Subscribe Now

* You will receive the latest news and updates on your favorite celebrities!

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 19 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 19 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 19 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 19 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 19 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 19 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 19 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 19 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 19 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 19 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 19 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 19 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 19 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 19 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 19 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 19 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 19 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 19 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 19 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 24 minutes ago
      Janis Senungetuk likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 25 minutes ago
      Janis Senungetuk likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Just did what makes sense to me- eating less carbs, watching blood glucose more often and taking corrections as needed. Also some level of activity if possible.
    • 25 minutes ago
      Janis Senungetuk likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Been type 1 since the early 80's learned self management as therapies changed. Unless hospitalized(which I never am anymore) I decide how much insulin to put in my body based on my on going experience with the 1000's of reasons I may need more or less of it. I do love my pump, insulin and CGM so I guess I have to tell the doctor what I do once a year. .. I just keep throwing info and facts he isn't up on till he gets a glazed over look on his face and writes my scripts. I find the most inconvenient part of diabetes is all the people that want to help but don't know much about everyday life with the disease. And NO I do not want to join a discussion group!
    • 27 minutes ago
      Janis Senungetuk likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Many times I have needed to adjust insulin intake amount in order to cope with illness, but only rarely needed outside help. In the early 1970’s I made some mistakes managing influenza. My BG went very high (no meter available for testing at home), and I ended up in the hospital then.
    • 28 minutes ago
      Janis Senungetuk likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Except for those brand new at this, we all know the drill. We know that we need to be flexible, make adjustments, and pay attention.
    • 29 minutes ago
      TEH likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      only time that I have been sick was when I got COVID during Jan '22. my sugars were going crazy high and I couldn't understand why but when I tested positive for COVID, in retrospect it made sense.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • Insights
      • Submit a Question
      • Donate
    • Quality Improvement
      • Collaborative
      • Leadership
      • Committees
      • Clinics
      • Portal
      • HEAL
        • Heal Advisors
      • Join Us
    • Registry
      • Recruit for the Registry
    • Research
      • Publications
      • COVID-19 Research
      • Work with us
    • Partners
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
    • Join / Login
    • Donate

    How would you describe the amount of scar tissue you have because of T1D management? Please feel free to share more about your experiences in the comments!

    Home > LC Polls > How would you describe the amount of scar tissue you have because of T1D management? Please feel free to share more about your experiences in the comments!
    Previous

    Which of the pharmacies below have you used within the last 6 months?  Check all that apply

    Next

    If you follow a particular diet for your food choices (e.g., vegetarian, vegan, Paleo, Mediterranean, gluten-free), which of your healthcare providers (if any) did you talk to before starting it?

    Samantha Robinson

    Related Stories

    Questions of the Day

    Do You Ever Change Your Lancet? 

    Samantha Robinson, 3 hours ago 4 min read  
    Devices & Technology

    Tidepool Loop FDA Clearance: Chatting with CEO Howard Look 

    Ginger Vieira, 1 day ago 7 min read  
    Insulin

    Mark Cuban’s Cost Plus Drugs Tests New Insulin Program 

    Ginger Vieira, 2 weeks ago 4 min read  
    Devices & Technology

    Connected Insulin Delivery Devices 

    admin, 2 weeks ago 7 min read  
    Devices & Technology

    Automated Insulin Delivery Systems 

    admin, 2 weeks ago 11 min read  
    Inspiration & Advocacy

    7 Things People Say About Type 1 Diabetes That Drive Us CrazyĀ  

    Ginger Vieira, 2 weeks ago 4 min read  

    49 Comments

    1. Joan Benedetto

      We have a strict regimen that we follow for pump sites

      3 months ago Log in to Reply
      1. Joan Benedetto

        On our son. Prior to insertion, we use IVPREP wipes. To remove we use Unisolve to dissolve all adhesive residue, then wipe away with a piece of gauze. We apply Aquaphor liberally.
        For overtape, we use IV3000 as it allows the skin to breathe. Our son was diagnosed at 18mos old nine years ago, and his skin looks wonderful. I think that the steel insets have helped significantly with keeping scar tissue at a bare minimum.

