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    • 12 minutes ago
      kilupx likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      I oftentimes give myself a little insulin for when I go unplugged while changing pods, depending on what my current sensor reading is.
    • 4 hours, 20 minutes ago
      Phyllis Biederman likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      Its a Tandem. The main issue I have with the phone is the inability to do an extended bolus.
    • 4 hours, 21 minutes ago
      Phyllis Biederman likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I selected “other” because my preference (smart watch, mobile phone, or pump screen) depends on circumstances. Watch for a quick and discrete view; pump if I’m preparing for a profile or activity adjustment or bolus, mobile phone if just a food bolus.
    • 4 hours, 49 minutes ago
      Amy Schneider likes your comment at
      How well do you understand the details of your health insurance coverage?
      At the risk of being overly simplistic, it boils down to: "Heads, you lose. Tails, You lose." ╰── ──╮
    • 13 hours, 11 minutes ago
      Daniel Bestvater likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 22 hours, 45 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      I oftentimes give myself a little insulin for when I go unplugged while changing pods, depending on what my current sensor reading is.
    • 22 hours, 45 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Always, until I began to increase the "cannula fill" amount. I found I need a good bit more than the (1.3u) to "prime the site" to have the next blood sugars be in goal. Just remember "every body is different". Darn than OmniPod does not let you change that amount, have to use "fake carbs". Something to consider.....
    • 22 hours, 46 minutes ago
      KarenM6 likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 22 hours, 46 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 1 day, 3 hours ago
      KSannie likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      **cannula
    • 1 day, 9 hours ago
      Kathleen Juzenas likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I find a using the T-Connect app I have the main features needed, CMG, bolus, battery level and remaining insulin.
    • 1 day, 13 hours ago
      TEH likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 1 day, 13 hours ago
      atr likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      Mostly pump because I want to quickly see insulin on board. Tandem on IPhone when holding my great-niece while she sleeps since getting my pump out of my pocket always wakes her ☺️. Dexcom app if not in need of insulin.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      usually the pump; sometimes my phone.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump (Tandem X2). Since I have to carry a work phone close to 247, I don't want to deal with two phones (device overload!). As I go about my day, looking at my pump meets my needs, I can decide to bolus etc - and edit the bolus. For more in depth data review and analysis, I use the TConnect.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I read it from my pump.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      On my insulin pump
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump. Keep it simple.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      How much of this is intentionally misleading? My mail order prescription service says that can’t possibly know the cost of a medication until after it’s been shipped, which is too late to cancel or return, of course, and makes it impossible to comparison shop.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      I have an MA in writing and lit, but gobbledegook is gobbledegook. The fancy term is obscurantism.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 2 days, 11 hours ago
      Sarah Berry likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump
    • 2 days, 12 hours ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      One nice thing about a watch for readings is that, while it is normally redundant, you can be separated from your phone. For example, when you are in water.
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    If you’ve lived with type 1 diabetes for more than 10 years, what resources do you find most useful for your continued diabetes management education? Select all that apply!

    Home > LC Polls > If you’ve lived with type 1 diabetes for more than 10 years, what resources do you find most useful for your continued diabetes management education? Select all that apply!
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    " At T1D Exchange, we’re proud to announce our Medical and Research Advisory Team — an accomplished group of leaders in endocrinology, research, and quality improvement. Together, they are redefining what’s possible in type 1 diabetes (T1D) care through rigorous data analysis, innovative research approaches, and real-world implementation. Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. T1DX-QI is a remarkable resource for centers that are using continuous process improvement to improve the quality of care for people living with diabetes.”  “Diabetes centers working with T1DX –QI have done amazing work using QI methodology to make care accessible and equitable for all people with diabetes,” she said. “It’s inspiring to be a part of a collaborative in which centers have been creative and thoughtful with initiatives to address individual and systemic challenges to care, improving clinical outcomes as well as the patient experience."  Looking ahead, Dr. Sherr highlighted the opportunity to build on the existing strong foundation. “I’m very excited to be working as a Medical Advisor for T1D Exchange,” she said. “It’s a privilege to help shape what comes next for a group that’s already doing such impactful work.”  “Sharing what’s happening in clinical practice, benchmarking across centers, and understanding outcomes is how we figure out what’s working, what’s not, and where we go next,” she said.      The future of T1D care   With this team’s vision and expertise, T1D Exchange is positioned to accelerate progress in T1D care — bridging research and real-world practice to drive meaningful, measurable impact.  Together, we look forward to advancing innovation and improving outcomes for everyone affected by type 1 diabetes.   "

