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    • 5 hours, 49 minutes ago
      KarenM6 likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      I received a 50 year medal. But it was tough to prove my 1956 diagnosis of T1D.
    • 5 hours, 49 minutes ago
      KarenM6 likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      Eligible for anyone's T1D 50 year medal(s), in theory. Considering the privacy implications, re: potential new employment and their background internet searches. Illegal to not hire because of T1D but employers do and will. No interest in giving a potential employer ammunition to use against me, if I can prevent it outright. Plus all primary "verification" is gone; no human sources are alive, no written records exist from that period as actual proof. So considering the possibility but gravely concerned I am able to meet the threshold required for proof for anybody's T1D medal(s). Sigh...
    • 5 hours, 50 minutes ago
      KarenM6 likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      I received the Joslin 50-year medal 2 years ago, but I have had T1D for 63 years in June. Thankfully my endocrinologist submitted the paperwork for me since I have been his patient for 30 years. There are no records of my diagnosis or pediatrician. My Mom is still alive but has dementia and thinks I have been cured.
    • 8 hours, 49 minutes ago
      Pam Hamilton likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      I have the Joslin 50 year medal.
    • 10 hours, 57 minutes ago
      Alyne Branson likes your comment at
      What advice would you give to someone who is having connectivity issues between their CGM and receiving device (smartphone, insulin pump)?
      This is just a simple comment, For pump connectivity, keep the pump and CGM on the same side of your body.
    • 15 hours, 55 minutes ago
      Steve Rumble likes your comment at
      What advice would you give to someone who is having connectivity issues between their CGM and receiving device (smartphone, insulin pump)?
      I try closing the app & turn off Bluetooth for a few minutes.
    • 16 hours, 44 minutes ago
      KSannie likes your comment at
      What advice would you give to someone who is having connectivity issues between their CGM and receiving device (smartphone, insulin pump)?
      This is just a simple comment, For pump connectivity, keep the pump and CGM on the same side of your body.
    • 16 hours, 44 minutes ago
      KSannie likes your comment at
      What advice would you give to someone who is having connectivity issues between their CGM and receiving device (smartphone, insulin pump)?
      Keep CGM and insulin pump on same side of body. Keep Smartphone nearby with you for CGM readings.
    • 16 hours, 48 minutes ago
      Lawrence S. likes your comment at
      What advice would you give to someone who is having connectivity issues between their CGM and receiving device (smartphone, insulin pump)?
      Call tech support for the cgm. They should be able to walk you through get it set up .
    • 16 hours, 55 minutes ago
      KCR likes your comment at
      What advice would you give to someone who is having connectivity issues between their CGM and receiving device (smartphone, insulin pump)?
      Start by turning your phone completely off and on again. Sometimes it is updates that need to occur to make them sync together. Then call tech support for the device and ask for help.
    • 17 hours, 34 minutes ago
      Tina Roberts likes your comment at
      What advice would you give to someone who is having connectivity issues between their CGM and receiving device (smartphone, insulin pump)?
      Start by turning your phone completely off and on again. Sometimes it is updates that need to occur to make them sync together. Then call tech support for the device and ask for help.
    • 17 hours, 37 minutes ago
      Mike S likes your comment at
      What advice would you give to someone who is having connectivity issues between their CGM and receiving device (smartphone, insulin pump)?
      Start by turning your phone completely off and on again. Sometimes it is updates that need to occur to make them sync together. Then call tech support for the device and ask for help.
    • 1 day, 15 hours ago
      Melissa Childers likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      No, unless you count the "boyfriend" aka dance date at Diabetes Camp. LOL
    • 1 day, 15 hours ago
      Melissa Childers likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      At the time we dated and were married my wife was not diabetic. She was diagnosed as T1D during/after her first pregnancy. We shared T1D through the next 37 years and a second pregnancy!
    • 1 day, 15 hours ago
      Melissa Childers likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      Yes. I got my 25 year Lilly award two years ago.
    • 1 day, 15 hours ago
      Melissa Childers likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      Lilly 25 and 50 year medals.
    • 1 day, 15 hours ago
      Melissa Childers likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      The Joslin 50 year medal. I've been T1 D since 12/28/1966.
    • 1 day, 15 hours ago
      Melissa Childers likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      I received a 50 year metal in 2022
    • 1 day, 15 hours ago
      Melissa Childers likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      Lily 10 year medal
    • 1 day, 15 hours ago
      Melissa Childers likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      Got a medal for 50 years.
    • 1 day, 15 hours ago
      Melissa Childers likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      Lilly 50 year metal
    • 1 day, 15 hours ago
      Melissa Childers likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      I have a medal for my tenth anniversary
    • 1 day, 15 hours ago
      Melissa Childers likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      I got the lily Award for 50 years . Never heard of the Joplin one
    • 1 day, 15 hours ago
      Melissa Childers likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      I have 50 years awards from Lilly, Joslin and the Journey Award. Staying healthy to get my 75! 15 years to go.
    • 1 day, 16 hours ago
      Vicki Breckenridge likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      The Joslin 50 year medal. I've been T1 D since 12/28/1966.
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    In the past 3 months, how many hours of work or school do you estimate you missed because of T1D (e.g., going to T1D-related appointments, feeling sick because of BG levels, etc.)?