        3 months ago Log in to Reply
    2. Janice Bohn

      My fingers are mostly healed dice using Dexcom
      Done small issues on abdomen and thighs from injections and pump sites over the last 30 yests

      1
      3 months ago Log in to Reply
      1. Janice Bohn

        Years

        3 months ago Log in to Reply
    3. Dennis Dacey

      “Mild”, although I considered answering
      ‘very minimal” under the circumstances considering the horse-nails, about the size of 3d finish nails called needles we used over and over for injecting insulin. Twenty-four (24) gage, 1 1’4 inch long.

      3 months ago Log in to Reply
      1. George Lovelace

        Started with 26 Gauge injections in 1964 so scarring from 58 years is minimal

        3 months ago Log in to Reply
    4. Judith Marged

      I scar very easily, so the multi-injection regime created considerable amount of scarring beneath the surface of the skin. This created problems with the absorption of the insulin. My A1C was rising to ‘uncontrollable’ levels. I switched to the inhalable Afrezza, had much better control, and my A1C has not been above 6.9. Now I wish I could find a way to take my basal insulin without injecting, which would allow for even better control.

      3 months ago Log in to Reply
    5. Mary Dexter

      Scars may be emotional, psychological, as well as physical.

      3
      3 months ago Log in to Reply
    6. Andrew Aronoff

      I’ve been a T1D for over 50 years. I started using a Minimed pump in 2000. Every 5 to 10 years, I took pump vacations of 6 months to a year after the onset of erratic insulin absorption, which I attribute to internal scarring of my abdomen. Some boluses would simply have no effect while pen injections worked normally. The last pump vacation lasted a year and ended in February 2022. After resuming use of Quick-Set catheters, insulin absorption was still erratic. I abandoned the Minimed pump and have now started using the Omnipod, which allows me to use sites on my arms, legs, buttocks and back. I avoid my “scarred” abdomen and insulin absorption has improved.

      3 months ago Log in to Reply
    7. Richard Vaughn

      I used injections for 62 years and now I have used a pump for 15 years. While using injections I favored my upper abdomen. The flesh eventually became very tough and scar tissue caused poor absorption of the insulin. That part of my body is still that way now. My lower ab and my legs are much better, but I occasionally have poor absorption and I have to change sites.

      2
      3 months ago Log in to Reply
    8. Barbara Bubar

      Really hard to tell unless a pump site takes more insulin than I expect….this, after 72 years with diabetes.

      3 months ago Log in to Reply
      1. Randell Cole

        Already answered this

        3 months ago Log in to Reply
    9. Randell Cole

      I don’t feel I have any scar tissue and I check a lot, only use fingers.

      3 months ago Log in to Reply
    10. Lawrence S.

      I have small lumps on my abdomen (4, 2 on left, 2 on right). I have lumps on my sides, and on my legs. There is some scar mild scar tissue on my fingers. Luckily, I used 33 guage lancets on my fingers. I don’t see any scars on my upper buttocks. My scars are not highly noticeable, just denser lumps. I try to avoid those spots when I’m inserting canulas and sensors. Sometimes it’s difficult finding spots to insert my devices.

      1
      3 months ago Log in to Reply
    11. Trisha Oldenkamp

      I have scar tissue on my stomach and lower back from my pump and CGM. I’m thin so I tend so only a few areas have much fat but those areas are less painful to use. Cushioned. Those area are building some scar tissue.

      2
      3 months ago Log in to Reply
    12. Bob Durstenfeld

      I have moderate scar tissue on my abdomen and legs, I also have significant atrophy on my arms and legs from old U40 insulin. I can still find usable areas and am much more careful about site rotation. All of this, the result of 66 years of T1D.

      1
      3 months ago Log in to Reply
    13. Ahh Life

      Picasso’s Guernica 🤢

      2
      3 months ago Log in to Reply
    14. David & Kaleo of Team Nani

      I track and rotate cgm (12 sites) and pump infusion (38 sites) on abs and quads and side, and I note when sites seem to not work, yet still have some concerns about scarring interfering with cgm accuracy and insulin absorption.
      I also sometimes have issues with the sites reacting to exercise/dislodging at cgm and infusion sites that twist a bit during some workouts (e.g., an twists or quads flex).

      Frustrating, but try to roll with it and make changes/waste infusion or cgm (kinda expensive) quickly when I notice a problem.

