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Who in your family lives with T1D? Select all that apply. Please share more about your family's experience with T1D in the comments!
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I answered only myself. My late brother had type 1 from the age of 9. He was 64 when he died and I was diagnosed with LADA several years later. We had not lived in the same household since college and never had T1D at the same time.
A nephew also has t1d.
Nephew, sister’s son diagnosed at 11 yrs after bout with influenza they think. In 50’s with complications.
To clarify: I live with T1D, my mother has LADA, and my maternal uncles – – one with T1D and one diagnosed T2D.
My sibling. 2/5 have T1.
Lots of type 2s in the family. I’m the only type 1.
I am the only living member of my family with T1D. I had a first cousin, on my father’s side of the family, who had a son who was T1D. Unfortunately, he did not take care of himself and died young, around 20 years old.
Myself and my second youngest niece. I got diagnosed first and two years later she got diagnosed.
Also have 2 nieces, 2 great nephews with TD1. Brother just dx with TD2.
I am the only one still alive. My late father and his younger sister sister were diagnosed with LADA in their 30’s and a first cousin on my maternal side was diagnosed with LADA in her mid-20s. My father and his sister died in their early-50s of complications from another genetic disease processes other than T1D. My cousin tragically drowned during a cardiac arrest and episode of hypoglycemia whist going for a daily swim. At age 61 she was still navigating T1D in the dark with MDI and without a CGM.
My grandson who is 19 years old.
My uncle on my mother’s side died with it at 12 years of age, and an uncle on my father’s side it at 41 years of age.
I believe I answered this wrong! I answered “my spouse” because he lives with me and my diabetes! So I should have answered just me. In terms of blood relations, no one in my family on either side as long as anyone remembers has diabetes except me.
My sister also has Thpe 1 DM
In addition to my father and paternal grandfather, both deceased, two children on one cousin have T1D.
Myself, my older brother (now deceased), and one of seven grandchildren.
I have had T1D myself for 45 years. My father also had T1D diagnosed in his mid 30’s. He did not live very long due to not accepting the diagnosis and turning to alcohol as his main treatment plan……this did not turn out very well!
I have LADA. A first cousins diagnosed as a child. Father diagnosed as type 2 but I think may have been LADA
My brother also has T1d.
Myself at age 20, 50 years ago and my brother who was diagnosed at age 57 11 years ago
I’m the only one in my extended family to LIVE with T1D. My grandmother’s cousin died from it in that window between when insulin had been discovered and when insulin was actually available as a treatment. This family connection sure makes me appreciate my own treatment options, because I’m so aware that this used to be am automatic death sentence.
In order of diagnosis: paternal uncle, paternal aunt, father, myself, my sister, my paternal cousin, my son.
I have T1 as do two of my grandsons. Autoimmune disease…the ‘gift’ that keeps on giving.
My sister
My sister
My dad was diagnosed T2 but as I look back I do wonder if he was really late-onset T1 like me.
I often think back and wonder the same thing about my Dad.
My Uncle was diagnosed as type 2; but needed insulin from the very start. Was in 40’s when he was. His endocrinologist refused to do a C- Peptide on him so when I was diagnosed in 1982 with 3 family members on insulin the endocrinologist my brother & I saw offered to do it for him, for their research and his knowledge. My Uncle’s endocrinologist refused to accept the fact that he was T1D; but he knew at least and could inform his other physicians.
My brother
My step dad
My granddaughter
My great-nephew was recently diagnosed.
My sister and 2 paternal cousins once removed (son of one cousin and daughter of another cousin)
Myself, niece, nephew, niece’s son(not the niece with diabetes)
Fascinating. I read that 60+% of T1D people, have it nowhere in the family. (Like me). But it seems so many do.
On my dad’s side, his uncle had T1D. On my mom’s side, no T1D but lots of autoimmune: alopecia, RA, etc.
I marked “only myself” but really my wife has to live thru hey highs and lows as well as all the time I spend managing it. She sometimes worries more than me. She may be right.
