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    • 5 hours, 8 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I actually don't care, consequently I don't know either. When I was diagnosed I often didn't have the $18 for a vial of Humulin and used expired insulin others wouldn't. I tracked everything. The math didn't change, old or new. How many do I have total? More than I need and enough to share through my endo's office.
    • 5 hours, 8 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I am working through the end of my 90 day supply of Insulin. It is time to order another batch. Usually 6 vials.
    • 5 hours, 18 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Funny you should ask right now. I had to personally buy my first-ever vial in 25 years. Thanks Medicare for all the obstacles you place in the way. Am I grateful for Medicare? Yes, I guess, but I paid in all my life and I’m still paying. But Walgreens can never get the preauth right. They don’t send it to my doc or they send the wrong form. So I had the bright idea to change pharmacy’s, Publix. I went and had a convo with them, explaining I’m on a pump, I mentioned part B, the preauth. No problem. Have your doc send the script. That’s a whole other story. Then I get a call from Publix. We don’t do part B. Wow, wish you had told me. OK, I’m just going back to Walgreens. Except Medicare won’t allow refills without doctor script. So they called my doctor and my doc declined it because they had already approved it for Publix. Now I had sent an email explaining all of this to doc. I called my doc but they don’t answer their phones. Left a detailed message but have no idea whether they got anything. So I asked Walgreens if I could buy a vial. Nope, no script from doc. So I went to Publix, explained it all and they sold me a vial for $29. It was worth it but so frustrating because I can’t get my hands on a script anymore and take it where I dam-well please. Sorry for long post. I’m angry.
    • 5 hours, 19 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Oh sometimes I miss the old days of not needing an Rx for insulin in any state. Needles and were restricted due to illegal drug users, but then came disscsions about drug abusers sharing dirty needles. I'm not sure where that ended. Anyway it's extremely abusive for politics and insurance companies controlling diabetic supplies. The disease is a big enough burden.
    • 5 hours, 26 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I just got my 3 mo supply so I get 6 for 3 mo. I just opened the 1st if the 6
    • 5 hours, 40 minutes ago
      Gary R. likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 6 hours, 15 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
    • 6 hours, 15 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
    • 6 hours, 15 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 9 hours, 24 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 12 hours, 12 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 22 hours, 55 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 day ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 day ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 1 day, 3 hours ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 4 hours ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 6 hours ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 22 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 22 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 22 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 22 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
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    Which emotions do you most often feel when your blood sugar is above 250 mg/dL (13.9mmol/L)? Choose all that apply to you.

    Home > LC Polls > Which emotions do you most often feel when your blood sugar is above 250 mg/dL (13.9mmol/L)? Choose all that apply to you.
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    For insulin pump users: When traveling to a time zone that is at least 2 hours different than your home time zone, do you change the time on your pump? (For example, traveling from Eastern Time to Mountain Time, or traveling from Pacific Time to Central Time)

    Next

    How much did you most recently pay out-of-pocket for one month’s supply of insulin?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    45 Comments

    1. jeff.dempsey@outlook.com

      All of these answers are negative or indifferent. How about “Hey, there’s a problem to solve, so lets solve it?”

      5
      2 years ago Log in to Reply
      1. Steven Gill

        While I’m naturally curious and like a sense of logic it doesn’t matter, we’re diabetic because our levels go high. I think every diabetic can expect high levels someday (and low levels?). I’ll be curious what happened, will definitely dose to correct it, and consider a plan to prevent next time. Accepting? no don’t want to “accept” higher levels. And yeah sometimes might get angry if I can’t determine the “why,” but that’s to prevent next time. Like you said “solve it,” the most important thing. The only guilt we should ever feel would be to sit worrying rather take steps to correct.

        3
        2 years ago Log in to Reply
      2. Eva

        I didn’t know how to answer the question because as a T1D high blood sugars are going to happen. I see no sense in getting mad/sad/disappointed over a high blood sugar. Those emotions don’t solve the problem. The emotion I experience most often when I have a high is motivated – motivated to bring it down.

        4
        2 years ago Log in to Reply
    2. Ahh Life

      Hopeful or motivated. It’s my basic nature.

      It’s the equivalent of slipping on the diabetic banana peel. It happens. 🍋 🍋 🍋

      4
      2 years ago Log in to Reply
      1. sweetcharlie

        And for you it has always been “part of life”……

        2 years ago Log in to Reply
    3. Jane Cerullo

      I very very rarely go over 200. When I do it’s a miscalculation of carbs. So it annoys me that I was so far off. I will give myself more insulin and do some form of cardio exercise.

