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    • 9 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 21 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 21 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 hour, 37 minutes ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 28 minutes ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 3 hours, 34 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 3 hours, 34 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 35 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 37 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
    • 3 hours, 45 minutes ago
      Samantha Robinson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 3 hours, 51 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Normally, no time spent but I changed insulins so I wanted to verify everything with my insurance company before asking my endocrinologist to write a new script.
    • 3 hours, 52 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 53 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 4 hours, 10 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I expect that we’ve all had that feeling about how stupid payers can be when it comes to T1D.
    • 4 hours, 10 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Seriously depends on when you ask. The past 3 months have only been an hour or two, but if you'd asked this same question last September it would've been over 8 as I dealt with the annual "Yes I need a Dexcom and Omnipod again" red tape with my insurance/providers/doctor's office. I am counting the time on hold as well, but still - pretty ridiculous that insurance thinks Type 1 is going to magically go away just because it's been a year. I wish!
    • 4 hours, 10 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 4 hours, 11 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 4 hours, 11 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 4 hours, 12 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 4 hours, 12 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 4 hours, 30 minutes ago
      William Bennett likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 4 hours, 30 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Eight times a year I have to spend more than eight hours to fix errors on the part of my mail order pharmacy and DME supplier. My endo doesn't keep track of when prescriptions expire or need refills so add another couple hours a year building a to-do list for the doc. I'm ready to start billing for my time.
    • 4 hours, 33 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
    • 5 hours, 3 minutes ago
      Bill Williams likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Significantly less time since I switched from Byram to ADS. It has made a world of difference and saved so many headaches!!
    • 5 hours, 17 minutes ago
      Janis Senungetuk likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
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    If you had to pick one person, who is the person you turn to most for support with your diabetes?

    Home > LC Polls > If you had to pick one person, who is the person you turn to most for support with your diabetes?
    Previous

    Which of the following oral health issues have you experienced (diagnosed by a healthcare provider) since having T1D? Please select all that apply.

    Next

    If you wear a CGM, and share your data with your support team, have you ever shut off the sharing aspect when your numbers go out of range?Ā 

    Samantha Robinson

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    45 Comments

    1. sweet charlie

      Sorry to say “no one”.. and thats been for a long time. I have some Non T1D issues lately and all the Medical people I se are amaized that I am 90 years old and 70 years T1D and NO T1D problems….. BTW if I drop off this site it is because they drained 32 oz of water from around my right lung last wednesday and are checking it out ????

      11
      4 months ago Log in to Reply
      1. Ahh Life

        Sweet Charlie — best of luck and rest up. Rest is very, very good for many things. Especially for us over-achievers. šŸ™‚

        6
        4 months ago Log in to Reply
      2. Karen Taylor

        You’re in my thoughts and prayers

        2
        4 months ago Log in to Reply
      3. AnitaS

        Sorry to hear about the water issue around your lung. I am so glad that you have been a T1 diabetic for so long and have no T1D problems. Take care

        4 months ago Log in to Reply
      4. Bea Anderson

        Glad you were able to report in. Hoping you get good care for your serious health needs. I am amazed at your self care for T1D. You are an inspiration inspite facing so much alone.

        1
        4 months ago Log in to Reply
      5. Annie Wall

        Sweet Charlie, you are amazing! I am inspired by your spirit and longevity. Whenever I’m feeling sorry for myself, I’ll think of you!!

        1
        4 months ago Log in to Reply
      6. Joan Fray

        Wow, what determination! I guess I’ll have reset my goals for 70 years with T1d. You were there for the glass syringes and clinitest chemistry set, weren’t you?! Me too!

        1
        4 months ago Log in to Reply
    2. StPetie

      I chose ‘Other’ because I’m pretty much on my own as far as dibetes issues go.

      1
      4 months ago Log in to Reply
      1. kristina blake

        Me too

        4 months ago Log in to Reply
    3. ChrisW

      Unable to answer. Please define “support”.

      1
      4 months ago Log in to Reply
    4. Karen Taylor

      I worked with a nurse who specialized some with diabetes and children. She’s a R.N. She has given me a lot of suggestions and support as far as getting me to try the Dexcom and a new pump.
      Otherwise I tend to ask the diabetic nurse with my Endocrinologist or the Tandem pump rep since she’s a T1D herself.

      4 months ago Log in to Reply
    5. Rev Dr John Benjamin David Tatum DD PhD

      My service dog that detects my Hypoglycemia and goes NUTS until I eat and drink something. If I have a hypoglycemic seizure re she tends to me.

