25 Comments
If you wear a CGM, and share your data with your support team, have you ever shut off the sharing aspect when your numbers go out of range?
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My values aren’t shared live. They get uploaded when I go in for my appointments. I don’t think I could hide when my numbers go out of range even if I wanted to.
I never share live either. I upload them
if you want help getting to your goal, why hide them
if doctors dont see reality of living with diabetes as a challenge, they neds their wisdom and compassion, they won’t practice in endocrinology
The purpose of sharing is to allow someone to help if I get in trouble and don’t realize it. If the “helper” is just being “judge” they wouldn’t be a helper for long!
That would seem counter productive. How would my Drs team have the data they need to help make good decisions
Why would you play games with your life like that?
My endocrinologist can access my numbers through Clarity. I shared with my husband, but he wanted whatever caused the alarms to be fixed immediately, so for both our sanities, I stopped sharing with him.
I don’t share with anyone, but I upload my numbers etc from my pump before I see my endo.
No I do not “hide” my numbers from my Endocrinologist. It makes no sense to be dishonest. If I want help from my doctors, they need to know what is going on. Sending false information only hurts me.
The only people who have any interest in my numbers are health care providers. I’m paying for their advise on managing those numbers and share that data only with them.
I always let the nurse practitioner I see every 3 months for my type 1 diabetes to see my numbers and how much insulin I take but by no means does she provide any ongoing support for me and my daily challenges with my diabetes care
My endocrinologist will download and study them at our visit. I drive 160 miles for his highly educated help. Why would I hide the info he needs to help me?
My endo has access through the Tandem pump portal and also provided a Glooko account that links with my G6. The advantage of the Glooko logger is that I can add meals, exercise and notes which add the needed context to help understand the CGM numbers. Context is king.
#BeWell
I’m sure they don’t have someone monitoring the shared data continuously. You share data for assistance. Now, if I were to be shamed for my numbers, I’d cut them off by leaving the practice.
I upload (via T-Connect, it shows Dexcom and pump data) every month. I do it for me. Since T-Connect is a “pull” system – meaning the Endo goes to the system and pulls the data down (as opposed to a “push” system where it shows up automatically every month when I upload). I don’t share my data with anyone other than the Endo practice.
I don’t have a support team. My husband can see my numbers but he doesn’t really look at them. I’m ok with that. My doctor will download the numbers when I see him every 3 to 4 months. My adult children does not inquire, and although sometimes I share my stories, they have no clue what the concerns are.
this question is a bit odd.
Why not share? Feel no shame. Most of us lifers have had periods of poor control.
I do not share with my care team on follow but I bring my endo hard copies of info from Connect app.
Share is for our safety. Why would you want to stop it???
I don’t share and I manage quite well without sharing my CGM data – it’s nobody’s business except mine. I only upload prior to a visit with endo provider to look at TIR and trends and discuss any changes that need to be made.
When I used one the sharing feature was not invented yet, it did not exist!
No, never. There would be no point in doing that if I want a long life.
I don’t think my endo ever looks at my “shared” data except at my regular visit and that is only the 14-day report.
I do turn it off while I am waiting for my blood sugar to come up after eating a snack. I don’t want to wake him up.