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If you have peripheral neuropathy in your feet, do you take any medications to help manage it? Please share in the comments how you manage neuropathy pain.
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I think my neuropathy symptoms manifest as lack of feeling, not pain, in my feet. This can contribute to falling. I probably should use a cane for better stability.
I take meds and super b complex and magnesium to help
Along with meds I take super b complex and magnesium to help
I have had neuropathic pain in my feet, primarily, and lower legs for many years. I have been on various meds, as they have improved and my symptoms worsened seemingly. I am on a combination of pregabalin and duloxetine for several years, which has provided me with a total absence of pain, with occasional “break-through pain” , as I call it, incidents. These lapses occur every 2 to 3 months, without warning, are severe, in that they cause one leg or the other to basically collapse, so I often walk with a cane for the day or two that these incidents occur. But, thankfully, they are infrequent if an over the counter pain killer does not work, which they normally don’t, I will retreat to the use of oral morphine, every 4 hours. 2 or a maximum of 3 doses will stop the pain, but will also cause me to sleep and be constipated. In such situations, I am “ out of use” for a day.
Good description. And good advice as to what to do, even in “last resort” situations. 👍
Used to have terrible neuropathy pain in my feet at time of diagnosis. Endo put me on gabapentin which did nothing but make me “dopey”. Started taking ALA (alpha lipoic acid) vitamins and the pain was gone in a week! Have been taking it for almost 20 years and the pain has never returned.
One of my feet has been developing numbness for years – no pain, no medication.
I think that I don was peripheral myopathy because I take a prescription called METANX. A prescription base b complex with a proprietary prescription component. I have been taking it for about 12-15 years.
I don’t have pain in my feet but I have lost nerve feeling in my finger tips, two fingers on both hands… Go figure 🤔
None of the several endocrinologists I’ve had over 70 years has ever mentioned using medications for neuropathy. I’ve mentioned it often in the recent past since it feels like being without legs, at this point, but the docs shrug, say there’s nothing to help. What does help is to keep walking, a lot, and I think it may have something to do with not letting those brain cells forget what it used to feel like. I think I owe as much to walking as I do to shots and pumps :^) It’s all good!
I occasionally get neuropathy pain in my toes. However, over the years it has never developed into long-term pain. I believe that my running and constant aerobic exercise have prevented the neuropathy from developing. I watched my father go through years of horrendous neuropathy pain. Back then I decided to keep running, with hopes that it will prevent early onset. I think it is working.
I do have peripheral neuropathy, I am currently participating in a clinical trail in which I have experienced 80% improvement. VMDN-003-2 to Assess Engensis
Thanks for sharing this info. I will keep a watch over if/when this drug makes it to market.
I have been T1D for 55 years. I began having some neuropathy symptoms probably 5 years ago. A year and a half ago it had progressed to numbness and tingling at night. My endo prescribed the Metanx that some have mentioned. I also have osteoarthritis that I inherited from both my parents. It had left me with bone on bone in my knees. So October of last year I had total knee replacement in my left knee. The post-op pain from that was very difficult to tolerate. In addition, for whatever reason, the neuropathy in my feet became much worse. Two months into post-op and very frustrated with the pain, my endo prescribed me gabapentin for the neuropathy. Not only did it help the neuropathy, but my knee pain decreased dramatically. My surgeon had to increase the dosage, but so far I am doing much better with my post-op pain management and my neuropathy. So for those of you who have painful neuropathy and osteoarthritis, you might give gabapentin a try. That said, I may try the alpha lipoic acid that was mentioned sometime in the future.
I have autonomic neuropathy and some peripheral neuropathy in my thighs. I take a low dose of Gabapentin at night to sleep.
I tried both lyrica and gabapenetin for a few years. Neither worked and on the highest dose I only had brain fog so bad I resigned from my job (RN working in admin). It took several months to figure out what was wrong and when I stopped taking it was 3 months before I felt better. I’ve also tried medical marijuana for about 1 year with no success. Finally tried a compound that has gabapenetin cream added which does help.
Never so bad that I had to take medication for it. Hot water soak seems to help some.
Yes I do have significant peripheral neuropathy in both my feet and my hands. But I do not take any pharmaceutical chemicals to help because the side effects just aren’t worth any help they might be. Currently I’m taking a mushroom blend that seems to be helping to keep things at bay and at the same time helps my immunity and brain health.
The thing I found to help the most though is cannabis oil or smoking cannabis for relieving the symptoms.
I tried gabapentin at one point; not good. I couldn’t function on it.
I marked “…do not take medication…” I do, however take over the counter alpha lipoic acid. Since begining it 3 years ago, my neuropathy has stopped progressing. Big thanks to my podiatrist.
My foot neuropathy consists of what I call “the itch from hell”. While capsaisin lotion has helped, I usually just keep lightly massaging until it stops usually in 10 or so minutes. So I put “No”. Also, I feel blessed because all I can think of is “at least it’s not pain”.
I have tingling and some numbness sometimes in my feet if I sit too long especially. Like at work I sit at a desk all day long. But not much pain so far thankfully.
Although I do take gabapentin (Sorry spelling) I have a ruptured disk in my neck and back as well as handicap knees from a motorcycle accident when I was young. I am curious if it makes you gain weight. I have gained 20lbs since I have been taking it but have also been told it could be I have been through menopause and hormones cause hunger and weight gain too. I thought I would try not taking it and see if my hunger slowed down some because I stay hungry all the time and I have always been under weight never have I weighed this much. From 138 to now 157 in just 3-6 months since taking it. Hmmm!? and. I just keep gaining a pound or so at a time. Anyone else notice this with Gabapentin? I actually take Horizant which is Generic Name: Gabapentin enacarbil.
I have SLIGHT tingling in my feet, but it is so slight that I very rarely feel it and my feet have great sensation to stimuli.
My physiatrist put me on a medication after having a cervical spine ablation. After taking it for almost a year I didn’t think I was getting anything from it and I stated that to my PCP who confirmed I was no longer seeing the MD who prescribed it and he started weening me off it. While my dose was decreased, I started getting pain in my legs and feet and I realized that med was actually helping but in a different way. I’m now continuing the lesser dose unless the higher dose is needed.
I have lived with peripheral neuropathy in my feet and hands for years. At this point I only experience peripheral numbness. About 20 years ago my PCP prescribed Neurontin, then Lyrica for the sharp stabbing pains and neither did anything except to mask the discomfort and make me feel so mentally clouded & stoned that I could barely function. The meds also did nothing to reverse the progression of the neuropathy so I stopped taking them. At this point I no longer experience any pain, just chronic numbness and I have learned to live with it by making functional adaptations as needed.
I have had neuropathy for 13 yrs and i took Gabapentin for years which was helpful but as of about 3 yrs ao no longer find it painful and don’t take Gabapentin for that long. I do take B complex and Alpha lipoid acid and my neuropathy consists of numbness in feet and sometimes I wake with a little numbness in fingers but no pains. I also have very good sensation. Diabetes for 45 yrs within retinopathy or kidney disease.
without retinopathy or kidney disease
T1D 56 years. As a teenager (after 10 yrs T1D), I had horrible neuropathy in my feet. Felt like branding irons. Then all of a sudden, it disappeared and never came back.
My neurologist has me starting with a supplement called ALA. I have found research papers showing when combined with CoQ it can be even more effective.