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    • 17 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 29 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 41 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 42 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 hour, 57 minutes ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 48 minutes ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 3 hours, 54 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 3 hours, 54 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 55 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 57 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
    • 4 hours, 5 minutes ago
      Samantha Robinson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 4 hours, 11 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Normally, no time spent but I changed insulins so I wanted to verify everything with my insurance company before asking my endocrinologist to write a new script.
    • 4 hours, 12 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 4 hours, 14 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 4 hours, 30 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I expect that we’ve all had that feeling about how stupid payers can be when it comes to T1D.
    • 4 hours, 30 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Seriously depends on when you ask. The past 3 months have only been an hour or two, but if you'd asked this same question last September it would've been over 8 as I dealt with the annual "Yes I need a Dexcom and Omnipod again" red tape with my insurance/providers/doctor's office. I am counting the time on hold as well, but still - pretty ridiculous that insurance thinks Type 1 is going to magically go away just because it's been a year. I wish!
    • 4 hours, 31 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 4 hours, 31 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 4 hours, 31 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 4 hours, 32 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 4 hours, 32 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 4 hours, 50 minutes ago
      William Bennett likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 4 hours, 51 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Eight times a year I have to spend more than eight hours to fix errors on the part of my mail order pharmacy and DME supplier. My endo doesn't keep track of when prescriptions expire or need refills so add another couple hours a year building a to-do list for the doc. I'm ready to start billing for my time.
    • 4 hours, 53 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
    • 5 hours, 23 minutes ago
      Bill Williams likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Significantly less time since I switched from Byram to ADS. It has made a world of difference and saved so many headaches!!
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    If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?

    Home > LC Polls > If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
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    47 Comments

    1. Becky Hertz

      None screened. None of my family members qualify/qualified for trial net.

      10 months ago Log in to Reply
    2. LizB

      I don’t have children. I was diagnosed in 1987 and it was a surprise as there was no history of diabetes in my family. Years later one of my sisters was diagnosed Type 1 in her 40s. Our other siblings, nieces & nephews have never expressed any worry that they might be next and I don’t think many of them would want to be tested.

      10 months ago Log in to Reply
    3. Larry Martin

      The question in the email was what supplies would we bring if we went on vacation for 7 days and this totally different question appears when we click Answer Question in that email????

      10 months ago Log in to Reply
    4. Rudzog Gozdur

      T1D for over 50 years. No one in my family shows any interest in being screened. Go figure

      10 months ago Log in to Reply
    5. Bea Anderson

      When I was diagnosed t1, my grown daughter with no t1 was tested. Years later her daughter at 9 yr old developed Hashimotos, which I developed in my 20’s, placed on synthroid and told she had higher risk of getting t1. She’s 11 now with no other autoimmunities showing up. But followed up every 6 months. My other three grown kids and 14 grandkids are not tested.

      Two separate questions and only one response choice. I don’t know if any family would be willing to be tested.

      10 months ago Log in to Reply
    6. Sue Compo

      They know screening is available for them. It is their decision what to do

      10 months ago Log in to Reply
    7. GLORIA MILLER

      I only have one son and he was tested many years ago. He was negative for the antibodies but since then I know he has tested out as pre-diabetic when he donated his kidney to his wife.

      10 months ago Log in to Reply
    8. Patricia Dalrymple

      Chose other because no one has been screened and we have never discussed it. I am the only T1D and I have no children. I have not discussed it with my brother’s family.

      3
      10 months ago Log in to Reply
    9. Kristen Clifford

      To my knowledge, the topic of screening for T1D autoantibodies hasn’t been discussed amongst my family, unless they have and didn’t tell me about it.

      1
      10 months ago Log in to Reply
    10. Diana L.

      I have surgical diabetes after surgery to remove am Islet cell neuroendocrine tumor.
      I would be interested to know who else has this condition. It never appears in any category for T1D

      1
      10 months ago Log in to Reply
    11. Susan Butera

      No and we didn’t know anything about T1D antibodies

      1
      10 months ago Log in to Reply
    12. Joan Fray

      My son and his three teenagers were tested about five years ago at Northwestern. Thankfully they had none. My dad and I appear to be the only two. He died in ā€˜87 after 40 years of T1 d, I’m still kickin’ after 59 years of it. Go figure!

      10 months ago Log in to Reply
    13. Gary Taylor

      I checked “other”. I have T1D as does my oldest daughter. I have two other children, now in their 30’s. We’ve never thought about, nor discussed, screening. I guess I wasn’t aware it was a possibility.

      1
      10 months ago Log in to Reply
    14. Jneticdiabetic

      I answered 1-2 family members have been screened, but “some” would have been a more accurate answer. My younger sister participated in the TrialNet study 5+ yes after my diagnosis and thankfully was antibody negative. My parents were above the she limit for that study, but my Mom developed diabetes 12 yrs after me in my her 50s. She was initially diagnosed as type 2 due to her age, but when the oral meds were not touching her blood sugars we insisted on antibody and c-peptide testing, which confirmed T1D.
      Ice also had both my sons screened under the TrialNet study at JDRF walks. Both negative.

      10 months ago Log in to Reply
    15. ELYSSE HELLER

      I am adopted so this question is not applicable to me.

      10 months ago Log in to Reply
    16. Lawrence S.

      I’ve never heard of a screening for T1D autoantibodies. Also, I am unaware of my brothers and sisters medical care, except for serious illnesses. I don’t believe any of them are aware of such a screening. And, honestly, I don’t think they’d care to be screened.

      10 months ago Log in to Reply
      1. Lawrence S.

        Also, I’m the only T1D in the family. My siblings are in their 60’s and 70’s and aren’t going to worry about it now.

