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    • 1 hour, 6 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 1 hour, 6 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      My last hospitalization was in December 2020 after a delayed refill for my insulin put me in DKA. The worst part was that because it was at the height of Covid, my husband basically could only drop me off at the ER door. The hospital was less than ten minutes from our home, and it was only one night, but I may as well have been on the other side of the world.
    • 1 hour, 7 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      After my preliminary stay at Joslin in 1954, I've never spent time in a hospital because of having diabetes. A few other times for things like tonsils and babies, but I've been very lucky, and very healthy. Very grateful!
    • 1 hour, 7 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      The only time I have been hospitalized due to T1D was in 1970 when I suffered a diabetic hyperosmolar coma, due to ketoacidosis resulting from undiagnosed T1D. I was young and just back from an assignment to Korea in the USAF. I new something was wrong with me, but did not know what and I wanted to visit my family before exploring my issues through the USAF medical services.
    • 1 hour, 7 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      At 65yo, a T1D for 53 years and a pump user for 25 years I experienced what I own as a user error when my pump charger cord went bad and I miscalculated a manual shot. I awoke at 3am knowing I was going low and went to the kitchen to get some juice and remember noting after that until I awoke on the kitchen floor. I could not stand up and drug myself down the hall to get my phone. I called 911 and asked what time it was. It was 9am. I had broken my right ankle, fractured my left knee and torn the meniscus. Lots of lessons learned and after a month of rehab my family and I decided I could no longer live alone. Between T1D and being a fall risk I am in a senior assisted living. It’s not a bad ending but so many things go into our care. Prepare for your future and don’t be stupid!
    • 12 hours, 37 minutes ago
      KarenM6 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Amazing!
    • 12 hours, 37 minutes ago
      KarenM6 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      In 72 years with T1D I have been hospitalized once -- 1984 when BG got so low that my internal body temperature went from 98.6 to 93. That is the coldest I have ever been in my life, colder than 30 below 0 Fahrenheit in Midwest winters, cold Alps at 9,000 feet, and cold western US Ski areas at 9,000 feet. Brain does a wonderful instinctive thing at low BG to try to keep it's functions working so that you don't die. Thanks, brain.
    • 12 hours, 38 minutes ago
      KarenM6 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Dang, now I jinxed myself 🙃
    • 15 hours, 41 minutes ago
      Bekki Weston likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 19 hours, 38 minutes ago
      Ahh Life likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      At 65yo, a T1D for 53 years and a pump user for 25 years I experienced what I own as a user error when my pump charger cord went bad and I miscalculated a manual shot. I awoke at 3am knowing I was going low and went to the kitchen to get some juice and remember noting after that until I awoke on the kitchen floor. I could not stand up and drug myself down the hall to get my phone. I called 911 and asked what time it was. It was 9am. I had broken my right ankle, fractured my left knee and torn the meniscus. Lots of lessons learned and after a month of rehab my family and I decided I could no longer live alone. Between T1D and being a fall risk I am in a senior assisted living. It’s not a bad ending but so many things go into our care. Prepare for your future and don’t be stupid!
    • 20 hours, 46 minutes ago
      Bill Williams likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 21 hours, 11 minutes ago
      ConnieT1D62 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      So gratifying to see so many "no" responses, way to go everyone!!
    • 22 hours, 9 minutes ago
      T1DGJ likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      After 56 years of T1D (34yrs of injections up to 5 / day), my buttocks have some scar tissue. The description of lipohyertrophy doesn't match with my scar tissue. I don't have hard lumps, just areas that feel firmer under the skin. I also have more problem with sunken spots (atrophy) in my 'favorite' injection spots. Dealing with it is basically trying to avoid those spots. If a site is not absorbing, I take a hot shower or do moderate exercise to increase blood flow to the area. BGs will plummet though so I have to be cautious. I also started using alternative infusion sites and also have considered a variable angle infusion set, but have not yet tried it.
    • 22 hours, 9 minutes ago
      T1DGJ likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I started to but then switched to my upper thighs and am able to rotate over a much greater surface area.
    • 22 hours, 9 minutes ago
      T1DGJ likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I stopped using those sites and paid more attention to rotation of available ones.
    • 22 hours, 33 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      The only time I have been hospitalized due to T1D was in 1970 when I suffered a diabetic hyperosmolar coma, due to ketoacidosis resulting from undiagnosed T1D. I was young and just back from an assignment to Korea in the USAF. I new something was wrong with me, but did not know what and I wanted to visit my family before exploring my issues through the USAF medical services.
    • 22 hours, 33 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Last time I was in the hospital due to diabetes was within 6 months of first starting on an insulin pump. Approximately 32 years ago
    • 22 hours, 34 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      No, I have not been hospitalized in the last three years, it has been 67 years since I’ve been hospitalized for diabetes related issues.uu
    • 22 hours, 34 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      I’ve never been hospitalized because of T1D other than when the endo started me on insulin on 1973 to learn about injections and diet.
    • 22 hours, 43 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      In 72 years with T1D I have been hospitalized once -- 1984 when BG got so low that my internal body temperature went from 98.6 to 93. That is the coldest I have ever been in my life, colder than 30 below 0 Fahrenheit in Midwest winters, cold Alps at 9,000 feet, and cold western US Ski areas at 9,000 feet. Brain does a wonderful instinctive thing at low BG to try to keep it's functions working so that you don't die. Thanks, brain.
    • 22 hours, 44 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      So gratifying to see so many "no" responses, way to go everyone!!
    • 22 hours, 44 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      First time two years ago when I was diagnosed with T1D! Was in DKA and had no idea why I was so sick. Six days! Second time just overnight when I couldn't get my sugars down (I was still in that early learning phase). And at least one stop of a couple of hours at the ER - same reason - high sugars I couldn't figure out. Luckily I seem to have all figured out now! Whew!
    • 22 hours, 45 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 22 hours, 45 minutes ago
      Janis Senungetuk likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 22 hours, 46 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      After my preliminary stay at Joslin in 1954, I've never spent time in a hospital because of having diabetes. A few other times for things like tonsils and babies, but I've been very lucky, and very healthy. Very grateful!
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    If you have T1D, have you also been diagnosed with thyroid disease?

