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    • 47 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      I oftentimes give myself a little insulin for when I go unplugged while changing pods, depending on what my current sensor reading is.
    • 47 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Always, until I began to increase the "cannula fill" amount. I found I need a good bit more than the (1.3u) to "prime the site" to have the next blood sugars be in goal. Just remember "every body is different". Darn than OmniPod does not let you change that amount, have to use "fake carbs". Something to consider.....
    • 48 minutes ago
      KarenM6 likes your comment at
      How well do you understand the details of your health insurance coverage?
      At the risk of being overly simplistic, it boils down to: "Heads, you lose. Tails, You lose." ╰── ──╮
    • 48 minutes ago
      KarenM6 likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 48 minutes ago
      KarenM6 likes your comment at
      How well do you understand the details of your health insurance coverage?
      "Slightly," I think, maybe. Insurance companies change their policies, constantly. Prescription coverage changes every time I look at it. Medicare is a huge question mark. Honestly, Health insurance has become a big money making business, for them. I get different answers every time I call, depending upon whom I am talking with. I say it's time for socialized medicine.
    • 48 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 5 hours, 3 minutes ago
      KSannie likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      **cannula
    • 11 hours, 21 minutes ago
      Kathleen Juzenas likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I find a using the T-Connect app I have the main features needed, CMG, bolus, battery level and remaining insulin.
    • 12 hours, 13 minutes ago
      Kathy Hanavan likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 15 hours, 15 minutes ago
      TEH likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 15 hours, 15 minutes ago
      TEH likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 15 hours, 23 minutes ago
      atr likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 15 hours, 25 minutes ago
      atr likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 15 hours, 37 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      Mostly pump because I want to quickly see insulin on board. Tandem on IPhone when holding my great-niece while she sleeps since getting my pump out of my pocket always wakes her ☺️. Dexcom app if not in need of insulin.
    • 15 hours, 38 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      usually the pump; sometimes my phone.
    • 15 hours, 38 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump (Tandem X2). Since I have to carry a work phone close to 247, I don't want to deal with two phones (device overload!). As I go about my day, looking at my pump meets my needs, I can decide to bolus etc - and edit the bolus. For more in depth data review and analysis, I use the TConnect.
    • 15 hours, 38 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I read it from my pump.
    • 15 hours, 38 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      On my insulin pump
    • 15 hours, 38 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump. Keep it simple.
    • 15 hours, 41 minutes ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      Do you realize what you have just said: "Obscurantism, gobbledegook, and pointillism used not as an art form but as a 'Gotcha!' of legal/financial determinism?"
    • 15 hours, 42 minutes ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      How much of this is intentionally misleading? My mail order prescription service says that can’t possibly know the cost of a medication until after it’s been shipped, which is too late to cancel or return, of course, and makes it impossible to comparison shop.
    • 15 hours, 44 minutes ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      I have an MA in writing and lit, but gobbledegook is gobbledegook. The fancy term is obscurantism.
    • 15 hours, 45 minutes ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 15 hours, 59 minutes ago
      Lawrence S. likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 1 day, 13 hours ago
      Sarah Berry likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump
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    Living with T1D can be difficult, but is there anything that you’re thankful for related to T1D? Select all the options you’re grateful for and share your gratitude in the comments!

    Home > LC Polls > Living with T1D can be difficult, but is there anything that you’re thankful for related to T1D? Select all the options you’re grateful for and share your gratitude in the comments!
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    How do you handle unsolicited advice and judgements about T1D from family and friends?

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    For holiday meals, which of the following is true for you when preparing food dishes and counting carbs for these meals? Select all that apply to you!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    " At T1D Exchange, we’re proud to announce our Medical and Research Advisory Team — an accomplished group of leaders in endocrinology, research, and quality improvement. Together, they are redefining what’s possible in type 1 diabetes (T1D) care through rigorous data analysis, innovative research approaches, and real-world implementation. Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. T1DX-QI is a remarkable resource for centers that are using continuous process improvement to improve the quality of care for people living with diabetes.”  “Diabetes centers working with T1DX –QI have done amazing work using QI methodology to make care accessible and equitable for all people with diabetes,” she said. “It’s inspiring to be a part of a collaborative in which centers have been creative and thoughtful with initiatives to address individual and systemic challenges to care, improving clinical outcomes as well as the patient experience."  Looking ahead, Dr. Sherr highlighted the opportunity to build on the existing strong foundation. “I’m very excited to be working as a Medical Advisor for T1D Exchange,” she said. “It’s a privilege to help shape what comes next for a group that’s already doing such impactful work.”  “Sharing what’s happening in clinical practice, benchmarking across centers, and understanding outcomes is how we figure out what’s working, what’s not, and where we go next,” she said.      The future of T1D care   With this team’s vision and expertise, T1D Exchange is positioned to accelerate progress in T1D care — bridging research and real-world practice to drive meaningful, measurable impact.  Together, we look forward to advancing innovation and improving outcomes for everyone affected by type 1 diabetes.   "

