Lisa La Nasa – T1D Exchange

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- 1 year, 2 months ago
  
  ConnieT1D62 has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  I didn't know anybody else with T1 diabetes at time of diagnosis in Dec 1962. I was 8 years old. While in hospital, my MD sent an 11 year old girl with T1D who was his patient to visit me. She did her best to offer an explanation of what "sugar diabetes" was all about. I didn't quite understand what she was talking about. I didn't meet others with T1D until I went to overnight camp for kids with diabetes in June 1963 - then I dozens of kids, teens, young adults, and adults living with diabetes.
- 1 year, 2 months ago
  
  T1D4LongTime has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  From age 6, until nearly age 18, I never knew anyone with T1D. My paternal grandmother had T2D and was on insulin. Didn't know about camps, endocrinologists, support groups, or anything current about diabetes at age 6
- 1 year, 2 months ago
  
  KarenM6 has commented in the same post you commented in :
  If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.
  Yes, indeed, sweetcharlie!! Thank you for your posts! :D
- 1 year, 2 months ago
  
  vbaum1956 has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Yes my Dad had contracted T1D about 10 yrs before I was diagnosed at 9.
- 1 year, 2 months ago
  
  Kathleen Begbie has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  My brother, my cousin and my sister-in-law
- 1 year, 2 months ago
  
  Anna Kiff has commented in the same post you commented in :
  If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.
  So happy to see another glass syringe user! I went back to live in the UK in the early 80's .. and NHS had us using glass syringes! After having lived with plastic syringes in Canada for almost 30 years .. it was quite the shock. My Dad actually sent me ONE package of BD syringes as a Xmas gift the first year . ROFLMAO . I'm so happy we no longer use that system and the 4mm 33 gauge pen needles .. sweet! And yes, technology is awesome .. if you can afford it. Some of us can't get insurance coverage so it can be like standing in front of a candy shop window .. and drooling away.
- 1 year, 2 months ago
  
  Anna Kiff has commented in the same post you commented in :
  If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.
  I agree with you on all you said Ken .. I couldn't have put it any better!
- 1 year, 2 months ago
  
  Anna Kiff has commented in the same post you commented in :
  If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.
  I call the "early days" (I was diagnosed in the 1960's) the Ice Ages. In away, glad to know that we all made it to this point with grit and determination. From glass syringes, 18 gauge needles that you sharpen on a stone, plop plop fizz fizz for urine testing 😂.. all good in my little world of advocacy.
- 1 year, 2 months ago
  
  Anna Kiff likes your comment at
  If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.
  For me, the key is to keep learning new techniques to optimize blood sugar control. After struggling for 13 years with T1 and deteriorating health, I had to take matters into my own hands - not relying on technology (pumping made me lazy) - but really dialing into the correct basal rate, how to bolus precisely and predictably for food, how to correct to a set blood sugar target, etc. T1D is so much easier for me now because it's more predictable. There are always new techniques to learn, though. It's a fun and exciting process to learn more about hacking our own health to optimize outcomes!
- 1 year, 2 months ago
  
  Lenora Ventura has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
- 1 year, 2 months ago
  
  Joan Fray has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Yes, my dad had T1. My diagnosi made him and my mom so sad. I tried hard to make it no big deal so they wouldn’t worry.
- 1 year, 2 months ago
  
  Melinda Lipe has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  I did not ever know any other T1Ds until I attended Diabetes camp. After that, it was many more years.
- 1 year, 2 months ago
  
  Kathleen Juzenas has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  I said no. Actually my older brother was diagnosed in his mid-twenties (just like me). I knew him when we were younger but he had already moved out of state by the time of his diagnosis and did not share with me his experiences.
- 1 year, 2 months ago
  
  KSannie has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  I had never heard of the term "diabetes" when I was diagnosed in 1969. The first person I ever met who also had it was a friend of my husband's, about 1992.
- 1 year, 2 months ago
  
  Becky Hertz has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  1974, two other girls in my small town had t1d.
- 1 year, 2 months ago
  
  Jan Masty has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Just my younger brother. I never met anyone else while I was growing up (60’s). And I went to a high school with over 2000 kids. Interesting . There are many more now. Most grade schools have at least 1 or 2 students that are t1 d.
- 1 year, 2 months ago
  
  AnitaS has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  I was 9 years old when diagnosed and I knew that my cousin who was 10 years older than I was gave herself injections, but I never knew why. I didn't inquire as I guess it never occured to me to ask why. When I was diagnosed, it was then that I learned why my cousin gave herself shots and I was going to have to also.
- 1 year, 2 months ago
  
  M C has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  A classmate had it. She didn't give herself her own insulin injections - her father did it for her.... which, long before I ever was diagnosed with T1D, I found extremely odd. (This was over 47 years ago)
- 1 year, 2 months ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  My nephew was diagnoed just three months before I was. He was 11; I was 46.
- 1 year, 2 months ago
  
  Bob Durstenfeld has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Yes, I was 18 months old, my father was the first in our family to have T1D, later two of my younger brothers developed it, as well as my eldest son and his eldest daughter.
- 1 year, 2 months ago
  
  Janis Senungetuk has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  My maternal grandfather was dx as a young adult but that was before there was a distinction made between types. He used beef/pork insulin. When I was dx in 1955 my parents knew of relatives on both sides who had died before the discovery/use of insulin, but they kept that history to themselves. At 8 years old I made the diabetes connection with my grandfather when I overheard him say he was going to the pharmacy to buy some insulin. Medical issues were not talked about in my family, even among family members.
- 1 year, 2 months ago
  
  Janis Senungetuk has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Wow, how fortunate your neighbor found you and how, just by chance, you received the emergency medical help you needed! Did you let the MD who missed the correct dx. know what happened?
- 1 year, 2 months ago
  
  Greg Felton has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Sort of an unfair question, since I was diagnosed at a young age when I knew only members immediate family, but my answer is no.
- 1 year, 2 months ago
  
  Henry Renn has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  I'm fairly certain my parents didn't personally know any T1s.
- 1 year, 2 months ago
  
  Trina Blake has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Not at all, no one with any type of D. I sure wish I had. I was 30 and initially Dx'd with T2 due to age (this was when it was juvenile onset or adult onset). I had no risk factors for T2D, but then I didn't know anyone with D and there was no D of any type in my family so I wasn't aware of "risk factors". If I had known someone with D (again of any type) and my Dx wasn't pre-internet, chances are I would have asked questions and been told that perhaps I needed further testing. I was Dx'd with T2 and sent on my way. I had one follow up appt, got scolded and "put on the needle", NpH 15 units in the morning. Again sent on my way. Finally found in a coma from DKA by a neighbor. Fortunately my day job was with a large city fire dept. WHen the neighbor called to say I wasn't gonna be at work that day, they figured out that 9-1-1 and to be called and dispatched from HQ. Saved my life. That's when I got the correct Dx.
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Lisa La Nasa

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