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    • 5 hours, 7 minutes ago
      Daniel Bestvater likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 14 hours, 41 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      I oftentimes give myself a little insulin for when I go unplugged while changing pods, depending on what my current sensor reading is.
    • 14 hours, 41 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Always, until I began to increase the "cannula fill" amount. I found I need a good bit more than the (1.3u) to "prime the site" to have the next blood sugars be in goal. Just remember "every body is different". Darn than OmniPod does not let you change that amount, have to use "fake carbs". Something to consider.....
    • 14 hours, 41 minutes ago
      KarenM6 likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 14 hours, 42 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 18 hours, 57 minutes ago
      KSannie likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      **cannula
    • 1 day, 1 hour ago
      Kathleen Juzenas likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I find a using the T-Connect app I have the main features needed, CMG, bolus, battery level and remaining insulin.
    • 1 day, 5 hours ago
      TEH likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 1 day, 5 hours ago
      atr likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      Mostly pump because I want to quickly see insulin on board. Tandem on IPhone when holding my great-niece while she sleeps since getting my pump out of my pocket always wakes her ☺️. Dexcom app if not in need of insulin.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      usually the pump; sometimes my phone.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump (Tandem X2). Since I have to carry a work phone close to 247, I don't want to deal with two phones (device overload!). As I go about my day, looking at my pump meets my needs, I can decide to bolus etc - and edit the bolus. For more in depth data review and analysis, I use the TConnect.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I read it from my pump.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      On my insulin pump
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump. Keep it simple.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      How much of this is intentionally misleading? My mail order prescription service says that can’t possibly know the cost of a medication until after it’s been shipped, which is too late to cancel or return, of course, and makes it impossible to comparison shop.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      I have an MA in writing and lit, but gobbledegook is gobbledegook. The fancy term is obscurantism.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 2 days, 2 hours ago
      Sarah Berry likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump
    • 2 days, 3 hours ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      One nice thing about a watch for readings is that, while it is normally redundant, you can be separated from your phone. For example, when you are in water.
    • 2 days, 4 hours ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    • 2 days, 5 hours ago
      Kathy Hanavan likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I selected “other” because my preference (smart watch, mobile phone, or pump screen) depends on circumstances. Watch for a quick and discrete view; pump if I’m preparing for a profile or activity adjustment or bolus, mobile phone if just a food bolus.
    • 2 days, 5 hours ago
      John Barbuto likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    • 2 days, 6 hours ago
      Gerald Oefelein likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
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    If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?

    Home > LC Polls > If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    " At T1D Exchange, we’re proud to announce our Medical and Research Advisory Team — an accomplished group of leaders in endocrinology, research, and quality improvement. Together, they are redefining what’s possible in type 1 diabetes (T1D) care through rigorous data analysis, innovative research approaches, and real-world implementation. Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. T1DX-QI is a remarkable resource for centers that are using continuous process improvement to improve the quality of care for people living with diabetes.”  “Diabetes centers working with T1DX –QI have done amazing work using QI methodology to make care accessible and equitable for all people with diabetes,” she said. “It’s inspiring to be a part of a collaborative in which centers have been creative and thoughtful with initiatives to address individual and systemic challenges to care, improving clinical outcomes as well as the patient experience."  Looking ahead, Dr. Sherr highlighted the opportunity to build on the existing strong foundation. “I’m very excited to be working as a Medical Advisor for T1D Exchange,” she said. “It’s a privilege to help shape what comes next for a group that’s already doing such impactful work.”  “Sharing what’s happening in clinical practice, benchmarking across centers, and understanding outcomes is how we figure out what’s working, what’s not, and where we go next,” she said.      The future of T1D care   With this team’s vision and expertise, T1D Exchange is positioned to accelerate progress in T1D care — bridging research and real-world practice to drive meaningful, measurable impact.  Together, we look forward to advancing innovation and improving outcomes for everyone affected by type 1 diabetes.   "

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    47 Comments

    1. Becky Hertz

      None screened. None of my family members qualify/qualified for trial net.

      4 years ago Log in to Reply
    2. LizB

      I don’t have children. I was diagnosed in 1987 and it was a surprise as there was no history of diabetes in my family. Years later one of my sisters was diagnosed Type 1 in her 40s. Our other siblings, nieces & nephews have never expressed any worry that they might be next and I don’t think many of them would want to be tested.

      4 years ago Log in to Reply
    3. Larry Martin

      The question in the email was what supplies would we bring if we went on vacation for 7 days and this totally different question appears when we click Answer Question in that email????