      T1d keeps you on your toes. Maybe ask a ? about how our toes are holding out…you know from always needing to be on our toes : (

      3 months ago Log in to Reply
    15. Jneticdiabetic

      I ranked my scar tissue as “moderate.” I’ve had T1D for 27y. My abdomen hasn’t worked well since my two pregnancies. For the past 12+ years I’ve used the upper buttocks for pump and CGM sites. Starting to to note a few resistant spots there now too.
      I use the Silhouette (Medtronic) or Vari-Soft (Tandem) infusion sets that go in at an angle. The sets that go straight in almost always kink and fail on me.
      Anyone ever hit a spot and have the needle not go in and instead the plastic tubing bunches around the needle (like your scrunching down a long sock)?

      3 months ago Log in to Reply
    16. cynthia jaworski

      My fingertips are good since the cgm days began. After my first few years with insulin (1962) I developed hollowed out regions on my thighs, and lumps on other parts f my thighs. These have mostly disappeared, but at this point in my life, I am no longer embarrassed by such things.

      1
      3 months ago Log in to Reply
    17. Henry Renn

      Significant. 66+ years of T1. 18 years inserting cannulas for pumps. 9 years inserting CGMs. Before that many years of 5 injections per day. In early days was taking Pork insulin. Caused significant pitting in arms & buttocks. Can’t even calculate injections taken with stainless steel needles which were sterilized between uses. I was in college when I began using disposable needles then whole hyperdermics.

      2
      3 months ago Log in to Reply
      1. Lee Tincher

        I salute your diligence Henry. I also have longtime T1D, 53 years. Many challenges but we are survivors!!

        3
        3 months ago Log in to Reply
      2. Melinda Lipe

        I liked the first reply that used the word Survivors. That is a good description of our long term with this condition!

        3 months ago Log in to Reply
      3. Sherrie Johnson

        I remember those old metal needles having to sterilize them before school with the glass syringes oh my gosh it’s come along way thank goodness it’s catching up

        1
        3 months ago Log in to Reply
    18. Dave Akers

      #inhaledInsulin for the win! No scar tissuešŸ˜Ž

      2
      3 months ago Log in to Reply
    19. Janis Senungetuk

      I have dense scar tissue on both thighs and some areas of my lower abdomen from over a half century of MDI. Several fingers on both hands are also scarred from multiple daily bg testing. I try to avoid using the scarred lower abdomen areas for pump insertion sites, but it’s definitely becoming more difficult as arthritis in my shoulders, neck and lower spine now limits my ability to twist and reach. I’ve kept my upper arms for CGM sites and fortunately, that’s not as issue.

      1
      3 months ago Log in to Reply
    20. John Henninger

      How do you know for sure how much scaring you have? I have sites that don’t seem to work as well as before. But to know specifically would be very interesting as I have been a T1D for over 40 years. Now using short needles. Does it help? My A1C is pretty historically level. Interesting question. Look forward to reading comments.

      3
      3 months ago Log in to Reply
    21. Carrolyn Barloco

      Most abdominal areas due to pregnancy stretch marks occasionally interfere with CGM sensors or pump infusion sets.

      3 months ago Log in to Reply
    22. T1D4LongTime

      I chose “Moderate”, but it’s really between moderate and signficant. T1D 56 years, MDI for 30+ years. Scar tissue may have been worse under the beef and pork insulins, but early adulthood and increasing (5) shots/day caused scarring on hips and stomach. Scar tissue does not seem to be considered in insulin pump infusion site design. I have to tape down the tubing so it stays at 90 degree angle from the set when near a scarred site.

      2
      3 months ago Log in to Reply
    23. Ms Cris

      I’m only 6 years in as T1D, and pumping for 5. I rotate religiously. But my sites need to be changed every 1-2 days, so I figure I may scar easily.

      For finger sticks to calibrate my CGM, I use the distal portion of my fingers, just below the nail. Heals quickly, no calluses.

      1
      3 months ago Log in to Reply
    24. Daniel Bestvater

      After 45 years of MDI & pumping I definitely have some degree of scar tissue. As a pharmacist-CDE I often saw patients with scar tissue. I believe this is the seldom spoken of bogeyman of T1D. At the best of times insulin absorption is erratic.

      1
      3 months ago Log in to Reply
    25. Lee Tincher

      As a T1d fir over 53 years I have significant scaring. Many years on animal insulin, MDI, then pump therapy, then added CGM has had its toll on my tissues. Even with careful rotation of sites there is only so much territory to be had. Have had some surgically repaired in the abdomen. Diabetes poses daily challenges.

