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    • 1 hour, 47 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 14 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 3 hours, 14 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 3 hours, 14 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 5 hours, 27 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 5 hours, 28 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 5 hours, 28 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 6 hours, 10 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 34 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 9 hours, 31 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 1 hour ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 3 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 7 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 9 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 9 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
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    Living with T1D can be difficult, but is there anything that you’re thankful for related to T1D? Select all the options you’re grateful for and share your gratitude in the comments!

    Home > LC Polls > Living with T1D can be difficult, but is there anything that you’re thankful for related to T1D? Select all the options you’re grateful for and share your gratitude in the comments!
    Previous

    How do you handle unsolicited advice and judgements about T1D from family and friends?

    Next

    For holiday meals, which of the following is true for you when preparing food dishes and counting carbs for these meals? Select all that apply to you!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    40 Comments

    1. ConnieT1D62

      Living with T1D has taught me that I am a human being who lives in a body with pancreatic challenges. Since the tender age of 8 years synthetic insulin replacements and artificial beta cell technology has kept me alive for close to 60 years with T1D – and I keep on truckin’ because this life adventure isn’t over yet!!!

      I am grateful for the blessings from scientific research, explorations in healing, and applications in self-care and technology innovations that have paved the road to the discovery and development of artificial beta cell function so people like me (and us) can live long and prosper with pretty full, happy and productive lives.

      Perhaps someday there will will be a preventive or restorative cure for the kind of beta cell destruction and dysfunction that causes T1D. In the meantime, I have learned that I am more than than just a person with diabetes. Life on Earth is a an awesome gift full of the wonder and beauty of Great Nature, love, joy, pain and sorrow too. Being a part of it all is what makes us human. I am grateful to be an active & appreciative participant in the great mysteries and cycles of Nature and in particular the human life cycle. I have learned to live and love life with diabetes, it has never stopped me from being a human being. For that I am grateful.

      7
      4 years ago Log in to Reply
      1. Kathy Hanavan

        Beautiful response! Thank you!

        4 years ago Log in to Reply
    2. Jeff Perzan

      Living with Diabetes for more than 55+ years has instilled a discipline in how I manage my food intake and activities that has translated into other aspects of my life: planning, detail, monitoring, adaptability (out of necessity – diabetes isn’t an exact science), and responding accordingly.

      6
      4 years ago Log in to Reply
    3. Brett Crystal

      While it started as my worst moment, my diagnosis led to my best moments. It sparked me getting involved with non-profit organizations, where I have found a career that I am extremely passionate about. My diagnosis occurred just before starting to date my now-wife, and as she wanted to become a doctor, her experiences learning about my condition led to her becoming a pediatric endocrinologist. It’s inspiring to see how her care for others blossomed from being a large part of my experiences with T1D. I’m grateful that what was bad news at the time led to so much positivity throughout the years.

      7
      4 years ago Log in to Reply
    4. Ahh Life

      We in the States are celebrating today the day of thanksgiving. Approximately 2,000 years ago, Cicero wrote that gratitude “is not only the greatest, but is also the parent of all the other virtues.”

      I am thankful for all the essential workers working today—air traffic controllers, hospital janitors, gas station attendants, et al. The rest of us, being big of ego but in reality less essential, tip our hat and thank all of you.

      Thankfulness on the part of T1D people and people in general actually stimulates the ventromedial prefrontal cortex, part of the brain’s reward circuit:

      https://www.tandfonline.com/doi/abs/10.1080/17439760.2018.1424924?casa_token=X1ckthhuG0sAAAAA%3AGQoQ6d3m_fxszwrTZpLparzKi2ItNGaOxEwfBvqFCqt87lDPibdGd3VSPc9arAqaLZVOqBRXZN_Nyw&journalCode=rpos20

      And gratitude can make us more resilient, bolster family bonds, and lower blood pressure:

      https://www.researchgate.net/publication/308181231_Brightening_the_Mind_The_Impact_of_Practicing_Gratitude_on_Focus_and_Resilience_in_Learning 🙏

      3
      4 years ago Log in to Reply
      1. kflying1@yahoo.com

        Your comment started out well until the parts that were overwritten on the right by pictures/links to more articles.

        4 years ago Log in to Reply
    5. Kim Murphy

      I am thankful that there is treatment available so that I don’t die or have debilitating complications. So many diseases are worse than Diabetes.

