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    • 10 hours, 37 minutes ago
      TEH likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      People keep sending me articles with headlines that suggest stem cell transplants “cure” diabetes. However, as mentioned above, a lifetime on immunosuppressive drugs carries its own risks that are probably worse than the risks of well-controlled diabetes. They’ll figure out a way to hide these engineered beta cells from our immune systems someday. I might be willing to call it a “cure” when that happens, although I’ll probably to too old to benefit by then.
    • 10 hours, 38 minutes ago
      TEH likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      I am aware that cell therapies are being researched. This may be a panacea in the future. But, for me, red flags are waving. There are many possible dangers with these experiments. I only have this one life. There are no do-overs if something goes wrong, or if there are side effects. So, I tread carefully. Even with all the health issue that I have, I enjoy the one life that I have.
    • 12 hours, 20 minutes ago
      Janis Senungetuk likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 13 hours, 28 minutes ago
      Amanda Barras likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 13 hours, 38 minutes ago
      René Wagner likes your comment at
      If you or your spouse live with T1D and are thinking about having a baby, how concerned are you about them carrying T1D autoantibodies?
      I decided not to have kids when I was young enough to do so. I was too worried I may pass it to them, or their children.
    • 14 hours, 25 minutes ago
      Marty likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 16 hours, 22 minutes ago
      Lawrence S. likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 16 hours, 23 minutes ago
      Lawrence S. likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      I follow diabetic research rather meticulously. Most advancements are top-notch. But please take note of the risks and warnings. My spouse, on an entirely different issue (lower lumbar pain) injected umbilical stem cells one ago and has had intense headaches ever since.
    • 17 hours, 2 minutes ago
      KCR likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 17 hours, 37 minutes ago
      mojoseje likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 17 hours, 51 minutes ago
      Gary R. likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 1 day, 11 hours ago
      Amanda Barras likes your comment at
      If you or your spouse live with T1D and are thinking about having a baby, how concerned are you about them carrying T1D autoantibodies?
      I had two healthy pregnancies. The only issues were low blood sugars and my babies being born early other than that they are 38 and 35 years old, healthy children.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      I use them all. I use an app when I’m eating out. I use labels when at home. If not on the app I estimate.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      I generally do a very rough guess of carbs and correct if needed by adding more insulin for an also rough guess for effect of fat and protein later. My alert is set at 130 to remind me so I don’t get too high. I watch arrows a lot. I have had individual sensors lately that are not accurate. This can throw me off, where the sensor reading will be going up fast at say 180 and I will test my blood and it is 130. Sometimes I will have already corrected for the 180. This can cause a very rough day having to feed the insulin. I am hoping sensors will continue to get more accurate. So much depends on it especially with the algorithm. I usually don’t wait for my algorithm to correct because it will let my bg get too high. I know I’m supposed to let the algorithm do its thing but my goals are more strict. I am on G7 and Omnipod 5. I would like to be able to set my target at 100.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      I should have clicked the fourth option. I use the labels if available. If not, I estimate.
    • 1 day, 16 hours ago
      atr likes your comment at
      If you or your spouse live with T1D and are thinking about having a baby, how concerned are you about them carrying T1D autoantibodies?
      We knew the risk was 50%. My wife miscarried 4x. We ended up with three great sons, only 1 has T1D. His eldest daughter (of 2) also has T1D.
    • 1 day, 16 hours ago
      atr likes your comment at
      If you or your spouse live with T1D and are thinking about having a baby, how concerned are you about them carrying T1D autoantibodies?
      47 years ago i had my pregnancies and didnt hear about her carrying T1D antibodies but i did have concerns about my child having diabetes. When she was about 12 there was a study to see her chance of developing diabetes ,this blood test was negative. 2 of my grandchildren have been tested and were negative . At the time of my pregnancies i had diabetes for 10 years
    • 2 days, 5 hours ago
      Watertail likes your comment at
      When people talk about diabetes, are there trigger words that bother you? Please share what they are in the comments.
      oh and this one...... when I see a new doctor they say... "let's get some blood work to see if you have diabetes" and I ask them... did you even read my intake forms that say I have had T1 D for over 40 years? ughhhhhh
    • 2 days, 5 hours ago
      Janis Senungetuk likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      I use the nutrition labels as a starting point. For home made foods or for restaurant meals, my wife who was a nutritionist, helps come up with a carb estimate. Then there are times that I just have to take a wild ass guess. I have collected a list of over a hundred common foods that I eat and I keep that keep that list in a notes app on my phone right next to my T-slim app. I often check the nutrition labels for things on my list to see if the recommended carb levels for that item have changed. Then I adjust my list as needed. I also check my BG response to listed carbs I eat. I have adjusted some items over time. So, I would call this approach a hybrid. As Daniel Bestvater notes above, we are only controlling one item out of 6. Your mileage may vary.
    • 2 days, 5 hours ago
      Watertail likes your comment at
      When people talk about diabetes, are there trigger words that bother you? Please share what they are in the comments.
      Not really trigger words as much as not understanding or even aware of the difference between Type 1 and Type 2.
    • 2 days, 5 hours ago
      Watertail likes your comment at
      When people talk about diabetes, are there trigger words that bother you? Please share what they are in the comments.
      And it's especially frustrating when HCP's ask about "checking your sugars? Be a professional dammit, ask about my "blood glucose"
    • 2 days, 5 hours ago
      Janis Senungetuk likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      I count carbs, acc. To Mabel if I have, look up nutrition for items, and estimate if needed. Used to always cook myself till this yr, now in apt where food is provided, so now looking up a lot to estimate. Going pretty well
    • 2 days, 5 hours ago
      Janis Senungetuk likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      Years ago I used to calculate out carbs with a scale & book. Then I realized it didn’t seem to make a huge difference. I had many discussions with an endocrinologist friend about this topic and we both found that highly accurate carb counting didn’t seem to make much difference. As long as you are in the ballpark. I think we need to realize the pancreas produces at least 6 BG regulator hormones and we are only injecting one, insulin. So we need to do our best but not stress over it. This is at least why 2 identical meals can result in two different BG levels.
    • 2 days, 5 hours ago
      Janis Senungetuk likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      It depends on the situation. At home I calculate carbohydrate with my scale. At restaurants it depends on if they have nutritional information available. If they don't have it, I estimate. The same with eating with other people's houses even while using my scale.
    • 2 days, 8 hours ago
      AmyM likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      If I have a label I use it. Mostly I guesstimate then use the info the next time I eat the same meal. I am a big eater with no weight problem. When I go out, usually 2-3 times per week, I have to put in 90 grams of carbs, then add if not enough because I will go low before I go high. The other times, when eating at home, I eat less. Exercise is key. I just got back from 3 trips in 6 weeks. To Sicily, Boothbay Harbor, Maine, and to visit family in Baltimore. Only in Baltimore did I have issues with BG, because I wasn’t walking as much, although I did walk 1.5 miles most days. A1C when got home was 6.3. Time in range about 75%, down from usual 85%. I’ll take that. Not traveling for another year probably and will get back on track.
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    Which emotions do you most often feel when your blood sugar is above 250 mg/dL (13.9mmol/L)? Choose all that apply to you.

