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    • 1 hour, 24 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 hour, 24 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 hour, 24 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 3 hours, 37 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 37 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 3 hours, 38 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 4 hours, 20 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 5 hours, 43 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 41 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 23 hours, 3 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 23 hours, 6 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 23 hours, 7 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 23 hours, 7 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 23 hours, 15 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 7 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 7 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
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    How often do you typically change your insulin dosage settings outside of T1D-related appointments (e.g. basal rates, insulin-to-carb ratios, etc.)?

    Home > LC Polls > How often do you typically change your insulin dosage settings outside of T1D-related appointments (e.g. basal rates, insulin-to-carb ratios, etc.)?
    Previous

    If you use an insulin pump, how long have you this brand/model of pump?

    Next

    In the past 3 months, how many hours of work or school do you estimate you missed because of T1D (e.g., going to T1D-related appointments, feeling sick because of BG levels, etc.)?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    35 Comments

    1. Stephen Woodward

      What does “appointment” mean? Dr appointments?

      4 years ago Log in to Reply
      1. AnitaS

        I believe T1-related appointments mean medical appointments, whether with an endocrinologist, primary care doctor or diabetes educator, etc..

        4 years ago Log in to Reply
    2. Wanacure

      I very seldom change basal rate (glargine long acting insulin). I don’t think my insulin to carb rate changes much. But other variables may require pre meal bolus (lispro) changes, or even additional doses, from day to day. I may have to subtract 1 or 2 units lispro or add 1 to 3 units lispro as determined by One Touch blood glucose (and/or Dexcom). Exercise or delayed meal or alcohol have the biggest effects on determining lispro (fast acting) adjustments.

      4 years ago Log in to Reply
    3. Mark Schweim

      Answers are really out of context. Probably nobody changes their settings on any set schedule and only changes settings on an “AS NEEDED” basis meaning maybe several times a month one time, every few months another time, and if everything’s going well, maybe only once or less per year.

      How can I say how often I typically change my Insulin dosage settings when it varies so widely, anywhere from several times in a week to once or fewer times in a year???

      4
      4 years ago Log in to Reply
    4. Joan McGinnis

      Only if I am having repeated lows, and usually after endo has made a change. Actually very rare as I wish to keep endo relationship I have and I am a CDE.. I like to discuss this before changes. It helps to respect an objective persona’s perspective which mine have always been

      4 years ago Log in to Reply
    5. Dave Barden

      I said never because rarely wasn’t a choice. But I wasn’t thinking of “temp basal” which I do, when I remember, for exercise or increased activity.

      1
      4 years ago Log in to Reply
      1. AnitaS

        I would love to use temp-basal, but then I can’t use the control-iq with it. I like having the pump change my rates when either going too high or low. I hope when Tandem makes changes to their pump, that they will have control-iq being able to be used when the temp-basal is on.

        4 years ago Log in to Reply
    6. TEH

      My hybrid closed loop settings are as effective as they can be for now. I haven’t adjusted them on my own for over a year now. I did a an adjustment about a year ago at my CDA’s recommendation. My basil rates out of auto mode are not nearly as good. I would like to see average basil levels in auto mode and use that to change my basil programing.

      4 years ago Log in to Reply
    7. Lawrence S.

      My settings are a constant work in progress. I often think that this is as much art as science. I routinely edit my profile, including my basal rates, correction factor and carb ratios. I adjust for seasonal changes in my blood sugars, changes in exercise, and most often to correct often unexplained changes is the patterns of blood glucose levels. I answered a couple of times per month. There is no regular frequency to the adjustments made.

      6
      4 years ago Log in to Reply
    8. Mary Dexter

      That was strangely reassuring.

      4 years ago Log in to Reply
    9. Andrew Stewart

      As needed which works out to a few times a year.

      2
      4 years ago Log in to Reply
    10. David Smith

      Before moving to the Dexcom-Tandem combo 6 months ago I would make adjustments maybe 2-3 times in 6 months. But I haven’t made any adjustments since that transition.

      4 years ago Log in to Reply
    11. TomH

      I started Omnipod Dash in mid-December 2021. I’m close to having it zeroed in, but still tweaking a bit.

      4 years ago Log in to Reply
    12. Scott Doerner

      Actual answer is “as needed”

      5
      4 years ago Log in to Reply
    13. Louise Robinson

      AAARRGGHHH! The limitations of multiple choice! This past week, I have have changed my I:C ratios because of higher BG’s. Last week, I tweaked some of my basal rates. Prior to that, weeks and months can go by with no changes needed. I closely monitor my glucose levels and when a change is needed (as it inevitably will with diabetes) to achieve tighter glucose control, I make those changes. My goal has been to keep my A1c in the low 6’s. My last one was 6.1. and my time in range is in the 90%’s.

      2
      4 years ago Log in to Reply
    14. Janis Senungetuk

      The wording of this question is an issue. ” Typically” doesn’t relate to reality. My correct answer would be “as needed”.

      3
      4 years ago Log in to Reply
    15. Amanda Barras

      As needed should be an option here. As others have mentioned. It varies based on life and circumstance that are constantly changing.