      1
      2 years ago Log in to Reply
    4. Tom Muldowney

      Feelings don’t help with correcting the high, focus on fixing the situation.

      2
      2 years ago Log in to Reply
    5. Barbara Bubar

      I just don’t get there, above 250…..my blood sugars are much more frequently in the low range but I can see them coming and deal with them so I’m afraid I’m feeling a little too “in control” which can be somewhat dangerous if you think it just can’t happen that you’ll be too low to manage. It’s been a good chunk of time since I’ve needed help so I’m being a little too proud of myself???

      4
      2 years ago Log in to Reply
    6. Joan Fray

      Doesn’t happen as often as it used to. But it is frustrating. I try to do everything right, but sometimes things happen. Kinked line, 1am snack to correct a low, that extra glass of wine I didn’t bolus for…..it gets frustrating. Not angry. Don’t get angry after a lifetime of this.

      4
      2 years ago Log in to Reply
    7. RegMunro

      Not even a little bit thirsty!

      1
      2 years ago Log in to Reply
    8. TomH

      Excursions above 250 have occurred 2x in 2+ years and I’m grateful. Frustration at not being able to treat were highest.

      2 years ago Log in to Reply
    9. CindyGoddard

      Worried, frustrated and very tired.

      0
      2 years ago Log in to Reply
    10. Daniel Bestvater

      maybe a bit frustrated. But being a medical person I under stand that there are many physiologically things going on in the body. Insulin absorption, hormones, viruses, stress, diet, exercise……….. Plus we are really only replacing 1 of 6 known hormones the pancreatic islets produce. So if you are eating and experiencing life I think that some degree of BG fluctuations are to be expected.

      5
      2 years ago Log in to Reply
      1. sweetcharlie

        Very well put…. It is just a part of D life!!

        1
        2 years ago Log in to Reply
    11. Ernie Richmann

      I’m more accepting when I can understand the cause like a mistake in calculating carbs, bad infusion site , stress, or something else. I can be frustrated when I have no clue why the reading is high.

      2
      2 years ago Log in to Reply
    12. Patricia Kilwein

      I put other because it’s not about how I feel about myself but how it affects my body. Hormones that are out of whack because of high glucose. I turn into a “crabby patty”!

      2
      2 years ago Log in to Reply
    13. AimmcG

      There is the reaction triggered by the high and the s there is the psychological. I know my sugars high because I become angry but I feel shame and frustration when I realize my sugar is high but that’s not caused by the high per se

      2 years ago Log in to Reply
    14. Lawrence S.

      My most common reason for going above 250 is because I forget to take my insulin for a meal. So, I get a tiny bit angry with myself for forgetting to take my insulin. Then, I know I’m going to be high for another 3 or 4 hours. I also go high when I’m sick, so I just increase my basal rates and take a shot of bolus. That can be a tiny bit frustrating. (But, I’m not losing any sleep over any of this). Sometimes I go high after breakfast, especially when I eat too many blueberries, strawberries, raspberries or cherries. I know my blood glucose will come back down soon, so I don’t sweat it.

      3
      2 years ago Log in to Reply
      1. ConnieT1D62

        Honest realistic answer – thank you, Lawrence!

        2
        2 years ago Log in to Reply
      2. sweetcharlie

        YES !!! It is just part of D life!!!

        2
        2 years ago Log in to Reply
    15. Julie Rayden

      Impatient

      2
      2 years ago Log in to Reply
    16. Catherine Thompson

      I would say annoyed and frustrated (not quite to the level of angry so I didn’t choose that option)

      2 years ago Log in to Reply
    17. Karen Newe

      Just a little annoyed or frustrated. Not angry.

      1
      2 years ago Log in to Reply
    18. Jeremy Hanson

      Frustrated because I tend to move slow. Slow thinking, slow moving etc. Ugh.

      2 years ago Log in to Reply
    19. sdimond

      I seldom get as high as 125. Low carb for the win!

      1
      2 years ago Log in to Reply
      1. Jneticdiabetic

        @sdimond, rarely getting a BG >125 mg/dl is amazing! Mine routinely creep to 150-180 even if fasting. Have you had a C-peptide blood test? I wonder if you are one of the lucky ones who still makes a little insulin?🤞

        2 years ago Log in to Reply
    20. Lynn Smith

      In the past I have felt very angry & frustrated because I usually know it’s because of something I ate and didn’t bolus correctly for. Now that I am on Afrezza, I don’t get upset. I just inhale a 4 unit dose and I’m back down in range within minutes instead of hours. I love it!!!!!

      1
      2 years ago Log in to Reply
    21. Pauline M Reynolds

      It really depends on the circumstances.