Anyone who lives with me could be considered a person living with type one.
My Dad was diagnosed In 1931 and died in 2000. I have 2 out of three younger brothers with T1D. My eldest son of three has T1D. His eldest daughter of two has T1D.
I was dx”ed in 1956.
My maternal grandfather was dx in his 30’s, long before there was medical acceptance of types. He used beef/pork insulin until his death at 73 from a heart attack. My maternal grandmother had a first cousin who died before insulin was available and another cousin who died after rejectioning the use of insulin. After my dx as a child my paternal second cousin was dx at the age of three. We are the only two from our immediate families still living with Type 1.
Although I answered only myself that’s because my older brother already died of T1D complications at 67, and my maternal grandmother died in her mid-40s. She was misdiagnosed and given Diabinase. She died of gangarene. Both were late onset. My brother was 23. My grandmother was in her 40s.
Myself and one of my nephews.
My maternal uncle, in 1929. My nephew, three months before me. However, the family is chock full of Type II’s.
Myself, my older brother who passed and my nephew(brothers son).
My brother who got type one at age 5 and myself at age 8. Didn’t see a sibling box.
3 brothers with type 1, 1 cousin 2 nieces, 2 daughters. We sure got an unusual family
My half brother is also a type 1 diabetic
Besides a maternal grandmother, paternal cousin, and myself a younger adult brother (didn’t see a sibling listed).
My older brother (by 3 years) was dx in his mid-40s, about 20 years ago. I’m coming up on 10 years.
One of my sisters also has Type 1.
I’m the only one with T1D, but many others on my maternal side have autoimmune conditions.
My 1st cousin’s daughter (“2nd cousin”) is the only one we know about in my extended family, which comprises about 50 people in all. Type 2 not a thing for my family either.
Only me, and no other person with T1D or T2D.
When our son was diagnosed with Type 1 Diabetes just over four months ago, at the age of 7, I was overwhelmed with various emotions. Initially, I felt a sense of guilt, wondering if I could have detected it earlier or if it was somehow connected to the autoimmune diseases prevalent in my family. I shed tears and mourned the life I had envisioned for him.
Fast forward to today, my perspective has drastically shifted. I immersed myself in learning everything about diabetes and continue to do so. I began sharing our journey on Instagram (@xanderst1djourney) to spread awareness about Type 1 Diabetes. I proudly embrace my role as a stay-at-home #T1dDadvocate 🦸🏻♂️🩸💙.
I no longer grieve over the life I thought he would miss. Instead, we have discovered the incredible love and support within the T1D community. Recently, I hosted a JDRF Meetup at a local park and we just returned from the JDRF One Walk in San Diego, an exhilarating experience for Xander. He donned a cool blue cape and even met professional baseball player Adam Duvall! These experiences are ones many children only dream of. Xander is not just living his life; he’s inspiring newly diagnosed T1D warriors. I hope that by sharing our struggles and triumphs in parenting a child with T1D, I can resonate with other caregivers and reassure them that they are not alone.
First T1D was my maternal great-Grandmother, then my brother, then a maternal Uncle, then myself, & my oldest niece. My youngest niece showed antibodies at brith in her cord blood and has been a part of a prevention trial since.
My brother has T1D, diagnosed at 4 years old. He wasn’t a choice above. I was diagnosed at 56. My 2 sons were diagnosed at 23 months and 3 years old.
I used to have a type-1 cousin but unfortunately she passed away a few years ago due to complications from diabetes. I am the only one left that I know of who is type-1.
My Sister has it. I was diagnosed at age 19 and she was diagnosed at age 8 just two years after I was diagnosed.
Besides myself, my sister who was diagnosed at age 41, and her daughter, my niece, who was diagnosed at age 4.
“Other” as none of the options applied. My sibling (identical twin), one of our nieces, and me.
There was no response for myself and someone else so I answered only myself and my spouse/domestic partner