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    • 6 hours, 55 minutes ago
      ChrisW likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      Still twice a year. It carries much less weight than time in range and the GMI.
    • 18 hours, 3 minutes ago
      KCR likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 18 hours, 44 minutes ago
      TEH likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Diabetes doesn't necessarily interrupt my sleep per se. Its always the darn dexcom G7 losing signal at random waking me up.
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Occasionally from lows - the biggest disruption is the every 3 day reminder to change my pump that goes off at 2am
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Occasionally from lows - the biggest disruption is the every 3 day reminder to change my pump that goes off at 2am
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 1 day, 17 hours ago
      Marty likes your comment at
      How often does diabetes disrupt your sleep?
      Diabetes doesn't necessarily interrupt my sleep per se. Its always the darn dexcom G7 losing signal at random waking me up.
    • 1 day, 17 hours ago
      D-connect likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 1 day, 18 hours ago
      atr likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 2 days, 13 hours ago
      KarenM6 likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 2 days, 18 hours ago
      Natalie Daley likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 2 days, 19 hours ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      Often? Try Always! I only see my doc 1x a year to legally fill Rx. Otherwise I manage 100% on my own and make all my own dosing adjustments.
    • 2 days, 19 hours ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 3 days, 15 hours ago
      Amanda Barras likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 3 days, 17 hours ago
      kristina blake likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 3 days, 18 hours ago
      Marty likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 3 days, 19 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      This is one of those times when I want to ask T1DExchange “what is the motivation behind this question”? What are you trying to learn from it?
    • 3 days, 19 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 4 days, 6 hours ago
      Bekki Weston likes your comment at
      If you use a CGM, is it accurate on day 1?
      It takes a few hours to get close.
    • 4 days, 6 hours ago
      Bekki Weston likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      Usually when it's about to expire.
    • 4 days, 14 hours ago
      lis be likes your comment at
      How often do you adjust a planned physical activity because of how your glucose is trending?
      If I am above 150mg/dl don't need to carb up. If I am around 100mg/dl I definitely need to carb up. Aren't we always evaluating where we are and anticipating where we might land. That is part of active management.
    • 4 days, 18 hours ago
      Phyllis Biederman likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      For me it's compression lows - and that's it. I see that most complaints are about connection to phones. I don't (won't) use my phone. I have to have a work phone with me at least 60 hours a week, and I'm not interested in carrying (or wearing) two phones. I rarely lose connection between my Tandem X2 pump and the sensor/transmitter. Sometimes I will walk away while it's charging and take myself out of range, but that's on me.
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    If you (or your child with T1D) celebrate Halloween, how do you balance blood sugar levels, physical activity, and candy during the festivities?

    Home > LC Polls > If you (or your child with T1D) celebrate Halloween, how do you balance blood sugar levels, physical activity, and candy during the festivities?
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    Today is the first day of National Diabetes Awareness Month! In the comments, please share any advice you wish you would have received when you were diagnosed with T1D.

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    On a scale of 1-5, how satisfied are you with your current T1D healthcare provider? (5 = the most satisfied, 1 = the least satisfied)

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    42 Comments

    1. KIMBERELY SMITH

      I don’t believe in that holiday at all

      1
      2 years ago Log in to Reply
    2. Jane Cerullo

      I have a glass of wine while sitting by a fire in our driveway. Maybe a piece of chocolate. But it’s not an excuse to go crazy.

      2
      2 years ago Log in to Reply
      1. Tina Roberts

        Wine raises my sugars just as bad as candy, unfortunately. Wish I could have a glass a bit more often. Enjoy one for me!

        2 years ago Log in to Reply
    3. Bruce Schnitzler

      No participation.

      1
      2 years ago Log in to Reply
    4. Meerkat

      I enjoy a cup of herbal tea and read a book while waiting for the kids!

      1
      2 years ago Log in to Reply
    5. Jen Farley

      I try as little as possible to eat anything. There was a time I did not care. I was a kid then and I am sticking with that excuse. Nowadays I try to eat the stuff my kids, now grandkids hate like chips. They want the candy and know Nana can’t have the sweets. I appreciate the sharing and candy is excused when walking around trick or treating and my blood sugar reading starts to drop. Smarties are just like glucose tablets. Those are my work arounds and the new smarties flavors sound fun.

      2 years ago Log in to Reply
    6. Jennifer Beck

      I pick one special treat and dose for it then enjoy.

      2 years ago Log in to Reply
    7. Robert L Nelson

      Bolus accordingly

      2 years ago Log in to Reply
    8. Tabatha Rush

      We let her have some candy and bolus for it.

      2 years ago Log in to Reply
    9. cynthia jaworski

      SWAG

      2 years ago Log in to Reply
      1. Tina Roberts

        What’s SWAG?

        2 years ago Log in to Reply
    10. Lindsey Whitnell

      We have save some candy to eat later, like a piece a day with lunch / other food and bolus for it. The rest goes to the Switch Witch in exchange for a toy. Then we use that candy for low treats.

      2 years ago Log in to Reply
    11. Brian Vodehnal

      Afrezza helps with the spikes. Stay away from pure sugar candies…stick to chocolate . Slowed absorption rate.

      2 years ago Log in to Reply
    12. Gary Taylor

      Watch my CGM and take lots of doses of insulin.

      2
      2 years ago Log in to Reply
      1. Tina Roberts

        Exactly!!

        2 years ago Log in to Reply
    13. Twinniepoo74

      Before going trick or treating with my kids and now my grand babies I eat a higher carb meal like spaghetti or lasagna for all the walking we will do. As far as treats go as soon as we get home after going through the candy everyone is allowed one small piece as a late dessert. The rest I freeze or hid until later use.