      5
      4 years ago Log in to Reply
    6. Conniekaycox

      Am grateful to be alive. 4 days in the ICU very very close to death due to dka is how I came to be a member of the type 1 tribe. Was horrid. Thankful for the chance to live. Also thankfull for all of you who share your experiences. 3/2020 when pancreas failed. Due to pandemic has no help or contact with others. Truly don’t know how I would have made it this far without strangers sharing their knowledge.

      3
      4 years ago Log in to Reply
    7. Donna Brownley

      Thankful for Scott Benner and the Juicebox podcast!!

      2
      4 years ago Log in to Reply
      1. Robert Ratliff

        Me too!

        4 years ago Log in to Reply
    8. Retired and glad

      Sorry to be so specific, but I’m keenly thankful for the development of the CGM. I never realized how out of control I could be between finger sticks (even if they were every few hours), and the impact that was having on my longevity and quality of life. Now knowing anytime I get out of my upper and lower parameters and being able to deal with it instantly is the best thing that ever happened to me, T1D-wise.

      6
      4 years ago Log in to Reply
    9. Neal Van Berg

      I became a type 1 near the end of 1964. I had a low lottery number and would have had to go to Vietnam. I am great full I didn’t have to go. Being a type 1 has made me a better problem solver than I might have been otherwise.

      3
      4 years ago Log in to Reply
      1. Alan Altschuler

        Same here. I was diagnosed in May 1968 and called for my physical in July. Of course, I got a quick 4F. I really objected to that war.

        2
        4 years ago Log in to Reply
    10. Joan McGinnis

      I am thankful that I am alive and that deleting type 1 diabetes led me to be able to help others who are dealing with it. I am aware of the importance of technology and its effect on our lives. I am grateful for the many doctors whom I have seen who have been supportive as well as all the certified diabetes educators I know who wish to help others. most of all grateful for my family and belief in God

      6
      4 years ago Log in to Reply
    11. Patricia Kilwein

      Very thankful for each and every day I have with my family! Thankful for the team of Doctor’s and educators that work with me for better health. Happy Thanksgiving all!

      3
      4 years ago Log in to Reply
    12. Jim Andrews

      I’m thankful that I learned how to manage this condition. The doctor who diagnosed me told me that one way to stay healthy is to learn how to treat a chronic disease. I am thankful that after a few years with T1D I learned to take it seriously. Today, after 55 years with T1D, it is just a way of life. I am thankful that I have no complications, and that life is good.

      3
      4 years ago Log in to Reply
    13. Bonnie kenney

      I believe my Diabetes led me to my career. I am a personal trainer. I helped my clients with there nutrition as well. I specialized with helping Diabetics. I seen many changes since 1974! I have zero side effects! I am very thankful ❤

      3
      4 years ago Log in to Reply
    14. Cindy DeLano

      Had I not been dx’d (1971), I never who have had the chance to go to summer camp. The hospital suggested it so my family complied but it wouldn’t have been in their minds otherwise. I loved diabetes summer camp!

      2
      4 years ago Log in to Reply
      1. cynthia jaworski

        that was my answer!

        4 years ago Log in to Reply
    15. cynthia jaworski

      All of the possible benefits listed in the question could be gained without diabetes. My interests and self-awareness would have been the same. My answer is that I got to go to summer ca;mp.

      4 years ago Log in to Reply
    16. Sue Martin

      So much to be thankful for in life. My parents were medical people (doctor/nurse), they and the whole family supported me when I was diagnosed at 18. The improvements in technology have been great. I just got a kidney transplant and am very thankful for this as well. My husband has been very supportive and helps me track my data.
      God is good and has great things in store for me.

      1
      4 years ago Log in to Reply
    17. Chris Albright

      I am grateful for all the support that I get from my family and friends in helping me keep a positive attitude in this life long battle with T1D. Looking back over the last 28 years of being diagnosed with T1D, I can’t imagine how hard this journey would have been without this love and support of those close to me…..

      1
      4 years ago Log in to Reply
    18. George Lovelace

      Giving Thanks to Dexcom and Tandem for completing the Promise made 25 years ago by MiniMed.

      4
      4 years ago Log in to Reply
    19. Lawrence S.

      I am grateful for life. It is sometimes a struggle, but it is life.
      I am thankful for my wife who has stayed with me for 45 years, even though I became a T1D months after we were married.
      I am thankful for many things including the Scientific improvements in the care of diabetes, the doctors, nurses, diabetic educators, and all the folks who offer help with this disease along the way.
      I am always thankful for my family.

