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    • 3 hours ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 3 hours, 1 minute ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 3 hours, 2 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 23 hours, 18 minutes ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 23 hours, 39 minutes ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 23 hours, 56 minutes ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 23 hours, 57 minutes ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 1 day, 3 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 1 day, 22 hours ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 1 hour ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days, 1 hour ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 2 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 3 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 3 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 2 days, 14 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 2 days, 14 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 2 days, 14 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 19 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 2 days, 19 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 3 days, 12 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 3 days, 12 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 3 days, 19 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
    • 3 days, 19 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Hmmm... I'd almost welcome it, another challenge to enjoy?
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    For caregivers of kids with T1D, do you have any special accommodations available from your child’s school? For adults with T1D, did you have special accommodations when you were in school?

    Home > LC Polls > For caregivers of kids with T1D, do you have any special accommodations available from your child’s school? For adults with T1D, did you have special accommodations when you were in school?
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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    19 Comments

    1. Bob Durstenfeld

      I was allowed to go to the Bathroom, see the nurse or eat a snack. This was LONG before BG meters or any technology.

      3 years ago Log in to Reply
    2. Jillmarie61

      Not until my dad sued the LASD in 1967. I had a low bg event and the teacher and school nurse panicked and called an ambulance. All they had to due was give me the candy my mom sent to the teacher for me. They wanted to remove me from school and send me to a school where children were severely handicapped. Needless to say, my parents sued and sent me to a parochial school after that. No more problems.

      3 years ago Log in to Reply
    3. Ahh Life

      The first six grades of grade school, my parents would sit down with the teacher and explain the administration of adrenaline, then hand her a small 2″x6″ black box with a syringe, adrenaline, and a small razor blade to cut open the bottle. This was a small town in central Illinois in the 1950’s. None ever had to use it. Whew!

      3 years ago Log in to Reply
    4. Mick Martin

      NA. Neither of my two sons have diabetes, plus they’re in their late 30s and early 40s now. I didn’t develop T1D until I was 21. I’d left full-time education at that stage of my life.

      3 years ago Log in to Reply
    5. connie ker

      Our son was diagnosed in Jr. High School. Parents were required to meet with the school nurse who was right on top of diabetes. However, after the first year, he went on the Medtronic pump and the older school nurse was freaked out by the technology. However, she learned how to carb count and the cafeteria had to provide those to her, and she then could help my son determine dosages. I worried about him all of the time, but this kid had a pandemic wedding in July and now has a wife to help him. He also is going to try a dexcom that reads onto his phone. Insulin is 99 years old this year, so next year is a big birthday for T1Ds to celebrate.

      3 years ago Log in to Reply
    6. Kristine Warmecke

      My brother had none the whole K thru 12 and then getting his AS degree. I did not from dx in 6th grade to graduating with both my BA in Healthcare Management and BSN. My niece has a had a plan, 504 (I think that’s the name) since preK to now a senior in high school. The 3 of us have gone to the same grade and high schools , two of us at the same time.

      3 years ago Log in to Reply
    7. Jana Foley

      I was out of school by the time I was diagnosed so it was not applicable to me. Both of my youngest two children were school aged and while they did receive some special services at their schools, they were not offered 504 plans. I didn’t hear about the existence of those until my children had graduated from high school. My daughter is still a college student and now she does register with the office of students with disabilities each year. Those benefits are huge pluses to her. I wish I had known about the 504 plans when the kids were in 1st through 12th grades. There definitely would have been different outcomes in their educations if we had.

      3 years ago Log in to Reply
    8. Jessica Owens

      My daughter was dx this year in March. She is 9. Very nervous when school started back up in August. Her school nurse is amazing. We have so much support in her school, including teacher and majority of staff. We were able to have the 504 plan set up within a month of school start. She uses Dexcom with her phone and omnipod, school nurse and teacher are knowledgeable about both these devices.

