Sheri Marcus

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- 5 hours, 10 minutes ago
  
  Steven Gill likes your comment at
  What was your most recent A1c?
  My A1C was 10.7 last November 2023 with the Omnipod 5. I began the new iLet Bionic Pancreas January 3rd, 2024. In just over 2 months my A1C was already down to 7.5. Yay! This think is amazing once it learns my system I am hoping the lows subside some.
- 2 months, 1 week ago
  
  Sheri Marcus likes your comment at
  If you use an insulin pump, have you switched from a tubeless pump to a pump with tubing? Share more about this change in the comments.
  I just switched from the Omnipod 5 to the iLet Bionic Pancreas pump about 6 weeks ago and it is working great! My A1C has dropped drastically.
- 2 months, 1 week ago
  
  JanP likes your comment at
  If you use an insulin pump, have you switched from a tubeless pump to a pump with tubing? Share more about this change in the comments.
  I just switched from the Omnipod 5 to the iLet Bionic Pancreas pump about 6 weeks ago and it is working great! My A1C has dropped drastically.
- 5 months, 2 weeks ago
  
  T1DGJ likes your comment at
  Today is the first day of National Diabetes Awareness Month! In the comments, please share any advice you wish you would have received when you were diagnosed with T1D.
  AND... GP's refer any patients that have a high BG and then high A1C directly to a diabetic ENDO! Do not try to treat something you don't know much about!
- 5 months, 2 weeks ago
  
  Sheri Marcus likes your comment at
  Today is the first day of National Diabetes Awareness Month! In the comments, please share any advice you wish you would have received when you were diagnosed with T1D.
  I wish I would have found an Endo from the start 18 years ago! I was Diagnosed as a type II and treated as type II with medications for type II by my regular family physician and OB for my pregnancy and then continued with GP for three years afterward being treated as a type 2! NO ONE told me about an ENDO or a Peptide test! That is ALL it takes to see if you are type 1 or type 2 is a peptide test to see how much insulin or if any your pancreas is producing. (NOR DID MY GP or GYN even know what it was!) GP do not know enough about diabetes to treat anyone! All diagnosed diabetics should right away be referred to a ENDO diabetic specialist! There is such a shortage for ENDO's in our area! Seems now the demand is higher there would be a push for more diabetic Endo's! I was soooooooo sick the entire time I took pills/metformin with my IBS and sensitive stomach! I missed a lot of work and life was miserable! INFORM... GP's about the peptide test!!!
- 6 months, 2 weeks ago
  
  Mick Martin likes your comment at
  Were you misdiagnosed with another condition before you were diagnosed with T1D?
  Yes, I was diagnosed by my family physician as type II because I was not a child. I was treated for type II for 2-3 years and could never get my A1C down. I finally drove an hour to an Endo and hour back. As soon as the dr walked in he said, Hmmm.. I do not believe you are type II but we will do a peptide test just to see. Sure enough, I was not and then was diagnosed as type I. Most general practitioners do not know enough about diabetes to treat patients with it. GO TO AN ENDO! I learned!
- 6 months, 2 weeks ago
  
  Mary Halverson likes your comment at
  Were you misdiagnosed with another condition before you were diagnosed with T1D?
  Yes, I was diagnosed by my family physician as type II because I was not a child. I was treated for type II for 2-3 years and could never get my A1C down. I finally drove an hour to an Endo and hour back. As soon as the dr walked in he said, Hmmm.. I do not believe you are type II but we will do a peptide test just to see. Sure enough, I was not and then was diagnosed as type I. Most general practitioners do not know enough about diabetes to treat patients with it. GO TO AN ENDO! I learned!
- 1 year, 3 months ago
  
  Velika Peterson has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  I tested my other children before but only to aid research. I am happy that there are drugs that can delay the onset of T1D for anyone with antibodies.
- 1 year, 3 months ago
  
  Eva has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  I strongly advocate for annual/biannual tests to test for antibodies measuring the destruction of insulin-producing cells. If we can accurately and reliably measure "injury", then we should use it to assess how our environment contributes to the development of pancreatic injury (and by environment I mean diet, drugs, vaccines, alcohol, exercise etc...).
- 1 year, 3 months ago
  