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    40 Comments

    1. ConnieT1D62

      Living with T1D has taught me that I am a human being who lives in a body with pancreatic challenges. Since the tender age of 8 years synthetic insulin replacements and artificial beta cell technology has kept me alive for close to 60 years with T1D – and I keep on truckin’ because this life adventure isn’t over yet!!!

      I am grateful for the blessings from scientific research, explorations in healing, and applications in self-care and technology innovations that have paved the road to the discovery and development of artificial beta cell function so people like me (and us) can live long and prosper with pretty full, happy and productive lives.

      Perhaps someday there will will be a preventive or restorative cure for the kind of beta cell destruction and dysfunction that causes T1D. In the meantime, I have learned that I am more than than just a person with diabetes. Life on Earth is a an awesome gift full of the wonder and beauty of Great Nature, love, joy, pain and sorrow too. Being a part of it all is what makes us human. I am grateful to be an active & appreciative participant in the great mysteries and cycles of Nature and in particular the human life cycle. I have learned to live and love life with diabetes, it has never stopped me from being a human being. For that I am grateful.

      7
      4 years ago Log in to Reply
      1. Kathy Hanavan

        Beautiful response! Thank you!

        4 years ago Log in to Reply
    2. Jeff Perzan

      Living with Diabetes for more than 55+ years has instilled a discipline in how I manage my food intake and activities that has translated into other aspects of my life: planning, detail, monitoring, adaptability (out of necessity – diabetes isn’t an exact science), and responding accordingly.

      6
      4 years ago Log in to Reply
    3. Brett Crystal

      While it started as my worst moment, my diagnosis led to my best moments. It sparked me getting involved with non-profit organizations, where I have found a career that I am extremely passionate about. My diagnosis occurred just before starting to date my now-wife, and as she wanted to become a doctor, her experiences learning about my condition led to her becoming a pediatric endocrinologist. It’s inspiring to see how her care for others blossomed from being a large part of my experiences with T1D. I’m grateful that what was bad news at the time led to so much positivity throughout the years.

      7
      4 years ago Log in to Reply
    4. Ahh Life

      We in the States are celebrating today the day of thanksgiving. Approximately 2,000 years ago, Cicero wrote that gratitude “is not only the greatest, but is also the parent of all the other virtues.”

      I am thankful for all the essential workers working today—air traffic controllers, hospital janitors, gas station attendants, et al. The rest of us, being big of ego but in reality less essential, tip our hat and thank all of you.

      Thankfulness on the part of T1D people and people in general actually stimulates the ventromedial prefrontal cortex, part of the brain’s reward circuit:

      https://www.tandfonline.com/doi/abs/10.1080/17439760.2018.1424924?casa_token=X1ckthhuG0sAAAAA%3AGQoQ6d3m_fxszwrTZpLparzKi2ItNGaOxEwfBvqFCqt87lDPibdGd3VSPc9arAqaLZVOqBRXZN_Nyw&journalCode=rpos20

      And gratitude can make us more resilient, bolster family bonds, and lower blood pressure:

      https://www.researchgate.net/publication/308181231_Brightening_the_Mind_The_Impact_of_Practicing_Gratitude_on_Focus_and_Resilience_in_Learning 🙏

      3
      4 years ago Log in to Reply
      1. kflying1@yahoo.com

        Your comment started out well until the parts that were overwritten on the right by pictures/links to more articles.

        4 years ago Log in to Reply
    5. Kim Murphy

      I am thankful that there is treatment available so that I don’t die or have debilitating complications. So many diseases are worse than Diabetes.