    Home > LC Polls > Which emotions do you most often feel when your blood sugar is above 250 mg/dL (13.9mmol/L)? Choose all that apply to you.
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    Next

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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    45 Comments

    1. jeff.dempsey@outlook.com

      All of these answers are negative or indifferent. How about “Hey, there’s a problem to solve, so lets solve it?”

      5
      2 years ago Log in to Reply
      1. Steven Gill

        While I’m naturally curious and like a sense of logic it doesn’t matter, we’re diabetic because our levels go high. I think every diabetic can expect high levels someday (and low levels?). I’ll be curious what happened, will definitely dose to correct it, and consider a plan to prevent next time. Accepting? no don’t want to “accept” higher levels. And yeah sometimes might get angry if I can’t determine the “why,” but that’s to prevent next time. Like you said “solve it,” the most important thing. The only guilt we should ever feel would be to sit worrying rather take steps to correct.

        3
        2 years ago Log in to Reply
      2. Eva

        I didn’t know how to answer the question because as a T1D high blood sugars are going to happen. I see no sense in getting mad/sad/disappointed over a high blood sugar. Those emotions don’t solve the problem. The emotion I experience most often when I have a high is motivated – motivated to bring it down.

        4
        2 years ago Log in to Reply
    2. Ahh Life

      Hopeful or motivated. It’s my basic nature.

      It’s the equivalent of slipping on the diabetic banana peel. It happens. 🍋 🍋 🍋

      4
      2 years ago Log in to Reply
      1. sweetcharlie

        And for you it has always been “part of life”……

        2 years ago Log in to Reply
    3. Jane Cerullo

      I very very rarely go over 200. When I do it’s a miscalculation of carbs. So it annoys me that I was so far off. I will give myself more insulin and do some form of cardio exercise.

      1
      2 years ago Log in to Reply
    4. Tom Muldowney

      Feelings don’t help with correcting the high, focus on fixing the situation.

