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    • 1 hour, 45 minutes ago
      atr likes your comment at
      If a study required temporary changes to your usual diabetes routine, how willing would you be to participate?
      I participated in a 6 month study where I had to switch cgm (Dexcom g6 to g7) and go from omnipod 5 back to mdi (using tresiba, I had used lantus when I was mdi previously). I found it very enlightening. I had heard terrible things about the g7 and found I loved it. For me it is very accurate, love the 12 hour grace period (use it to presoak the next one). I was happy to switch to the g7 after the study. I also found I wasn’t so crazy about tresiba. The best part was I feel like I have a better understanding of my basal and bolus settings and I now feel very comfortable switching between the pump and mdi when I want to take a break😊
    • 2 hours, 3 minutes ago
      Gerald Oefelein likes your comment at
      If a study required temporary changes to your usual diabetes routine, how willing would you be to participate?
      I participated in a 6 month study where I had to switch cgm (Dexcom g6 to g7) and go from omnipod 5 back to mdi (using tresiba, I had used lantus when I was mdi previously). I found it very enlightening. I had heard terrible things about the g7 and found I loved it. For me it is very accurate, love the 12 hour grace period (use it to presoak the next one). I was happy to switch to the g7 after the study. I also found I wasn’t so crazy about tresiba. The best part was I feel like I have a better understanding of my basal and bolus settings and I now feel very comfortable switching between the pump and mdi when I want to take a break😊
    • 2 hours, 7 minutes ago
      Sarah Berry likes your comment at
      If a study required temporary changes to your usual diabetes routine, how willing would you be to participate?
      I participated in a 6 month study where I had to switch cgm (Dexcom g6 to g7) and go from omnipod 5 back to mdi (using tresiba, I had used lantus when I was mdi previously). I found it very enlightening. I had heard terrible things about the g7 and found I loved it. For me it is very accurate, love the 12 hour grace period (use it to presoak the next one). I was happy to switch to the g7 after the study. I also found I wasn’t so crazy about tresiba. The best part was I feel like I have a better understanding of my basal and bolus settings and I now feel very comfortable switching between the pump and mdi when I want to take a break😊
    • 11 hours, 11 minutes ago
      AmyM likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      I am unclear. Maybe you can explain what I am missing. The clinical studies I have done do not involve sharing data with social media. They are medical and are HIPAA protected.
    • 23 hours, 35 minutes ago
      Laurie B likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      I guess it more an insurance restriction than a cost problem. But I don't want to be charged full price for a new pump.
    • 23 hours, 57 minutes ago
      ChrisW likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      MDI and since FIASP is now covered under Medicare I wanted to try the inPen. They wanted over $600 for it so I said no thanks!
    • 1 day ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Wish cost did not have to come into play but unfortunately it does.
    • 1 day ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      It isn’t that I can’t afford devices or meds, it’s more that I feel pharma is jacking up prices to see what the market will bare without conscience. Free enterprise does not work in most of the life sustaining medical community, particularly in the US.
    • 1 day ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      I guess it more an insurance restriction than a cost problem. But I don't want to be charged full price for a new pump.
    • 1 day ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Having to wait for the warrantee period to run out before switching pump manufacturers is the biggest restraint. I had to wait to switch from Minimed 770 to T:slim X2 several months. I am now considering going back to Minimed because of the improvements in their sensor and the problems Tandem is having with infusion set manufacturing. So I have to wait a year.
    • 1 day, 1 hour ago
      Steve Rumble likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 1 day, 1 hour ago
      Kathy Hanavan likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 1 day, 1 hour ago
      Marty likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 1 day, 2 hours ago
      TEH likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 1 day, 19 hours ago
      ChrisW likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I turned down a CGM study because the sponsors, a manufacturer, claimed the data would belong to them exclusively. While I may grant use of the data, its mine thank you!
    • 2 days ago
      Natalie Daley likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      My fear and concern with those who answer "very confident" and are non-lawyers is that you may be unaware of what Facebook, Google, Amazon, Nvidia, Apple, Microsoft, et al do with your data. As the old saying goes about the capitalist, "Here. Take it. How much money will you give me for this rope you are going to hang me by?"
    • 3 days, 1 hour ago
      Anita Stokar likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 3 days, 11 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      My only fatigue is figuring out where to put my next pump site since pumping 28 years now
    • 3 days, 11 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      I get itchy rashes from the tandem canula adhesive, so that makes it more of a burden. I dislike having to report to dexcom when their devices fail. and i do feel tired of wearing a device when i see the double down or double up arrow.. they cause a lot of panic and over compensation (on my part). I'd say.. I'm weary, and honestly feel a little judged, every time I hear a beep or see a high or low number. but that's not the device's fault. I'm happy to use the devices though, they keep me closer to ok! especially during sleep.
    • 3 days, 19 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 3 days, 19 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 3 days, 19 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 3 days, 19 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 3 days, 23 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I’m either too old or live too far away. I’m 72 and live in Arizona
    • 3 days, 23 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Quite a few opportunities I would have considered I aged out.
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    Do you have hypoglycemia (low blood glucose) unawareness?

    Home > LC Polls > Do you have hypoglycemia (low blood glucose) unawareness?
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    Who in your family lives with T1D? Select all that apply. Please share more about your family's experience with T1D in the comments!

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    26 Comments

    1. Chrisanda

      I am unaware until I hit the 40s. Then I get symptoms of a bit lightheaded, a bit shaky. If it goes lower I get the sweating and shakes. But I try hard not to get that low! Thank you Dexcom G-6!