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    40 Comments

    1. sweetcharlie

      70 years T1D from age 21 … At first it was local primary care doctors.. Then around age 42 moved cross country and asked at local hospital for recomendation. They sent me to an ENDO doctor who said to me “you do what I tell you or I will NOT take you as a patient.. That was around the time the A1C thingy test started…. He insisted I had to have my A1C be as a NON- T1D person… We did not have the stick your finger at that ime yet … still on the color strip pee test… that blew up my brain and I could not remember things any more…. So I went back to local primary doctors and my own self doctoring… My last doctor of 25 years said to me , “Im not going to tell you what to do about T1D, the sick people are in the waiting room” …

      3
      3 years ago Log in to Reply
      1. Ahh Life

        Sweetcharlie–for having a “blown up brain” I’d say you have a near genius existence, at least experience wise. Pity such learned endocrinologists know everything about the text books and nothing about the human beings.

        5
        3 years ago Log in to Reply
      2. pru barry

        Bravo, Charlie! My diabetic labradoodle, also a Charlie, would have loved you! Experience is such a good teacher. Great teachers at Joslin in the beginning, 69 years ago, and the experience of a lifetime. It just takes a bit of grit!

        3 years ago Log in to Reply
      3. sweetcharlie

        Thanks to Ahh Life and Pru Barry for comments !!!

        3 years ago Log in to Reply
    2. Carol Meares

      Also, my sister who also has T1D

      3 years ago Log in to Reply
    3. RegMunro

      My wife of 57 years, I was diagnosed 58 years ago

      She trained as a nursing Sister and over the years has developed a wide range of understanding of foods. Especially their impact on BG.

      1
      3 years ago Log in to Reply
    4. ConnieT1D62

      Mostly from others who live with T1D themselves. I have had the good fortune to have been under the care of two endocrinologists. who are T1D themselves. Plus as a RN, CDCES I have several colleagues who are also T1D and we turn to each other for advice and support. Nobody “gets it” like those who live with it.

      5
      3 years ago Log in to Reply
    5. Lawrence S.

      My sources are my Endo (who is not technically a doctor), and this website.

      1
      3 years ago Log in to Reply
      1. Stephanie Cruickshank

        How is your Endo not a doctor? I’m confused

        1
        3 years ago Log in to Reply
      2. Lawrence S.

        My “Endocrinologist” is an ARNP, Nurse Practitioner in the Endo unit at my hospital.

        3 years ago Log in to Reply
    6. Jane Cerullo

      My Endo is somewhat helpful but sometimes I find I know of new advances before he does. If I need info I will go to YouTube. I know the people who I deem trustworthy. I used to depend on books but have read most. Recently was having dawn phenomenon and couldn’t figure out why. From research I changed my long acting dose to night time. I was doing twice per day. This morning no high BS. Bottom line is that I use resources available to help with a specific concern.

      1
      3 years ago Log in to Reply
    7. anj1832

      The pregnancy with T1D book by Ginger Vieira was and has been the most useful resource I’ve ever come across. My endo is not helpful and I basically only see them to get prescriptions renewed.. those appointments cost too much for them to look at the data and say “everything looks good!” 🙄 Groups on Facebook are sometimes helpful.

      1
      3 years ago Log in to Reply
      1. Ginger Vieira

        I’m so glad! Find me on Amazon for my latest books. 😉

        3 years ago Log in to Reply
    8. Richard Vaughn

      The Joslin Medalists Study done at the Joslin Diabetes Center in Boston has been very helpful. I participated twice in the Study. Important findings have helped explain my good health after 77 years with type 1 diabetes.

      7
      3 years ago Log in to Reply
    9. Chari Purchatzke

      I have learned much more from the Juicebox Podcast than I have from my medical team, and I really like them! I was able to get my endo to start listening too. There are so many tips and tricks on how to take control of your health in a very easy to understand way.