      2
      2 years ago Log in to Reply
    5. Barbara Bubar

      I just don’t get there, above 250…..my blood sugars are much more frequently in the low range but I can see them coming and deal with them so I’m afraid I’m feeling a little too “in control” which can be somewhat dangerous if you think it just can’t happen that you’ll be too low to manage. It’s been a good chunk of time since I’ve needed help so I’m being a little too proud of myself???

      4
      2 years ago Log in to Reply
    6. Joan Fray

      Doesn’t happen as often as it used to. But it is frustrating. I try to do everything right, but sometimes things happen. Kinked line, 1am snack to correct a low, that extra glass of wine I didn’t bolus for…..it gets frustrating. Not angry. Don’t get angry after a lifetime of this.

      4
      2 years ago Log in to Reply
    7. RegMunro

      Not even a little bit thirsty!

      1
      2 years ago Log in to Reply
    8. TomH

      Excursions above 250 have occurred 2x in 2+ years and I’m grateful. Frustration at not being able to treat were highest.

      2 years ago Log in to Reply
    9. CindyGoddard

      Worried, frustrated and very tired.

      0
      2 years ago Log in to Reply
    10. Daniel Bestvater

      maybe a bit frustrated. But being a medical person I under stand that there are many physiologically things going on in the body. Insulin absorption, hormones, viruses, stress, diet, exercise……….. Plus we are really only replacing 1 of 6 known hormones the pancreatic islets produce. So if you are eating and experiencing life I think that some degree of BG fluctuations are to be expected.

      5
      2 years ago Log in to Reply
      1. sweetcharlie

        Very well put…. It is just a part of D life!!

        1
        2 years ago Log in to Reply
    11. Ernie Richmann

      I’m more accepting when I can understand the cause like a mistake in calculating carbs, bad infusion site , stress, or something else. I can be frustrated when I have no clue why the reading is high.

      2
      2 years ago Log in to Reply
    12. Patricia Kilwein

      I put other because it’s not about how I feel about myself but how it affects my body. Hormones that are out of whack because of high glucose. I turn into a “crabby patty”!

      2
      2 years ago Log in to Reply
    13. AimmcG

      There is the reaction triggered by the high and the s there is the psychological. I know my sugars high because I become angry but I feel shame and frustration when I realize my sugar is high but that’s not caused by the high per se

      2 years ago Log in to Reply
    14. Lawrence S.

      My most common reason for going above 250 is because I forget to take my insulin for a meal. So, I get a tiny bit angry with myself for forgetting to take my insulin. Then, I know I’m going to be high for another 3 or 4 hours. I also go high when I’m sick, so I just increase my basal rates and take a shot of bolus. That can be a tiny bit frustrating. (But, I’m not losing any sleep over any of this). Sometimes I go high after breakfast, especially when I eat too many blueberries, strawberries, raspberries or cherries. I know my blood glucose will come back down soon, so I don’t sweat it.

      3
      2 years ago Log in to Reply
      1. ConnieT1D62

        Honest realistic answer – thank you, Lawrence!

        2
        2 years ago Log in to Reply
      2. sweetcharlie

        YES !!! It is just part of D life!!!

        2
        2 years ago Log in to Reply
    15. Julie Rayden

      Impatient

      2
      2 years ago Log in to Reply
    16. Catherine Thompson

      I would say annoyed and frustrated (not quite to the level of angry so I didn’t choose that option)

      2 years ago Log in to Reply
    17. Karen Newe

      Just a little annoyed or frustrated. Not angry.

      1
      2 years ago Log in to Reply
    18. Jeremy Hanson

      Frustrated because I tend to move slow. Slow thinking, slow moving etc. Ugh.

      2 years ago Log in to Reply
    19. sdimond

      I seldom get as high as 125. Low carb for the win!

      1
      2 years ago Log in to Reply
      1. Jneticdiabetic

        @sdimond, rarely getting a BG >125 mg/dl is amazing! Mine routinely creep to 150-180 even if fasting. Have you had a C-peptide blood test? I wonder if you are one of the lucky ones who still makes a little insulin?🤞

        2 years ago Log in to Reply
    20. Lynn Smith

      In the past I have felt very angry & frustrated because I usually know it’s because of something I ate and didn’t bolus correctly for. Now that I am on Afrezza, I don’t get upset. I just inhale a 4 unit dose and I’m back down in range within minutes instead of hours. I love it!!!!!

      1
      2 years ago Log in to Reply
    21. Pauline M Reynolds

      It really depends on the circumstances.

