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    • 13 hours, 8 minutes ago
      Greg Felton likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 13 hours, 40 minutes ago
      ConnieT1D62 likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      One time I was explaining that a new pump would be too expensive at the time because my deductible had just started over.. and she asked if I had insurance and I said yes….. then she said “then it should be free with insurance.” 🤦‍♀️ She may know a little about the challenges of living with diabetes, but she knows nothing about how insurance works or how costly T1D supplies are.
    • 13 hours, 58 minutes ago
      Steve Rumble likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 14 hours, 29 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I am an RN. Been going to same doctor for about ten years. Took me six years to train him. I am very well read when it comes to my LADA. He trusts my judgement and gives me excellent parameters to make decisions. Recently had a bad case of Covid. Insulin needs changed dramatically. Getting back to normal but he made sure I had scripts to cover my ups and downs with insulin needs.
    • 14 hours, 30 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Mine acknowledges the struggles and challenges that go along with managing T1D in my daily life. She gives suggestions as to what may or may not help and has often asked me I how I handle situations so she can give suggestions to other T1D patient's.
    • 14 hours, 31 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 14 hours, 56 minutes ago
      Jubin Veera likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      The hard spots are fairly frequent with the pump infusion sets. Especially if I go past 3 days which I try to avoid! I don’t think I ever got one from injections. I try heat and massaging to treat them and they normally go away after a day or so. Once I had a large area that I had to treat with antibiotics.
    • 14 hours, 58 minutes ago
      Magnus Hiis likes your comment at
      Have you experienced any symptoms of physical sexual dysfunction as a result of having diabetes, or having diabetes-related complications?
      I’m 79. My last orgasm was springtime about 3 or 4 years ago. When I complained of ED, my PCP Rxd 3 to 5 (60-100 mg) sildenafil tablets by mouth about one hour prior to sexual activity. This alone hasn’t worked to bring me up to former sexual capacity that I had 10 years years ago. I’m still considering consulting finding a doctor who’ll prescribe a safe but effective way of administering testosterone or an anabolic steroid in a dose low enough to avoid causing cardiovascular problems but high enough to restore normal ability that I had up to my sixties. My present doctors say it can’t be done, but there are doctors who advertise otherwise. Analogs of the hormone insulin can be delivered in small safe doses, why not testosterone?
    • 1 day, 6 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      We are all so very different, and trying to say that all of us with T1 understand what it's like for another who has the same hill to climb is unproductive. Having a health care provider with T1 may often be helpful just because there's apt to be more knowledge about the specifics. How we respond to the disease is such a personal matter, that I really don't think there are any guaranteed benefits beyond the grasp of the factual. Finding a doc with the same general attitude about the disease does feel good, and sometimes that's all I hope for after working hard to make peace with the disease for 70 years. Asking my doc to "get it" used to be almost my mantra, but I've come to realize that the ones who don't just see us as unruly childrenchildren
    • 1 day, 6 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Both my endocrinologist and my nurse practitioner are great. They compliment me on the way I take care of my life and health and make aure I get all the supplies I need managing all the paperwork Medicare and insurance requires. My nurse practitioner who works with me on managing the pump has her own opinion about the pump settings based on her technical knowledge which is different than what I do with my settings based on living with them. She has thru the years learned to respect what I do and is surprised with how my settings work. So we are now at peace. Both very supportive.
    • 1 day, 9 hours ago
      pru barry likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 9 hours ago
      mojoseje likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I said yes but that refers to my nurse practitioner who sees me every other visit, if not more often. The doctor may know how hard I try but perhaps takes my efforts for granted.
    • 1 day, 12 hours ago
      Anneyun likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      How can someone without the disease really understand what it is to live with it? I have never had a doctor with T1D in 60 years.
    • 1 day, 12 hours ago
      Bruce Schnitzler likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 13 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My endo is young, very empathetic, thorough, always asks for my input, and does research. I am blessed too. have him, and the one before for over 25 yrs.
    • 1 day, 13 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 13 hours ago
      lis be likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 1 day, 13 hours ago
      Daniel Bestvater likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 14 hours ago
      TEH likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I have no clue what my T1D health care provider understands about my daily challenges and I don’t know about his daily challenges either. Not sure why I should care as long as I have access to information how to best take care of myself.
    • 1 day, 14 hours ago
      Jeff Marvel likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 15 hours ago
      Richard Wiener likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 2 days, 6 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Hi Connie, I still have my glass syringe and show it off occasionally. We boiled the needle and syringe every morning and sharpened the needle with a file. I was diagnosed at age 6 in 1963. Life is so different now! Then, my diet was extremely limited as was my exercise. Now, I am very active and eat pretty much as I please. I maintain an A1C in the low 6s (6.2 was my last).
    • 2 days, 6 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Connie and Beth, I was diagnosed in Nov 1962, age 10. During the early years I developed lumps and indentations on my upper thighs from my injections. In fact, I was able t o spot other t1 kids in my junior high school based upon the lumps in their upper arms.. (I eventually met up with them and learned that I was correct.) By the time I reached my twenties, these indentations had more or less disappeared, but I still have remnants of the lumps. I wish I could say that the layers of tissue now deposited on my legs disguises them, but they don't. I think the changes in insulin have been responsible for this improvement: the isolation and purification of animal insulins were refined, and then the various human clones were game changers in many ways.
    • 2 days, 6 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Yes in my upper arms when I was a petite and skinny child in the 1960s with T1D. In those days we used glass syringes with stainless steel 1/2 inch long heavy gauge needles. My mother would jab me in the upper arms, it hurt like the dickens, and I developed several hard nodules. I was diagnosed at age 8 in December 1962 and after the initial two months of her jabbing me in the upper arms, I took over giving my own "shots" and started self injecting via site rotation in my thighs for several years. Eventually the lipohypertrophy in my upper arms resolved and I never injected there again until many years later as an adult on MDI using disposable syringes with very short and fine gauge needle tips. Periodically I would give my tired pin cushion thighs a rest and take a break for a few months or a couple of years and rotate injections in my abdomen or upper arms. Have been using a pump for over 20 years now and rarely use MDI unless I am taking a pump break for a short period of time. Happily, I no longer have lumpy sites.
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    How often do you typically change your insulin dosage settings outside of T1D-related appointments (e.g. basal rates, insulin-to-carb ratios, etc.)?