      2 years ago Log in to Reply
    14. Bob Durstenfeld

      When I was young I either did trick or treat for UNICEF, or I got money for candy.
      That was the dark ages of diabetes management, so candy was off limits, unless you were low.

      2 years ago Log in to Reply
    15. MDOberg

      I just don’t bother with any of it! I don’t even care for sweets anymore.

      2 years ago Log in to Reply
    16. Yaffa Steubinger

      I TRY to save eating the candy for when I go low. Perhaps I might have ‘accidentally’ given myself more insulin for a meal and then, voilà, I need candy. 😉

      2 years ago Log in to Reply
    17. Tina Roberts

      I throw caution to the wind and walk a lot and eat candy. Always have, always will. It’s Halloween!!

      1
      2 years ago Log in to Reply
    18. Debra Nance

      I look for carb content and bolus accordingly.
      When I was a child I got the chips and fruit. Brothers and sister got most of the candy. I got an occasional piece of candy.

      2 years ago Log in to Reply
    19. Karen DeVeaux

      I hand out candy but don’t eat any that night.

      2 years ago Log in to Reply
    20. ELYSSE HELLER

      My mom always bought single bags of mini pretzels which had the carbohydrate content labeled and that is what I know give out. Luckily I never was never into candy (perhaps because of my diabetes ?), and I always liked pretzels.

      2 years ago Log in to Reply
    21. Pauline M Reynolds

      I’m 84, but live in a home with children. I stay in my room and listen to the festivities, and let myself have chocolate (I only cheat for chocolate!) items and bolus for them.

      2 years ago Log in to Reply
    22. Joan Benedetto

      My son actually goes low with all the walking. He usually has one piece of fast acting candy followed by something chocolate to help stabilize. He sorts it all when he gets home. He keeps some small pieces of fast acting (he does not like smarties or skittles), a few tootsie pops, and Reese’s. The rest gets donated.

      2 years ago Log in to Reply
    23. Mick Martin

      Personally, I don’t celebrate Hallowe’en, but I do celebrate Samhain, which is the end of the Witch’s year. i.e. tomorrow is New Year for me.

      We do have Trick or Treaters coming to the door, and we do provide candy AND sugar-free variants for any kids that happen to be diabetic.

      Blessed Samhain, my brothers and sisters. 😉

      2 years ago Log in to Reply
    24. Karen Mielish-Clausell

      Check your Dexcom before you leave. Check it while you’re out if with all the activity, the sugar drops Google a small piece of candy and the sentiment set the child aside to make sure they’re OK.

      2 years ago Log in to Reply
    25. Kristen Clifford

      I was diagnosed as an adult, but when I’ve gone to Halloween parties, I’ve cautioned myself with what I eat or drink and take the appropriate amount of insulin.

      2 years ago Log in to Reply
    26. Kristine Warmecke

      My brother and I were allowed to pick out some for lows or a treat and then our parents bought the rest of it. Dad took it to work with him for his co-workers to enjoy.

      2 years ago Log in to Reply
    27. Gina Lucero

      Eat 1 or two pieces of candy and bolus accordingly. Moderation is the key.

      2 years ago Log in to Reply
    28. Natalie Daley

      I have Breathsaver mints that are sugar free, if it’s necessary to put something in my mouth. Junk food has no draw for me. I know how sick I’ll get and don’t want to take more insulin. Think of this stuff as socks.

      2 years ago Log in to Reply
    29. Becky Hertz

      I turn off the lights and don’t answer the door 😆

      2 years ago Log in to Reply
    30. Anthony Harder

      When I was a child, I didn’t go out and collect sweets. If they aren’t around, no need to deal with them. (Good advice, difficult to achieve, with any other problem food as an adult) I was at my Grandma’s house and hand out sweets to trick or treaters. She said sweets weren’t necessary and we were having our own fun handing them out.

      2 years ago Log in to Reply
    31. Shari Silver

      Dose sufficient insulin to allow some candy for desert

      2 years ago Log in to Reply
    32. Maureen Helinski

      For me that a while back, but I used to have a hard time not eating the candy my kids brought home. Those were the days befor glucose meters. I just ate some.

      2 years ago Log in to Reply
    33. Amanda Barras

      More insulin to cover the candy. My kid is grown now so I am no longer walking the neighborhoods with him.

      2 years ago Log in to Reply
    34. GiGi

      When I was a child after being diagnosed in 1972, I was allowed candy as long as I was doing something physically active. There were no ways to monitor blood sugar at home back then. Just urine testing.

      2 years ago Log in to Reply
    35. Sue Compo

      No child with td1

      2 years ago Log in to Reply
    36. Anita Stokar

      I don’t give out candy per se, but small snack-sized bags of chips, fritos, popcorn etc. The carb content is 15 grams. I bolus for those when there are leftover bags and exercise, but the snacks aren’t eaten every day and when I do, the 15 gr. of carbs isn’t too hard to handle.

      2 years ago Log in to Reply
    37. Tb-well

      Poorly

      2 years ago Log in to Reply
    38. Jeff Balbirnie

      Diagnosed as a toddler in the “dark ages”, I definitely took part in Halloween but, I never ate/eat candy. Never learned to like it, never wanted it… no problem. Traded all my collected candy with my older brother for stuff; broken games, stickers, stamps. And as usual, then or now, worrying, fear of (sic. some foolish number) is the dead wrong idea. Live…. and figure it out.

      2 years ago Log in to Reply
    39. PamK

      I eat some candy and bolus for it!

      2 years ago Log in to Reply

    If you (or your child with T1D) celebrate Halloween, how do you balance blood sugar levels, physical activity, and candy during the festivities? Cancel reply

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