  Steven Gill has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  A younger brother was diagnosed TYPE 1 a few months prior to my TYPE 2. Three later my diagnosis was changed to TYPE 1 (all the tests were run at a set of medical trials as my doc: an endo~ said I was too old to need insulin). Another brother recently diagnosed TYPE 2, he had all the tests run and no evidence of TYPE 1. No kids so I've no "dog in the fight," but in the groups I'm in it seems like a ticking time bomb whether to test children. As far as medication to delay a full blown step onto insulin? Any step to save the hypoglycemia, any steps to slow the progression to possible complications I'm all for. Even if unsuccessful, even if a short term.
- 1 year, 3 months ago
  
  Liz Avery has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  I don’t have any relatives with T1D. I am the lone wolf. I have two grown sons in their 40’s but neither have children.
- 1 year, 3 months ago
  
  Patricia Kilwein has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  I was tested as an adult. I shared the information with my famand because they ate adults they will make up their own minds.
- 1 year, 3 months ago
  
  Steve Rumble has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  My children are in their mid to late 30s and can make up their own minds about screening.
- 1 year, 3 months ago
  
  AnitaS has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  As Becky Hertz mentioned, it is by 3 years. That may not sound like much but having a child diagnosed at 9 years is much better than having a child diagnosed at 6 years as the emotional and intellectual abilities are much more advanced. Also, with the quick advances in technologies of CGMs and pumps etc, three years can get you better ways to keep care of your diabetes.
- 1 year, 3 months ago
  
  AnitaS has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  I have known about this drug test for a little while and although I have mentioned it to a few people, I have not "encouraged" others to get the test. I personally haven't had children and am only guessing that I would probably have them tested and put on the new drug to delay type-1 diabetes if they did have the genetic signs of probably becoming diabetic themselves.
- 1 year, 3 months ago
  
  Debbie Dallmann has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  I do not have any children.
- 1 year, 3 months ago
  
  Becky Hertz has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  Up to 3 years.
- 1 year, 3 months ago
  
  Becky Hertz has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  I do not have any biological children and my one sibling was too old to be studied in Trial Net. I do hope that these drugs are transferable to older populations like over 18. I'm not quite sure what the age limit on Trial Net is.
- 1 year, 3 months ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  "Other". Never gave it much thought. Out of 53 first cousins on just one side, I am the only one with Type 1.
- 1 year, 3 months ago
  
  pru barry has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  Getting them tested decades ago seemed like the right, responsible thing to do. All three of my children are in their fifties now, and I'm grateful for all those years of not having to worry so much! And now, there's even more reason to get the testing done. -Baby steps, if you're still waiting for a cure, but at least they're in the right direction!
- 1 year, 3 months ago
  
  Janis Senungetuk has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  When my grandchildren were young I repeatedly asked my daughter to have them tested, but she refused saying it wouldn't make any difference. Now they're in their 20's, with no interest or time to be "bothered".
- 1 year, 3 months ago
  
  Tom Riffe has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  Heck yea! If screening shows 1, some or all 5 autoantibodies and there is a drug to prevent/delay Type 1 onset, why not?
- 1 year, 3 months ago
  
  KCR has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  I do not have any biological children.
- 1 year, 3 months ago
  
  Bob Durstenfeld has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  I was diagnosed at 18 months of age, my eldest of 3 sons at 8 mo ths of age and my eldest granddaughter at 18 months of age. With genetic screening, we found we have mongenic T1D that could not be prevented with C-peptide screening.
- 1 year, 3 months ago
  
  GLORIA MILLER has commented in the same post you commented in :
  Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)
  Sheri Marcus, thanks but he is not T2 yet. He donated a kidney to his wife about six years ago and he was pre diabetic at that point. I am hoping he never develops either T1 or 2!
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Sheri Marcus

101 Federal Street, Suite 440
Boston, MA 02110
Phone: 617-892-6100
Email: admin@t1dexchange.org

Name	Sheri Marcus
About Me	Type 1 Diabetic

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