8 Comments
Has your diabetes or another health care provider talked to you about polycystic ovarian syndrome (PCOS)?
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I know what at is and don’t have symptoms so no reason to be discussed.
Never heard of it?
I was told I had PCOS about 10 years before I was officially diagnosed with T1D. Since then and about 8 or 9 different endocrinologists later, and it’s weird but some of them believe PCOS is real, some do not. In either case they don’t seem to know how to treat it or deal with any issues that come with it.
I later found out my sister also has it, and I have several friends too. I’ve done countless hours online reading through other woman’s experiences, I hate to say but it seems like they have more answers and have done more research than the doctors have.
PCOS has never been mentioned because I was premenopausal when diagnosed with diabetes. However, I have two daughters with PCOS (and diabetes).
There wasn’t an option to select if PCOS was discussed my both my diabetes MD and others. In my 20s when I reported spotting in between periods, my Obgyn mentioned the possibility of PCOS. I mentioned that I wasn’t insulin resistant (used ~30 units/day), but he said if I was treating my diabetes aggressively I could have high insulin levels and this could cause disruptions in my female hormones and PCOS. I raised this with my endocrinologist and he disagreed. 🤷♀️
I don’t think the topic of PCOS would have been raised by either if I hadn’t asked about my symptoms.
Also never heard of it (as I recall) but crossed into menopause nearly 20 years ago.
No
I had issues with my period through my whole life. I would get very ill every month. Over 40 years and not one of my doctors mentioned this.