      2
      2 years ago Log in to Reply
    22. kim bullock

      Tired, and very grumpy and headaches

      2 years ago Log in to Reply
    23. Yaffa Steubinger

      One reason I sometimes feel frustrated is that I can eat the same exact meal, with my sugars around the same as they were the day before, give myself the same amount of insulin I did yesterday for the same meal (it covered the meal perfectly) only to have my blood sugars go very high.

      3
      2 years ago Log in to Reply
      1. sweetcharlie

        Frustration itself can cause that, I find…. BTW I like your happy look in the photo!!!

        2 years ago Log in to Reply
    24. Janis Senungetuk

      Frustrated is the usual response. I’ve been hitting 250 mg/dL approximately 3 – 4 hours after dinner, a little too ofter lately. Did I miscount carbs? Should I have chosen different extended bolus numbers? Do I need to increase the basal after dinner? Lots of questions with a variety of possible solutions. No quick fixes…and that’s frustrating.

      2
      2 years ago Log in to Reply
    25. ConnieT1D62

      Emotional reactions? Not much … have gotten so used to living with the continuous ups and downs of artificial BG management in a body without the presence of organic functioning beta cells that I don’t fret too much about it anymore. If I see a trend that’s out of range I do my best to figure out why without getting hung-up on self-blame or anger at the disease. It is what it is, it is only a temporary BG reading captured a particular moment in time and I can deal with it and go on with my life.

      4
      2 years ago Log in to Reply
      1. sweetcharlie

        thanks Connie… me also..

        2 years ago Log in to Reply
    26. Juha Kankaanpaa

      I feel heavy, lethargic and not willing to do anything when my bg is high, above 10mmol/L (180mg/dL).

      2 years ago Log in to Reply
    27. Robert Wilson

      So THAT’S why I’m peeing so much!

      2
      2 years ago Log in to Reply
      1. sweetcharlie

        great… I forgot that one… me too!!

        2 years ago Log in to Reply
    28. sweetcharlie

      I am very suprised at the Higest answer of “angry or frustrated”…. It is just part of T1D life !!!!

      1
      2 years ago Log in to Reply
    29. Carrolyn Barloco

      Today I put in a new AutoSoft 90 tubing set. After my glucose crept over 300 I changed cannulas and found the first one badly kinked. This is an ongoing issue. Is there no solution to this issue. Six hours later I am still hovering around 250 and wonder if this cannula is crimped!

      2 years ago Log in to Reply
      1. Jneticdiabetic

        Cannula kinks are frustrating @ Carolyn Barloco! The darn uncertainty of what’s going on under the skin.
        I can’t tolerate the infusion sets that insert straight in; almost always kink.
        I’ve found that the Vari-soft (Tandem) or Silhouette (Medtronic) sets that insert at an angle around 45 degrees kink very rarely. I’ve heard other using Tru-Steel sets with success. If you haven’t already tried these varieties before, you might try calling your pump manufacturer, and tell them the issues you’ve been having. They will often make recommendations and send you samples to try for free. Pump equipment that causes crazy highs BGs and risk DKA are not good for business!

        2 years ago Log in to Reply
    30. Jeff Balbirnie

      All numbers generated cause at best indifference, and almost solely entirely negative emotions. Loathe all numbers period. The persuit of them in any other context would result in hospitalization… for anxiety, and severe obsession at least. IMHO

      2 years ago Log in to Reply
    31. Jneticdiabetic

      Most often I’m emotionally indifferent to highs (and curious). I see highs more as as routine issue I need to fix. Sometimes frustrated when it’s a real puzzler and taking a long time to correct.

      2 years ago Log in to Reply
    32. Amanda Barras

      From indifference to frustrated. Depending on the situation. Most times I just take them as they come, make necessary corrections, and go about my day. But when I don’t feel good, it interferes on me being able to eat in a social setting, if there is no explanation for the high I feel frustrated.

      2 years ago Log in to Reply
    33. Molly Jones

      I am usually curious why this occurs as my blood glucose does not follow a pattern, at least not one that I have been able to detect.
      It was nice when I noticed cause and effects for lows. I don’t usually feel much emotion when it comes to diabetes.
      I do have gratitude for the difference science understands it in comparison to neurology. Hopefully much more headway is made and type 1 diabetes is only a remembrance of past conditions.

      2 years ago Log in to Reply
    34. PamK

      It really depends on the situation! I have felt all of these at one time or another. I chose the ones I have felt the most, but all really do apply. Just not all the time/every time.

      2 years ago Log in to Reply

    Which emotions do you most often feel when your blood sugar is above 250 mg/dL (13.9mmol/L)? Choose all that apply to you. Cancel reply

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