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    • 2 hours, 48 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 2 hours, 48 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 4 hours, 4 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 4 hours, 4 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 4 hours, 4 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 4 hours, 5 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 4 hours, 6 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 4 hours, 7 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 4 hours, 7 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 4 hours, 7 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 6 hours, 9 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 6 hours, 47 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 6 hours, 47 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 7 hours, 30 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 7 hours, 52 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 8 hours, 16 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 8 hours, 16 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 8 hours, 17 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 8 hours, 32 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 9 hours, 32 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 9 hours, 33 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 1 day ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 1 day ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 6 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
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    At what age could you (or your child) set up a new infusion site independently without help?

    Home > LC Polls > At what age could you (or your child) set up a new infusion site independently without help?
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    Have you ever changed your insulin delivery routine because of insulin absorption issues? Select all that apply, and share what has worked for you in the comments.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    17 Comments

    1. Joan Fray

      Igave myself my 1st shot in doctor’s office when diagnosed. 1962, age 12.

      1
      3 years ago Log in to Reply
    2. Lawrence S.

      I got my first insulin pump in 1998, when I was 45 years old. Prior to that, I took insulin shots 3+ times per day for 21 years.

      3 years ago Log in to Reply
    3. Nevin Bowman

      I began giving my own shots at age 6, when BS testing was still done with urine in a test tube. This was long before the consumer version of insulin pumps hit the market.

      4
      3 years ago Log in to Reply
    4. Amanda Barras

      No insulin pump as child. First learners to shots on own to be able to go to sleepovers around age 9.

      3 years ago Log in to Reply
    5. chlyn

      Started diabetes treatment at 35 years old and no issues with setting up infusion sites.

      3 years ago Log in to Reply
    6. Sue Martin

      This question relates to pumps. There should be an answer that says I don’t use an insulin pump, regardless of age.

      1
      3 years ago Log in to Reply
    7. Bob Durstenfeld

      I started giving and preparing my own injections around age 8. My son did not get a pump until he was 16 and my granddaughter with T1D is only 5.

      3 years ago Log in to Reply
    8. Becky Hertz

      More like, there were no insulin pumps when I was a child.

      3 years ago Log in to Reply
    9. Janis Senungetuk

      I didn’t get a pump until 60 years after dx. At the age of 68 I did need extensive assistance with the infusion set because I lacked the reach and strength to insert it correctly. I’m only 4’8.5″ tall . My hands weren’t large enough to reach the injector button on the first type of infusion set that had been sent with the pump. Once I tried different types of sets I found one I could comfortably use.

      3 years ago Log in to Reply
    10. Cheryl Weaver

      I didn’t start using insulin until I was an adult.

      3 years ago Log in to Reply
    11. Cheryl Weaver

      I didn’t start using an insulin pump until well into my adulthood, so I could do it from the beginning. I did receive pump training.

      3 years ago Log in to Reply
    12. Georgina Sokol

      When I was a child there were no insulin pumps

      3 years ago Log in to Reply
    13. Joan Benedetto

      My son just turned eleven. He has filled the cartridge a few times, and loaded it, but finds it tedious. He has, however, been putting in his own sites for about three months which includes removing old one, removing all adhesive residue, and conditioning skin with Aquaphor.

      3 years ago Log in to Reply
    14. Sherrie Johnson

      There was no such thing as an insulin pump until I was 43. Been on one ever since going on 34 years.

      3 years ago Log in to Reply
    15. TS

      Ha! I was 15 or 16 when I got my first pump… that was in 1982! I went to Joslin Clinic DTU and the put me on one of the first wearable pumps. They made sure I could change it myself. Now that I think about it, I don’t remember how often I had to change out! Those metal needles were killer though. I still have the scars from them!

      3 years ago Log in to Reply
    16. Mick Martin

      What a ridiculous question! Surely this question should have been worded differently. i.e. how long had you (or your child) been suffering with diabetes before being able to set up a new infusion site independently without help? OR how long had you (or your child) been using a CSII (Continuous Subcutaneous Insulin Infusion, or pump) before you were able to set up a new infusion site independently without help?

      3 years ago Log in to Reply
    17. Mary Ann Sayers

      I was dx in 1954 and I gave myself a shot two years later at the age of 9. At age of 59, I got my first insulin pump and learned how to change the infusion set. Period.

      3 years ago Log in to Reply

    At what age could you (or your child) set up a new infusion site independently without help? Cancel reply

    You must be logged in to post a comment.




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