      3
      4 months ago Log in to Reply
    6. mojoseje

      My brother is also a T1 so we commiserate and laugh about it. I also have three friends who are T1s. One time, my friend and I were at a party and someone’s pump alarmed and we both looked at our pumps at the same time and laughed about it.

      1
      4 months ago Log in to Reply
    7. Lawrence S.

      My wife has been there for 46 years.

      4 months ago Log in to Reply
    8. George Lovelace

      I chose a Trusted Friend in the Diabetes Community who happens to be my Endo! She and I Learn from each other thus my latest A1c is 5.4 and I’ve almost eliminated All Hypos. I’ve been doing this for 58 years so I have a lot of friends in the Dm Community and look to them also for ideas.

      1
      4 months ago Log in to Reply
    9. Dave Akers

      This is a tough answer and I must say, ā€œit dependsā€. If I’ve got the ā€œDM Burnoutā€ and need emotional support, I turn to my wife. However if I need physiological support, change of Meds or tactics, I turn to a good friend w/in the DM community. My wife will support me but I don’t expect her to know what to do when my numbers are just ā€œout of whackā€. That’s my burden, not hers.

      4
      4 months ago Log in to Reply
      1. Annie Wall

        Although I answered trusted friend in diabetes community, my husband is the one who is by my side every day and it totally aware of the frustrations I deal with on a daily basis. However my trusty friend, who also has T1D, understands the details of those daily frustrations and what to do about them.

        4 months ago Log in to Reply
    10. Bea Anderson

      Obviously my husband who is most invested in my health goals. He is OBGYN and deals with TI at work. My sister who lived with us for years also would come and help me sort things out if I had a low at night when he was working. I have been fortunate to have people around.

      I need to give shout out to my Endo. Yes my husband could take over writing my prescriptions, but I hope that would never have to happen!

      So mostly, it is a three legged stool I rely on.

      4 months ago Log in to Reply
    11. AnitaS

      I chose my physician’s assistant who specializes in diabetes. Luckily I really don’t have to contact her often, but she is always ready to help with any problems and contacts other specialists in diabetes if she knows they have an inside scoop on such things as clinical trials. Family members and friends barely know the basics of type 1

      4 months ago Log in to Reply
    12. Joan Benedetto

      Friends (Fiffles) within the children with diabetes Friends For Life community. Online, but in person a few times per year, as well!

      4 months ago Log in to Reply
    13. Lynn Smith

      I put someone else. My endo used to have a full time nurse dietician/educator who is also a T1 for even a few years longer than me. We became friends outside of the office during that time. She now only works there a couple of days a week when she is in town. So we communicate by phone/text outside of the office whenever I need to talk. She’s been a great friend to have. Other than that, my husband gets to listen to me complain, but he wouldn’t know how to help me other than that.

      4 months ago Log in to Reply
    14. Ernie Richmann

      My wife for emotional support. I continue to educate myself on a regular basis- reading books, attending a support group, participating in webinars, online resources, and more.

      4 months ago Log in to Reply
    15. Meerkat

      It was my spouse until he passed. He was a great support! Now my daughter is there to be a wonderful support.

      4 months ago Log in to Reply
    16. rick phillips

      It’s not even close – it’s my wife

      4 months ago Log in to Reply
    17. Joan Fray

      That would be my husband of 52 years. He never gives up, always there to keep me going. We’ve traveled all over the world, been mountain climbing and scuba diving, worked together through it all. He won’t let me give up.

      3
      4 months ago Log in to Reply
    18. Drina Nicole Jewell

      Technically she is a part of the online community but I go to her usually, not often, but when I need advise or opinion. She is diabetes goals šŸ’Æ and she is solid.

      4 months ago Log in to Reply
    19. Sue Martin

      It used to be my dad, who was a doctor but he has passed away, and my Endo, who retired, so now I don’t really have anyone to turn to for support and knowledge about diabetes.

      4 months ago Log in to Reply
    20. kristina blake

      I answered online community. They all walk the walk and the liklihood that someone has faced the same issue/question I have is high. My Endo is my Rx source, that’s about it. I wish they had a CDE on staff. I have found that the depth of knowledge is greater with CDE’s and usually they either have T1D themselves, or have a family member/child with T1D. That’s about as close to “walking the walk” without actually having T1D themselves.

      4 months ago Log in to Reply
    21. cynthia jaworski

      PubMed for answers

      4 months ago Log in to Reply
    22. Janis Senungetuk

      For emotional support my spouse. For support of pump/CGM issues my CDE. The online community has also lent support. I realize my response doesn’t answer the question. T1D is all encompassing. It defies confinement to just one part of my life.

