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    • 28 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo's office.
    • 28 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their "portal." Whether I get a timely response depends on whether there is a reliable nurse to respond.
    • 43 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      When I saw my endo a year ago, I wasn't able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can't get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I'm on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.
    • 44 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      On hold or actually talking about the issue and calling back to ensure someone follow's up as everyone seems to be over their head. Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.
    • 3 hours, 5 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.
    • 10 hours, 14 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 10 hours, 14 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 12 hours, 11 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 12 hours, 27 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 23 hours, 37 minutes ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 3 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 1 day, 3 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day, 6 hours ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
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    How often do you typically change your insulin dosage settings outside of T1D-related appointments (e.g. basal rates, insulin-to-carb ratios, etc.)?

    Home > LC Polls > How often do you typically change your insulin dosage settings outside of T1D-related appointments (e.g. basal rates, insulin-to-carb ratios, etc.)?
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    35 Comments

    1. Stephen Woodward

      What does “appointment” mean? Dr appointments?

      12 months ago Log in to Reply
      1. AnitaS

        I believe T1-related appointments mean medical appointments, whether with an endocrinologist, primary care doctor or diabetes educator, etc..

        12 months ago Log in to Reply
    2. Wanacure

      I very seldom change basal rate (glargine long acting insulin). I don’t think my insulin to carb rate changes much. But other variables may require pre meal bolus (lispro) changes, or even additional doses, from day to day. I may have to subtract 1 or 2 units lispro or add 1 to 3 units lispro as determined by One Touch blood glucose (and/or Dexcom). Exercise or delayed meal or alcohol have the biggest effects on determining lispro (fast acting) adjustments.

      12 months ago Log in to Reply
    3. Mark Schweim

      Answers are really out of context. Probably nobody changes their settings on any set schedule and only changes settings on an “AS NEEDED” basis meaning maybe several times a month one time, every few months another time, and if everything’s going well, maybe only once or less per year.

      How can I say how often I typically change my Insulin dosage settings when it varies so widely, anywhere from several times in a week to once or fewer times in a year???

      4
      12 months ago Log in to Reply
    4. Joan McGinnis

      Only if I am having repeated lows, and usually after endo has made a change. Actually very rare as I wish to keep endo relationship I have and I am a CDE.. I like to discuss this before changes. It helps to respect an objective persona’s perspective which mine have always been

      12 months ago Log in to Reply
    5. Dave Barden

      I said never because rarely wasn’t a choice. But I wasn’t thinking of ā€œtemp basalā€ which I do, when I remember, for exercise or increased activity.

      1
      12 months ago Log in to Reply
      1. AnitaS

        I would love to use temp-basal, but then I can’t use the control-iq with it. I like having the pump change my rates when either going too high or low. I hope when Tandem makes changes to their pump, that they will have control-iq being able to be used when the temp-basal is on.

        12 months ago Log in to Reply
    6. TEH

      My hybrid closed loop settings are as effective as they can be for now. I haven’t adjusted them on my own for over a year now. I did a an adjustment about a year ago at my CDA’s recommendation. My basil rates out of auto mode are not nearly as good. I would like to see average basil levels in auto mode and use that to change my basil programing.

      12 months ago Log in to Reply
    7. Lawrence S.

      My settings are a constant work in progress. I often think that this is as much art as science. I routinely edit my profile, including my basal rates, correction factor and carb ratios. I adjust for seasonal changes in my blood sugars, changes in exercise, and most often to correct often unexplained changes is the patterns of blood glucose levels. I answered a couple of times per month. There is no regular frequency to the adjustments made.

      6
      12 months ago Log in to Reply
    8. Mary Dexter

      That was strangely reassuring.

      12 months ago Log in to Reply
    9. Andrew Stewart

      As needed which works out to a few times a year.

      2
      12 months ago Log in to Reply
    10. David Smith

      Before moving to the Dexcom-Tandem combo 6 months ago I would make adjustments maybe 2-3 times in 6 months. But I haven’t made any adjustments since that transition.

      12 months ago Log in to Reply
    11. TomH

      I started Omnipod Dash in mid-December 2021. I’m close to having it zeroed in, but still tweaking a bit.

      12 months ago Log in to Reply
    12. Scott Doerner

      Actual answer is “as needed”

      5
      12 months ago Log in to Reply
    13. Louise Robinson

      AAARRGGHHH! The limitations of multiple choice! This past week, I have have changed my I:C ratios because of higher BG’s. Last week, I tweaked some of my basal rates. Prior to that, weeks and months can go by with no changes needed. I closely monitor my glucose levels and when a change is needed (as it inevitably will with diabetes) to achieve tighter glucose control, I make those changes. My goal has been to keep my A1c in the low 6’s. My last one was 6.1. and my time in range is in the 90%’s.

      2
      12 months ago Log in to Reply
    14. Janis Senungetuk

      The wording of this question is an issue. ” Typically” doesn’t relate to reality. My correct answer would be “as needed”.

      3
      12 months ago Log in to Reply
    15. Amanda Barras

      As needed should be an option here. As others have mentioned. It varies based on life and circumstance that are constantly changing.

