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    • 6 hours, 17 minutes ago
      Phyllis Biederman likes your comment at
      Have you ever attended a diabetes-related conference?
      TCOYD one conference and Breakthrough T1D summits. I really enjoy in person events.
    • 6 hours, 28 minutes ago
      Phyllis Biederman likes your comment at
      Have you ever attended a diabetes-related conference?
      Many because I am a retired RN, CDE
    • 8 hours, 33 minutes ago
      ChrisW likes your comment at
      If you miss a long-acting insulin injection, what are your next steps? Please share more in the comments.
      BAAAAAAD WORDS. Definitely the next step for sure.... After that more grumbling, cursing and eventually the decision whether or not taking the long acting THIS late is smart idea. If NOT, then a slightly heavier dose the next day of the short acting insulin seems real likely
    • 8 hours, 34 minutes ago
      ChrisW likes your comment at
      If you miss a long-acting insulin injection, what are your next steps? Please share more in the comments.
      OH boy, an impossible question to answer without a lot more specific details......ie name of insulin / miss an injection completely over 24 hrs or by shorter time frame / to list a few.
    • 13 hours, 12 minutes ago
      Lawrence S. likes your comment at
      Have you ever attended a diabetes-related conference?
      While living in San Diego, I got spoiled: TCOYD is based there and their annual flagship conference occurs there. I went every year. Among my favorite break away sessions we always the ones where we as patients got to share ideas on how Endo's could better respect us as patients. All of the vendors (pharma an device) were there - great oppo0rtunity to see hands-on the devices. An added benefit to being in San Diego, Dexcom and Tandem are based there - so having face-to-face interaction with their staff was awesome. And of course, great swag! Once I moved to Portland OR, I went to an ADA conference. AS a T1D person, I was very disappointed. I had gone with the hopes of meeting my Dexcom and Tandem rep. No device companies were there. The focus of the break away sessions were are oriented to T2D. Fortunately for me, there was was an Oregon Potters Guild show at the convention center at the same time. I bought some great artwork. Since I knew Steve Edelman (TCOYD founder), I got in touch to see what I needed to do to get a TCOYD conference in Portland. I needed to have an idea of the budget so I could also work on funding support. First thing, I wanted support (not $$) from the local ADA and JDRF. Contacted them, but they never returned my calls or emails. Very disappointed I couldn't pull it off.
    • 13 hours, 14 minutes ago
      Lawrence S. likes your comment at
      Have you ever attended a diabetes-related conference?
      Literal poverty prevents attending such conferences. I must survive, therefore to do so the job(s) require all that I have which remains. I would likely enjoy such conference(s), ALWAYS go for the "small" tables FIRST, their survival depends on it...
    • 14 hours, 39 minutes ago
      Lenora Ventura likes your comment at
      Have you ever attended a diabetes-related conference?
      Yes, TCOYD and maybe an ADA conference. The second conference I went to in order to check out tech. Both were in the 90s.
    • 14 hours, 43 minutes ago
      Lenora Ventura likes your comment at
      Have you ever attended a diabetes-related conference?
      While living in San Diego, I got spoiled: TCOYD is based there and their annual flagship conference occurs there. I went every year. Among my favorite break away sessions we always the ones where we as patients got to share ideas on how Endo's could better respect us as patients. All of the vendors (pharma an device) were there - great oppo0rtunity to see hands-on the devices. An added benefit to being in San Diego, Dexcom and Tandem are based there - so having face-to-face interaction with their staff was awesome. And of course, great swag! Once I moved to Portland OR, I went to an ADA conference. AS a T1D person, I was very disappointed. I had gone with the hopes of meeting my Dexcom and Tandem rep. No device companies were there. The focus of the break away sessions were are oriented to T2D. Fortunately for me, there was was an Oregon Potters Guild show at the convention center at the same time. I bought some great artwork. Since I knew Steve Edelman (TCOYD founder), I got in touch to see what I needed to do to get a TCOYD conference in Portland. I needed to have an idea of the budget so I could also work on funding support. First thing, I wanted support (not $$) from the local ADA and JDRF. Contacted them, but they never returned my calls or emails. Very disappointed I couldn't pull it off.
    • 14 hours, 53 minutes ago
      Kathy Hanavan likes your comment at
      Have you ever attended a diabetes-related conference?
      Before retiring I would go to our local teaching hospital/ADA conferences. They were held yearly and were a great way getting my CE's.
    • 1 day, 1 hour ago
      kilupx likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      Other: I was not diagnosed with T1D at a young age.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      Before you chose an insulin pump, did you do a “saline trial” (a pump filled with saline instead of insulin)?