      5
      3 years ago Log in to Reply
    10. Louise Robinson

      I will have reached my 47th year with Type 1 as of this summer. Besides having a good endocrinologist, I believe that I can attribute my ood control in the past 23 years to 2 books” Dr Richard Bernstein’s “Diabetes Solution” which made me aware of the critical role played by carbohydrates in glucose levels and Gary Scheiner’s “Think Like a Pancreas” which increased my understanding of how my body functions in relation to diabetes. Both inspired me to change habits that were not conducive to good diabetes control. A friend forced her copy of “Diabetes Solution” on me and, because I loved and respected her, I felt I needed to read it. It was a game-changer. I learned about Gary Scheiner’s book through a now-defunct Diabetes user group called “Diabetic Connect”. We can never learn too much about how diabetes affects our bodies.

      4
      3 years ago Log in to Reply
    11. Donna Brownley

      Juicebox Podcast, hands down the most informative and helpful ❤️

      1
      3 years ago Log in to Reply
      1. Lyn McQuaid

        Agreed!!!!

        1
        3 years ago Log in to Reply
    12. Annie Wall

      I get considerable help from my endocrinologist and his team but I also get significant help from the Facebook group I participate in where we share our experiences with Tandem and Control IQ.

      1
      3 years ago Log in to Reply
    13. Beckett Nelson

      I put support group or other social gatherings because I figured that was closest. I have a large number of friends who are T1D, so hanging with them is key. Sometimes something comes up related to T1D, but that’s not the focus of us gathering

      1
      3 years ago Log in to Reply
    14. William Bennett

      I guess the DOC (Diabetic Online Community) is now spread so broadly into things like podcasts, YouTube channels and other digital media as to be too broad a term to be meaningful. But I learned far more in my first few days on sites like TuDiabetes than I had learned in 20 years with only physicians and twice-yearly appointments to go on. The best way to learn about T1D is from other people with T1D.

      7
      3 years ago Log in to Reply
    15. cynthia jaworski

      PubMed

      1
      3 years ago Log in to Reply
    16. KSannie

      I checked three things, including “Other.” “Other” includes magazines I have read over the 53 years I have been diabetic, and I still read one of them. I have read a professional journal, even though I am not a doctor. It was way ahead of what was being recommended by U.S. doctors at the time. I stopped when I moved to England and could not get it there. The magazine I read now, Diabetes Self Management discusses research, new equipment and recipes, as well as personal stories. I do not get much from personal stories, but in T1D groups I learn what others are finding with their management, which is something a doctor either without diabetes or with Type 2 cannot appreciate. And when I was in England, I knew more than most of the doctors I met. I was finally permitted to meet annually with an endocrinologist who was really up to date on Type 1.

      3 years ago Log in to Reply
    17. Joseph Myers

      There are no support groups near my home address in chester springs PA – I have checked facebook for years and then eventually tried other websites but I am out of resources – I have gone down every rabbit hole for in person support groups that google could provide for me

      1
      3 years ago Log in to Reply
      1. Lucia Maya

        have you tried starting one? that’s what I’ve done when I couldn’t find one that existed… takes a commitment, but can be fulfilling.

        1
        3 years ago Log in to Reply
    18. Chris Albright

      I have received more ‘valuable’ info from the Juicebox podcast than any other source. T1d for 31 years.

      1
      3 years ago Log in to Reply
    19. Steven Gill

      In 25 years saw five endocrinologists, A herd educators, and a flock of doctors. Only 1 endocrinologist seemed competent (my 2nd said I was too old to be a TYPE 1?), several GPs were promising, 2 eye docs seemed more adept with diabetes itself than “specialists” (endo~). Could be my fault or personality, the educators possibly felt because I lived at the library (local and UAB medical), knew all the big words, knew more than I did.

      But just like a doctor specializing in hormones (endocrinology) doesn’t necessarily know how to dumb down information nor transfer day to day knowledge to a diabetic, all the books I can read (Bernsteins and Atkins) all periodicals (Diabetes Self-Management, Diabetes Forecast) can’t really bring it to actual control. I 2nd, 3rd, and 7th the Juicebox Podcast.

      Once you get past your mother isn’t there to watch you sleep, it’s you.

