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If you have T1D, have you also been diagnosed with thyroid disease?
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70 years of T1D, 91 years OLD…. Started emuno infusion theropy 6 months ago, for asbestos related Mesothelioma lung cancer… that theropy liquid caused thyroid problem. Taking a pill daily for it……
Yes, Hashimoto’s.
Hypothyroid at age 45.
Thyroid first…t1 much later!
Me, too!
Graves’ disease 20 years after LADA. Was worse than the diabetes. Lost weight, was thin so it robbed muscle. 16 lbs overnight. Fatigue , muscle pain, dry eyes. Then thyroid eye disease. Did Tepezza infusions. More fatigue and muscle pain. But did not raise my BS which can be a side effect. Did make a huge difference in my eyes. No more double vision or blurred vision. And eyes retracted back where they belong.
I must have lucked out. When I was 28, having had diabetes since I was 5, the internist I saw thought my neck seemed a little large so he had me tested and I’ve been on the same small dose of synthyroid or levothyroxine ever since—49 years later.
Yes. I’ve been hypothyroid since the 1970’s. Diagnosed not long after my 1977 diagnosis of T1D. I take a very small daily dose of Iodine, which seems to help with my thyroid test numbers, and lower my doses of Synthroid.
BTW, I also have a whole host of other autoimmune disorders. Lucky me 🙂
Diagnosed hypothyroid 10 years after T1D. It was a slow follower until it caught up.
Developed Hashimoto’s (hypothyroid) about 15 years after T1D diagnosis and my second pregnancy.
I have a thyroid nodule that is currently being watched.
I was diagnosed with Hashimoto’s 3 years after T1D diagnosis
I had half of my thyroid surgically removed about 16 years ago because of a suspicious nodule, several inconclusive needle biopsies and being a white male with only one nodule. If there were more nodules the likelihood of cancer diminishes or so I was told. Turns out I’m exceptional 😁 there was no cancer present.
#BeWell
I got diagnosed with hypothyroidism as a teenager in 2001. Didn’t get type 1 LADA diagnosis till I was 27.
I’ve taken Synthroid for hypothyroidism for decades. I also experienced Graves eye disease that necessitated orbital decompression surgery ~15 years ago.
T1D at 3 yrs old and Graves disease at age 17
I quite frankly never worried about another autoimmune disease. Type 1 was plenty, but definitely not the end of the world. After almost 70 years, the thyroid decided to go into overdrive, and because of some nodules, a surgeon happily removed it. A pill a day, and so long as I remember to take it, life is good. Thyroid disease is probably my favorite in the autoimmune realm! Hardly worth remembering!
Diagnosed with Hashimoto’s 40 some years after my T1.
diagnosed with hypothyroid years before T1D diagnosis
Dx hypothyroid at 52. Been taking levothyroxine daily since then.
Age 14 diabetes and thyroid same time now 76 taking Synthroid and cytomel from day one
Sorry, Dx with Graves twice.
Yes i was diagnosed on 9/12/01 but couldn’t get a irradiated iodine test for a month because of all the plains being grounded. Had the test and got my Thyroid under control eventually going into remission. In 2018 it came back and TSH dropped to 0.1. Got it under control but take low dose of mathimizol. Also have a thyroid nodule that is currently being watched. Checked with sonogram of my neck every 6 months.
I was diagnosed with Graves’ disease about 5 years prior to my Type 1 diagnosis.
Me too, seven years prior to t1d
Yes. T1D was my last chronic condition diagnosed. Every family member on my maternal side, from grandparents down, has thyroid disease, along with some other autoimmune condition.
This inheritance is what made me ask to have my epilepsy checked out for autoimmune causes. (Finally found thirty years after my initial diagnosis.)
Three months after my diabetes diagnosis I was diagnosed with Hashimoto Thyroididis
Developed cysts on thyroid but levels are ok no thyroid medication
WOW !!!!! I was the first to answer this and had NO idea of all that people wrote about !!! My Doctor just said ” no problem, you just take this pill every day””.. At 91 years old, something else will kill me first…..
Diagnosed with Hashimoto’s at age 35 and LADA at age 66. Never had to do anything for thyroid disease but take a pill every day. Lots more management necessary for diabetes!
Graves’ disease diagnosed 11 years after T1D diagnosis
Not much to add to a No answer!
Had a goiter removed at age 14 and been on some type of thyroid meds ever since. T1D not until age 57.
Ten or twenty years after developing T1D, as part of a lawsuit against operators of Hanford toxic waste site, I had my thyroid checked because I was a “downwinder.” Still no sign of thyroid disease fifty years later. Though people exposed to nuclear radiation often report developing diabetes, I guess the link is not as conclusive as the links to cancer, thyroid disease, and other conditions.
Been tested/checked but no Rx for thyroid disease
Graves disease about 2 years after T1D, taking T3 and T4 meds for the rest of my life!
Some years back, roughly 40 years after I was diagnosed with T1, a doctor told me I’d develop underactive thyroid at some point. A few years later that was the case, though nothing could be easier than the one pill each day it requires.
I was just diagnosed in 2023 with hypothyroidism. I’m on medication. Endo feels it is permanent, however, I am under an incredible amount of stress with support and caregiving of elderly family members, so stress is likely as much of a cause as the T1D. Time will tell.