      1
      4 months ago Log in to Reply
    23. Tom Caesar

      Very tough to say one individual! Guess I’m blessed and grateful my wife, my sis, my son are all providing support whenever needed. Always found most people are rooting for me to do well in this struggle with Type 1

      4 months ago Log in to Reply
    24. Janice Bohn

      I belong to a group of T1 women and that is where I get most of my support. Online websites are also helpful in seeing the commonality of our struggles and successes

      2
      4 months ago Log in to Reply
    25. Bruce Schnitzler

      I checked my child; I called her at 3:20 am this morning to come to my house and provide assistance with a very low glucose and a resulting fall.

      4 months ago Log in to Reply
      1. Jneticdiabetic

        Hope you’re ok. ā™„ļø

        4 months ago Log in to Reply
    26. Lori Lehnen

      My mom because she is so empathetic and as a retired person, has the time, plus she has a medical background. At 1 year into my diagnosis, I think it’s been too overwhelming and scary for my husband but he’s improving and learning every day. This morning after I had a severe low, he helped where he could and asked lots of really good questions but then had to leave for work.

      4 months ago Log in to Reply
      1. Jneticdiabetic

        Those overnight/early morning scary lows are the worst! If you don’t have one yet, a CGM might help provide some advanced warning. It has helped me. Best wishes!

        1
        4 months ago Log in to Reply
    27. T1D4LongTime

      Everyday support is my husband, but the single person I would pick for support and management of my diabetes is my endo.

      4 months ago Log in to Reply
    28. Jennifer Smith

      My best friend

      4 months ago Log in to Reply
    29. Molly Jones

      I chose support to mean understanding of how to manage my blood sugars, usually with my insulin sensitivity or new products. That person would be my provider. She understands my case is complicated and often helps the most.
      (For support with life in general, it’s family and depends on my mood.)

      4 months ago Log in to Reply
    30. Patricia Dalrymple

      As usual, we are a diverse group with different answers. I am fortunate to have a spouse who is supportive and he worries but probably couldn’t help me much with a pump problem. My Endo is my go to for my life-saving scripts. I worry about living to the point where a pump is just too much and if my spouse passes before me who I will turn to. I have no children and no one else in the family with diabetes. One day at a time I guess. I do worry about the strong people out there on their own and I hope this group lends them the support they need.

      4 months ago Log in to Reply
    31. ConnieT1D62

      As a RN, CDCES I am fortunate to have several T1D female friends from my diabetes sisters community who are also licensed health care professionals as registered nurses (RN) and CDCES (Certified Diabetes Care and Education Specialists) and we serve as part of each other’s support networks. I often consult with one of them before I consult with any other healthcare professionals – especially when it comes to issues related to treatment recommendations and the ups and downs of living with T1D.

      4 months ago Log in to Reply
    32. Jneticdiabetic

      I put spouse because he provides day-to-day support, like waking me up when my CGM alarms at night.
      My mother, who also has T1D, is also someone I truly on for support. We cover each other with supplies when our orders are delayed.

      4 months ago Log in to Reply
    33. William Bennett

      Like the vast majority, I picked “spouse/partner” (spouse in my case) but it’s actually an ambiguous question. What KIND of support? We’ve been married since before I was dx’d back in 1983, and she’s been a huge support on the emotional side. But in practical terms I get vastly more support in managing the disease and the technology and the insulin from other diabetics in the DOC than I ever have from doctors and even specialists (though I like my Endo). My wife doesn’t fully understand all the ins and outs, even after all this time, because why should she? Like I have some idea what menopause is, but on a granular level, y’know, that’s her area not mine.

      4 months ago Log in to Reply
    34. Jim Cobbe

      As of now, my late wife’s niece who lives in the same town. Prior to my wife’s death, it would have been my spouse, who prevented my premature death several times.

      1
      4 months ago Log in to Reply
    35. Nicholas Argento

      I answered my wife because I could have died multiple times at night from hypoglycemia before I started CGM if not for her interventions. I wake her up far less often now with T-slim with CIQ. She offers emotional support now as well, has not had to intervene for years, but still has my back… so I feel blessed. I am getting a tattoo this weekend with 2 symbols, to commemorate her and the efforts of others, as well as technology now- guardian or protector, and a guardian angel from a pocket angel I carry with me since my mother died 8 years ago.

      2
      4 months ago Log in to Reply

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