If you wear a CGM, and share your data with your support team, have you ever shut off the sharing aspect when your numbers go out of range?

Activity
- 44 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 44 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 44 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 44 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 44 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 44 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 44 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 44 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 44 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 44 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 44 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 44 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 44 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 44 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 44 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 44 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 44 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 44 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 44 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 49 minutes ago
  
  Janis Senungetuk likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
- 50 minutes ago
  
  Janis Senungetuk likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Just did what makes sense to me- eating less carbs, watching blood glucose more often and taking corrections as needed. Also some level of activity if possible.
- 50 minutes ago
  
  Janis Senungetuk likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Been type 1 since the early 80's learned self management as therapies changed. Unless hospitalized(which I never am anymore) I decide how much insulin to put in my body based on my on going experience with the 1000's of reasons I may need more or less of it. I do love my pump, insulin and CGM so I guess I have to tell the doctor what I do once a year. .. I just keep throwing info and facts he isn't up on till he gets a glazed over look on his face and writes my scripts. I find the most inconvenient part of diabetes is all the people that want to help but don't know much about everyday life with the disease. And NO I do not want to join a discussion group!
- 52 minutes ago
  
  Janis Senungetuk likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Many times I have needed to adjust insulin intake amount in order to cope with illness, but only rarely needed outside help. In the early 1970’s I made some mistakes managing influenza. My BG went very high (no meter available for testing at home), and I ended up in the hospital then.
- 54 minutes ago
  
  Janis Senungetuk likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Except for those brand new at this, we all know the drill. We know that we need to be flexible, make adjustments, and pay attention.
- 54 minutes ago
  
  TEH likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  only time that I have been sick was when I got COVID during Jan '22. my sugars were going crazy high and I couldn't understand why but when I tested positive for COVID, in retrospect it made sense.
Clear All

If you wear a CGM, and share your data with your support team, have you ever shut off the sharing aspect when your numbers go out of range?

If you had to pick one person, who is the person you turn to most for support with your diabetes?

Samantha Robinson

25 Comments

Britni

My values aren’t shared live. They get uploaded when I go in for my appointments. I don’t think I could hide when my numbers go out of range even if I wanted to.

1

4 months ago Log in to Reply
1. Blormph
  
  I never share live either. I upload them
  
  2
  
  4 months ago Log in to Reply
Joan McGinnis

if you want help getting to your goal, why hide them
if doctors dont see reality of living with diabetes as a challenge, they neds their wisdom and compassion, they won’t practice in endocrinology

2

4 months ago Log in to Reply
TomH

The purpose of sharing is to allow someone to help if I get in trouble and don’t realize it. If the “helper” is just being “judge” they wouldn’t be a helper for long!

2

4 months ago Log in to Reply
Janice Bohn

That would seem counter productive. How would my Drs team have the data they need to help make good decisions

3

4 months ago Log in to Reply
Patricia Kilwein

Why would you play games with your life like that?

2

4 months ago Log in to Reply
Mary Dexter

My endocrinologist can access my numbers through Clarity. I shared with my husband, but he wanted whatever caused the alarms to be fixed immediately, so for both our sanities, I stopped sharing with him.

2

4 months ago Log in to Reply
Jeanne McMillan-Olson

I don’t share with anyone, but I upload my numbers etc from my pump before I see my endo.

1

4 months ago Log in to Reply
Lawrence S.

No I do not “hide” my numbers from my Endocrinologist. It makes no sense to be dishonest. If I want help from my doctors, they need to know what is going on. Sending false information only hurts me.

3

4 months ago Log in to Reply
Janis Senungetuk

The only people who have any interest in my numbers are health care providers. I’m paying for their advise on managing those numbers and share that data only with them.

2

4 months ago Log in to Reply
Kathy Morison

I always let the nurse practitioner I see every 3 months for my type 1 diabetes to see my numbers and how much insulin I take but by no means does she provide any ongoing support for me and my daily challenges with my diabetes care

1

4 months ago Log in to Reply
Natalie Daley

My endocrinologist will download and study them at our visit. I drive 160 miles for his highly educated help. Why would I hide the info he needs to help me?

4

4 months ago Log in to Reply
Andrew Stewart

My endo has access through the Tandem pump portal and also provided a Glooko account that links with my G6. The advantage of the Glooko logger is that I can add meals, exercise and notes which add the needed context to help understand the CGM numbers. Context is king.
#BeWell

1

4 months ago Log in to Reply
Becky Hertz

I’m sure they don’t have someone monitoring the shared data continuously. You share data for assistance. Now, if I were to be shamed for my numbers, I’d cut them off by leaving the practice.

1

4 months ago Log in to Reply
kristina blake

I upload (via T-Connect, it shows Dexcom and pump data) every month. I do it for me. Since T-Connect is a “pull” system – meaning the Endo goes to the system and pulls the data down (as opposed to a “push” system where it shows up automatically every month when I upload). I don’t share my data with anyone other than the Endo practice.

4 months ago Log in to Reply
Milly Bassett

I don’t have a support team. My husband can see my numbers but he doesn’t really look at them. I’m ok with that. My doctor will download the numbers when I see him every 3 to 4 months. My adult children does not inquire, and although sometimes I share my stories, they have no clue what the concerns are.

4 months ago Log in to Reply
lis be

this question is a bit odd.

2

4 months ago Log in to Reply
Henry Renn

Why not share? Feel no shame. Most of us lifers have had periods of poor control.

1

4 months ago Log in to Reply
Angela Naccari

I do not share with my care team on follow but I bring my endo hard copies of info from Connect app.

1

4 months ago Log in to Reply
mbulzomi@optonline.net

Share is for our safety. Why would you want to stop it???

4 months ago Log in to Reply
ConnieT1D62

I don’t share and I manage quite well without sharing my CGM data – it’s nobody’s business except mine. I only upload prior to a visit with endo provider to look at TIR and trends and discuss any changes that need to be made.

4 months ago Log in to Reply
Jeff Balbirnie

When I used one the sharing feature was not invented yet, it did not exist!

4 months ago Log in to Reply
T1D4LongTime

No, never. There would be no point in doing that if I want a long life.

3 months ago Log in to Reply
Maurine Bowser

I don’t think my endo ever looks at my “shared” data except at my regular visit and that is only the 14-day report.

3 months ago Log in to Reply
Kim Murphy

I do turn it off while I am waiting for my blood sugar to come up after eating a snack. I don’t want to wake him up.

3 months ago Log in to Reply