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    • 1 hour, 18 minutes ago
      mojoseje likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      After 35 years of insulin dependence, and going through MDI, then pump stand alone, the AID, I now get 2 days out of 200 units, or 4 units per hr average. I estimate that to be 4.
    • 1 hour, 19 minutes ago
      mojoseje likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      I can’t give a fixed answer. Insulin resistance is not static. It varies considerably with diet, activity, sleep and stress.
    • 1 hour, 24 minutes ago
      Brian Vodehnal likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      I can’t give a fixed answer. Insulin resistance is not static. It varies considerably with diet, activity, sleep and stress.
    • 1 hour, 33 minutes ago
      KCR likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      After 35 years of insulin dependence, and going through MDI, then pump stand alone, the AID, I now get 2 days out of 200 units, or 4 units per hr average. I estimate that to be 4.
    • 1 hour, 33 minutes ago
      KCR likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      I put 3, seems to be a moving target for me after ~50 years of T1D. If I sit still my body needs much more insulin, if I just walk around the block the opposite is the case. Even with control-IQ I need multiple basal-bolus patterns. I use anywhere between 12 to 40 units of humalog daily with the same number of carbohydrates. All depends on activity.
    • 1 hour, 33 minutes ago
      KCR likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      I can’t give a fixed answer. Insulin resistance is not static. It varies considerably with diet, activity, sleep and stress.
    • 1 hour, 34 minutes ago
      atr likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      I put 3, seems to be a moving target for me after ~50 years of T1D. If I sit still my body needs much more insulin, if I just walk around the block the opposite is the case. Even with control-IQ I need multiple basal-bolus patterns. I use anywhere between 12 to 40 units of humalog daily with the same number of carbohydrates. All depends on activity.
    • 1 hour, 36 minutes ago
      atr likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      I can’t give a fixed answer. Insulin resistance is not static. It varies considerably with diet, activity, sleep and stress.
    • 2 hours, 5 minutes ago
      Daniel Bestvater likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      I can’t give a fixed answer. Insulin resistance is not static. It varies considerably with diet, activity, sleep and stress.
    • 2 hours, 43 minutes ago
      TEH likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      I can’t give a fixed answer. Insulin resistance is not static. It varies considerably with diet, activity, sleep and stress.
    • 12 hours, 17 minutes ago
      Laurie B likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Several years ago I participated in a study assesing the value of regular counseliing and guidance, through virtual appointments for CGM users. I participated because they provided Dexcom G6 devices for the first 6 months of the study and I had wanted to experience life with a CGM. Because it was all virtual I was able to participate from a variety of locations visited during a cross country road trip, VA to CA, including Rapid Cty, SLC and the Bay area in CA. The experience with CGM was such a benefit that after the 6 month period I continued in the study, but purchased Dexcom G6s myself - not covered by my insurance! I would not have considered purchasing the CGM without the positive experience.
    • 16 hours, 44 minutes ago
      Kristi Warmecke likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Several years ago I participated in a study assesing the value of regular counseliing and guidance, through virtual appointments for CGM users. I participated because they provided Dexcom G6 devices for the first 6 months of the study and I had wanted to experience life with a CGM. Because it was all virtual I was able to participate from a variety of locations visited during a cross country road trip, VA to CA, including Rapid Cty, SLC and the Bay area in CA. The experience with CGM was such a benefit that after the 6 month period I continued in the study, but purchased Dexcom G6s myself - not covered by my insurance! I would not have considered purchasing the CGM without the positive experience.
    • 23 hours, 18 minutes ago
      kristina blake likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Several years ago I participated in a study assesing the value of regular counseliing and guidance, through virtual appointments for CGM users. I participated because they provided Dexcom G6 devices for the first 6 months of the study and I had wanted to experience life with a CGM. Because it was all virtual I was able to participate from a variety of locations visited during a cross country road trip, VA to CA, including Rapid Cty, SLC and the Bay area in CA. The experience with CGM was such a benefit that after the 6 month period I continued in the study, but purchased Dexcom G6s myself - not covered by my insurance! I would not have considered purchasing the CGM without the positive experience.
    • 23 hours, 19 minutes ago
      kristina blake likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 1 day ago
      Ahh Life likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Several years ago I participated in a study assesing the value of regular counseliing and guidance, through virtual appointments for CGM users. I participated because they provided Dexcom G6 devices for the first 6 months of the study and I had wanted to experience life with a CGM. Because it was all virtual I was able to participate from a variety of locations visited during a cross country road trip, VA to CA, including Rapid Cty, SLC and the Bay area in CA. The experience with CGM was such a benefit that after the 6 month period I continued in the study, but purchased Dexcom G6s myself - not covered by my insurance! I would not have considered purchasing the CGM without the positive experience.
    • 1 day ago
      Steve Rumble likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 1 day ago
      Anita Stokar likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 1 day ago
      Anita Stokar likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Read up on Eladon and Tegoprubart. You might be shocked at the lack of side effects. Although I’m interested to hear how long term goes in the next few years.
    • 1 day, 1 hour ago
      John Barbuto likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 1 day, 2 hours ago
      KCR likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 1 day, 2 hours ago
      Kathy Hanavan likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 1 day, 2 hours ago
      lis be likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 1 day, 2 hours ago
      lis be likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 1 day, 2 hours ago
      TEH likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 1 day, 20 hours ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
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    In the past 3 months, how many hours of work or school do you estimate you missed because of T1D (e.g., going to T1D-related appointments, feeling sick because of BG levels, etc.)?