      3
      3 months ago Log in to Reply
      1. Sherrie Johnson

        Ditto for me 61 years

        3 months ago Log in to Reply
    26. William Bennett

      T1 for 40 yrs. Early on, Dr showed me pix of hypertrophy, which by 1983 they’d learned was a problem, so I always rotated sites religiously right from the start.

      But pumping makes that more of a problem. Canulas are thicker than needles, it’s easy to get a bad one, and with a tubed pump there just aren’t as many locations as there are for injections. So I put “moderate” because I definitely have spots where I hit a gusher and got subcutaneous swelling and scarring. Steel insets are an alternative, but I’ve tried them and they have their problems too. I’m not in dire straights yet but after 12 yrs pumping it’s a growing problem.

      1
      3 months ago Log in to Reply
    27. RegMunro

      My finger tips have recovered nicely since going CGM
      My stomach fat layer doesn’t appear to develop scars, so far anyway. Been injecting since 1965

      3
      3 months ago Log in to Reply
    28. KarenM6

      I have lipoatrophy all over… so, instead of “bumping”, I dent… and the dents are large.
      Pumping has been a significant contributor to my skin issues.

      3 months ago Log in to Reply
    29. Melinda Lipe

      I’m not sure – I have lipe hypertrophy over frequently used sites on upper arms and thighs. I try to use those for CGM, and save abdomen for insulin infusion. I can’t really tell anymore (55 years in).

      2
      3 months ago Log in to Reply
    30. Joan McGinnis

      i have lipodystrophy rom years ago takin different insulins like NPH and regular prior to pumps and CGMs. not sure if any has occurred since then but I do have peas that absorb better on my abdomen and I am aware and use them most if possible Use a sacral belt for back pain sometimes and that limits where i can’t a site on my abdomen also. but overall I am okay finding spots I note that needle infusion sites are better but I bleed easy so I prefer infusion sites that are cannula.

      3 months ago Log in to Reply
    31. Amanda Barras

      I choose moderate but it leans towards significant. I have to find and use atypical sites often to get absorption. Majority of my stomach I can’t use at all because I run high. Legs are also off limits due to muscle movement causes red and irritated sites.

      3 months ago Log in to Reply
    32. Mark Schweim

      The ONLY part of my body I’m aware of having any scar tissue are almost all my fingertips, including the tips of my thumbs.

      3 months ago Log in to Reply
    33. Lynn Smith

      I don’t know how to answer this question; I chose Other. I’m not sure how to tell where the scar tissue is because I’m not sure I know what it looks like. I am only ever guessing where it is when I change sites. I have been T1D for 55 years so I know I have it. I’m just not totally sure where it is. I wish there was some special light to shine on my skin so I would know more certainly.

      1
      3 months ago Log in to Reply
    34. AnitaS

      I do have some places where the fat was eaten away but I don’t know if I have any scar tissue build-up

      3 months ago Log in to Reply
      1. Velika Peterson

        @AnitaS, same here. My daughter has a very visible indent on her thight from her Omnipod and she hasn’t used her thighs for almost a year šŸ™

        3 months ago Log in to Reply
    35. Becky Hertz

      Lots of areas with iffy absorption. Is it an absorption issue or scar tissue issue? Lost the use of the majority of my upper abdomen with a central incision for a nephrectomy.

      3 months ago Log in to Reply
    36. Molly Jones

      I have minimal scar tissue in at least two sites from only two decades of T1D: the useable side of my abdomen and my right upper thigh.
      I don’t count my fingers as they seldom come into play anymore.
      I’ve had help with the doctor finding spots for insertion of CGM and pumps and they are on a clockwise rotation.
      I’ve also been trying for some time to gain weight.

      1
      3 months ago Log in to Reply
    37. Bonnie Lundblom

      I said Other because after 35 years the only spot I have had problems with was my abdomen from lipodystrophy. Once I started pumping and not using my abdomen it took about 7 years but the tissue now seems and feels normal, works okay for my pump site but doesn’t work at all for my Dexcom CGM site. I use only my upper arms for my CGM after trying many others without any luck or accuracy!

