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    • 14 hours, 21 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      The hospital made me disengage my pump and promised to monitor my BG. After 10 hours with an incorrect basal my BG was high and going up. No nurse or doctor was available to administer insulin. I finally reinstalled my pump and forced the hospital to acknowledge that they could not monitor my BG. After appealing to the hospital Board, after my stay, they started using CGM's in all the wards for diabetic patients.
    • 14 hours, 22 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      During my hospitalizations for cardiac issues, my endocrinologist (who does not do hospitals) told the attending endo that I was capable of managing the diabetes. I was allowed to mange pump and CGM without any problems. For one stay, I had a pump-using T1D nurse. This was the premier cardiac hospital in the western part of my state, so their handing of diabetes may be more advanced. There are two rules for handing the type 1 diabetic in a hospital setting. 1) Never separate the Type 1 diabetic from his or her insulin. 2) Let the expert in the room handle the diabetes. And bring your own supplies, because the hospital will not have pump supplies, CGM replacements, or your insulin.
    • 15 hours, 13 minutes ago
      Jan Masty likes your comment at
      Have you (or your loved one with T1D) been diagnosed with retinopathy?
      No retinopathy... But AMD both eyes last 2 years...No treatment available... Unable to wright... bareley able to read only large type... use the talking guy hideing in my computer to read for me... Almost 91 years OLD.... 70 years T1D...
    • 15 hours, 41 minutes ago
      mojoseje likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I didn't have a stopwatch out, but it was about 12 to 15 minutes. There was a lot to go over (new devices, etc.). I probably got everything I needed, but, for some reason, I always feel rushed at this office.
    • 15 hours, 53 minutes ago
      KarenM6 likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 16 hours, 46 minutes ago
      Janis Senungetuk likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was over 20 minutes but since my Endo has me so well Regulated (A1c 5.4 - 5.6) even Medicare is allowing a Visit every 4 Months. Dex 6 and Tandem CIQ is my Cure!
    • 16 hours, 53 minutes ago
      Judy Hampton likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      My A1C is normally in the 5 to 6 range also, but I am lucky to have an Endo who answers any questions I may have and discourse on new technologies. He also checks my feet and eyes. He spends up to 40 minutes with me. I have been T1D for 59 years and have been through a pregnancy (hellish) also. I still have many questions about this disease and it’s effects on the rest of my body as I am very active.
    • 17 hours, 14 minutes ago
      Patricia Dalrymple likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 17 hours, 17 minutes ago
      cynthia jaworski likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 17 hours, 24 minutes ago
      Anneyun likes your comment at
      If you are an adult with T1D, how much has type 1 diabetes affected your thought-process and decision to have/not have children?
      I was diagnosed at age 12 and I don’t remember anyone talking to me about having or not having children. I married at 23, had an unplanned pregnancy that began when I was 24. I was not seeing an endocrinologist at the time (in 1979), but my OB doctor sent me to one. Both of the doctors made comments to me about maybe ending the pregnancy, but my answer was a definite NO!!! It was a hard pregnancy without the better insulin and technology that is available today. I went into labor approximately 6 weeks before my estimated due date. Since a Caesarian had been planned, no one had explained anything to me about going through labor, so that took longer and was harder on me than it should have been. Anyway I delivered a 7 pound, 11 ounce boy. He had jaundice and a slight heart murmur at first , but that cleared up after a short stay in the hospital. My son is 42 now and bloodwork has indicated he will not become a T1D. Same with his 2 children. That was my only pregnancy. I am now 67.
    • 18 hours, 48 minutes ago
      Joan Fray likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 1 day, 9 hours ago
      TS likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 14 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 14 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I tried to donate them to my healthcare system but was told they were not allowed to take them. I tried a couple of other places- same story so I now will have to put them in the garbage
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I'm still looking for someone to give them to.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My other was gave them to the Endocrinologist office to give to people who needed them
    • 1 day, 15 hours ago
      Trina Blake likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 16 hours ago
      Amanda Barras likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 16 hours ago
      Richard Wiener likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 17 hours ago
      Janis Senungetuk likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 17 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 17 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have given most to my doctor to give to someone in need. Some I gave to my chiropractor for his son.
    • 1 day, 18 hours ago
      Sue Martin likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My unused diabetes supplies like meters, that I was given but don’t use, just sit in a drawer. I wish there was someplace to send them. Any ideas, folks?
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    From which healthcare provider do you receive the majority of your diabetes care?