    Home > LC Polls > If you have T1D, have you also been diagnosed with thyroid disease?
    Previous

    If you’ve lived with type 1 diabetes for more than 10 years, what resources do you find most useful for your continued diabetes management education? Select all that apply!

    Next

    At what age could you (or your child) set up a new infusion site independently without help?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    38 Comments

    1. sweetcharlie

      70 years of T1D, 91 years OLD…. Started emuno infusion theropy 6 months ago, for asbestos related Mesothelioma lung cancer… that theropy liquid caused thyroid problem. Taking a pill daily for it……

      1
      3 weeks ago Log in to Reply
    2. LizB

      Yes, Hashimoto’s.

      3 weeks ago Log in to Reply
    3. ConnieT1D62

      Hypothyroid at age 45.

      3 weeks ago Log in to Reply
    4. Bea Anderson

      Thyroid first…t1 much later!

      3 weeks ago Log in to Reply
      1. KCR

        Me, too!

        3 weeks ago Log in to Reply
    5. Jane Cerullo

      Graves’ disease 20 years after LADA. Was worse than the diabetes. Lost weight, was thin so it robbed muscle. 16 lbs overnight. Fatigue , muscle pain, dry eyes. Then thyroid eye disease. Did Tepezza infusions. More fatigue and muscle pain. But did not raise my BS which can be a side effect. Did make a huge difference in my eyes. No more double vision or blurred vision. And eyes retracted back where they belong.

      3 weeks ago Log in to Reply
    6. Barbara Bubar

      I must have lucked out. When I was 28, having had diabetes since I was 5, the internist I saw thought my neck seemed a little large so he had me tested and I’ve been on the same small dose of synthyroid or levothyroxine ever since—49 years later.

      1
      3 weeks ago Log in to Reply
    7. Lawrence S.

      Yes. I’ve been hypothyroid since the 1970’s. Diagnosed not long after my 1977 diagnosis of T1D. I take a very small daily dose of Iodine, which seems to help with my thyroid test numbers, and lower my doses of Synthroid.
      BTW, I also have a whole host of other autoimmune disorders. Lucky me 🙂

      1
      3 weeks ago Log in to Reply
    8. Scott Doerner

      Diagnosed hypothyroid 10 years after T1D. It was a slow follower until it caught up.

      3 weeks ago Log in to Reply
    9. Jneticdiabetic

      Developed Hashimoto’s (hypothyroid) about 15 years after T1D diagnosis and my second pregnancy.

      3 weeks ago Log in to Reply
    10. Nikki McDonald

      I have a thyroid nodule that is currently being watched.

      3 weeks ago Log in to Reply
    11. Janice Bohn

      I was diagnosed with Hashimoto’s 3 years after T1D diagnosis

      3 weeks ago Log in to Reply
    12. Andrew Stewart

      I had half of my thyroid surgically removed about 16 years ago because of a suspicious nodule, several inconclusive needle biopsies and being a white male with only one nodule. If there were more nodules the likelihood of cancer diminishes or so I was told. Turns out I’m exceptional 😁 there was no cancer present.
      #BeWell

      4
      3 weeks ago Log in to Reply
    13. Elizabeth Jones

      I got diagnosed with hypothyroidism as a teenager in 2001. Didn’t get type 1 LADA diagnosis till I was 27.

      3 weeks ago Log in to Reply
    14. Marty

      I’ve taken Synthroid for hypothyroidism for decades. I also experienced Graves eye disease that necessitated orbital decompression surgery ~15 years ago.