      1
      3 months ago Log in to Reply
    38. Velika Peterson

      My daughter has lipodystrophy from her pump on her thighs (especially one of them, which has a very vissible indent). One is starting to form on her upper arm now šŸ™

      3 months ago Log in to Reply
    39. Maurine Bowser

      Not too sure if I have any scar tissue in my abdomen where my CGM and MDI’s go – I hope not. After 55 yrs of NPH, I did have dents on my thighs, but they are gone now. Good question regarding effect of insulin absorption.

      3 months ago Log in to Reply
      1. Velika Peterson

        @Maurine Bowser, I am relieved to know that your dents have disappered. My daughter has a very visible indent on her thight from her Omnipod and she hasn’t used her thighs for almost a year šŸ™

        3 months ago Log in to Reply

    How would you describe the amount of scar tissue you have because of T1D management? Please feel free to share more about your experiences in the comments! Cancel reply

    You must be logged in to post a comment.

    This site uses Akismet to reduce spam. Learn how your comment data is processed.




    11 Avenue de Lafayette
    Boston, MA 02111
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    Ā© 2022 T1D Exchange.
    All Rights Reserved.

    Ā© 2022 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    2019 Publications

    0 Stories Related

    2020 ADA

    9 Stories Related

    2020 ADCES

    0 Stories Related

    2020 ATTD

    0 Stories Related

    2020 EASD

    0 Stories Related

    2020 ISPAD

    6 Stories Related

    2020 Publications

    0 Stories Related

    2021 ADA

    11 Stories Related

    2021 ADCES

    0 Stories Related

    2021 ATTD

    4 Stories Related

    2021 ISPAD

    8 Stories Related

    2021 Publications

    22 Stories Related

    2022 ADA

    11 Stories Related

    2022 ADCES

    4 Stories Related

    2022 ATTD

    10 Stories Related

    2022 ISPAD

    0 Stories Related

    ADA

    5 Stories Related

    ADCES

    0 Stories Related

    Adult

    0 Stories Related

    Adults & T1D

    38 Stories Related

    Advocacy

    11 Stories Related

    ATTD

    10 Stories Related

    Blood Sugar

    2 Stories Related

    Blood sugar management

    29 Stories Related

    Challenges & Complications

    30 Stories Related

    Continuous Glucose Monitor

    6 Stories Related

    COVID-19

    18 Stories Related

    Devices & Technology

    29 Stories Related

    DiabeteSpeaks

    20 Stories Related

    EASD

    0 Stories Related

    En EspaƱol

    0 Stories Related

    Exercise

    3 Stories Related

    General Publications

    74 Stories Related

    Get Involved

    39 Stories Related

    Glu Guide

    9 Stories Related

    Glu Insights

    16 Stories Related

    Health Equity

    0 Stories Related

    Healthcare & Insurance

    11 Stories Related

    Hypoglycemia

    4 Stories Related

    In Depth

    1 Stories Related

    Inspiration & Advocacy

    24 Stories Related

    Insulin

    6 Stories Related

    Insulin & Meds

    0 Stories Related

    Insulins & Non-insulins

    11 Stories Related

    ISPAD

    0 Stories Related

    Journal of Diabetes

    21 Stories Related

    Learning Session

    0 Stories Related

    Medications

    0 Stories Related

    Medicine

    1 Stories Related

    Meet the Expert

    9 Stories Related

    Mental Health

    9 Stories Related

    New & Newsworthy

    52 Stories Related

    News

    26 Stories Related

    Nutrition & Exercise

    4 Stories Related

    Other

    0 Stories Related

    Our team

    32 Stories Related

    Parenting & Families

    3 Stories Related

    Partner Content

    10 Stories Related

    Pediatric

    0 Stories Related

    Personal Stories

    16 Stories Related

    Press Release

    6 Stories Related

    Prevention

    11 Stories Related

    Questions of the Day

    18 Stories Related

    Research & Studies

    54 Stories Related

    Review

    0 Stories Related

    T1D Exchange & Glu

    16 Stories Related

    T1D Exchange News

    5 Stories Related

    Tech

    25 Stories Related

    Test Category

    0 Stories Related

    Therapies & Management

    0 Stories Related

    Type 1 Diabetes

    0 Stories Related

    Type 2 Diabetes

    0 Stories Related

    Uncategorized

    43 Stories Related

    You Told Glu

    1 Stories Related

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    • Clear All
    • Sort By

    • Select Category