      1
      4 years ago Log in to Reply
    20. Bob Durstenfeld

      I am thankful for a rich life and 65 years of dealing with T1D

      2
      4 years ago Log in to Reply
    21. Janis Senungetuk

      It’s been a long road from dx in 1955. I’m grateful for the many who have supported my efforts along that journey, especially my family. Life with diabetes has instilled the need to persist and advocate for myself and others. I’m grateful for every day of life that provides that opportunity.

      3
      4 years ago Log in to Reply
    22. Molly Jones

      I am grateful for my family, peers, and the scientific community. Life improves each year even if my body does not.
      Life is a fatal condition we are all born with! Something we need to be aware of, but make sure to remind us to be grateful for things we take for granted and enjoy each day if possible.
      I also am grateful mathematics comes quickly to me.

      2
      4 years ago Log in to Reply
    23. Kevin McCue

      I am thankful for the awareness to deal with the burden of T1d. It is a tiresome disease but at least at this stage, it is also a manageable disease that motivates me to care for my health. As a side effect also improves my well-being on the whole. I’m sure there will be a time that the tide turns against me. I have the strength and courage to deal with it when the time comes.

      4 years ago Log in to Reply
    24. Steven Gill

      Generically I’m thankful for my family’s patience as I control this, including the ups (healthier lifestyle) and downs (expenses and the hypo reactions).

      Specifically reading that even with the more archaic tools folks lived 35, 45, and 55 years watching technological improvements, standards of living grow, and so many advantages. Further up Molly Jones commented living is a fatal condition, we never know the when or how. We can lived a little better.

      I’m so thankful for those who lived boiling syringes, sharpening needles, peeing on strips as my CGM and pump make my life so livable.

      4
      4 years ago Log in to Reply
      1. ConnieT1D62

        Thank you for acknowledging the primitive ways & means of diabetes survival that we old-timers had to work with when we were diagnosed 40, 50, 60 years ago! We do appreciate that we are still alive all these years later – in part perhaps because of those primitive technologies!

        2
        4 years ago Log in to Reply
    25. M Fedor

      I’ve heard it said that the best way to live a long, healthy life is to acquire a chronic disease and take care of it. I believe this is true, for me at least.

      3
      4 years ago Log in to Reply
    26. Becky Hertz

      T1D saved my life! I was in a study that requires frequent blood draws. It was noticed that my rbc’s kept creeping up. A tumor was found on my left kidney. Stage 3a upon removal. Just got last year CT scan done. Doing well!

      2
      4 years ago Log in to Reply
      1. AnitaS

        I’ve had a similar experience where a medical problem was discovered by fate just as your RBC results led to a tumor discovery that were discovered by fate. I had no symptoms, but because a medical assistant accidentally ordered a chest x-ray, a large tumor was discovered on my spinal cord. Things sometimes happen for reasons that have no real reason to happen.

        4 years ago Log in to Reply
    27. Ceolmhor

      I’m eating better and enjoying it more.

      1
      4 years ago Log in to Reply
    28. kris Rickens Aguilar

      That at least there are meds to keep us alive

      1
      4 years ago Log in to Reply
    29. Donna Condi

      I am so very thankful for my Dexcom and Tandem pump with Control IQ. They have made all the difference in my ability to take the best care of myself physically and less stress mentally.

      2
      4 years ago Log in to Reply
    30. Christina Trudo

      grateful I am still alive at age 70 (it wasn’t a given) and grateful for the person I have grown into, which in ways large and small has been shaped by my disease. (Yes, I use that word on purpose. )

      4 years ago Log in to Reply
    31. Jneticdiabetic

      Thankful for all of the above. Plus, my TID led me to a career in diabetes research, which has been rewarding.

      4 years ago Log in to Reply
    32. Steve Hornig

      I weigh the same amount at age 70, as I did when I was a senior in High School. I attribute this 100% to being very conscious of my diet due to T1D.

      4 years ago Log in to Reply
    33. Carlene Vaitones

      My grandmother boiled the same syringe everyday to take a daily insulin shot. She didn’t have a meter to self monitor. She did learn to tell when she was going low and treated it herself, probably with over-shooting it and ending up high. She raised, fed, and sewed for 6 children and her husband and helped run their farm, and was a good loving woman. I can’t even.

      4 years ago Log in to Reply

    Living with T1D can be difficult, but is there anything that you’re thankful for related to T1D? Select all the options you’re grateful for and share your gratitude in the comments! Cancel reply

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