      4 years ago Log in to Reply
    4. Rudzog Gozdur

      T1D for over 50 years. No one in my family shows any interest in being screened. Go figure

      4 years ago Log in to Reply
    5. Bea Anderson

      When I was diagnosed t1, my grown daughter with no t1 was tested. Years later her daughter at 9 yr old developed Hashimotos, which I developed in my 20’s, placed on synthroid and told she had higher risk of getting t1. She’s 11 now with no other autoimmunities showing up. But followed up every 6 months. My other three grown kids and 14 grandkids are not tested.

      Two separate questions and only one response choice. I don’t know if any family would be willing to be tested.

      4 years ago Log in to Reply
    6. Sue Compo

      They know screening is available for them. It is their decision what to do

      4 years ago Log in to Reply
    7. GLORIA MILLER

      I only have one son and he was tested many years ago. He was negative for the antibodies but since then I know he has tested out as pre-diabetic when he donated his kidney to his wife.

      4 years ago Log in to Reply
    8. Patricia Dalrymple

      Chose other because no one has been screened and we have never discussed it. I am the only T1D and I have no children. I have not discussed it with my brother’s family.

      3
      4 years ago Log in to Reply
    9. Kristen Clifford

      To my knowledge, the topic of screening for T1D autoantibodies hasn’t been discussed amongst my family, unless they have and didn’t tell me about it.

      1
      4 years ago Log in to Reply
    10. Diana L.

      I have surgical diabetes after surgery to remove am Islet cell neuroendocrine tumor.
      I would be interested to know who else has this condition. It never appears in any category for T1D

      1
      4 years ago Log in to Reply
    11. Susan Butera

      No and we didn’t know anything about T1D antibodies

      1
      4 years ago Log in to Reply
    12. Joan Fray

      My son and his three teenagers were tested about five years ago at Northwestern. Thankfully they had none. My dad and I appear to be the only two. He died in ‘87 after 40 years of T1 d, I’m still kickin’ after 59 years of it. Go figure!

      4 years ago Log in to Reply
    13. Gary Taylor

      I checked “other”. I have T1D as does my oldest daughter. I have two other children, now in their 30’s. We’ve never thought about, nor discussed, screening. I guess I wasn’t aware it was a possibility.

      1
      4 years ago Log in to Reply
    14. Jneticdiabetic

      I answered 1-2 family members have been screened, but “some” would have been a more accurate answer. My younger sister participated in the TrialNet study 5+ yes after my diagnosis and thankfully was antibody negative. My parents were above the she limit for that study, but my Mom developed diabetes 12 yrs after me in my her 50s. She was initially diagnosed as type 2 due to her age, but when the oral meds were not touching her blood sugars we insisted on antibody and c-peptide testing, which confirmed T1D.
      Ice also had both my sons screened under the TrialNet study at JDRF walks. Both negative.

      4 years ago Log in to Reply
    15. ELYSSE HELLER

      I am adopted so this question is not applicable to me.

      4 years ago Log in to Reply
    16. Lawrence S.

      I’ve never heard of a screening for T1D autoantibodies. Also, I am unaware of my brothers and sisters medical care, except for serious illnesses. I don’t believe any of them are aware of such a screening. And, honestly, I don’t think they’d care to be screened.

      4 years ago Log in to Reply
      1. Lawrence S.

        Also, I’m the only T1D in the family. My siblings are in their 60’s and 70’s and aren’t going to worry about it now.

        4 years ago Log in to Reply
    17. Amanda Barras

      I was interested in getting my son screened (I the mom am the T1). But my son is terrified of needles and blood draws so it’s hard enough just getting regular labs on him on occasion. So, we decided not to bother and just hope for the best. He’s now 13 and no problems yet.

      4 years ago Log in to Reply
    18. Maureen Helinski

      I didn’t get T1D until I was 44 years old, but it was sudden and diagnosed as T1D. I was told then my family could not be screened. I do have an asthmatic daughter and grandchildren with severe food allergies, but no diabetics. Thank goodness.

      4 years ago Log in to Reply
    19. rick phillips

      I have asked them and hoped they would but they have not.

      4 years ago Log in to Reply
    20. Mary Dexter

      Since they have a head in the sand attitude toward my diabetes, I seriously doubt they would ever admit that something similar could happen to them.

      4 years ago Log in to Reply
    21. KCR

      I do not know whether anyone in my brother’s family has been screen and I have no biological children.

      4 years ago Log in to Reply
    22. Janis Senungetuk

      My son-in-law did not want his children screened and my daughter declined. Now that my grandchildren are young adults they may be interested.