      4
      2 years ago Log in to Reply
    2. Annie Wall

      I said No but I would rather have chosen Other if that had been offered. I believe the only reason I no longer have hypoglycemia unawareness is because I have a cgm and Tandem CIQ and get alerts that I am quite aware of and thankful for, though often annoyed when CIQ doesn’t understand that I’ve already treated for it!

      4
      2 years ago Log in to Reply
    3. Justin

      Yes. And insurance sometimes requires a complication, like hypo unawareness, in order to approve durable med goods.

      2 years ago Log in to Reply
    4. Rick Martin

      Yes, but fortunately Dexcom G-6 alerts me. However, the G-7 was a very different story. I was found unconscious by my wife a couple of days in a row with blood sugars ready >75 on the G-7. But on the 2nd day, I checked it when I came around after she gave me Glucagon and at that point my G-7 was reading 130 but a finger stick was still reading at LOW. So, who knows how far apart they were. I went off of the G-7 and back to the G-6 and have been fine since.

      2
      2 years ago Log in to Reply
      1. Lynn Smith

        Hey Rick. I’m sorry you felt it necessary to go back to the G-6. From my experience with both the G-6 and now the G-7, they both need calibration from time to time. I never trust the CGMs readings when I start a new session. So I do fingersticks until the numbers are correct. So you might want to try out the G7 again. To me the benefits of it (quicker warm up, Grace period at the end of each session, smaller, no transmitter) make it well worth it. Just a thought. 😁

        2 years ago Log in to Reply
    5. Tina Roberts

      Almost always. There have been a few times I could tell. In the beginning I was always aware and as I aged it changed.

      1
      2 years ago Log in to Reply
    6. KIMBERELY SMITH

      When I am resting

      1
      2 years ago Log in to Reply
    7. Lawrence S.

      When I first became a T1D, 46 yrs ago, I had lots of hypoglycemia awareness. But, I still had many low glucose reactions. After a few years, I got less awareness. In more recent years, since retirement, I’m noticing more awareness, including light headedness, confusion, sweating and shaking.

      What I’ve noticed is that when I was working, I was too busy and too focused on external stimuli to be self aware. Now, that I’m retired, I still keep busy, but I have more time to focus on my internal stimuli. So, I am more aware of hypoglycemia. But, when I get real busy, with lots going on, I still have low glucose without awareness.

      1
      2 years ago Log in to Reply
    8. Amanda Laforet

      Been a T1 for 24 years and from the beginning I have not been able to feel my lows, so I have to rely on Dexcom.

      2 years ago Log in to Reply
    9. mbulzomi@optonline.net

      Thank God for my Dexcom and Tandem Alerts, otherwise I would not be here doing this.

      2
      2 years ago Log in to Reply
    10. Twinniepoo74

      Yes I do and mine comes with ecliptic seizures.

      2 years ago Log in to Reply
    11. Sue Martin

      This is why I have a CGM.

      1
      2 years ago Log in to Reply
    12. Bob Durstenfeld

      Yes, I am thankful for my CGM alarms.

      2 years ago Log in to Reply
    13. Edward Geary

      Largely depends on the rate of the drop. I usually sense rapid drops in BG. Conversely it’s the steady drops in BG I rarely feel. Thank goodness for CGM alarms.

      2 years ago Log in to Reply
    14. Eva

      I feel the symptoms of going low (less than 70) about 95% of the time. It’s that 5% when I’m busy doing something else or in deep sleep that I don’t notice until it goes below 56.

      1
      2 years ago Log in to Reply
    15. Donna Condi

      I am aware when my blood sugar gets around 45 I can feel that I am low. But my Dexcom will warn me with a baby crying at 55.

      2 years ago Log in to Reply
    16. Scott Doerner

      I did for the longest time, but since I started using linked pump and cgm, I rarely go low, and stated feeling at the 60’s

      2 years ago Log in to Reply
    17. Brenna McGowen

      Almost complete unawareness. I depend on my Dexcom and Omnipod with my life, when I don’t have those, I depend on my spouse.

      2 years ago Log in to Reply
    18. Kristi Warmecke

      Yes, I’ve been hypo unaware since the early 90’s. My G6 is good but my D.A.D. is 15 min. faster than it.

      2 years ago Log in to Reply
    19. Nicholas Argento

      I did in past, due to frequent night lows, but use of CGM and then a closed loop pump with CGM have restored my awareness by removing the night lows. I am eternally grateful, as is my wife!

      1
      2 years ago Log in to Reply
    20. Anita Stokar

      Since being on a CGM, I feel my lows much more often than before. Before I literally could be in the 20’s before I would feel a little bit shaky. Now I can usually start to feel a little uncomfortable in the 60’s.

      2 years ago Log in to Reply
    21. ConnieT1D62

      Yes I do and it varies. I must say I do depend on G6 readings and alarms to alert me especially as I age and the internal mechanisms for detecting hypoglycemia diminish over time. I am so grateful for the science behind the bionic technologies that keep us long-timers with advanced duration T1D alive these days.

      1
      2 years ago Log in to Reply
    22. Joindy23

      I only seem to feel hypos when my blood sugar is dropping rapidly. Thank G_d for my CGM with alarms !!!!!!

      2 years ago Log in to Reply
    23. maria prel

      Most of the time I feel when I am hypo, but occasionally I can be symptomatic at 70 and asymptomatic at 50. Very strange

      2 years ago Log in to Reply
    24. Patrick Burner

      Only began within the past 5 years. Have to give credit to the new CGM’s on helping me keep watch.

      2 years ago Log in to Reply
    25. Steve Rumble

      Yes, but I must be very low. Rarely occurs since I started using a CGM

      2 years ago Log in to Reply

    Do you have hypoglycemia (low blood glucose) unawareness? Cancel reply

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