    Home > LC Polls > How often do you typically change your insulin dosage settings outside of T1D-related appointments (e.g. basal rates, insulin-to-carb ratios, etc.)?
    Previous

    If you use an insulin pump, how long have you this brand/model of pump?

    Next

    In the past 3 months, how many hours of work or school do you estimate you missed because of T1D (e.g., going to T1D-related appointments, feeling sick because of BG levels, etc.)?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    35 Comments

    1. Stephen Woodward

      What does “appointment” mean? Dr appointments?

      1 year ago Log in to Reply
      1. AnitaS

        I believe T1-related appointments mean medical appointments, whether with an endocrinologist, primary care doctor or diabetes educator, etc..

        1 year ago Log in to Reply
    2. Wanacure

      I very seldom change basal rate (glargine long acting insulin). I don’t think my insulin to carb rate changes much. But other variables may require pre meal bolus (lispro) changes, or even additional doses, from day to day. I may have to subtract 1 or 2 units lispro or add 1 to 3 units lispro as determined by One Touch blood glucose (and/or Dexcom). Exercise or delayed meal or alcohol have the biggest effects on determining lispro (fast acting) adjustments.

      1 year ago Log in to Reply
    3. Mark Schweim

      Answers are really out of context. Probably nobody changes their settings on any set schedule and only changes settings on an “AS NEEDED” basis meaning maybe several times a month one time, every few months another time, and if everything’s going well, maybe only once or less per year.

      How can I say how often I typically change my Insulin dosage settings when it varies so widely, anywhere from several times in a week to once or fewer times in a year???