      4 years ago Log in to Reply
    23. Carol Meares

      My sister and I have already contracted LADA. I am not sure whether my brothers would participate. I have 3.

      4 years ago Log in to Reply
    24. Ernie Richmann

      I will mention it to my son. Not sure what his decision will be.

      4 years ago Log in to Reply
    25. Kristine Warmecke

      After my oldest niece was diagnosed at 21 month’s old, my brother (who’s also T1D) had the cord blood tested, as part of a research trial, of his two youngest daughter’s. The youngest is positive and is still in the study.

      4 years ago Log in to Reply
    26. Melinda Lipe

      My 2 children were screened long ago, and my siblings are aware of screening, but I don’t remember if they took advantage of the opportunity.

      4 years ago Log in to Reply
    27. Ahh Life

      A little apotropaism, I suppose, is always appropriate. (ꆤ⍸ꆤ)

      1
      4 years ago Log in to Reply
      1. Lawrence S.

        I had to look this one up in Mirriam-Webster –
        Definition of apotropaism

        : the performance of magic ritual or incantatory formulas in order to avert evil
        You have to wonder. What’s the purpose in knowing?

        4 years ago Log in to Reply
    28. connie ker

      Since both parents were T1Ds, we had our 2 sons in a research program in the early 90s. We had to travel to our capital city 3 hours away to be part of this study. We found out that the oldest son did not have the antibodies and the younger son did. So younger son was put on a daily pill which didn’t prevent his diagnosis at age 13. The onset was not delayed or prevented in 2001.

      4 years ago Log in to Reply
    29. Chrisanda

      I have LADA. We have never discussed being screened with my children. It is a thought….

      4 years ago Log in to Reply
    30. Donald Cragun

      I am an only child, I have no children, and neither of my parents are still alive. There are no other members of my family to be tested.

      4 years ago Log in to Reply
    31. Sue Martin

      No, I don’t think my family is aware of screening. My siblings are very healthy.

      4 years ago Log in to Reply
    32. Kathleen Juzenas

      My brother and I have T1d, as well as one grand-nephew. I don’t know if my other siblings were screened, and I haven’t kept track of my 15 nieces and nephews and their growing families.

      4 years ago Log in to Reply
    33. M C

      My brother and his family have no interest. My own children are not linked to me biologically, so we didn’t feel a need to check either one for the T1D autoantibodies.

      4 years ago Log in to Reply
    34. KarenM6

      I doubt my siblings would want to take the time to get screened. And, I doubt one of them would even bother answering me if I asked if she wanted to… so, I just said “no and no interest” (even though the answer really is “I have no idea.”)

      1
      4 years ago Log in to Reply
    35. Jim Cobbe

      I’m not sure the issue has ever come up. I don’t think my only child would want to be screened for them. My late wife would probably have wanted him to be.

      4 years ago Log in to Reply
    36. ConnieT1D62

      Not that I am aware of. I am the last living direct link in my immediate family blood lineage and neither my brother or I had children. There are some Baby Boomer second cousins and they and their offspring may or may not be interested in being screened. However, they live in different parts of the US and I have very little direct communication exchange with them.

      4 years ago Log in to Reply
    37. Molly Jones

      I don’t know.
      I have a sibling with T2D and Hashmimoto’s, but am not sure of his interest or those of his two children.

      4 years ago Log in to Reply
    38. Dan Diehl

      • No, my family members have not been screened

      4 years ago Log in to Reply
    39. Megan W

      I’ve never had the conversation around this with my family. I don’t know if they know that it’s even available.

      4 years ago Log in to Reply
    40. Cheryl Weaver

      I have 2 daughters. The older has type 2 diabetes, and the younger was screened when she was a teen.

      4 years ago Log in to Reply
    41. Jocelyn wright

      I didn’t know this was an option for family members.

      4 years ago Log in to Reply
    42. Cheryl Seibert

      I have 1 son and was approached about testing for antibodies when he was in grade school. I declined as the approach back then was to make him take low doses of insulin if positive. Why would I make a healthy young boy take insulin unless he has diabetes? Now at age 40, he would decline of his own free will as he doesn’t care for doctors.

      4 years ago Log in to Reply
    43. Patpie58

      We’ve never discussed it.

      4 years ago Log in to Reply
    44. Cmore

      I have no idea. Had diabetes for 52 years and no one else in my family has it.

      4 years ago Log in to Reply
    45. stillarobyn

      I wasn’t aware there was screening for t1d.

      4 years ago Log in to Reply

    If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies? Cancel reply

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