      2
      2 years ago Log in to Reply
    22. kim bullock

      Tired, and very grumpy and headaches

      2 years ago Log in to Reply
    23. Yaffa Steubinger

      One reason I sometimes feel frustrated is that I can eat the same exact meal, with my sugars around the same as they were the day before, give myself the same amount of insulin I did yesterday for the same meal (it covered the meal perfectly) only to have my blood sugars go very high.

      3
      2 years ago Log in to Reply
      1. sweetcharlie

        Frustration itself can cause that, I find…. BTW I like your happy look in the photo!!!

        2 years ago Log in to Reply
    24. Janis Senungetuk

      Frustrated is the usual response. I’ve been hitting 250 mg/dL approximately 3 – 4 hours after dinner, a little too ofter lately. Did I miscount carbs? Should I have chosen different extended bolus numbers? Do I need to increase the basal after dinner? Lots of questions with a variety of possible solutions. No quick fixes…and that’s frustrating.

      2
      2 years ago Log in to Reply
    25. ConnieT1D62

      Emotional reactions? Not much … have gotten so used to living with the continuous ups and downs of artificial BG management in a body without the presence of organic functioning beta cells that I don’t fret too much about it anymore. If I see a trend that’s out of range I do my best to figure out why without getting hung-up on self-blame or anger at the disease. It is what it is, it is only a temporary BG reading captured a particular moment in time and I can deal with it and go on with my life.

      4
      2 years ago Log in to Reply
      1. sweetcharlie

        thanks Connie… me also..

        2 years ago Log in to Reply
    26. Juha Kankaanpaa

      I feel heavy, lethargic and not willing to do anything when my bg is high, above 10mmol/L (180mg/dL).

      2 years ago Log in to Reply
    27. Robert Wilson

      So THAT’S why I’m peeing so much!

      2
      2 years ago Log in to Reply
      1. sweetcharlie

        great… I forgot that one… me too!!

        2 years ago Log in to Reply
    28. sweetcharlie

      I am very suprised at the Higest answer of “angry or frustrated”…. It is just part of T1D life !!!!

      1
      2 years ago Log in to Reply
    29. Carrolyn Barloco

      Today I put in a new AutoSoft 90 tubing set. After my glucose crept over 300 I changed cannulas and found the first one badly kinked. This is an ongoing issue. Is there no solution to this issue. Six hours later I am still hovering around 250 and wonder if this cannula is crimped!

      2 years ago Log in to Reply
      1. Jneticdiabetic

        Cannula kinks are frustrating @ Carolyn Barloco! The darn uncertainty of what’s going on under the skin.
        I can’t tolerate the infusion sets that insert straight in; almost always kink.
        I’ve found that the Vari-soft (Tandem) or Silhouette (Medtronic) sets that insert at an angle around 45 degrees kink very rarely. I’ve heard other using Tru-Steel sets with success. If you haven’t already tried these varieties before, you might try calling your pump manufacturer, and tell them the issues you’ve been having. They will often make recommendations and send you samples to try for free. Pump equipment that causes crazy highs BGs and risk DKA are not good for business!

        2 years ago Log in to Reply
    30. Jeff Balbirnie

      All numbers generated cause at best indifference, and almost solely entirely negative emotions. Loathe all numbers period. The persuit of them in any other context would result in hospitalization… for anxiety, and severe obsession at least. IMHO

      2 years ago Log in to Reply
    31. Jneticdiabetic

      Most often I’m emotionally indifferent to highs (and curious). I see highs more as as routine issue I need to fix. Sometimes frustrated when it’s a real puzzler and taking a long time to correct.

      2 years ago Log in to Reply
    32. Amanda Barras

      From indifference to frustrated. Depending on the situation. Most times I just take them as they come, make necessary corrections, and go about my day. But when I don’t feel good, it interferes on me being able to eat in a social setting, if there is no explanation for the high I feel frustrated.

      2 years ago Log in to Reply
    33. Molly Jones

      I am usually curious why this occurs as my blood glucose does not follow a pattern, at least not one that I have been able to detect.
      It was nice when I noticed cause and effects for lows. I don’t usually feel much emotion when it comes to diabetes.
      I do have gratitude for the difference science understands it in comparison to neurology. Hopefully much more headway is made and type 1 diabetes is only a remembrance of past conditions.

      2 years ago Log in to Reply
    34. PamK

      It really depends on the situation! I have felt all of these at one time or another. I chose the ones I have felt the most, but all really do apply. Just not all the time/every time.

      2 years ago Log in to Reply

    Which emotions do you most often feel when your blood sugar is above 250 mg/dL (13.9mmol/L)? Choose all that apply to you. Cancel reply

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