Has your diabetes or another health care provider talked to you about polycystic ovarian syndrome (PCOS)?

Activity
- 59 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 59 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 59 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 59 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 59 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 59 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 59 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 59 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 59 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 59 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 59 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 59 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 59 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 59 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 59 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 59 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 59 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 59 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 59 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 1 hour, 4 minutes ago
  
  Janis Senungetuk likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
- 1 hour, 4 minutes ago
  
  Janis Senungetuk likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Just did what makes sense to me- eating less carbs, watching blood glucose more often and taking corrections as needed. Also some level of activity if possible.
- 1 hour, 5 minutes ago
  
  Janis Senungetuk likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Been type 1 since the early 80's learned self management as therapies changed. Unless hospitalized(which I never am anymore) I decide how much insulin to put in my body based on my on going experience with the 1000's of reasons I may need more or less of it. I do love my pump, insulin and CGM so I guess I have to tell the doctor what I do once a year. .. I just keep throwing info and facts he isn't up on till he gets a glazed over look on his face and writes my scripts. I find the most inconvenient part of diabetes is all the people that want to help but don't know much about everyday life with the disease. And NO I do not want to join a discussion group!
- 1 hour, 7 minutes ago
  
  Janis Senungetuk likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Many times I have needed to adjust insulin intake amount in order to cope with illness, but only rarely needed outside help. In the early 1970’s I made some mistakes managing influenza. My BG went very high (no meter available for testing at home), and I ended up in the hospital then.
- 1 hour, 8 minutes ago
  
  Janis Senungetuk likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Except for those brand new at this, we all know the drill. We know that we need to be flexible, make adjustments, and pay attention.
- 1 hour, 9 minutes ago
  
  TEH likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  only time that I have been sick was when I got COVID during Jan '22. my sugars were going crazy high and I couldn't understand why but when I tested positive for COVID, in retrospect it made sense.
Clear All

Has your diabetes or another health care provider talked to you about polycystic ovarian syndrome (PCOS)?

If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?

Sarah Howard

8 Comments

AimmcG

I know what at is and don’t have symptoms so no reason to be discussed.

10 months ago Log in to Reply
Tina Roberts

Never heard of it?

1

10 months ago Log in to Reply
Jillkdubois

I was told I had PCOS about 10 years before I was officially diagnosed with T1D. Since then and about 8 or 9 different endocrinologists later, and it’s weird but some of them believe PCOS is real, some do not. In either case they don’t seem to know how to treat it or deal with any issues that come with it.
I later found out my sister also has it, and I have several friends too. I’ve done countless hours online reading through other woman’s experiences, I hate to say but it seems like they have more answers and have done more research than the doctors have.

1

10 months ago Log in to Reply
Pauline M Reynolds

PCOS has never been mentioned because I was premenopausal when diagnosed with diabetes. However, I have two daughters with PCOS (and diabetes).

10 months ago Log in to Reply
Jneticdiabetic

There wasn’t an option to select if PCOS was discussed my both my diabetes MD and others. In my 20s when I reported spotting in between periods, my Obgyn mentioned the possibility of PCOS. I mentioned that I wasn’t insulin resistant (used ~30 units/day), but he said if I was treating my diabetes aggressively I could have high insulin levels and this could cause disruptions in my female hormones and PCOS. I raised this with my endocrinologist and he disagreed. 🤷‍♀️
I don’t think the topic of PCOS would have been raised by either if I hadn’t asked about my symptoms.

10 months ago Log in to Reply
Christina Trudo

Also never heard of it (as I recall) but crossed into menopause nearly 20 years ago.

10 months ago Log in to Reply
Cheryl Weaver

No

10 months ago Log in to Reply
Patpie58

I had issues with my period through my whole life. I would get very ill every month. Over 40 years and not one of my doctors mentioned this.

10 months ago Log in to Reply