      4
      1 year ago Log in to Reply
    4. Joan McGinnis

      Only if I am having repeated lows, and usually after endo has made a change. Actually very rare as I wish to keep endo relationship I have and I am a CDE.. I like to discuss this before changes. It helps to respect an objective persona’s perspective which mine have always been

      1 year ago Log in to Reply
    5. Dave Barden

      I said never because rarely wasn’t a choice. But I wasn’t thinking of “temp basal” which I do, when I remember, for exercise or increased activity.

      1
      1 year ago Log in to Reply
      1. AnitaS

        I would love to use temp-basal, but then I can’t use the control-iq with it. I like having the pump change my rates when either going too high or low. I hope when Tandem makes changes to their pump, that they will have control-iq being able to be used when the temp-basal is on.

        1 year ago Log in to Reply
    6. TEH

      My hybrid closed loop settings are as effective as they can be for now. I haven’t adjusted them on my own for over a year now. I did a an adjustment about a year ago at my CDA’s recommendation. My basil rates out of auto mode are not nearly as good. I would like to see average basil levels in auto mode and use that to change my basil programing.

      1 year ago Log in to Reply
    7. Lawrence S.

      My settings are a constant work in progress. I often think that this is as much art as science. I routinely edit my profile, including my basal rates, correction factor and carb ratios. I adjust for seasonal changes in my blood sugars, changes in exercise, and most often to correct often unexplained changes is the patterns of blood glucose levels. I answered a couple of times per month. There is no regular frequency to the adjustments made.

      6
      1 year ago Log in to Reply
    8. Mary Dexter

      That was strangely reassuring.

      1 year ago Log in to Reply
    9. Andrew Stewart

      As needed which works out to a few times a year.

      2
      1 year ago Log in to Reply
    10. David Smith

      Before moving to the Dexcom-Tandem combo 6 months ago I would make adjustments maybe 2-3 times in 6 months. But I haven’t made any adjustments since that transition.

      1 year ago Log in to Reply
    11. TomH

      I started Omnipod Dash in mid-December 2021. I’m close to having it zeroed in, but still tweaking a bit.

      1 year ago Log in to Reply
    12. Scott Doerner

      Actual answer is “as needed”

      5
      1 year ago Log in to Reply
    13. Louise Robinson

      AAARRGGHHH! The limitations of multiple choice! This past week, I have have changed my I:C ratios because of higher BG’s. Last week, I tweaked some of my basal rates. Prior to that, weeks and months can go by with no changes needed. I closely monitor my glucose levels and when a change is needed (as it inevitably will with diabetes) to achieve tighter glucose control, I make those changes. My goal has been to keep my A1c in the low 6’s. My last one was 6.1. and my time in range is in the 90%’s.

      2
      1 year ago Log in to Reply
    14. Janis Senungetuk

      The wording of this question is an issue. ” Typically” doesn’t relate to reality. My correct answer would be “as needed”.

      3
      1 year ago Log in to Reply
    15. Amanda Barras

      As needed should be an option here. As others have mentioned. It varies based on life and circumstance that are constantly changing.

      1
      1 year ago Log in to Reply
    16. Mig Vascos

      I chose twice per month but like everything else with diabetes, it just depends on what’s going on with my life. I usually adjust the time or dosage of my basal, but don’t normally change anything else.

      1
      1 year ago Log in to Reply
    17. Karen Brady

      I would have chosen “as needed” if that was an option

      1
      1 year ago Log in to Reply
    18. Steven Gill

      My settings stayed stable until 2 years ago (had the pump 3 years?), wasn’t until October’s incident I needed any changes (increased the basal, adjusted the “insulin to carb” ratio). In January completely changed my diet and made minor adjustments since.

      I clicked “2-3” times but am wondering it whatever caused the changes 2 years ago might reverse?

      1 year ago Log in to Reply
    19. William Bennett

      Not very often, I’ve got it all pretty well dialed in, but is the question asking if I rely on a Dr for advice about doing it? Nope. If I need to, I just change it.

      1 year ago Log in to Reply
    20. Sheri Marcus

      I am not comfortable with changing these in my own. I am afraid I’ll screw up and wake up dead! I prefer to do it with my endo instructing me what to change to after she views my charts reports on Dexcom and Glooko.

