Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 43 minutes ago
      Phyllis Biederman likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      Its a Tandem. The main issue I have with the phone is the inability to do an extended bolus.
    • 44 minutes ago
      Phyllis Biederman likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I selected “other” because my preference (smart watch, mobile phone, or pump screen) depends on circumstances. Watch for a quick and discrete view; pump if I’m preparing for a profile or activity adjustment or bolus, mobile phone if just a food bolus.
    • 1 hour, 12 minutes ago
      Amy Schneider likes your comment at
      How well do you understand the details of your health insurance coverage?
      At the risk of being overly simplistic, it boils down to: "Heads, you lose. Tails, You lose." ╰── ──╮
    • 9 hours, 35 minutes ago
      Daniel Bestvater likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 19 hours, 8 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      I oftentimes give myself a little insulin for when I go unplugged while changing pods, depending on what my current sensor reading is.
    • 19 hours, 8 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Always, until I began to increase the "cannula fill" amount. I found I need a good bit more than the (1.3u) to "prime the site" to have the next blood sugars be in goal. Just remember "every body is different". Darn than OmniPod does not let you change that amount, have to use "fake carbs". Something to consider.....
    • 19 hours, 9 minutes ago
      KarenM6 likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 19 hours, 9 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 23 hours, 24 minutes ago
      KSannie likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      **cannula
    • 1 day, 5 hours ago
      Kathleen Juzenas likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I find a using the T-Connect app I have the main features needed, CMG, bolus, battery level and remaining insulin.
    • 1 day, 9 hours ago
      TEH likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 1 day, 9 hours ago
      atr likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 1 day, 9 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      Mostly pump because I want to quickly see insulin on board. Tandem on IPhone when holding my great-niece while she sleeps since getting my pump out of my pocket always wakes her ☺️. Dexcom app if not in need of insulin.
    • 1 day, 9 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      usually the pump; sometimes my phone.
    • 1 day, 9 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump (Tandem X2). Since I have to carry a work phone close to 247, I don't want to deal with two phones (device overload!). As I go about my day, looking at my pump meets my needs, I can decide to bolus etc - and edit the bolus. For more in depth data review and analysis, I use the TConnect.
    • 1 day, 9 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I read it from my pump.
    • 1 day, 9 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      On my insulin pump
    • 1 day, 9 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump. Keep it simple.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      How much of this is intentionally misleading? My mail order prescription service says that can’t possibly know the cost of a medication until after it’s been shipped, which is too late to cancel or return, of course, and makes it impossible to comparison shop.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      I have an MA in writing and lit, but gobbledegook is gobbledegook. The fancy term is obscurantism.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 2 days, 7 hours ago
      Sarah Berry likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump
    • 2 days, 8 hours ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      One nice thing about a watch for readings is that, while it is normally redundant, you can be separated from your phone. For example, when you are in water.
    • 2 days, 8 hours ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Industry Partnerships
      • Academic Partnerships
      • Previous Work
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    In the past three years, have you been hospitalized due to T1D?

    Home > LC Polls > In the past three years, have you been hospitalized due to T1D?
    Previous

    Aside from the first year after your diagnosis, have you seen a registered dietitian for help managing nutrition and T1D?

    Next

    If you use an insulin pump, have you ever used expired pump supplies (e.g., infusion sets, reservoirs, pods, etc.)? If so, did you notice any issues with the supplies?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    " At T1D Exchange, we’re proud to announce our Medical and Research Advisory Team — an accomplished group of leaders in endocrinology, research, and quality improvement. Together, they are redefining what’s possible in type 1 diabetes (T1D) care through rigorous data analysis, innovative research approaches, and real-world implementation. Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. T1DX-QI is a remarkable resource for centers that are using continuous process improvement to improve the quality of care for people living with diabetes.”  “Diabetes centers working with T1DX –QI have done amazing work using QI methodology to make care accessible and equitable for all people with diabetes,” she said. “It’s inspiring to be a part of a collaborative in which centers have been creative and thoughtful with initiatives to address individual and systemic challenges to care, improving clinical outcomes as well as the patient experience."  Looking ahead, Dr. Sherr highlighted the opportunity to build on the existing strong foundation. “I’m very excited to be working as a Medical Advisor for T1D Exchange,” she said. “It’s a privilege to help shape what comes next for a group that’s already doing such impactful work.”  “Sharing what’s happening in clinical practice, benchmarking across centers, and understanding outcomes is how we figure out what’s working, what’s not, and where we go next,” she said.      The future of T1D care   With this team’s vision and expertise, T1D Exchange is positioned to accelerate progress in T1D care — bridging research and real-world practice to drive meaningful, measurable impact.  Together, we look forward to advancing innovation and improving outcomes for everyone affected by type 1 diabetes.   "

    6 days ago  
    Meet the Expert

    Meet the Expert: Improving Diabetes Care Through Precision Medicine 

    Jewels Doskicz, 2 weeks ago 8 min read  
    Meet the Expert

    Meet the Expert: Bridging Research, Technology, and Real-World Care 

    Jewels Doskicz, 2 weeks ago 9 min read  
    Insulin & Meds

    Ask the Expert: Diana Isaacs on Benefits, Risks, and Real-World Use of GLP-1s in T1D 

    Jewels Doskicz, 3 weeks ago 6 min read  
    Meet the Expert

    Meet the Expert: Advancing Equity, Improving Outcomes, and Reducing the Burden of T1D 

    Jewels Doskicz, 1 month ago 8 min read  
    Our team

    Spotlight on T1DX-QI: Clinical Leadership Committee 

    Jewels Doskicz, 2 months ago 6 min read  

    25 Comments

    1. Ahh Life

      In 72 years with T1D I have been hospitalized once — 1984 when BG got so low that my internal body temperature went from 98.6 to 93. That is the coldest I have ever been in my life, colder than 30 below 0 Fahrenheit in Midwest winters, cold Alps at 9,000 feet, and cold western US Ski areas at 9,000 feet.