    Home > LC Polls > From which healthcare provider do you receive the majority of your diabetes care?
    Previous

    If you use a CGM, do you look at the Glucose Management Indicator (GMI) available in many CGM reports? If so, how accurate is your GMI compared to your A1c drawn in a lab?

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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    32 Comments

    1. AnitaS

      A physician’s assistant who specializes in diabetes.

      3
      1 month ago Log in to Reply
      1. Gary Taylor

        Same here. There is no endocrinologist in my area.

        1 month ago Log in to Reply
    2. Jane Cerullo

      I answered NP because I usually see my Endo’s NP. This month see the doctor as his NPs keep leaving. I rally liked the NP I had for years but she left after having second baby. Saw her replacement once but he is gone now. Been going to this office for over ten years so too complicated to change now. Truthfully I take care of own diabetes. Need them for scripts mostly and labs.

      4
      1 month ago Log in to Reply
    3. Robin Melen

      I answered endocrinologist, but honestly most of my questions and concerns are answered in my every-other-month calls with my diabetes educator! She’s terrific!

      1 month ago Log in to Reply
    4. GLORIA MILLER

      I marked endo but I mainly go only because my insurance demands twice yearly visits in order to fill my prescriptions. I would not go otherwise since, after 66 years, I feel I can take care of myself regarding diabetes. When I was younger I stopped going to doctors for about ten years and I did just fine.

      2
      1 month ago Log in to Reply
    5. TEH

      My answer is really both. I see my Endo once a year and the other 3 times I see my PA. My Endo knows the physiological and the PA knows how to tweak the pump.

      1
      1 month ago Log in to Reply
    6. Merry Woolsey

      I answered Endo, however, if I don’t have one my primary care provider always “provides”.

      1 month ago Log in to Reply
    7. Steven Gill

      I’ve seen 5 endocrinologists (their specialty is the endocrine system/hormones, not necessarily diabetes) one said I was too old to need insulin and lose more weight. Another just ran tests and sent me on the way, at least the last got me on a pump/CGM. The only efficient one was at those medical trials, he taught me a good bit. For now I’ve been seeing a general practitioner although that may change.

      Am now retired and entering the VA health system, up to what’s required to follow up my care.

      2
      1 month ago Log in to Reply
    8. Liz Avery

      I answered NP as I see the nurse practitioner at my Endocrinologist practice.

      1
      1 month ago Log in to Reply
    9. Marsha Miller

      I see a Nurse Practitioner, but she specializes in Type 1 Diabetes.

      1
      1 month ago Log in to Reply
    10. Georgina Sokol

      Endo, but no longer. I have been TID FOR 58 years, and waiting for his majesty the endo for three hours in the office only to gave him cancel 2 out of 4 appointments a year is ridiculous ver. At this point, there is nothing the endo can tell me. This kast year I had a new pump that turned out to be faulty and was replaced. The whole time, the endo told me it was my imagination. I have had 5 endos in my life and they are not worth the frustration, lack of knowledge and waste of time driving an hour to get there, wait 3 hours to see him and then drive home for an hour. I am sooo disappointed in the general lack of attention and knowledge on the oart of endos concerning T1D’s. I have no faith left and will just rely on my GP for insulin prescriptions and reports to Medicare. My hA1C is consistently around 5.7. I do this myself with great control.

      1
      1 month ago Log in to Reply
    11. Lawrence S.

      I clicked “other” because I’m not sure what the person I see is. I go to the Endocrinology unit of a large hospital for quarterly visits. I always see a person who is an APRN, DNP. I have no idea what APRN means, but I believe the RN part means registered nurse. This hospital does not allow patients to select doctors or practitioners, the patient is assigned their health care providers. (This is a world renowned hospital).

      1 month ago Log in to Reply
      1. Lawrence S.

        Advanced Practice Registered Nurse.

        1 month ago Log in to Reply
      2. Lawrence S.

        A DNP, Doctor of Nursing Practice, is a higher-education degree. Those who earn a DNP have completed the highest level of training in nursing practice. A DNP-prepared nurse has a deep knowledge of evidence-based care and the ability to apply this knowledge in practice. A nurse with a DNP degree can influence healthcare policies, take on administrative roles and provide clinical education for nursing programs. .

        1 month ago Log in to Reply
    12. Lee Johnson

      I have not found a competent endo doc for the last 15 years. Current one has a terrible staff which jeopardizes her reputation!

      1 month ago Log in to Reply
    13. spencercarter1

      Although I see my endo regularly, I also use Your Diabetes Insider consultant Ben Tzeel. He is amazing and provided so much insight. I’ve had T1D for 45 years and thought I knew it all, but once I started working with Ben, I realized I didn’t.