    Home > LC Polls > In the past 3 months, how many hours of work or school do you estimate you missed because of T1D (e.g., going to T1D-related appointments, feeling sick because of BG levels, etc.)?
    Previous

    How often do you typically change your insulin dosage settings outside of T1D-related appointments (e.g. basal rates, insulin-to-carb ratios, etc.)?

    Next

    How much does T1D impact your ability to participate fully in work or school?

    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    20 Comments

    1. Jneticdiabetic

      I had episode a couple months ago when my pump ran out of insulin and I got pulled into a meeting part way through filling a new reservoir. Meeting required urgent follow-up and I was disconnected for about 3 hrs before I noticed I was thirsty and nauseated. Had to inject, hydrate and rest a couple of hours that time. I usually work 70+ hrs per week though, so more than make up for it. With the exception of my maternity leaves, I’ve taken less sick time off in 20 years than most of my “healthy” colleagues take each year. I joke that I’m just used to feeling lousy so don’t feel the need to take a day off when I do. T1D resiliency!

      1
      3 years ago Log in to Reply
    2. Mick Martin

      0 hours as I haven’t worked since 1990, having been retired on grounds of ill health.

      3 years ago Log in to Reply
    3. karolinamalecki7@gmail.com

      I got an infected pump site at work. I had to go to urgent care & then had follow up appointments after that. Because of Covid the urgent care was over flowing & it took hours and most of my work day instead of a quick trip like I expected.

      3 years ago Log in to Reply
    4. Sherolyn Newell

      I didn’t put 0, because doctor appointments take about an hour every 3 months. Other than that, I haven’t missed any work due to T1D.

      3 years ago Log in to Reply
    5. Louise Robinson

      I’m retired, so scheduling appointments is not an issue for me. I did work for 18 years as a Type 1 (diagnosed in 1976 and worked in my primary career until 1994). During my working years, I was on MDI. I had one hospitalization due to DKA in 1980 where I was in ICU and lost about 2 weeks of work. Other than that, I did not lose any work time due to my diabetes. Since I was a salaried worker, I still had flexibility about taking time off for doctor appointments and always made up the time (I worked 10 to 12 hour days on average anyway to get the job done.) I don’t feel that my diabetes kept me from accomplishing my goals. I did have to modify and adopt a lifestyle more conducive to living well with diabetes but that has been well worth it.

      3 years ago Log in to Reply
    6. AnitaS

      I am retired but if you want to consider doing other work (house work, washing cars etc., volunteering at a dog shelter) I do have to postpone doing those types of work occasionally till my sugar levels rise.

      4
      3 years ago Log in to Reply
      1. KarenM6

        vacuuming is the BEST blood sugar decreasing activity available! ;p 😀

        1
        3 years ago Log in to Reply
    7. Lisa

      I feel very lucky!

      3 years ago Log in to Reply
    8. Kelly Wilhelm

      I’m retired so question isn’t relevant to me.

      3 years ago Log in to Reply
    9. cynthia jaworski

      Only my semi-annual endo check-up.

      3 years ago Log in to Reply
    10. Patricia Kilwein

      Because of the complications, loss of sleep and such I’ve wondered how ppl manage that do work. My husband and I have been retired for 10 years and before that I wasn’t on a pump. I did have days that completely and do still have days where I am completely exhausted.

      1
      3 years ago Log in to Reply
    11. Steve Rumble

      Retired 8 years ago!

      3 years ago Log in to Reply
    12. Nick Trubov

      Retired now, but missed no work during the forty years that I DID work.

      3 years ago Log in to Reply
    13. Janis Senungetuk

      Travel time to/from medical appointments has taken 4 hours. The greatest loss of time has been from waiting/fruitless conversations with DME supplier and insurance.

      1
      3 years ago Log in to Reply
    14. Ernie Richmann

      Can’t remember the last time I was sick. I am feeling great.

      3 years ago Log in to Reply
    15. LizB

      I’d say about 3-4 hours because of how long it takes me to get to/from my current endo, who I saw last week. I work from home so it wasn’t a problem.

      3 years ago Log in to Reply
    16. KarenM6

      I’m unemployed at the moment (not retired)… but, when I worked, I was constantly having to leave for doctors’ appointments. BUT, I _always_ made up any lost time… it’s just that it is an unusual boss/company that is ok with this type of working. My experience was that most companies are strict about when you can and can not be at work (pre-COVID). WFH would not have been an option for me either.
      I almost always felt an uncomfortable tension when having to ask for time to take care of my medical needs.

      3 years ago Log in to Reply
    17. Lenora Ventura

      After working an extremely stressful job for 10+ years added on top of 35+ T1D longevity with very brittle responsiveness along the way. I usually miss 1 day a week of work 😿. My body is showing its age although I’m only 45

      3 years ago Log in to Reply
    18. Mark Schweim

      I said 0 due to T1D-related appointments since I work nights and no Doctor’s offices are open overnight, but I said 0 due to feeling sick because although I missed over 90 hours of work due to illness over the past month alone, that time missed from work was COVID instead of T1D related.

      3 years ago Log in to Reply
    19. Lawrence S.

      I am retired. However, I have had to go for blood tests and Endocrinologist visits. Also, I often lose time when working around the house to stop for snacks, and wait for my blood sugar levels to return to an acceptable level. I answered 5 to 8 hours. But, it is probably a lot more hours for stopping for snacks and blood sugar levels.

      3 years ago Log in to Reply

    In the past 3 months, how many hours of work or school do you estimate you missed because of T1D (e.g., going to T1D-related appointments, feeling sick because of BG levels, etc.)? Cancel reply

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