      1
      4 years ago Log in to Reply
    16. Mig Vascos

      I chose twice per month but like everything else with diabetes, it just depends on what’s going on with my life. I usually adjust the time or dosage of my basal, but don’t normally change anything else.

      1
      4 years ago Log in to Reply
    17. Karen Brady

      I would have chosen “as needed” if that was an option

      1
      4 years ago Log in to Reply
    18. Steven Gill

      My settings stayed stable until 2 years ago (had the pump 3 years?), wasn’t until October’s incident I needed any changes (increased the basal, adjusted the “insulin to carb” ratio). In January completely changed my diet and made minor adjustments since.

      I clicked “2-3” times but am wondering it whatever caused the changes 2 years ago might reverse?

      4 years ago Log in to Reply
    19. William Bennett

      Not very often, I’ve got it all pretty well dialed in, but is the question asking if I rely on a Dr for advice about doing it? Nope. If I need to, I just change it.

      4 years ago Log in to Reply
    20. Sheri Marcus

      I am not comfortable with changing these in my own. I am afraid I’ll screw up and wake up dead! I prefer to do it with my endo instructing me what to change to after she views my charts reports on Dexcom and Glooko.

      4 years ago Log in to Reply
    21. Linda Zottoli

      I think my standard basal rates and associated insulin-to-carb ratios are actually the same for at least most of the 24 hours as they were 24 years ago, but I do change out of it to one of the 4 other profiles I have programmed into my tandem x2. Have to remember to change back when return to normal from whatever has caused a change, and temp basal was really useful on my previous pump. Though I do really appreciate the ratio being programmed along with the basal, because those needs do usually change together. I answered a couple times a month as an average, but that doesn’t describe the variation: can go for months without changing, then be changing frequently. I think I changed the programming a couple times when I first got the pump, and tweaked it again once after a year or so later.

      4 years ago Log in to Reply
    22. Melinda Lipe

      I answered with “every few months”, but there was not a choice to say “as needed”. Whenever an adjustment is warranted by my blood sugars and control, I do the pump adjustment myself.

      4 years ago Log in to Reply
    23. Eve Rabbiner

      I agree with so many of answers that say, “as needed.” Too bad it wasn’t an option. So, I guessed and said 2-3 times a year.

      4 years ago Log in to Reply
    24. Donald Cragun

      There is no given answer that covers my case. I change basal rates when my blood sugar rises and drops when I’m not eating anything. Sometimes that doesn’t happen for 2 or 3 or 4 years; sometimes it happens weekly for a few months in a row. It most frequently happens to me a few weeks after shifting between standard time and summer time.

      4 years ago Log in to Reply
    25. Becky Hertz

      Took a guess at 2-3 times a year. Maybe more than that. I change things when they need to be changed.

      4 years ago Log in to Reply
    26. Karen LeBoulch

      But for temporary basals, I change rates less than once a year. I do use temp basals several times a year for some foods like pizza or french fries.

      4 years ago Log in to Reply
    27. M C

      It depends on whether I need to or not… If there have been changes in my eating habits, in my work or exercise habits, etc. If I’m seeing a negative trend in my BG readings…. I correct it by making adjustments to the insulin settings. So, to answer your question it has been anywhere from once to multiple times in a year… It just depends on other variables.

      4 years ago Log in to Reply
    28. Bonnie Lundblom

      I’m another T1D that would have answered “As needed”

      4 years ago Log in to Reply
    29. mentat

      I think this is an excellent question. If one of the answers was “as needed” it would not have forced people to think about what that actually looks like in practice. The answers reveal a huge spread.

      As someone who is forced to make changes often more than once a week for no reason at all, it’s interesting to see that 75% of respondents change their dosing settings once a month or less; and almost 50% of respondents change their dosage settings a couple of times per year or less.

      It would also be interesting to know how large these changes are. Sometimes I have to take 10u of bolus with a meal for a week and then it will be 30u the next week, for the same carbs, same time of day, same routine/exercise, same basal, no illness, etc. etc. I am pretty sure this is extreme but it’s very hard to get any data on it.

      4 years ago Log in to Reply
    30. Lisa La Nasa

      This is an interesting question, and more interesting answers. I been T1D for 20 years, and use very flexible insulins with MDI. I modify basal doses almost daily to adjust for monthly female hormones and activity levels. I love being able to use my results to inform my dosing decisions, and modify frequently to get them to align. My last A1c was 5.2% and 18 SD.

      4 years ago Log in to Reply
    31. Glenda Schuessler

      As needed, though perhaps not as aggressively as I should.

      4 years ago Log in to Reply
    32. mbulzomi@optonline.net

      For us long time T1D’s (55 years) and on a Pump and a CGM system, I have no Virgin sites left. So, most of the time after a “Q” Set change, I wait one day then change the Basels. However, never more then 20% at a time. As all you should realize the Diabetes Researchers really don’t want to hear from us Senior.

      4 years ago Log in to Reply
    33. NAK Marshall

      Change it whenever my life style changes ie for a vacation with much more exercise, etc.

      4 years ago Log in to Reply

    How often do you typically change your insulin dosage settings outside of T1D-related appointments (e.g. basal rates, insulin-to-carb ratios, etc.)? Cancel reply

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