      1
      1 month ago Log in to Reply
    14. Katrina Mundinger

      I’ve been seeing the same endo for almost 30 years. There was one visit I had with a different endo when my insurance changed but then my insurance changed back. My endo is fabulous. He knows the pumps, knows their ins and outs, and ALWAYS talks to me like I’m a person.

      2
      1 month ago Log in to Reply
    15. Eva

      I’m not sure the question really captures all the different types of “diabetes” care that some type 1’s require. In terms of how insulin is absorbed relative to what I eat and how much, my endo provides most information. In terms of exercise, how much cardio and strength training I need for my organs to stay healthy given that I take insulin, my trainer would be the provider of that information. Examining the minerals, vitamins and how my body processes the food that I need (macros, sensitivities etc…) given the exercise that I preform, my functional physician is my go to provider. Each has a role to play in my diabetes care.

      1 month ago Log in to Reply
    16. Tom Rintelmann

      I’ve seen an Endocrinologist off and on my whole adult life but now I see only my knowledgeable Primary Care Physician. I study many aspects of my T1D and only see an Endocrinologist when a specific test needs to be run. My last three A1C tests have been 5.7 to 6.1.
      Tom R

      1 month ago Log in to Reply
    17. Thomas Cline

      I use my GP because I’ve found (from experience) that endo’s seem to be useful only for those who can’t or won’t manage their diabetes well. I get better/more information from the web. If I could find a knowledgeable endo who was a Type I diabetic themselves I might consider it — I truly believe it takes one to know one with this medical problem.

      1
      1 month ago Log in to Reply
    18. Jneticdiabetic

      The majority of my care comes from my certified diabetes educator who n is bc also a nurse practitioner at my local endocrinology office. I’ve found my diabetes nurses are often a bit more tech savvy and better able to give helpful advice on pump/CGM adjustments..

      1 month ago Log in to Reply
    19. Janis Senungetuk

      Since 2006 I’ve been under the care of an endocrinologist. The first one for 10 years until insurance coverage changed. The current one for the past 9 years. For the quarterly Medicare required appointments I alternate between the endo and the diabetes educator. They’re both very knowledgeable about all of the tech devices and treat me as a whole person, not just a disease with a number.

      1
      1 month ago Log in to Reply
    20. fletchina

      I see my endo more than my CDE, but my CDE provides the most valuable care/ recommendations/ suggestions for optimizing my BG control

      1 month ago Log in to Reply
    21. Daniel Bestvater

      My diabetes care has mainly been self inflicted. I’ve been a pharmacist-CDE for about 35 years. In Canada insulin, pumps and most diabetic products are nonprescription so it is very easy to try new insulins, cgms and pumps.

      1 month ago Log in to Reply
    22. Patricia Kilwein

      My Endocrinologist actually has a team. I receive care from Dr, educators, nursed and dietitian. Very awesome care!

      1 month ago Log in to Reply
      1. Patricia Kilwein

        Nurse

        1 month ago Log in to Reply
    23. George Lovelace

      My Endo and I “just click”, I am her “Pump Poster Boy” and she Fine Tunes my Numbers, last A1c’s were 5.4 and 5.6

      1
      1 month ago Log in to Reply
    24. Wanacure

      I don’t actually see her. We have phone appts.

      1 month ago Log in to Reply
    25. Lauren Carey

      I see my assigned endocrinologists PA. He is more knowledgeable and understanding about trying to live a normal life with T1D. The one and only time I actually saw my endo, he tried to make me change everything about myself, instead of working with me. I will keep seeing the PA as long as I can.

      1 month ago Log in to Reply
    26. Liadona

      I was originally diagnosed as T2 because I was over 40 and still produced _some_ insulin. I received care from my GP then. It was, however, a misdiagnosis and I am now properly diagnosed as T1 and receiving care from an Endo.

      1 month ago Log in to Reply
    27. mbulzomi@optonline.net

      I have been using an Endo. for many years, but he has a CDE staff that I see at least 3 hour’s a year. (Medicare)

      1 month ago Log in to Reply
    28. James Cheairs

      I do not use an endo though I am in good shape. I was finally able to find an Internal Medicine MD (with a focus on diabetes) that was willing to be both my PCP and Diabetes doc. I see her annually for T1D and general health. Otherwise we communicate via My Chart. She follows my lead on how to write my prescriptions for pump and insulin supplies which is simply fabulous and has made life easier.

      4 weeks ago Log in to Reply

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