      1 year ago Log in to Reply
    21. Linda Zottoli

      I think my standard basal rates and associated insulin-to-carb ratios are actually the same for at least most of the 24 hours as they were 24 years ago, but I do change out of it to one of the 4 other profiles I have programmed into my tandem x2. Have to remember to change back when return to normal from whatever has caused a change, and temp basal was really useful on my previous pump. Though I do really appreciate the ratio being programmed along with the basal, because those needs do usually change together. I answered a couple times a month as an average, but that doesn’t describe the variation: can go for months without changing, then be changing frequently. I think I changed the programming a couple times when I first got the pump, and tweaked it again once after a year or so later.

      1 year ago Log in to Reply
    22. Melinda Lipe

      I answered with “every few months”, but there was not a choice to say “as needed”. Whenever an adjustment is warranted by my blood sugars and control, I do the pump adjustment myself.

      1 year ago Log in to Reply
    23. Eve Rabbiner

      I agree with so many of answers that say, “as needed.” Too bad it wasn’t an option. So, I guessed and said 2-3 times a year.

      1 year ago Log in to Reply
    24. Donald Cragun

      There is no given answer that covers my case. I change basal rates when my blood sugar rises and drops when I’m not eating anything. Sometimes that doesn’t happen for 2 or 3 or 4 years; sometimes it happens weekly for a few months in a row. It most frequently happens to me a few weeks after shifting between standard time and summer time.

      1 year ago Log in to Reply
    25. Becky Hertz

      Took a guess at 2-3 times a year. Maybe more than that. I change things when they need to be changed.

      1 year ago Log in to Reply
    26. Karen LeBoulch

      But for temporary basals, I change rates less than once a year. I do use temp basals several times a year for some foods like pizza or french fries.

      1 year ago Log in to Reply
    27. M C

      It depends on whether I need to or not… If there have been changes in my eating habits, in my work or exercise habits, etc. If I’m seeing a negative trend in my BG readings…. I correct it by making adjustments to the insulin settings. So, to answer your question it has been anywhere from once to multiple times in a year… It just depends on other variables.

      1 year ago Log in to Reply
    28. Bonnie Lundblom

      I’m another T1D that would have answered “As needed”

      1 year ago Log in to Reply
    29. mentat

      I think this is an excellent question. If one of the answers was “as needed” it would not have forced people to think about what that actually looks like in practice. The answers reveal a huge spread.

      As someone who is forced to make changes often more than once a week for no reason at all, it’s interesting to see that 75% of respondents change their dosing settings once a month or less; and almost 50% of respondents change their dosage settings a couple of times per year or less.

      It would also be interesting to know how large these changes are. Sometimes I have to take 10u of bolus with a meal for a week and then it will be 30u the next week, for the same carbs, same time of day, same routine/exercise, same basal, no illness, etc. etc. I am pretty sure this is extreme but it’s very hard to get any data on it.

      1 year ago Log in to Reply
    30. Lisa La Nasa

      This is an interesting question, and more interesting answers. I been T1D for 20 years, and use very flexible insulins with MDI. I modify basal doses almost daily to adjust for monthly female hormones and activity levels. I love being able to use my results to inform my dosing decisions, and modify frequently to get them to align. My last A1c was 5.2% and 18 SD.

      1 year ago Log in to Reply
    31. Glenda Schuessler

      As needed, though perhaps not as aggressively as I should.

      1 year ago Log in to Reply
    32. mbulzomi@optonline.net

      For us long time T1D’s (55 years) and on a Pump and a CGM system, I have no Virgin sites left. So, most of the time after a “Q” Set change, I wait one day then change the Basels. However, never more then 20% at a time. As all you should realize the Diabetes Researchers really don’t want to hear from us Senior.

      1 year ago Log in to Reply
    33. NAK Marshall

      Change it whenever my life style changes ie for a vacation with much more exercise, etc.

      1 year ago Log in to Reply

    How often do you typically change your insulin dosage settings outside of T1D-related appointments (e.g. basal rates, insulin-to-carb ratios, etc.)? Cancel reply

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