointment, and a cardiology appointment. They work for the interaction, but the lack of a physical exam leaves me unsatisfied. It also means a trip to the phlebotomist to get blood work done.

      5 years ago Log in to Reply
    3. Faith Lumsden

      Used it, did not like it. Was moreof an acute situation and was just via telephone, not zoom. Could not convey enough of the issue to get help.

      5 years ago Log in to Reply
    4. Sean Gallagher

      I have used it and I like it as an alternative, when necessary, to an office visit. I prefer an office visit when it is safe and practical.

      5 years ago Log in to Reply
    5. Nevin Bowman

      Not a huge fan, but I have used it in the past.

      5 years ago Log in to Reply
    6. Rose Lentzke

      I’ve used it, but prefer face to face visits with my physicians.

      5 years ago Log in to Reply
    7. Thomas Hatton

      I am not afraid of discussing an issue with my doctor over a video chat, but I don’t see how a doctor can see my BP, listen to my heart and lungs, or take a blood sample. I am concerned about the security of the video link. I doubt I will be using it.

      5 years ago Log in to Reply
    8. Annie Wall

      I like the opportunity that telehealth affords, especially when I go away from home for several months. I can get a visit in for Medicare purposes and I like being able to discuss with my provider things that are on my mind. That being said, I prefer to meet in person and get my a1c done and any other in-person things I need.

      5 years ago Log in to Reply
    9. Elissa Macher

      I’ve used it. But am not comfortable with it.

      5 years ago Log in to Reply
    10. Tb-well

      Telegraphy has a place in care. I have used it and I do like it, but I am looking to do two in person and 2 telehealth visits with my Endocrinologist. I do not see a go often as I generally don’t get sick. I see my endo the most out of all of my doctors.

      5 years ago Log in to Reply
    11. Donald Stitt

      I have used it, but feel that in person meetings with your care taker offer better quality.

      5 years ago Log in to Reply
    12. Larry Martin

      I have used it because in March doctors were only seeing emergency patients in my area. I thought it was very impersonal and there was not blood pressure and heart rate tests of course. Really just a move people in and get them out and get paid by insurance.

      5 years ago Log in to Reply
    13. Megan L

      It’s been my only option lately, so I’ll deal with it for now. But I look forward to in-person visits again.

      5 years ago Log in to Reply
    14. Jonathan Strait

      I’ve used telehealth a few times, and outside of discussing blood test results (and really even including that) it seems quite POINTLESS. After each interaction my reaction was “couldn’t they have just emailed me that?” LOL

      5 years ago Log in to Reply
    15. Rebecca Lambert

      I have not used it. Not because I am hesitant but because I haven’t felt I needed to. I think some appointments can be handled effectively through telehealth.

      5 years ago Log in to Reply
    16. James Merrick

      I have used it and found it not nearly as good as in person visits. Doctors at Millennium health here in Florida charge the same the same for office and tele visits. Outrageous!

      5 years ago Log in to Reply
    17. Stephanie Richardson

      I have used it and while it went fairly well during the visit and saved 4 hours of driving, I was charged an extra fee for using the service and the office staff did not follow up with me as promised to give further information about pump settings as the doctor said they would rather than discussing it during the face to face meeting. It was a little rushed. If a provider is going to offer this service they will have to be diligent about following through and also give patients the same time they would give face to face.

      5 years ago Log in to Reply
    18. Anthony Harder

      I’ve used it. It works ok. I prefer in person visits, but that’s a personal, not a technical limitation, preference.

      5 years ago Log in to Reply
    19. Tom Caesar

      After one telephone visit I much prefer face to face appointments. Guess we communicate better in person and have more productive sessions. By phone alot didn’t get dealt with. Will risk exposure to see my caretaker in office.

      5 years ago Log in to Reply
    20. Beth Franz

      Used it 3x in 2020 (first time using it) and I loved it! The appointments weren’t T1D-related but I plan for my wellness check (and after going in for labwork a couple days’ prior) to push for televisit since the lab work follow up was just a conversation anyway. Also loved that BCBS for my 3 visits had no copay.

      5 years ago Log in to Reply
    21. Mig Vascos

      I have used it but I feel that is useful just for renewing prescriptions as Medicare’s rules require a doctor’s visit every 3 months to cover insulin and pump supplies. It’s not a replacement for actual problems since many times you need more in depth check up or tests perform at the lab or simply the doctor to see you. I Have problems with my legs and need to see my podiatrist in person. Soon I’ll need to get my retina check up and that can only be done in person. So telemedicine is a patch not a solution.

      5 years ago Log in to Reply
    22. Amanda Barras

      Saves me a 45 min drive into town to see my Endo. I liked it and was super fast with no long wait in waiting room or actual treatment room. On and off the phone in 10 min.

      5 years ago Log in to Reply
    23. Rose Ryder

      I have used it, like it yet it is not the same experience as F2F.

      5 years ago Log in to Reply
    24. cynthia jaworski

      It seems appropriate for some visits but not all. I don’t like going out to a doctor’s office if I am really not well.

      5 years ago Log in to Reply
    25. George Hamilton

      I have used it three times this year with very satisfactory results. All I needed was information sharing and resulting medication. Clearly there are limitations. Many office appointments need close visual examinations or treatment – open wounds, ultra-sound, etc. Even if your computer camera or phone camera is well-focused, it won’t reveal every nuance of what is happening. So my conclusion is “it works well for most of my visits.

      5 years ago Log in to Reply
    26. Patricia Dalrymple

      I’m very healthy and don’t need too many doctors. I have felt comfortable going to my primary once per year and my Endo without going virtual. Blood tests are really the worst and can’t do those virtually.

      5 years ago Log in to Reply
    27. Kathleen Begbie

      Yes and no.