        10 months ago Log in to Reply
    17. Amanda Barras

      I was interested in getting my son screened (I the mom am the T1). But my son is terrified of needles and blood draws so it’s hard enough just getting regular labs on him on occasion. So, we decided not to bother and just hope for the best. He’s now 13 and no problems yet.

      10 months ago Log in to Reply
    18. Maureen Helinski

      I didn’t get T1D until I was 44 years old, but it was sudden and diagnosed as T1D. I was told then my family could not be screened. I do have an asthmatic daughter and grandchildren with severe food allergies, but no diabetics. Thank goodness.

      10 months ago Log in to Reply
    19. rick phillips

      I have asked them and hoped they would but they have not.

      10 months ago Log in to Reply
    20. Mary Dexter

      Since they have a head in the sand attitude toward my diabetes, I seriously doubt they would ever admit that something similar could happen to them.

      10 months ago Log in to Reply
    21. KCR

      I do not know whether anyone in my brother’s family has been screen and I have no biological children.

      10 months ago Log in to Reply
    22. Janis Senungetuk

      My son-in-law did not want his children screened and my daughter declined. Now that my grandchildren are young adults they may be interested.

      10 months ago Log in to Reply
    23. Carol Meares

      My sister and I have already contracted LADA. I am not sure whether my brothers would participate. I have 3.

      10 months ago Log in to Reply
    24. Ernie Richmann

      I will mention it to my son. Not sure what his decision will be.

      10 months ago Log in to Reply
    25. Kristine Warmecke

      After my oldest niece was diagnosed at 21 month’s old, my brother (who’s also T1D) had the cord blood tested, as part of a research trial, of his two youngest daughter’s. The youngest is positive and is still in the study.

      10 months ago Log in to Reply
    26. Melinda Lipe

      My 2 children were screened long ago, and my siblings are aware of screening, but I don’t remember if they took advantage of the opportunity.

      10 months ago Log in to Reply
    27. Ahh Life

      A little apotropaism, I suppose, is always appropriate. (ź†¤āøź†¤)

      1
      10 months ago Log in to Reply
      1. Lawrence S.

        I had to look this one up in Mirriam-Webster –
        Definition of apotropaism

        : the performance of magic ritual or incantatory formulas in order to avert evil
        You have to wonder. What’s the purpose in knowing?

        10 months ago Log in to Reply
    28. connie ker

      Since both parents were T1Ds, we had our 2 sons in a research program in the early 90s. We had to travel to our capital city 3 hours away to be part of this study. We found out that the oldest son did not have the antibodies and the younger son did. So younger son was put on a daily pill which didn’t prevent his diagnosis at age 13. The onset was not delayed or prevented in 2001.

      10 months ago Log in to Reply
    29. Chrisanda

      I have LADA. We have never discussed being screened with my children. It is a thought….

      10 months ago Log in to Reply
    30. Donald Cragun

      I am an only child, I have no children, and neither of my parents are still alive. There are no other members of my family to be tested.

      10 months ago Log in to Reply
    31. Sue Martin

      No, I don’t think my family is aware of screening. My siblings are very healthy.

      10 months ago Log in to Reply
    32. Kathleen Juzenas

      My brother and I have T1d, as well as one grand-nephew. I don’t know if my other siblings were screened, and I haven’t kept track of my 15 nieces and nephews and their growing families.

      10 months ago Log in to Reply
    33. M C

      My brother and his family have no interest. My own children are not linked to me biologically, so we didn’t feel a need to check either one for the T1D autoantibodies.

      10 months ago Log in to Reply
    34. KarenM6

      I doubt my siblings would want to take the time to get screened. And, I doubt one of them would even bother answering me if I asked if she wanted to… so, I just said “no and no interest” (even though the answer really is “I have no idea.”)

      1
      10 months ago Log in to Reply
    35. Jim Cobbe

      I’m not sure the issue has ever come up. I don’t think my only child would want to be screened for them. My late wife would probably have wanted him to be.

      10 months ago Log in to Reply
    36. ConnieT1D62

      Not that I am aware of. I am the last living direct link in my immediate family blood lineage and neither my brother or I had children. There are some Baby Boomer second cousins and they and their offspring may or may not be interested in being screened. However, they live in different parts of the US and I have very little direct communication exchange with them.

      10 months ago Log in to Reply
    37. Molly Jones

      I don’t know.
      I have a sibling with T2D and Hashmimoto’s, but am not sure of his interest or those of his two children.

      10 months ago Log in to Reply
    38. Dan Diehl

      • No, my family members have not been screened

      10 months ago Log in to Reply
    39. Megan W

      I’ve never had the conversation around this with my family. I don’t know if they know that it’s even available.

      10 months ago Log in to Reply
    40. Cheryl Weaver

      I have 2 daughters. The older has type 2 diabetes, and the younger was screened when she was a teen.

      10 months ago Log in to Reply
    41. Jocelyn wright

      I didn’t know this was an option for family members.

      10 months ago Log in to Reply
    42. Cheryl Seibert

      I have 1 son and was approached about testing for antibodies when he was in grade school. I declined as the approach back then was to make him take low doses of insulin if positive. Why would I make a healthy young boy take insulin unless he has diabetes? Now at age 40, he would decline of his own free will as he doesn’t care for doctors.

      10 months ago Log in to Reply
    43. Patpie58

      We’ve never discussed it.

      10 months ago Log in to Reply
    44. Cmore

      I have no idea. Had diabetes for 52 years and no one else in my family has it.

      10 months ago Log in to Reply
    45. stillarobyn

      I wasn’t aware there was screening for t1d.

      9 months ago Log in to Reply

    If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies? Cancel reply

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