      5
      4 years ago Log in to Reply
    6. Conniekaycox

      Am grateful to be alive. 4 days in the ICU very very close to death due to dka is how I came to be a member of the type 1 tribe. Was horrid. Thankful for the chance to live. Also thankfull for all of you who share your experiences. 3/2020 when pancreas failed. Due to pandemic has no help or contact with others. Truly don’t know how I would have made it this far without strangers sharing their knowledge.

      3
      4 years ago Log in to Reply
    7. Donna Brownley

      Thankful for Scott Benner and the Juicebox podcast!!

      2
      4 years ago Log in to Reply
      1. Robert Ratliff

        Me too!

        4 years ago Log in to Reply
    8. Retired and glad

      Sorry to be so specific, but I’m keenly thankful for the development of the CGM. I never realized how out of control I could be between finger sticks (even if they were every few hours), and the impact that was having on my longevity and quality of life. Now knowing anytime I get out of my upper and lower parameters and being able to deal with it instantly is the best thing that ever happened to me, T1D-wise.

      6
      4 years ago Log in to Reply
    9. Neal Van Berg

      I became a type 1 near the end of 1964. I had a low lottery number and would have had to go to Vietnam. I am great full I didn’t have to go. Being a type 1 has made me a better problem solver than I might have been otherwise.

      3
      4 years ago Log in to Reply
      1. Alan Altschuler

        Same here. I was diagnosed in May 1968 and called for my physical in July. Of course, I got a quick 4F. I really objected to that war.

        2
        4 years ago Log in to Reply
    10. Joan McGinnis

      I am thankful that I am alive and that deleting type 1 diabetes led me to be able to help others who are dealing with it. I am aware of the importance of technology and its effect on our lives. I am grateful for the many doctors whom I have seen who have been supportive as well as all the certified diabetes educators I know who wish to help others. most of all grateful for my family and belief in God

      6
      4 years ago Log in to Reply
    11. Patricia Kilwein

      Very thankful for each and every day I have with my family! Thankful for the team of Doctor’s and educators that work with me for better health. Happy Thanksgiving all!

      3
      4 years ago Log in to Reply
    12. Jim Andrews

      I’m thankful that I learned how to manage this condition. The doctor who diagnosed me told me that one way to stay healthy is to learn how to treat a chronic disease. I am thankful that after a few years with T1D I learned to take it seriously. Today, after 55 years with T1D, it is just a way of life. I am thankful that I have no complications, and that life is good.

      3
      4 years ago Log in to Reply
    13. Bonnie kenney

      I believe my Diabetes led me to my career. I am a personal trainer. I helped my clients with there nutrition as well. I specialized with helping Diabetics. I seen many changes since 1974! I have zero side effects! I am very thankful ❤

      3
      4 years ago Log in to Reply
    14. Cindy DeLano

      Had I not been dx’d (1971), I never who have had the chance to go to summer camp. The hospital suggested it so my family complied but it wouldn’t have been in their minds otherwise. I loved diabetes summer camp!

      2
      4 years ago Log in to Reply
      1. cynthia jaworski

        that was my answer!

        4 years ago Log in to Reply
    15. cynthia jaworski

      All of the possible benefits listed in the question could be gained without diabetes. My interests and self-awareness would have been the same. My answer is that I got to go to summer ca;mp.

      4 years ago Log in to Reply
    16. Sue Martin

      So much to be thankful for in life. My parents were medical people (doctor/nurse), they and the whole family supported me when I was diagnosed at 18. The improvements in technology have been great. I just got a kidney transplant and am very thankful for this as well. My husband has been very supportive and helps me track my data.
      God is good and has great things in store for me.

      1
      4 years ago Log in to Reply
    17. Chris Albright

      I am grateful for all the support that I get from my family and friends in helping me keep a positive attitude in this life long battle with T1D. Looking back over the last 28 years of being diagnosed with T1D, I can’t imagine how hard this journey would have been without this love and support of those close to me…..

      1
      4 years ago Log in to Reply
    18. George Lovelace

      Giving Thanks to Dexcom and Tandem for completing the Promise made 25 years ago by MiniMed.

      4
      4 years ago Log in to Reply
    19. Lawrence S.

      I am grateful for life. It is sometimes a struggle, but it is life.
      I am thankful for my wife who has stayed with me for 45 years, even though I became a T1D months after we were married.
      I am thankful for many things including the Scientific improvements in the care of diabetes, the doctors, nurses, diabetic educators, and all the folks who offer help with this disease along the way.
      I am always thankful for my family.