      The word "chose" is past tense. In the present tense, "no." In the past tense, the ancient of days 1996, the answer was "yes." They even hospitalized you for 2 days. I was and am very healthy and horrified the medical staff when I walked up and down 9 flights of stairs to get something. C'est la vie 🫠
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      I felt my lows when I was younger. Now after 45+ years with type 1 I feel a bit of “blurry brain function” when below 50. Thankful for CGM alerts!
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      I was diagnosed at age 29. Is that considered "young"?
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      Yes 74 years ago. Yes today intensely. I am one of the small percentage of folks who, instead of experiencing hypoglycemia unawareness, feels it with even more almost acute intensity today. I guess sometime the nerves go the other direction?!? 🐦‍🔥
    • 1 day, 15 hours ago
      Trina Blake likes your comment at
      If you’re on an insulin pump, what is your glucose target range?
      The "target" is set for 100 (the lowest option with Medtronic), my alarms are 70-130. With the algorithm it's interesting with a basal that rises and falls (and the "auto-bolus") according to levels and dosing, thus my alarms (down to 2% lows this way). But... There's another setting offering different target range, I have it set 70-90 for now. Only been a few weeks so interesting to see how it goes.
    • 1 day, 15 hours ago
      Trina Blake likes your comment at
      If you’re on an insulin pump, what is your glucose target range?
      On my Omnipod, both the high and the low are set at 110, the lowest it will allow. My preferred target rang is 70 to 120.
    • 1 day, 15 hours ago
      Janis Senungetuk likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      Diagnosed in 1951 when I was 6 years old. I would feel terrible when glucose went low, but did not know what was wrong.
    • 1 day, 16 hours ago
      Kristi Warmecke likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      Missing answer is “I felt them early in, but not it can be hard at times to physically see a low.”
    • 1 day, 17 hours ago
      Steven Gill likes your comment at
      If you’re on an insulin pump, what is your glucose target range?
      To me... (a1C has been as low as 5.2, now near 6.0 with a lot less lows). Discuss with your doc goals, read the DCCT trials (determined "multiple injections" were more beneficial than 1 or 2 shots a day (mixed). Than up to your own confidence with insulin: -how your body reacts (after dosed I notice in 30-35 minutes) it's different for everyone -confidence with understanding the glycemic scale for food (some reach the blood stream quicker, some slower) -your health-as I grow up may not hear a low alarm as quick, nor be able to react as well -and tools... I'm confident with my CGM, alarms, understanding my insulin pump A tighter or lower target can lower a1C, wasn't worth my lows. But an a1C a little closer to non-diabetic can offer a little more prevention against the damage from diabetes. We're doing this to get as old a we can and be as healthy as we can (not necessarily a brag about numbers)---read a definition of heath is to be as far from death as possible. I think that changes...
    • 1 day, 18 hours ago
      atr likes your comment at
      If you’re on an insulin pump, what is your glucose target range?
      110, which is as low as omnipod 5 allows. If I could change it, it would be 90-100.
    • 1 day, 19 hours ago
      Phyllis Biederman likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      In 1973 when I was diagnosed the hospital policy was to force a low so you knew what they felt like. Around 2000 I became severely hypo unaware.
    • 1 day, 19 hours ago
      Phyllis Biederman likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      Initially, I felt lows long before they became problematic. This diminished gradually over time. Now, after 51 years, I feel nothing until BG drops to critical levels -50. Exception is when BG drops dramatically over a very short period of time.
    • 1 day, 20 hours ago
      Edward Geary likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      Yes 74 years ago. Yes today intensely. I am one of the small percentage of folks who, instead of experiencing hypoglycemia unawareness, feels it with even more almost acute intensity today. I guess sometime the nerves go the other direction?!? 🐦‍🔥
    • 2 days, 12 hours ago
      kilupx likes your comment at
      If you’re on an insulin pump, what is your glucose target range?
      My alarm range is 70 - 180.
    • 2 days, 12 hours ago
      Anita Stokar likes your comment at
      If you’re on an insulin pump, what is your glucose target range?
      The whole "target" question is a mess. I think most of us here (T1D people who are proactive etc) define "target" as where we want to be after a meal or correction bolus has done it's job. Pump mfr's (and many Endo's) define "target" like they define an A1C goal: averaging 110 over time. Lots of "discussions" (notice the quotes) with my Endo about my targets (I don't accept the "standard goal" of 70-180, I prefer aiming for 70-140). So so answer today's question, my alert ranges are 70 and 120 for high (I correct if I have no IOB, but may have food on board). My target bg (post bolus) is 80-90.
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    If you wear a CGM, and share your data with your support team, have you ever shut off the sharing aspect when your numbers go out of range? 