      1
      3 years ago Log in to Reply
    20. Bob Durstenfeld

      I like the Diatribe emails and website.
      What I would really find helpful after 67 years with T1D is a case manager.

      2
      3 years ago Log in to Reply
    21. Eva

      When first diagnosed, I read all the books and publications by American Diabetes Association, applying the recommended habits and practices where I could. Once I was put on a mini-med pump back in 1995, my life completely changed for the better. The books “Think like a Pancreas” and Dr Richard Bernstein’s “Diabetes Solution” helped me better understand the relationship between insulin, carbs and activity. I learned confidently how to monitor and make basal/bolus adjustments where needed.
      These days, I take a more personalized approach to eating and health. I got my genome analyzed and I understand so much more about what I should eat (or not) given how my body absorbs (or not) nutrients. I use google scholar as my search engine to research papers, so I that understand the various SNP’s which make me who I am. Now, I go to my endo and he runs specific tests to monitor how my diet, exercise and vitamins/minerals are affecting my exocrine and endocrine system so that I can lead the best life I can.

      1
      3 years ago Log in to Reply
    22. Jan Masty

      My current diabetic specialist nurse practitioner is very good. But I also read Diabetic Forecast when jet was available. Now read one called Diabtes self management. My experience like others is that I’ve usually been ahead of the medical staff on what’s new and getting good results. 63 years of t1d.

      3 years ago Log in to Reply
    23. kim bullock

      Being around type two diabetics and showing them the right things to do, and eat.

      3 years ago Log in to Reply
    24. Janis Senungetuk

      I’m currently under the care of a good endo and previously had the fortune of being under the care for 10 years of the professor/physician who taught medical students endocrinology at the University of Wisconsin medical school and was an excellent physician. Over the last 68 years living with T1D two CDEs have been especially helpful, I’ve consistently found the diaTribe newsletter beneficial, but I think I’ve probably learned the most from talking with other PWDs, either online or in person.My years as a participant in the Joslin Medalist study has provided valuable contacts and attending the first Diabetes UnConference in 2015 and meeting 90+ other adults living with diabetes was a profound experience with a positive continuing impact I’m still engaged in.

      2
      3 years ago Log in to Reply
    25. Dianne Mattiace

      Social media postings.

      1
      3 years ago Log in to Reply
    26. Carolann Hunt

      Facebook diabetes groups like Looped

      3 years ago Log in to Reply
    27. Lucia Maya

      I love the TuDiabetes site when I have a question or challenge I can’t figure out on my own.

      3 years ago Log in to Reply
    28. Wanacure

      I used to go to medical school libraries to keep up w/ latest research in diabetes. Still refer to Bernstein books. When living in a bigger house I started a diabetes support group. Used to support & read magazines from ADA, then JDRF. I used to attend medical research forums. Now I rely on my smart diabetes tech team and an endo plus websites like this one.

      3 years ago Log in to Reply
    29. Matthew Miller

      Diabetic for 40+ years. For many years I read the Diabetic Self Management Magazine (I believe it was montly) which I don’t think is around anymore.

      3 years ago Log in to Reply
      1. Ginger Vieira

        It is still around! One of my books is going to be featured in the next edition! 😉

        3 years ago Log in to Reply
    30. T1D4LongTime

      T1D 56 years. With technology’s increasing effect on the success of diabetic management, I’ve used online T1D Support Groups (Facebook mostly), insulin pump and CGM websites, and online diabetic groups (T1D Exchange, DiaTribe, etc.) to find better ways to manage issues (morning rise being the most problematic). I still rely heavily on my endo and diabetic educator to handle long-term management issues (aging, menopause, caregiver’s stress, etc.)

      3 years ago Log in to Reply
    31. Jeff Balbirnie

      Almost never. The majority of available information is geared solely toward our T2 “cousins”, and therefore entirely worthless/useless to someone with serious T1 experience. OF the few sites/podcasts the serious majority of them are geared toward raw beginners, never towards “elders” T1’s with decades and decades of serious experiences.

      3 years ago Log in to Reply

    If you’ve lived with type 1 diabetes for more than 10 years, what resources do you find most useful for your continued diabetes management education? Select all that apply! Cancel reply

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