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If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
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None screened. None of my family members qualify/qualified for trial net.
I don’t have children. I was diagnosed in 1987 and it was a surprise as there was no history of diabetes in my family. Years later one of my sisters was diagnosed Type 1 in her 40s. Our other siblings, nieces & nephews have never expressed any worry that they might be next and I don’t think many of them would want to be tested.
The question in the email was what supplies would we bring if we went on vacation for 7 days and this totally different question appears when we click Answer Question in that email????
T1D for over 50 years. No one in my family shows any interest in being screened. Go figure
When I was diagnosed t1, my grown daughter with no t1 was tested. Years later her daughter at 9 yr old developed Hashimotos, which I developed in my 20’s, placed on synthroid and told she had higher risk of getting t1. She’s 11 now with no other autoimmunities showing up. But followed up every 6 months. My other three grown kids and 14 grandkids are not tested.
Two separate questions and only one response choice. I don’t know if any family would be willing to be tested.
They know screening is available for them. It is their decision what to do
I only have one son and he was tested many years ago. He was negative for the antibodies but since then I know he has tested out as pre-diabetic when he donated his kidney to his wife.
Chose other because no one has been screened and we have never discussed it. I am the only T1D and I have no children. I have not discussed it with my brother’s family.
To my knowledge, the topic of screening for T1D autoantibodies hasn’t been discussed amongst my family, unless they have and didn’t tell me about it.
I have surgical diabetes after surgery to remove am Islet cell neuroendocrine tumor.
I would be interested to know who else has this condition. It never appears in any category for T1D
No and we didn’t know anything about T1D antibodies
My son and his three teenagers were tested about five years ago at Northwestern. Thankfully they had none. My dad and I appear to be the only two. He died in ‘87 after 40 years of T1 d, I’m still kickin’ after 59 years of it. Go figure!
I checked “other”. I have T1D as does my oldest daughter. I have two other children, now in their 30’s. We’ve never thought about, nor discussed, screening. I guess I wasn’t aware it was a possibility.
I answered 1-2 family members have been screened, but “some” would have been a more accurate answer. My younger sister participated in the TrialNet study 5+ yes after my diagnosis and thankfully was antibody negative. My parents were above the she limit for that study, but my Mom developed diabetes 12 yrs after me in my her 50s. She was initially diagnosed as type 2 due to her age, but when the oral meds were not touching her blood sugars we insisted on antibody and c-peptide testing, which confirmed T1D.
Ice also had both my sons screened under the TrialNet study at JDRF walks. Both negative.
I am adopted so this question is not applicable to me.
I’ve never heard of a screening for T1D autoantibodies. Also, I am unaware of my brothers and sisters medical care, except for serious illnesses. I don’t believe any of them are aware of such a screening. And, honestly, I don’t think they’d care to be screened.
Also, I’m the only T1D in the family. My siblings are in their 60’s and 70’s and aren’t going to worry about it now.
I was interested in getting my son screened (I the mom am the T1). But my son is terrified of needles and blood draws so it’s hard enough just getting regular labs on him on occasion. So, we decided not to bother and just hope for the best. He’s now 13 and no problems yet.
I didn’t get T1D until I was 44 years old, but it was sudden and diagnosed as T1D. I was told then my family could not be screened. I do have an asthmatic daughter and grandchildren with severe food allergies, but no diabetics. Thank goodness.
I have asked them and hoped they would but they have not.
Since they have a head in the sand attitude toward my diabetes, I seriously doubt they would ever admit that something similar could happen to them.
I do not know whether anyone in my brother’s family has been screen and I have no biological children.
My son-in-law did not want his children screened and my daughter declined. Now that my grandchildren are young adults they may be interested.
My sister and I have already contracted LADA. I am not sure whether my brothers would participate. I have 3.
I will mention it to my son. Not sure what his decision will be.
After my oldest niece was diagnosed at 21 month’s old, my brother (who’s also T1D) had the cord blood tested, as part of a research trial, of his two youngest daughter’s. The youngest is positive and is still in the study.
My 2 children were screened long ago, and my siblings are aware of screening, but I don’t remember if they took advantage of the opportunity.
A little apotropaism, I suppose, is always appropriate. (ꆤ⍸ꆤ)
I had to look this one up in Mirriam-Webster –
Definition of apotropaism
: the performance of magic ritual or incantatory formulas in order to avert evil
You have to wonder. What’s the purpose in knowing?
Since both parents were T1Ds, we had our 2 sons in a research program in the early 90s. We had to travel to our capital city 3 hours away to be part of this study. We found out that the oldest son did not have the antibodies and the younger son did. So younger son was put on a daily pill which didn’t prevent his diagnosis at age 13. The onset was not delayed or prevented in 2001.
I have LADA. We have never discussed being screened with my children. It is a thought….
I am an only child, I have no children, and neither of my parents are still alive. There are no other members of my family to be tested.
No, I don’t think my family is aware of screening. My siblings are very healthy.
My brother and I have T1d, as well as one grand-nephew. I don’t know if my other siblings were screened, and I haven’t kept track of my 15 nieces and nephews and their growing families.
My brother and his family have no interest. My own children are not linked to me biologically, so we didn’t feel a need to check either one for the T1D autoantibodies.
I doubt my siblings would want to take the time to get screened. And, I doubt one of them would even bother answering me if I asked if she wanted to… so, I just said “no and no interest” (even though the answer really is “I have no idea.”)
I’m not sure the issue has ever come up. I don’t think my only child would want to be screened for them. My late wife would probably have wanted him to be.
Not that I am aware of. I am the last living direct link in my immediate family blood lineage and neither my brother or I had children. There are some Baby Boomer second cousins and they and their offspring may or may not be interested in being screened. However, they live in different parts of the US and I have very little direct communication exchange with them.
I don’t know.
I have a sibling with T2D and Hashmimoto’s, but am not sure of his interest or those of his two children.
• No, my family members have not been screened
I’ve never had the conversation around this with my family. I don’t know if they know that it’s even available.
I have 2 daughters. The older has type 2 diabetes, and the younger was screened when she was a teen.
I didn’t know this was an option for family members.
I have 1 son and was approached about testing for antibodies when he was in grade school. I declined as the approach back then was to make him take low doses of insulin if positive. Why would I make a healthy young boy take insulin unless he has diabetes? Now at age 40, he would decline of his own free will as he doesn’t care for doctors.
We’ve never discussed it.
I have no idea. Had diabetes for 52 years and no one else in my family has it.
I wasn’t aware there was screening for t1d.