      1
      12 months ago Log in to Reply
    16. Mig Vascos

      I chose twice per month but like everything else with diabetes, it just depends on what’s going on with my life. I usually adjust the time or dosage of my basal, but don’t normally change anything else.

      1
      12 months ago Log in to Reply
    17. Karen Brady

      I would have chosen “as needed” if that was an option

      1
      12 months ago Log in to Reply
    18. Steven Gill

      My settings stayed stable until 2 years ago (had the pump 3 years?), wasn’t until October’s incident I needed any changes (increased the basal, adjusted the “insulin to carb” ratio). In January completely changed my diet and made minor adjustments since.

      I clicked “2-3” times but am wondering it whatever caused the changes 2 years ago might reverse?

      12 months ago Log in to Reply
    19. William Bennett

      Not very often, I’ve got it all pretty well dialed in, but is the question asking if I rely on a Dr for advice about doing it? Nope. If I need to, I just change it.

      12 months ago Log in to Reply
    20. Sheri Marcus

      I am not comfortable with changing these in my own. I am afraid I’ll screw up and wake up dead! I prefer to do it with my endo instructing me what to change to after she views my charts reports on Dexcom and Glooko.

      12 months ago Log in to Reply
    21. Linda Zottoli

      I think my standard basal rates and associated insulin-to-carb ratios are actually the same for at least most of the 24 hours as they were 24 years ago, but I do change out of it to one of the 4 other profiles I have programmed into my tandem x2. Have to remember to change back when return to normal from whatever has caused a change, and temp basal was really useful on my previous pump. Though I do really appreciate the ratio being programmed along with the basal, because those needs do usually change together. I answered a couple times a month as an average, but that doesn’t describe the variation: can go for months without changing, then be changing frequently. I think I changed the programming a couple times when I first got the pump, and tweaked it again once after a year or so later.

      12 months ago Log in to Reply
    22. Melinda Lipe

      I answered with ā€œevery few monthsā€, but there was not a choice to say ā€œas neededā€. Whenever an adjustment is warranted by my blood sugars and control, I do the pump adjustment myself.

      12 months ago Log in to Reply
    23. Eve Rabbiner

      I agree with so many of answers that say, “as needed.” Too bad it wasn’t an option. So, I guessed and said 2-3 times a year.

      12 months ago Log in to Reply
    24. Donald Cragun

      There is no given answer that covers my case. I change basal rates when my blood sugar rises and drops when I’m not eating anything. Sometimes that doesn’t happen for 2 or 3 or 4 years; sometimes it happens weekly for a few months in a row. It most frequently happens to me a few weeks after shifting between standard time and summer time.

      12 months ago Log in to Reply
    25. Becky Hertz

      Took a guess at 2-3 times a year. Maybe more than that. I change things when they need to be changed.

      12 months ago Log in to Reply
    26. Karen LeBoulch

      But for temporary basals, I change rates less than once a year. I do use temp basals several times a year for some foods like pizza or french fries.

      12 months ago Log in to Reply
    27. M C

      It depends on whether I need to or not… If there have been changes in my eating habits, in my work or exercise habits, etc. If I’m seeing a negative trend in my BG readings…. I correct it by making adjustments to the insulin settings. So, to answer your question it has been anywhere from once to multiple times in a year… It just depends on other variables.

      12 months ago Log in to Reply
    28. Bonnie Lundblom

      I’m another T1D that would have answered “As needed”

      12 months ago Log in to Reply
    29. mentat

      I think this is an excellent question. If one of the answers was “as needed” it would not have forced people to think about what that actually looks like in practice. The answers reveal a huge spread.

      As someone who is forced to make changes often more than once a week for no reason at all, it’s interesting to see that 75% of respondents change their dosing settings once a month or less; and almost 50% of respondents change their dosage settings a couple of times per year or less.

      It would also be interesting to know how large these changes are. Sometimes I have to take 10u of bolus with a meal for a week and then it will be 30u the next week, for the same carbs, same time of day, same routine/exercise, same basal, no illness, etc. etc. I am pretty sure this is extreme but it’s very hard to get any data on it.

      12 months ago Log in to Reply
    30. Lisa La Nasa

      This is an interesting question, and more interesting answers. I been T1D for 20 years, and use very flexible insulins with MDI. I modify basal doses almost daily to adjust for monthly female hormones and activity levels. I love being able to use my results to inform my dosing decisions, and modify frequently to get them to align. My last A1c was 5.2% and 18 SD.

      12 months ago Log in to Reply
    31. Glenda Schuessler

      As needed, though perhaps not as aggressively as I should.

      12 months ago Log in to Reply
    32. mbulzomi@optonline.net

      For us long time T1D’s (55 years) and on a Pump and a CGM system, I have no Virgin sites left. So, most of the time after a “Q” Set change, I wait one day then change the Basels. However, never more then 20% at a time. As all you should realize the Diabetes Researchers really don’t want to hear from us Senior.

      12 months ago Log in to Reply
    33. NAK Marshall

      Change it whenever my life style changes ie for a vacation with much more exercise, etc.

      12 months ago Log in to Reply

    How often do you typically change your insulin dosage settings outside of T1D-related appointments (e.g. basal rates, insulin-to-carb ratios, etc.)? Cancel reply

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