      5 years ago Log in to Reply
    28. connie ker

      You cannot do labs , get a flu shot or prolia shot from your computer. I am not against telehealth, just have not used it and hope that I won’t have to use it. Vaccines are promising!

      5 years ago Log in to Reply
    29. Janet Wilson

      You didn’t have an “I have used it and I DON’T LIKE IT”; which was the case for my T1 son. He prefers in-person visits. As for me, I prefer telemed visits because I don’t have to fight the traffic to get there. lol

      5 years ago Log in to Reply
    30. Germaine Sarda

      I have used it and it works for the meantime due to Covid, but it’s not the same since my Endo can’t check my feet, blood pressure, etc., that are important. I am thankful we can at least see each other virtually, but I look forward to in-person appointments.

      5 years ago Log in to Reply
    31. Jodi Greenfield

      Since my Endo is a 2-hour drive away and we only discuss lab results and her recommendations, telehealth is perfect for me.

      5 years ago Log in to Reply
    32. Tracy Chalecki

      I like a mix of both. I like not having to travel, but it is good to do in-person too.

      5 years ago Log in to Reply
    33. Donald Cragun

      I have used it and I do not like it.

      5 years ago Log in to Reply
    34. Steven Gill

      I use a commercial lab for bloodwork, the last “visit” was over the phone. While it’s odd, no big deal. I think a doctor can’t do their “doctoring” without really seeing the patient (one can say “I’m fine” but their mannerisms and appearance can also be indicative of health).I Trust this won’t be one of the “new normals.”

      5 years ago Log in to Reply
    35. ConnieT1D62

      Eh, it’s okay for some medical appointments that don’t involve hands-on assessment & interventions. I had a telehealth appt with my cardiologist in late April. On one hand it was a waste of time because he couldn’t do an EKG, or listen to my heart and chest sounds. However, I did my own BP and weight at home and sent a transmission from my pace maker so it wasn’t a total loss. When I saw him in person last month he did a thorough head to toe assessment, including asking how I am dealing with personal & COVID stress in my life. With the podiatrist – I finally got in to see him in person about two weeks ago after not having seen him since February. With stable, yet vulnerable, Charcot neuroarthropathy joints in my feet, I need to see him every 2-3 months. A telehealth visit doesn’t do it when I need him to assess for subtle structural changes and to perform nail and callous care because of the neuropathic changes in my hands and fingers.

      5 years ago Log in to Reply
    36. jenn velez

      I have used it and I don’t like it.

      5 years ago Log in to Reply
    37. Becky Hertz

      I have used it and it’s ok. I prefer face to face for my endo appointment.

      5 years ago Log in to Reply
    38. KarenM6

      I have used it and it’s a “meh” from me. It can be incredibly hard to understand the doctor when technical glitches happen. Plus, I just prefer face to face. Getting the whole body language of the doctor… the doctor being able to see my whole person… it’s just better. A good thing about it is if I have a doctor who is far away from me. The video visits saving on a long commute is awesome.

      5 years ago Log in to Reply
    39. KarenM6

      My comment below (or above?) was NOT well written… it is confusing, but there is no way to edit it. Please disregard what I said… it just echoes what a lot of other people have said.

      5 years ago Log in to Reply
    40. William Rone

      I have received 1 telehealth appointment. It was far inferior to a regular visit. I guess it was better than nothing though.

      5 years ago Log in to Reply
    41. Molly Jones

      I am not afraid of the cost of telehealth, but do not like the quality of the service. I prefer face to face medical visits much more. So many things cannot be seen or answered over a video. A robotic doctor in everyone’s house whose data is updated regularly would be the next step after face to face visits.

      5 years ago Log in to Reply
    42. Keira Thurheimer

      I have used telehealth but do not care for it. I’d much rather see my doctors face to face.

      5 years ago Log in to Reply
    43. Ronald Troyer

      It may be convenient but I don’t believe it can be as thorough.

      5 years ago Log in to Reply
    44. Annie Maley

      I have used Telemedicine with my primary care doctor. I thought it was okay, but would rather see my provider in person.

      5 years ago Log in to Reply
    45. Gordon Calley

      I have used it and found it convenient but was charged the same as an appointment in person. My Dr.’s office required it at the time. Where’s the financial motivation in that?

      5 years ago Log in to Reply
    46. Jack Branscum

      I have used it and like it, but prefer in person

      5 years ago Log in to Reply
    47. Megan Schaenzer

      I used it. It was okay but I felt less connection with my doctor.

      5 years ago Log in to Reply
    48. Bonnie Kruger

      I have used it and feel it’s a waste of time. First of all, if you’re charged the same amount it is pretty worthless especially as it doesn’t seem like you are able to do the labs that are a requirement for diabetes care. Fortunately, my Endocrinologist and I have a very good relationship, and allows me to call or text her directly if I am having a problem which is rare. My prescriptions are handled immediately by someone in the office after a conversation with her. But she has followed me for over 35 years since I was in the Diabetes Control and Complications Trial and am still seen by the EDIC once a year. https://www.niddk.nih.gov/about-niddk/research-areas/diabetes/blood-glucose-control-studies-type-1-diabetes-dcct-edic. I feel I learned a lot about how to care for myself while I have been in this. My A1C is usually right around 4.9 or 5 which for me is a little too low since I sometimes have low blood sugars and my husband has had to treat me with Glucagon. But I am learning to not be quite so fastidious with my need to control my Blood sugar. Sometimes I take a break from using Dexcom because it causes me to overtreat since I am on MDI using Fiasp and Tresiba rather than an insulin pump which I’ve never liked.

      5 years ago Log in to Reply
    49. Julie Akawie

      I have used it and disliked it. I much prefer face-to-face, as does my endocrinologist.

      5 years ago Log in to Reply

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