      3 years ago Log in to Reply
    9. cynthia jaworski

      My school and teacher had been informed, and knew that I might occasionally need to eat mid-day. Since I was a serious kid, no one ever felt the need to question me when I did. Even so, it seldom was necessary, since tight control was not possible with urine tests as your guide. (1960s)

      3 years ago Log in to Reply
    10. George Hamilton

      I almost qualify for this question. Most of the responses relate to K-12 education scenes and properly so. I was diagnosed in the 1960’s in the middle of my junior year in college. Without much fuss, my professors supported my efforts to keep up while I spent about two weeks in hospital care as I learned how to self-administer insulin and get my BG under control. When I came back to campus, I was invited to join a special dining hall table where students with various diet needs (diabetes, food allergies, etc.) were allowed to order food from a menu instead of eating the standard one choice meal in the dining hall.

      3 years ago Log in to Reply
    11. Janis Senungetuk

      I was dx in 1955 when I was in the 3rd grade. My mother met with the school nurse and my teacher to explain what they would need to do if I experienced hypoglycemia. Their response, supported by school administration, was to have me sit on the bench during gym and recess. During other kids birthday parties in class I was sent to the library until the party food was gone. During the entire time I was a public school student, graduated high school in 1964, I received no assistance or special accommodations.

      3 years ago Log in to Reply
    12. Arlie Peck

      DX in 1956. School allowed me to have candy bar in desk desk, but no other special accommodations as far as I know. I took my own lunch.

      3 years ago Log in to Reply
    13. Marie Foster

      5 years ago my daughter was in public school, they would not follow the Diabetes resource nurse suggested testing / dosing schedule, and then they would not allow us to come to the school to provide insulin when the nurse was not on campus (she had 2 other schools she also had to be at.) in addition they refused to call us for high BG they wanted to just annotate on a communications journal, which if she is at 400 we prefer to come get her and monitor at home since at that point she wasn’t learning anyways. It resulted in a lot of back and forth between the school and us (family & doctors) we ended up pulling her out and have been homeschooling her as a result.

      3 years ago Log in to Reply
    14. Vorisha

      I almost answered no but then I remember I was allowed to eat snacks in school and sew hidden pockets in my uniform to carry candy with me. Diagnosed at age 10 in 1984.

      3 years ago Log in to Reply
    15. Britni Steingard

      K-12 I was allowed to eat during standardized tests. Starting in 11th or 12th grade I was also allowed to make up any time lost while eating or going to the bathroom, but never actually needed to use that accommodation. In elementary school I was allowed to keep snacks in my desk and in middle school I was allowed to carry a small backpack with me so I would have snacks available (everyone else had to keep their bags in their lockers). I was also allowed to leave class 5 minutes before lunch so that I could get myself to the nurse’s office to check my blood sugar. If I was allowed to do that in high school I wasn’t aware of it. I just went the nurse’s office after class and went to lunch late. I never got in trouble for being in the hallway in between class, though (if I was stopped I just said I was on my way back from the nurse’s office) so I usually took the opportunity to stop at my locker and swap out my books. (We only had 3 minutes in between classes and 18 minutes for lunch, so that freedom to wander in the middle of the day was very helpful, but not for diabetes reasons.) I’m pretty sure I told my college that I was diabetic, and I remember visiting Health Services to pick up/return sharps containers, but I don’t think I requested any special accommodations. I definitely never visited Disability Services. Most of my exams were self proctored and/or take home exams. I could easily take a break or eat a snack without having to ask permission.

      3 years ago Log in to Reply
    16. Kristen Clifford

      I wasn’t diagnosed until I was almost 24, at which point I’d been officially out of school for three years.

      3 years ago Log in to Reply
    17. Germaine Sarda

      Dx in 1974 at age 8. I had a stash of juice, insulin and syringes at the nurse’s office, but no other type of accommodations. I was able to leave class if I felt low to head over to the office.

      3 years ago Log in to Reply
    18. ConnieT1D62

      No – not when I went to grade school and HS school in the 1960s and 70s. I just took care of myself by keeping Karo or maple syrup in my locker and sugar cubes wrapped in aluminum foil in the pockets of my gym shorts and in my purse. In college I kept OJ in a mini-fridge in the dorm room. I didn’t start using glucagon until I was in my mid-20s. Wasn’t a question like this asked and answered fairly recently?

      3 years ago Log in to Reply
    19. Leona Hanson

      I was allowed more sick day from school but did my school work at home I was a pre diabetic when I went to school

      3 years ago Log in to Reply

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