    Home > LC Polls > In the past 3 months, how many hours of work or school do you estimate you missed because of T1D (e.g., going to T1D-related appointments, feeling sick because of BG levels, etc.)?
    Previous

    How often do you typically change your insulin dosage settings outside of T1D-related appointments (e.g. basal rates, insulin-to-carb ratios, etc.)?

    Next

    How much does T1D impact your ability to participate fully in work or school?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    20 Comments

    1. Jneticdiabetic

      I had episode a couple months ago when my pump ran out of insulin and I got pulled into a meeting part way through filling a new reservoir. Meeting required urgent follow-up and I was disconnected for about 3 hrs before I noticed I was thirsty and nauseated. Had to inject, hydrate and rest a couple of hours that time. I usually work 70+ hrs per week though, so more than make up for it. With the exception of my maternity leaves, I’ve taken less sick time off in 20 years than most of my “healthy” colleagues take each year. I joke that I’m just used to feeling lousy so don’t feel the need to take a day off when I do. T1D resiliency!

      1
      4 years ago Log in to Reply
    2. Mick Martin

      0 hours as I haven’t worked since 1990, having been retired on grounds of ill health.

      4 years ago Log in to Reply
    3. karolinamalecki7@gmail.com

      I got an infected pump site at work. I had to go to urgent care & then had follow up appointments after that. Because of Covid the urgent care was over flowing & it took hours and most of my work day instead of a quick trip like I expected.

      4 years ago Log in to Reply
    4. Sherolyn Newell

      I didn’t put 0, because doctor appointments take about an hour every 3 months. Other than that, I haven’t missed any work due to T1D.

      4 years ago Log in to Reply
    5. Louise Robinson

      I’m retired, so scheduling appointments is not an issue for me. I did work for 18 years as a Type 1 (diagnosed in 1976 and worked in my primary career until 1994). During my working years, I was on MDI. I had one hospitalization due to DKA in 1980 where I was in ICU and lost about 2 weeks of work. Other than that, I did not lose any work time due to my diabetes. Since I was a salaried worker, I still had flexibility about taking time off for doctor appointments and always made up the time (I worked 10 to 12 hour days on average anyway to get the job done.) I don’t feel that my diabetes kept me from accomplishing my goals. I did have to modify and adopt a lifestyle more conducive to living well with diabetes but that has been well worth it.

      4 years ago Log in to Reply
    6. AnitaS

      I am retired but if you want to consider doing other work (house work, washing cars etc., volunteering at a dog shelter) I do have to postpone doing those types of work occasionally till my sugar levels rise.

      4
      4 years ago Log in to Reply
      1. KarenM6

        vacuuming is the BEST blood sugar decreasing activity available! ;p 😀

        1
        4 years ago Log in to Reply
    7. Lisa

      I feel very lucky!

      4 years ago Log in to Reply
    8. Kelly Wilhelm

      I’m retired so question isn’t relevant to me.

      4 years ago Log in to Reply
    9. cynthia jaworski

      Only my semi-annual endo check-up.

      4 years ago Log in to Reply
    10. Patricia Kilwein

      Because of the complications, loss of sleep and such I’ve wondered how ppl manage that do work. My husband and I have been retired for 10 years and before that I wasn’t on a pump. I did have days that completely and do still have days where I am completely exhausted.

      1
      4 years ago Log in to Reply
    11. Steve Rumble

      Retired 8 years ago!

      4 years ago Log in to Reply
    12. Nick Trubov

      Retired now, but missed no work during the forty years that I DID work.

      4 years ago Log in to Reply
    13. Janis Senungetuk

      Travel time to/from medical appointments has taken 4 hours. The greatest loss of time has been from waiting/fruitless conversations with DME supplier and insurance.

      1
      4 years ago Log in to Reply
    14. Ernie Richmann

      Can’t remember the last time I was sick. I am feeling great.

      4 years ago Log in to Reply
    15. LizB

      I’d say about 3-4 hours because of how long it takes me to get to/from my current endo, who I saw last week. I work from home so it wasn’t a problem.

      4 years ago Log in to Reply
    16. KarenM6

      I’m unemployed at the moment (not retired)… but, when I worked, I was constantly having to leave for doctors’ appointments. BUT, I _always_ made up any lost time… it’s just that it is an unusual boss/company that is ok with this type of working. My experience was that most companies are strict about when you can and can not be at work (pre-COVID). WFH would not have been an option for me either.
      I almost always felt an uncomfortable tension when having to ask for time to take care of my medical needs.

      4 years ago Log in to Reply
    17. Lenora Ventura

      After working an extremely stressful job for 10+ years added on top of 35+ T1D longevity with very brittle responsiveness along the way. I usually miss 1 day a week of work 😿. My body is showing its age although I’m only 45

      4 years ago Log in to Reply
    18. Mark Schweim

      I said 0 due to T1D-related appointments since I work nights and no Doctor’s offices are open overnight, but I said 0 due to feeling sick because although I missed over 90 hours of work due to illness over the past month alone, that time missed from work was COVID instead of T1D related.

      4 years ago Log in to Reply
    19. Lawrence S.

      I am retired. However, I have had to go for blood tests and Endocrinologist visits. Also, I often lose time when working around the house to stop for snacks, and wait for my blood sugar levels to return to an acceptable level. I answered 5 to 8 hours. But, it is probably a lot more hours for stopping for snacks and blood sugar levels.

      4 years ago Log in to Reply

    In the past 3 months, how many hours of work or school do you estimate you missed because of T1D (e.g., going to T1D-related appointments, feeling sick because of BG levels, etc.)? Cancel reply

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