Sparklee

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- 5 months, 2 weeks ago
  
  jamesmpii likes your comment at
  Have you ever used a breath ketone meter?
  I didn’t know they existed.
- 5 months, 2 weeks ago
  
  jo likes your comment at
  Have you ever used a breath ketone meter?
  I didn’t know they existed.
- 5 months, 2 weeks ago
  
  KarenM6 likes your comment at
  Have you ever used a breath ketone meter?
  I didn’t know they existed.
- 1 year, 3 months ago
  
  Velika Peterson has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  I tested my other children before but only to aid research. I am happy that there are drugs that can delay the onset of T1D for anyone with antibodies.
- 1 year, 3 months ago
  
  Eva has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  I strongly advocate for annual/biannual tests to test for antibodies measuring the destruction of insulin-producing cells. If we can accurately and reliably measure "injury", then we should use it to assess how our environment contributes to the development of pancreatic injury (and by environment I mean diet, drugs, vaccines, alcohol, exercise etc...).
- 1 year, 3 months ago
  
  Steven Gill has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  A younger brother was diagnosed TYPE 1 a few months prior to my TYPE 2. Three later my diagnosis was changed to TYPE 1 (all the tests were run at a set of medical trials as my doc: an endo~ said I was too old to need insulin). Another brother recently diagnosed TYPE 2, he had all the tests run and no evidence of TYPE 1. No kids so I've no "dog in the fight," but in the groups I'm in it seems like a ticking time bomb whether to test children. As far as medication to delay a full blown step onto insulin? Any step to save the hypoglycemia, any steps to slow the progression to possible complications I'm all for. Even if unsuccessful, even if a short term.
- 1 year, 3 months ago
  
  Liz Avery has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  I don’t have any relatives with T1D. I am the lone wolf. I have two grown sons in their 40’s but neither have children.
- 1 year, 3 months ago
  
  Patricia Kilwein has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  I was tested as an adult. I shared the information with my famand because they ate adults they will make up their own minds.
- 1 year, 3 months ago
  
  Steve Rumble has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  My children are in their mid to late 30s and can make up their own minds about screening.
- 1 year, 3 months ago
  
  AnitaS has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  As Becky Hertz mentioned, it is by 3 years. That may not sound like much but having a child diagnosed at 9 years is much better than having a child diagnosed at 6 years as the emotional and intellectual abilities are much more advanced. Also, with the quick advances in technologies of CGMs and pumps etc, three years can get you better ways to keep care of your diabetes.
- 1 year, 3 months ago
  
  AnitaS has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  I have known about this drug test for a little while and although I have mentioned it to a few people, I have not "encouraged" others to get the test. I personally haven't had children and am only guessing that I would probably have them tested and put on the new drug to delay type-1 diabetes if they did have the genetic signs of probably becoming diabetic themselves.
- 1 year, 3 months ago
  
  Debbie Dallmann has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  I do not have any children.
- 1 year, 3 months ago
  
  Becky Hertz has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  Up to 3 years.
- 1 year, 3 months ago
  
  Becky Hertz has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  I do not have any biological children and my one sibling was too old to be studied in Trial Net. I do hope that these drugs are transferable to older populations like over 18. I'm not quite sure what the age limit on Trial Net is.
- 1 year, 3 months ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  "Other". Never gave it much thought. Out of 53 first cousins on just one side, I am the only one with Type 1.
- 1 year, 3 months ago
  
  pru barry has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  Getting them tested decades ago seemed like the right, responsible thing to do. All three of my children are in their fifties now, and I'm grateful for all those years of not having to worry so much! And now, there's even more reason to get the testing done. -Baby steps, if you're still waiting for a cure, but at least they're in the right direction!
- 1 year, 3 months ago
  
  Janis Senungetuk has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  When my grandchildren were young I repeatedly asked my daughter to have them tested, but she refused saying it wouldn't make any difference. Now they're in their 20's, with no interest or time to be "bothered".
- 1 year, 3 months ago
  
  Tom Riffe has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  Heck yea! If screening shows 1, some or all 5 autoantibodies and there is a drug to prevent/delay Type 1 onset, why not?
- 1 year, 3 months ago
  
  KCR has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  I do not have any biological children.
- 1 year, 3 months ago
  
  Bob Durstenfeld has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  I was diagnosed at 18 months of age, my eldest of 3 sons at 8 mo ths of age and my eldest granddaughter at 18 months of age. With genetic screening, we found we have mongenic T1D that could not be prevented with C-peptide screening.
- 1 year, 3 months ago
  
  GLORIA MILLER has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  Sheri Marcus, thanks but he is not T2 yet. He donated a kidney to his wife about six years ago and he was pre diabetic at that point. I am hoping he never develops either T1 or 2!
- 1 year, 3 months ago
  
  Tere North has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  Delay the onset by how long? A few months is not of any benefit.
- 1 year, 3 months ago
  
  terrih57@msn.com has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  My children are both grown with no diabetes. We have always been watchful for signs but fortunately they are both fine. If they were still younger I might consider screening.
- 1 year, 3 months ago
  
  Donald Cragun has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  No, I don't have any children.
- 1 year, 3 months ago
  
  Sheri Marcus has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  Hi Gloria, Ask him have a peptide test to be sure his pancreas is producing enough insulin. I was being treated for type 2 for a couple years in my 40's by my regular doctor to find out when I saw an endo because the metformin was making me so sick I had to find an alternative. He gave me a peptide test just to see and sure enough he said my pancreas was producing a very small amount of insulin which meant I was actually type 1 not 2. I got on insulin and a pump right away with dexcom. I am now 56 and feel so much better and more healthy. Hopefully live healthier many more years to see my 17 yo grow up and have my grand children. My aunt also in her 50's was being treated for type 2 by her regular doctor and then went to an endo to get tested as well and was diagnosed at type 1 1/2. I had never heard of it but she needed to be put on insulin as well and a dexom CGM.
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