      1
      4 years ago Log in to Reply
    20. Bob Durstenfeld

      I am thankful for a rich life and 65 years of dealing with T1D

      2
      4 years ago Log in to Reply
    21. Janis Senungetuk

      It’s been a long road from dx in 1955. I’m grateful for the many who have supported my efforts along that journey, especially my family. Life with diabetes has instilled the need to persist and advocate for myself and others. I’m grateful for every day of life that provides that opportunity.

      3
      4 years ago Log in to Reply
    22. Molly Jones

      I am grateful for my family, peers, and the scientific community. Life improves each year even if my body does not.
      Life is a fatal condition we are all born with! Something we need to be aware of, but make sure to remind us to be grateful for things we take for granted and enjoy each day if possible.
      I also am grateful mathematics comes quickly to me.

      2
      4 years ago Log in to Reply
    23. Kevin McCue

      I am thankful for the awareness to deal with the burden of T1d. It is a tiresome disease but at least at this stage, it is also a manageable disease that motivates me to care for my health. As a side effect also improves my well-being on the whole. I’m sure there will be a time that the tide turns against me. I have the strength and courage to deal with it when the time comes.

      4 years ago Log in to Reply
    24. Steven Gill

      Generically I’m thankful for my family’s patience as I control this, including the ups (healthier lifestyle) and downs (expenses and the hypo reactions).

      Specifically reading that even with the more archaic tools folks lived 35, 45, and 55 years watching technological improvements, standards of living grow, and so many advantages. Further up Molly Jones commented living is a fatal condition, we never know the when or how. We can lived a little better.

      I’m so thankful for those who lived boiling syringes, sharpening needles, peeing on strips as my CGM and pump make my life so livable.

      4
      4 years ago Log in to Reply
      1. ConnieT1D62

        Thank you for acknowledging the primitive ways & means of diabetes survival that we old-timers had to work with when we were diagnosed 40, 50, 60 years ago! We do appreciate that we are still alive all these years later – in part perhaps because of those primitive technologies!

        2
        4 years ago Log in to Reply
    25. M Fedor

      I’ve heard it said that the best way to live a long, healthy life is to acquire a chronic disease and take care of it. I believe this is true, for me at least.

      3
      4 years ago Log in to Reply
    26. Becky Hertz

      T1D saved my life! I was in a study that requires frequent blood draws. It was noticed that my rbc’s kept creeping up. A tumor was found on my left kidney. Stage 3a upon removal. Just got last year CT scan done. Doing well!

      2
      4 years ago Log in to Reply
      1. AnitaS

        I’ve had a similar experience where a medical problem was discovered by fate just as your RBC results led to a tumor discovery that were discovered by fate. I had no symptoms, but because a medical assistant accidentally ordered a chest x-ray, a large tumor was discovered on my spinal cord. Things sometimes happen for reasons that have no real reason to happen.

        4 years ago Log in to Reply
    27. Ceolmhor

      I’m eating better and enjoying it more.

      1
      4 years ago Log in to Reply
    28. kris Rickens Aguilar

      That at least there are meds to keep us alive

      1
      4 years ago Log in to Reply
    29. Donna Condi

      I am so very thankful for my Dexcom and Tandem pump with Control IQ. They have made all the difference in my ability to take the best care of myself physically and less stress mentally.

      2
      4 years ago Log in to Reply
    30. Christina Trudo

      grateful I am still alive at age 70 (it wasn’t a given) and grateful for the person I have grown into, which in ways large and small has been shaped by my disease. (Yes, I use that word on purpose. )

      4 years ago Log in to Reply
    31. Jneticdiabetic

      Thankful for all of the above. Plus, my TID led me to a career in diabetes research, which has been rewarding.

      4 years ago Log in to Reply
    32. Steve Hornig

      I weigh the same amount at age 70, as I did when I was a senior in High School. I attribute this 100% to being very conscious of my diet due to T1D.

      4 years ago Log in to Reply
    33. Carlene Vaitones

      My grandmother boiled the same syringe everyday to take a daily insulin shot. She didn’t have a meter to self monitor. She did learn to tell when she was going low and treated it herself, probably with over-shooting it and ending up high. She raised, fed, and sewed for 6 children and her husband and helped run their farm, and was a good loving woman. I can’t even.

      4 years ago Log in to Reply

    Living with T1D can be difficult, but is there anything that you’re thankful for related to T1D? Select all the options you’re grateful for and share your gratitude in the comments! Cancel reply

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