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    • 29 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      same here. I was able to get a neurologist to diagnose it as that.
    • 30 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I have developed this very weird numbness and pain in my left outer thigh which I attribute to neuropathy, although there has been no official diagnosis. Of course, like every good diabetic, I did my own research and found that it is called meralgia paresthetica. It only comes on intermittently and rarely interferes with daily functions. Rest remedies it. Having lived with T1D for 56 years so far, I consider myself to be pretty lucky...so far.
    • 31 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I feel the same way. I'm never sure who to believe or how to get a valid assessment.
    • 32 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 3 hours, 14 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      Gastroparesis
    • 3 hours, 15 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      In late summer of 2017 I lost all feeling in both lower extremities to my hips and both upper extremities to my shoulders. It was not all diabetic related though. Lowered the drug in my chemo regimen but didn't reverse by next treatment, so that drug was stopped. Slowly I regained feeling in my arms and legs; left with no sensation in hands & feet up to ankles & wrist. I'm thankful that my oncologist realized that it wasn't just a diabetic thing.
    • 6 hours, 5 minutes ago
      Sandra Rosborough likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 6 hours, 53 minutes ago
      KSannie likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 10 hours ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      My feet were killing me when I started taking insulin. Saw on another website that alpha lipoic acid (ALA) was good for neuropathy. Once I started taking it, the pain was gone within a week! Still using it 20 years later, still pain free
    • 10 hours, 1 minute ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 10 hours, 20 minutes ago
      magoo likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 10 hours, 20 minutes ago
      Mike S likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 10 hours, 33 minutes ago
      Dennis Dacey likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 23 hours, 30 minutes ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      I spend a bit of time in my garden, yardwork , the animal shelter. Days I'm not with the Shelter my herd gets walked.
    • 23 hours, 32 minutes ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      avid cyclist for many years now ........... OK ..... add in resident year around maintenance yard work
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Walking and hiking.
    • 1 day, 7 hours ago
      Steven Gill likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Try pausing insulin on your pump if you are below 150mg/dl.
    • 1 day, 10 hours ago
      Daniel Bestvater likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 10 hours ago
      Dennis Dacey likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 10 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 10 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 10 hours ago
      TEH likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 2 days, 7 hours ago
      Bonnie Lundblom likes your comment at
      What event(s) prompt you to calibrate your CGM? Select all that apply.
      I always do 3 successive finger sticks about 1 day after applying a new G7 sensor. I'm amazed at how much variability there is among sensors. Some are spot on, and remain so during the entire 10 days, while the worst I saw was off 100 mg/dl at the start (reading half of the actual level) (I demanded -- and got -- a replacement for that outlier, since I did't want to have to trust it for days and go through piles of strips just to see if it was as bad as it seemed). I generally also do another batch of 3 tests several days later, just to check. I care about accuracy. I've found that it is essential to do multiple sequential finger sticks to get an accurate number from strips, since they too are far more variable than I am comfortable with. If the variability in strips is too great, I do 4 tests rather than 3, and throw out one, averaging the rest. I love my CGM, but it doesn't completely replace strips.
    • 3 days, 10 hours ago
      Lawrence S. likes your comment at
      Have you ever been on a ketogenic or “keto” diet (low carbohydrate, high protein)? Please share more in the comments.
      I’ve been a T1D for about 50 years. After about 10 years I moved towards a more whole food diet with only small amounts of meat. I seem to consume 100-150 grams of carbs per day and try not to eat more than 30-40 grams at a time.
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    If you follow a particular diet for your food choices (e.g., vegetarian, vegan, Paleo, Mediterranean, gluten-free), which of your healthcare providers (if any) did you talk to before starting it?

    Home > LC Polls > If you follow a particular diet for your food choices (e.g., vegetarian, vegan, Paleo, Mediterranean, gluten-free), which of your healthcare providers (if any) did you talk to before starting it?
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    How would you describe the amount of scar tissue you have because of T1D management? Please feel free to share more about your experiences in the comments!

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    Have you participated in a diabetes-related advocacy effort (I.e., calling your elected officials, meeting with representatives, etc.)?  If you have, share your experience in the comments.

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    5 Comments

    1. Lawrence S.

      I was diagnosed with Celiac disease back around 2009 (that’s a guess, I don’t remember exactly) by my primary care, general practitioner. He told me that I tested positive for celiac disease and told me not to eat foods with gluten. He probably gave me a pamphlet, and it was all person research from there. I read articles about celiac disease and figured out what I could and could not eat. It’s been a long and lonely journey. My diet is mostly of a mediteranean type. Most things I buy are labeled “gluten free”, or I know they are gluten free from experience and research. I eat a lot of fresh vegetables and fruits, greek yogurts, etc. I avoid restaurants as much as possible.

      1
      3 years ago Log in to Reply
    2. T1D4LongTime

      I reject all the ‘fad’/popular diets. I’ve always eaten a well-balanced meal of all the food groups (thanks to my mother :). I did consult with my endo when I became his patient 44 years ago and gave my balanced diet his blessing. I see no reason to follow the fad diet plans even if they are healthy (like the Mediterranean). I glean the good points from a popular diet plan and incorporate them into my standard diet.

      3 years ago Log in to Reply
    3. Keira Thurheimer

      My endocrinologist referred me to a gastroenterologist for testing for celiac after a blood test came back showing markers. After an endoscopy I was officially diagnosed with celiac disease and spoke with a nutritionist/dietician about how to start a gluten free diet.

      1
      3 years ago Log in to Reply
    4. Britni

      Gluten free diet was prescribed by a gastroenterologist and then I met with a nutritionist to learn more about it.

      3 years ago Log in to Reply
    5. jo

      I had Celiac disease before diabetes. I never spoke to endo about it, I just continued doing what I always did.

      3 years ago Log in to Reply

    If you follow a particular diet for your food choices (e.g., vegetarian, vegan, Paleo, Mediterranean, gluten-free), which of your healthcare providers (if any) did you talk to before starting it? Cancel reply

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