      Brain does a wonderful instinctive thing at low BG to try to keep it’s functions working so that you don’t die. Thanks, brain.

      7
      3 years ago Log in to Reply
      1. Joan Fray

        Amazing!

        1
        3 years ago Log in to Reply
    2. Jeremy Hanson

      I was super sick with a stomach bug and it hit me after dinner when I did a pretty large bolus. I couldn’t keep anything down and my blood sugar was stuck below 40. Pretty scary although it was a blur – more scary for my wife who had to deal with gettin me to the hospital 😬

      3 years ago Log in to Reply
    3. Joan Fray

      Got the flu about a year ago. Landed in the hospital after one day of severe vomiting . Stayed two days. Nice vacay once they stopped the vomiting. First time in ten years.

      3 years ago Log in to Reply
    4. Debra Nance

      I have not been hospitalized for diabetes since 1979. Only 4x in 60 years

      3 years ago Log in to Reply
    5. Jian

      yes this is the first in 14 yrs I think just for overnight for cardiac s=cath with 2 stents. My heart disease is very familial .

      3 years ago Log in to Reply
    6. Tom Caesar

      So gratifying to see so many “no” responses, way to go everyone!!

      5
      3 years ago Log in to Reply
    7. Robin Melen

      First time two years ago when I was diagnosed with T1D! Was in DKA and had no idea why I was so sick. Six days! Second time just overnight when I couldn’t get my sugars down (I was still in that early learning phase). And at least one stop of a couple of hours at the ER – same reason – high sugars I couldn’t figure out. Luckily I seem to have all figured out now! Whew!

      1
      3 years ago Log in to Reply
    8. KCR

      ER visit for fluids after GI illness.

      3 years ago Log in to Reply
    9. Elizabeth Jones

      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞

      6
      3 years ago Log in to Reply
    10. Kristen Clifford

      My last hospitalization was in December 2020 after a delayed refill for my insulin put me in DKA. The worst part was that because it was at the height of Covid, my husband basically could only drop me off at the ER door. The hospital was less than ten minutes from our home, and it was only one night, but I may as well have been on the other side of the world.

      1
      3 years ago Log in to Reply
    11. pru barry

      After my preliminary stay at Joslin in 1954, I’ve never spent time in a hospital because of having diabetes. A few other times for things like tonsils and babies, but I’ve been very lucky, and very healthy. Very grateful!

      4
      3 years ago Log in to Reply
    12. Steve Rumble

      The only time I have been hospitalized due to T1D was in 1970 when I suffered a diabetic hyperosmolar coma, due to ketoacidosis resulting from undiagnosed T1D. I was young and just back from an assignment to Korea in the USAF. I new something was wrong with me, but did not know what and I wanted to visit my family before exploring my issues through the USAF medical services.

      4
      3 years ago Log in to Reply
    13. Karen Tay

      Last time I was in the hospital due to diabetes was within 6 months of first starting on an insulin pump. Approximately 32 years ago

      1
      3 years ago Log in to Reply
    14. Ben Galindo

      No, I have not been hospitalized in the last three years, it has been 67 years since I’ve been hospitalized for diabetes related issues.uu

      2
      3 years ago Log in to Reply
    15. Modee

      At 65yo, a T1D for 53 years and a pump user for 25 years I experienced what I own as a user error when my pump charger cord went bad and I miscalculated a manual shot. I awoke at 3am knowing I was going low and went to the kitchen to get some juice and remember noting after that until I awoke on the kitchen floor. I could not stand up and drug myself down the hall to get my phone. I called 911 and asked what time it was. It was 9am. I had broken my right ankle, fractured my left knee and torn the meniscus. Lots of lessons learned and after a month of rehab my family and I decided I could no longer live alone. Between T1D and being a fall risk I am in a senior assisted living. It’s not a bad ending but so many things go into our care. Prepare for your future and don’t be stupid!

      2
      3 years ago Log in to Reply
    16. Sue Martin

      I was hospitalized for 5 days in 1986 in France to learn to give myself injections. The last hospitalization was for a kidney transplant 1.5 years ago.

      3 years ago Log in to Reply
    17. Mig Vascos

      I’ve never been hospitalized because of T1D other than when the endo started me on insulin on 1973 to learn about injections and diet.

      1
      3 years ago Log in to Reply
    18. Greg Felton

      Dang, now I jinxed myself 🙃

      1
      3 years ago Log in to Reply
    19. ConnieT1D62

      Last time I was hospitalized for anything related to T1D was over 30 years ago in the winter of 1992 for an unexpected bout of DKA … was during a very stressful time in my life and was inpatient for three days to get my BGs stabilized back in the days before I was using a pump and CGMs weren’t even on the radar yet …

      3 years ago Log in to Reply
    20. Bob Durstenfeld

      Not directly, anyway, I have been hospitalized for heart issues.

      3 years ago Log in to Reply
    21. Edward Geary

      I have, however, received emergency care in a hospital for T1 complications i.e. elevated potassium and kidney injury due to Covid.

      3 years ago Log in to Reply
    22. Juha Kankaanpaa

      After diagnosis 1988 I have never been hospitalised because of T1D, or for any other reason either.

      3 years ago Log in to Reply
    23. Virginia Barndollar

      58 years T1DM in July, one hospitization, that was in 1965 with diagnosis.

      3 years ago Log in to Reply
    24. Jeff Balbirnie

      Lack of D medical competence caused noxious extension of several stays, but not the stays themselves.

      3 years ago Log in to Reply

    In the past three years, have you been hospitalized due to T1D? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]