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    • 3 hours, 34 minutes ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I agree with Molly. I’m moderately concerned because if I were extremely or very concerned, I just wouldn’t participate. I’m concerned for others who are brave enough to risk their own health for the sake of research and helping others.
    • 3 hours, 34 minutes ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 7 hours, 32 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 7 hours, 32 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 7 hours, 32 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 7 hours, 32 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 7 hours, 47 minutes ago
      Natalie Daley likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 8 hours, 8 minutes ago
      ChrisW likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      Well the first person in this trial has been insulin-free for over 1-1/2 years and has been feeling fine. All 12 participants in this trial so far are off of insulin. The trial is now going to include people with t-1 diabetes and some kidney damage as this immunosuppressant (tegoprubart) has shown no toxic effects to islet cells or to kidneys. I will keep watching as the trial progresses. This question only asked if we had heard about it. I didn't see the question as an advertisement.
    • 8 hours, 14 minutes ago
      ChrisW likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 8 hours, 14 minutes ago
      Brian Vodehnal likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Concern is relative to outcome. Getting a five year reprieve on the daily management of T1D might be worth it.
    • 9 hours, 12 minutes ago
      Derek West likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 10 hours, 1 minute ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 10 hours, 1 minute ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Moderately as this is for others. I don't imagine being offered this myself.
    • 10 hours, 1 minute ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 10 hours, 2 minutes ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 10 hours, 5 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 10 hours, 5 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 10 hours, 5 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 10 hours, 7 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I just love your comments. 😃
    • 10 hours, 7 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 10 hours, 8 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 10 hours, 13 minutes ago
      Gary R. likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 10 hours, 13 minutes ago
      MT likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 10 hours, 30 minutes ago
      Meerkat likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 10 hours, 31 minutes ago
      Meerkat likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
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    Which of the following oral health issues have you experienced (diagnosed by a healthcare provider) since having T1D? Please select all that apply.

    Home > LC Polls > Which of the following oral health issues have you experienced (diagnosed by a healthcare provider) since having T1D? Please select all that apply.
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    Have you participated in a diabetes-related advocacy effort (I.e., calling your elected officials, meeting with representatives, etc.)?  If you have, share your experience in the comments.

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    If you had to pick one person, who is the person you turn to most for support with your diabetes?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    36 Comments

    1. Kristen Clifford

      I don’t remember the exact circumstances that led to it, but in 2014, I had a root canal. That’s probably the worst dental issue I’ve had since my T1D diagnosis in 2008.

      4 years ago Log in to Reply
    2. Nevin Bowman

      Trigger finger, frozen shoulder

      3
      4 years ago Log in to Reply
    3. Brent Perris

      Only oral problems I’ve had are a multitude of cavities

      4 years ago Log in to Reply
    4. Bob Durstenfeld

      I experienced receding gums and had to have a gum graft. It was one of the most barbaric medical expenses of my life.

      2
      4 years ago Log in to Reply
      1. mojoseje

        I think I’m going to need this. Is it truly horrible? I think I’d rather have the teeth pulled.

        4 years ago Log in to Reply
    5. Joan McGinnis

      two root canals after 30 yrs with T1D, but have always
      had cavities in my non- diabetic child life (no Floride in water then) After 38 yrs, osteoporosis which may contribute to having to have a couple teeth pulled which already had crowns for years.

      2
      4 years ago Log in to Reply
    6. Ken Raiche

      Not to sure if these issues were brought on due to my T1D. In the last 40 years 2 root canals, receding gums (brushing to hard or not using a soft bristle tooth brush), arthritis and recently misdiagnosed strept throat which was actually oral thrush (what a pain).

      1
      4 years ago Log in to Reply
    7. Mary Thrall

      Oral lichen planus – who ever heard of that?

      4 years ago Log in to Reply
    8. Eva

      I have had 2 root canals. One of which did not take and the molar needed to be pulled out. I have had a gum graft to correct receding gums from brushing to hard.

      1
      4 years ago Log in to Reply
    9. Rosemary Staszko

      I was diagnosed with oral lichen planus. Don’t know if it’s related to the diabetes or not but it’s an autoimmune disease. Anyone else out there have this condition too?

      4 years ago Log in to Reply
      1. AnitaS

        Mary Thrall, in a comment below, stated the same problem.

        4 years ago Log in to Reply
    10. mojoseje

      I have had good luck except for receding gums.

      2
      4 years ago Log in to Reply
    11. Edward Geary

      Inflamed gums

      1
      4 years ago Log in to Reply
    12. AnitaS

      My dentist never said I had a dry mouth, but he always reminded me to drink water.

      4 years ago Log in to Reply
    13. Tom Caesar

      Maybe receding gums is all?

      2
      4 years ago Log in to Reply
    14. Janis Senungetuk

      Of the issues listed: Oral thrush and Gingivitis. Over the years I’ve had 4 root canals and am now ‘recovering’ from recent periodontal deep cleaning to evaluate what can be saved.

      4 years ago Log in to Reply
    15. Joan Fray

      Just dry mouth. For about a year. But it went away. Who knows why…………..!

      4 years ago Log in to Reply
    16. HMW

      Gingival recession (from grinding) which required a graft.