    Home > LC Polls > If you wear a CGM, and share your data with your support team, have you ever shut off the sharing aspect when your numbers go out of range? 
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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    25 Comments

    1. Britni

      My values aren’t shared live. They get uploaded when I go in for my appointments. I don’t think I could hide when my numbers go out of range even if I wanted to.

      1
      3 years ago Log in to Reply
      1. Blormph

        I never share live either. I upload them

        2
        3 years ago Log in to Reply
    2. Joan McGinnis

      if you want help getting to your goal, why hide them
      if doctors dont see reality of living with diabetes as a challenge, they neds their wisdom and compassion, they won’t practice in endocrinology

      2
      3 years ago Log in to Reply
    3. TomH

      The purpose of sharing is to allow someone to help if I get in trouble and don’t realize it. If the “helper” is just being “judge” they wouldn’t be a helper for long!

      2
      3 years ago Log in to Reply
    4. Janice Bohn

      That would seem counter productive. How would my Drs team have the data they need to help make good decisions

      3
      3 years ago Log in to Reply
    5. Patricia Kilwein

      Why would you play games with your life like that?

      2
      3 years ago Log in to Reply
    6. Mary Dexter

      My endocrinologist can access my numbers through Clarity. I shared with my husband, but he wanted whatever caused the alarms to be fixed immediately, so for both our sanities, I stopped sharing with him.

      2
      3 years ago Log in to Reply
    7. Jeanne McMillan-Olson

      I don’t share with anyone, but I upload my numbers etc from my pump before I see my endo.

      1
      3 years ago Log in to Reply
    8. Lawrence S.

      No I do not “hide” my numbers from my Endocrinologist. It makes no sense to be dishonest. If I want help from my doctors, they need to know what is going on. Sending false information only hurts me.

      3
      3 years ago Log in to Reply
    9. Janis Senungetuk

      The only people who have any interest in my numbers are health care providers. I’m paying for their advise on managing those numbers and share that data only with them.

      2
      3 years ago Log in to Reply
    10. Kathy Morison

      I always let the nurse practitioner I see every 3 months for my type 1 diabetes to see my numbers and how much insulin I take but by no means does she provide any ongoing support for me and my daily challenges with my diabetes care

      1
      3 years ago Log in to Reply
    11. Natalie Daley

      My endocrinologist will download and study them at our visit. I drive 160 miles for his highly educated help. Why would I hide the info he needs to help me?

      4
      3 years ago Log in to Reply
    12. Andrew Stewart

      My endo has access through the Tandem pump portal and also provided a Glooko account that links with my G6. The advantage of the Glooko logger is that I can add meals, exercise and notes which add the needed context to help understand the CGM numbers. Context is king.
      #BeWell

      1
      3 years ago Log in to Reply
    13. Becky Hertz

      I’m sure they don’t have someone monitoring the shared data continuously. You share data for assistance. Now, if I were to be shamed for my numbers, I’d cut them off by leaving the practice.

      1
      3 years ago Log in to Reply
    14. kristina blake

      I upload (via T-Connect, it shows Dexcom and pump data) every month. I do it for me. Since T-Connect is a “pull” system – meaning the Endo goes to the system and pulls the data down (as opposed to a “push” system where it shows up automatically every month when I upload). I don’t share my data with anyone other than the Endo practice.

      3 years ago Log in to Reply
    15. Milly Bassett

      I don’t have a support team. My husband can see my numbers but he doesn’t really look at them. I’m ok with that. My doctor will download the numbers when I see him every 3 to 4 months. My adult children does not inquire, and although sometimes I share my stories, they have no clue what the concerns are.

      3 years ago Log in to Reply
    16. lis be

      this question is a bit odd.

      2
      3 years ago Log in to Reply
    17. Henry Renn

      Why not share? Feel no shame. Most of us lifers have had periods of poor control.

      1
      3 years ago Log in to Reply
    18. Angela Naccari

      I do not share with my care team on follow but I bring my endo hard copies of info from Connect app.

      1
      3 years ago Log in to Reply
    19. mbulzomi@optonline.net

      Share is for our safety. Why would you want to stop it???

      3 years ago Log in to Reply
    20. ConnieT1D62

      I don’t share and I manage quite well without sharing my CGM data – it’s nobody’s business except mine. I only upload prior to a visit with endo provider to look at TIR and trends and discuss any changes that need to be made.

      3 years ago Log in to Reply
    21. Jeff Balbirnie

      When I used one the sharing feature was not invented yet, it did not exist!

      3 years ago Log in to Reply
    22. T1D4LongTime

      No, never. There would be no point in doing that if I want a long life.

      3 years ago Log in to Reply
    23. Maurine Bowser

      I don’t think my endo ever looks at my “shared” data except at my regular visit and that is only the 14-day report.

      3 years ago Log in to Reply
    24. Kim Murphy

      I do turn it off while I am waiting for my blood sugar to come up after eating a snack. I don’t want to wake him up.

      3 years ago Log in to Reply

    If you wear a CGM, and share your data with your support team, have you ever shut off the sharing aspect when your numbers go out of range?  Cancel reply

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