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    • 59 minutes ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these. I'm not interested and have not even heard of some of them. The fewer gadgets the better.
    • 59 minutes ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      How about “None of the above”?
    • 59 minutes ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these
    • 6 hours, 52 minutes ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I agree with Molly. I’m moderately concerned because if I were extremely or very concerned, I just wouldn’t participate. I’m concerned for others who are brave enough to risk their own health for the sake of research and helping others.
    • 6 hours, 53 minutes ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 10 hours, 50 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 10 hours, 50 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 10 hours, 51 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 10 hours, 51 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 11 hours, 6 minutes ago
      Natalie Daley likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 11 hours, 26 minutes ago
      ChrisW likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      Well the first person in this trial has been insulin-free for over 1-1/2 years and has been feeling fine. All 12 participants in this trial so far are off of insulin. The trial is now going to include people with t-1 diabetes and some kidney damage as this immunosuppressant (tegoprubart) has shown no toxic effects to islet cells or to kidneys. I will keep watching as the trial progresses. This question only asked if we had heard about it. I didn't see the question as an advertisement.
    • 11 hours, 32 minutes ago
      ChrisW likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 11 hours, 33 minutes ago
      Brian Vodehnal likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Concern is relative to outcome. Getting a five year reprieve on the daily management of T1D might be worth it.
    • 12 hours, 30 minutes ago
      Derek West likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 13 hours, 19 minutes ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 13 hours, 20 minutes ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Moderately as this is for others. I don't imagine being offered this myself.
    • 13 hours, 20 minutes ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 13 hours, 20 minutes ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 13 hours, 23 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 13 hours, 24 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 13 hours, 24 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 13 hours, 26 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I just love your comments. 😃
    • 13 hours, 26 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 13 hours, 26 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 13 hours, 31 minutes ago
      Gary R. likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
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    If you follow a particular diet for your food choices (e.g., vegetarian, vegan, Paleo, Mediterranean, gluten-free), which of your healthcare providers (if any) did you talk to before starting it?

    Home > LC Polls > If you follow a particular diet for your food choices (e.g., vegetarian, vegan, Paleo, Mediterranean, gluten-free), which of your healthcare providers (if any) did you talk to before starting it?
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    Have you participated in a diabetes-related advocacy effort (I.e., calling your elected officials, meeting with representatives, etc.)?  If you have, share your experience in the comments.

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    5 Comments

    1. Lawrence S.

      I was diagnosed with Celiac disease back around 2009 (that’s a guess, I don’t remember exactly) by my primary care, general practitioner. He told me that I tested positive for celiac disease and told me not to eat foods with gluten. He probably gave me a pamphlet, and it was all person research from there. I read articles about celiac disease and figured out what I could and could not eat. It’s been a long and lonely journey. My diet is mostly of a mediteranean type. Most things I buy are labeled “gluten free”, or I know they are gluten free from experience and research. I eat a lot of fresh vegetables and fruits, greek yogurts, etc. I avoid restaurants as much as possible.

      1
      4 years ago Log in to Reply
    2. T1D4LongTime

      I reject all the ‘fad’/popular diets. I’ve always eaten a well-balanced meal of all the food groups (thanks to my mother :). I did consult with my endo when I became his patient 44 years ago and gave my balanced diet his blessing. I see no reason to follow the fad diet plans even if they are healthy (like the Mediterranean). I glean the good points from a popular diet plan and incorporate them into my standard diet.

      4 years ago Log in to Reply
    3. Keira Thurheimer

      My endocrinologist referred me to a gastroenterologist for testing for celiac after a blood test came back showing markers. After an endoscopy I was officially diagnosed with celiac disease and spoke with a nutritionist/dietician about how to start a gluten free diet.

      1
      4 years ago Log in to Reply
    4. Britni

      Gluten free diet was prescribed by a gastroenterologist and then I met with a nutritionist to learn more about it.

      4 years ago Log in to Reply
    5. jo

      I had Celiac disease before diabetes. I never spoke to endo about it, I just continued doing what I always did.

      4 years ago Log in to Reply

    If you follow a particular diet for your food choices (e.g., vegetarian, vegan, Paleo, Mediterranean, gluten-free), which of your healthcare providers (if any) did you talk to before starting it? Cancel reply

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