      3 weeks ago Log in to Reply
    15. Karen Tay

      T1D at 3 yrs old and Graves disease at age 17

      3 weeks ago Log in to Reply
    16. pru barry

      I quite frankly never worried about another autoimmune disease. Type 1 was plenty, but definitely not the end of the world. After almost 70 years, the thyroid decided to go into overdrive, and because of some nodules, a surgeon happily removed it. A pill a day, and so long as I remember to take it, life is good. Thyroid disease is probably my favorite in the autoimmune realm! Hardly worth remembering!

      2
      3 weeks ago Log in to Reply
    17. Kristine Warmecke

      Diagnosed with Hashimoto’s 40 some years after my T1.

      3 weeks ago Log in to Reply
    18. Jodi Greenfield

      diagnosed with hypothyroid years before T1D diagnosis

      3 weeks ago Log in to Reply
    19. Janis Senungetuk

      Dx hypothyroid at 52. Been taking levothyroxine daily since then.

      1
      3 weeks ago Log in to Reply
    20. Sherrie Johnson

      Age 14 diabetes and thyroid same time now 76 taking Synthroid and cytomel from day one

      3 weeks ago Log in to Reply
      1. TEH

        Sorry, Dx with Graves twice.

        3 weeks ago Log in to Reply
    21. TEH

      Yes i was diagnosed on 9/12/01 but couldn’t get a irradiated iodine test for a month because of all the plains being grounded. Had the test and got my Thyroid under control eventually going into remission. In 2018 it came back and TSH dropped to 0.1. Got it under control but take low dose of mathimizol. Also have a thyroid nodule that is currently being watched. Checked with sonogram of my neck every 6 months.

      3 weeks ago Log in to Reply
    22. Trisha Oldenkamp

      I was diagnosed with Graves’ disease about 5 years prior to my Type 1 diagnosis.

      3 weeks ago Log in to Reply
      1. Ita Shapiro

        Me too, seven years prior to t1d

        3 weeks ago Log in to Reply
    23. Molly Jones

      Yes. T1D was my last chronic condition diagnosed. Every family member on my maternal side, from grandparents down, has thyroid disease, along with some other autoimmune condition.
      This inheritance is what made me ask to have my epilepsy checked out for autoimmune causes. (Finally found thirty years after my initial diagnosis.)

      3 weeks ago Log in to Reply
    24. Donna Condi

      Three months after my diabetes diagnosis I was diagnosed with Hashimoto Thyroididis

      3 weeks ago Log in to Reply
    25. dholl62@gmail.com

      Developed cysts on thyroid but levels are ok no thyroid medication

      3 weeks ago Log in to Reply
    26. sweetcharlie

      WOW !!!!! I was the first to answer this and had NO idea of all that people wrote about !!! My Doctor just said ” no problem, you just take this pill every day””.. At 91 years old, something else will kill me first…..

      1
      3 weeks ago Log in to Reply
    27. kilupx

      Diagnosed with Hashimoto’s at age 35 and LADA at age 66. Never had to do anything for thyroid disease but take a pill every day. Lots more management necessary for diabetes!

      3 weeks ago Log in to Reply
      1. Lori Selsberg

        Graves’ disease diagnosed 11 years after T1D diagnosis

        3 weeks ago Log in to Reply
    28. mbulzomi@optonline.net

      Not much to add to a No answer!

      3 weeks ago Log in to Reply
    29. Bekki Weston

      Had a goiter removed at age 14 and been on some type of thyroid meds ever since. T1D not until age 57.

      3 weeks ago Log in to Reply
    30. Wanacure

      Ten or twenty years after developing T1D, as part of a lawsuit against operators of Hanford toxic waste site, I had my thyroid checked because I was a “downwinder.” Still no sign of thyroid disease fifty years later. Though people exposed to nuclear radiation often report developing diabetes, I guess the link is not as conclusive as the links to cancer, thyroid disease, and other conditions.

      3 weeks ago Log in to Reply
    31. Bruce Johnson

      Been tested/checked but no Rx for thyroid disease

      3 weeks ago Log in to Reply
    32. Bonnie Lundblom

      Graves disease about 2 years after T1D, taking T3 and T4 meds for the rest of my life!

      3 weeks ago Log in to Reply
    33. Mitch Chernoff

      Some years back, roughly 40 years after I was diagnosed with T1, a doctor told me I’d develop underactive thyroid at some point. A few years later that was the case, though nothing could be easier than the one pill each day it requires.

      3 weeks ago Log in to Reply
    34. T1D4LongTime

      I was just diagnosed in 2023 with hypothyroidism. I’m on medication. Endo feels it is permanent, however, I am under an incredible amount of stress with support and caregiving of elderly family members, so stress is likely as much of a cause as the T1D. Time will tell.

      1 week ago Log in to Reply

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