      1
      4 years ago Log in to Reply
      1. KarenM6

        Hi HMW –
        I didn’t know gingival recession could be caused by grinding. This is definitely something for me to keep in mind!

        1
        4 years ago Log in to Reply
      2. KarenM6

        Oh! I forgot to say, my teeth have also shifted a lot because of the grinding.
        I wish I hadn’t _just_ seen my dentist so that I could ask him about this!!

        4 years ago Log in to Reply
      3. HMW

        @KarenM6 – it is not the only cause, of course, but my dentist immediately (when I first started seeing him) made me a mouth guard to wear at night and it has reduced my gingival recession progression significantly.

        3
        4 years ago Log in to Reply
      4. KarenM6

        Thank you, HMW!

        4 years ago Log in to Reply
    17. Donna Condi

      I have been diagnosed twice for receding gums.

      4 years ago Log in to Reply
    18. Mary Thomson

      Oral Lichen Planus

      4 years ago Log in to Reply
    19. KarenM6

      Recession
      Bruxism – in which I broke teeth and caused 4 or so crowns. Just had the grinding tested and the dentist said it was one of the worst she’d seen.
      I also did some laser therapy in my mouth for sleep apnea – the resulting tightening of the tissues should help open my airways.

      4 years ago Log in to Reply
    20. Becky Hertz

      Thrush a couple of times. Also pockets requiring occasional deep cleaning.

      4 years ago Log in to Reply
    21. Carol Meares

      Dry mouth and gum recession due to dry mouth

      1
      4 years ago Log in to Reply
    22. Ms Cris

      Once the dental issues started occuring, in the couple years after my T1D diagnosis, my ophthalmologist noted extremely dry eyes ..turned out I also have UCTD (undifferentiated connective tissue disease) leaning toward Sjogrens Syndrome. I now get 3 cleanings per year, plus floss/waterfloss 3X/day, brush 2X/day, rinse with biotene 4X/day, and chug water. I finally celebrated 1 full year of no gum or decay issues! (Dx T 1D 6 years ago, UCTD/SS 3 years ago)

      3
      4 years ago Log in to Reply
      1. Anna Kiff

        Interesting on the diagnosis – because I have no GP – I’m a lone ranger – but have the dry eyes – gum problems, etc. I was told my dry eyes has to do with ocular rosacea (which I have on my face – the joys of being from the British Isles / Danish background ). I’ll have to look into the UTCD condition you were diagnosed with. Doing my own research on health (thank goodness for the internet – has helped me self diagnose myself – and even helped GP’s learn about a new health condition they never heard of – and then referred me to a specialist).

        4 years ago Log in to Reply
      2. Ms Cris

        Anna, I have Rosacea, combo of types 1 and 2, since my teens (but I’m Portuguese). They now know it’s autoimmune, and those with rosacea are 3X more likely to develop T1D.
        Look into Sjogrens, especially if you have joint pain, with an ANA and then SSa and SSb blood tests. Get a tear test at the opthalmologist. Those are easiest tests as indicators for SS or UCTD. Good luck!

        1
        4 years ago Log in to Reply
    23. Anna Kiff

      Receding gums (had one gum repaired but then lost dental coverage – so other is semi-nakid ). It’s in my family genes to begin with – but diabetes doesn’t help of course. Even with paying out of pocket due to no insurance – I encourage everyone to get their teeth cleaned/examined at least once a year – it might save your life – as dental health is associated with heart health if you didn’t know (I work in the area of diabetes education so have learned so much researching for many companies that hire me to research for their authors who need credible links to their stories they share with you). Yeah – I’m the little behind the scenes person that makes big name writers look brilliant 🙂 Smile – you’re on Candid Camera !

      1
      4 years ago Log in to Reply
      1. Wanacure

        Anna, thanks. I agree. I’ve heard and read dental disease and heart problems are correlated. I also get yearly eye exams.

        4 years ago Log in to Reply
    24. Molly Jones

      The one I chose was dry mouth.
      The others I didn’t chose were oral ulcers because I had them way before dx of T1D, along with
      erosion of tooth enamel and receding gums.
      I have had problems with digestion my entire life and assume this has hurt my mouth in different ways. Regurgitation has always occurred if I eat too quickly or too much. My father, with no autoimmune conditions said he had similar digestion to a cow. I didn’t realize it was abnormal as a child.

      4 years ago Log in to Reply
    25. ConnieT1D62

      Was dx’d with T1D at age 8. Had to have a set of molars pulled at age 12 to create alignment space for crooked teeth and then 4 years of braces to guide teeth into place. A couple of root canals as a young adult, veneers and crown work done as middle aged and older adult, and periods of receding gums over the years.

      4 years ago Log in to Reply
    26. Wanacure

      I floss and brush at least 2x per day & now see dentist every six months for cleaning. Yes: dry mouth, a root canal, couple of crowns, receding gums.. Yes to bruxism, but could not get used to mouth guard. I’ll try it again. For dry mouth, I tried sugarless gum.

      4 years ago Log in to Reply
    27. Mary Ann Sayers

      I’ve been prone to abscesses in my gums, do you believe it! DDS was suprised that no root cause was apparent. I lost teeth because of it.

      4 years ago Log in to Reply

    Which of the following oral health issues have you experienced (diagnosed by a healthcare provider) since having T1D? Please select all that apply. Cancel reply

    You must be logged in to post a comment.




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