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    • 4 hours, 56 minutes ago
      KarenM6 likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      I received a 50 year medal. But it was tough to prove my 1956 diagnosis of T1D.
    • 4 hours, 57 minutes ago
      KarenM6 likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      Eligible for anyone's T1D 50 year medal(s), in theory. Considering the privacy implications, re: potential new employment and their background internet searches. Illegal to not hire because of T1D but employers do and will. No interest in giving a potential employer ammunition to use against me, if I can prevent it outright. Plus all primary "verification" is gone; no human sources are alive, no written records exist from that period as actual proof. So considering the possibility but gravely concerned I am able to meet the threshold required for proof for anybody's T1D medal(s). Sigh...
    • 4 hours, 58 minutes ago
      KarenM6 likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      I received the Joslin 50-year medal 2 years ago, but I have had T1D for 63 years in June. Thankfully my endocrinologist submitted the paperwork for me since I have been his patient for 30 years. There are no records of my diagnosis or pediatrician. My Mom is still alive but has dementia and thinks I have been cured.
    • 7 hours, 56 minutes ago
      Pam Hamilton likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      I have the Joslin 50 year medal.
    • 10 hours, 4 minutes ago
      Alyne Branson likes your comment at
      What advice would you give to someone who is having connectivity issues between their CGM and receiving device (smartphone, insulin pump)?
      This is just a simple comment, For pump connectivity, keep the pump and CGM on the same side of your body.
    • 15 hours, 3 minutes ago
      Steve Rumble likes your comment at
      What advice would you give to someone who is having connectivity issues between their CGM and receiving device (smartphone, insulin pump)?
      I try closing the app & turn off Bluetooth for a few minutes.
    • 15 hours, 51 minutes ago
      KSannie likes your comment at
      What advice would you give to someone who is having connectivity issues between their CGM and receiving device (smartphone, insulin pump)?
      This is just a simple comment, For pump connectivity, keep the pump and CGM on the same side of your body.
    • 15 hours, 51 minutes ago
      KSannie likes your comment at
      What advice would you give to someone who is having connectivity issues between their CGM and receiving device (smartphone, insulin pump)?
      Keep CGM and insulin pump on same side of body. Keep Smartphone nearby with you for CGM readings.
    • 15 hours, 55 minutes ago
      Lawrence S. likes your comment at
      What advice would you give to someone who is having connectivity issues between their CGM and receiving device (smartphone, insulin pump)?
      Call tech support for the cgm. They should be able to walk you through get it set up .
    • 16 hours, 2 minutes ago
      KCR likes your comment at
      What advice would you give to someone who is having connectivity issues between their CGM and receiving device (smartphone, insulin pump)?
      Start by turning your phone completely off and on again. Sometimes it is updates that need to occur to make them sync together. Then call tech support for the device and ask for help.
    • 16 hours, 42 minutes ago
      Tina Roberts likes your comment at
      What advice would you give to someone who is having connectivity issues between their CGM and receiving device (smartphone, insulin pump)?
      Start by turning your phone completely off and on again. Sometimes it is updates that need to occur to make them sync together. Then call tech support for the device and ask for help.
    • 16 hours, 44 minutes ago
      Mike S likes your comment at
      What advice would you give to someone who is having connectivity issues between their CGM and receiving device (smartphone, insulin pump)?
      Start by turning your phone completely off and on again. Sometimes it is updates that need to occur to make them sync together. Then call tech support for the device and ask for help.
    • 1 day, 14 hours ago
      Melissa Childers likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      No, unless you count the "boyfriend" aka dance date at Diabetes Camp. LOL
    • 1 day, 14 hours ago
      Melissa Childers likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      At the time we dated and were married my wife was not diabetic. She was diagnosed as T1D during/after her first pregnancy. We shared T1D through the next 37 years and a second pregnancy!
    • 1 day, 14 hours ago
      Melissa Childers likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      Yes. I got my 25 year Lilly award two years ago.
    • 1 day, 14 hours ago
      Melissa Childers likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      Lilly 25 and 50 year medals.
    • 1 day, 14 hours ago
      Melissa Childers likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      The Joslin 50 year medal. I've been T1 D since 12/28/1966.
    • 1 day, 14 hours ago
      Melissa Childers likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      I received a 50 year metal in 2022
    • 1 day, 14 hours ago
      Melissa Childers likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      Lily 10 year medal
    • 1 day, 14 hours ago
      Melissa Childers likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      Got a medal for 50 years.
    • 1 day, 14 hours ago
      Melissa Childers likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      Lilly 50 year metal
    • 1 day, 14 hours ago
      Melissa Childers likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      I have a medal for my tenth anniversary
    • 1 day, 14 hours ago
      Melissa Childers likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      I got the lily Award for 50 years . Never heard of the Joplin one
    • 1 day, 14 hours ago
      Melissa Childers likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      I have 50 years awards from Lilly, Joslin and the Journey Award. Staying healthy to get my 75! 15 years to go.
    • 1 day, 15 hours ago
      Vicki Breckenridge likes your comment at
      Have you received an award or medal from a program that recognizes how long someone has lived with T1D? (For example, 10, 25, 50, or 75 years living with T1D)
      The Joslin 50 year medal. I've been T1 D since 12/28/1966.
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    Health care providers may prescribe type 2 diabetes medications that might be helpful for a person’s concern or problem with T1D – commonly called ‘off-label use’. Does your provider currently prescribe you any type 2 diabetes medications ‘off-label’? Select all that apply.

    Home > LC Polls > Health care providers may prescribe type 2 diabetes medications that might be helpful for a person’s concern or problem with T1D – commonly called ‘off-label use’. Does your provider currently prescribe you any type 2 diabetes medications ‘off-label’? Select all that apply.
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    Next

    If you use a CGM, do you look at the Glucose Management Indicator (GMI) available in many CGM reports? If so, how accurate is your GMI compared to your A1c drawn in a lab?

    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    29 Comments

    1. Ginger Vieira

      YES! And these medications have been so helpful to replace the other FIVE hormones that people with type 1 diabetes don’t produce.
      Read more about here:
      https://t1dexchange.org/semaglutide-type-1-diabetes/
      And here:
      https://t1dexchange.org/t1d-hormones/

      4
      2 years ago Log in to Reply
      1. cynthia jaworski

        Excellent links. Thank you.

        Everyone should be made aware of these facts.

        1
        2 years ago Log in to Reply
    2. Kevin McCue

      Doc prescribed semaglutide as WeGovy however due to cost have been unable to give it a try. The goal was to prevent sharp spikes in glucose.

      1
      2 years ago Log in to Reply
    3. Katrina Mundinger

      Was once prescribed liraglutide but it did nothing for me except make me feel nauseated.

      2 years ago Log in to Reply
    4. TEH

      I asked my Endo specifically if “off label” would help me and he said Medicare would not cover it and as such it would be very expensive.

      1
      2 years ago Log in to Reply
      1. Bob Durstenfeld

        I have no issue with coverage on Medicare. Find a Part D plan with those meds on their formulary. I use AETNA/CVS CARMARK.

        1
        2 years ago Log in to Reply
    5. mojoseje

      I’m on Metformin and wish I were on Trulicity because I lost weight on it and used less insulin. Unfortunately, my new insurance doesn’t cover it because I’m T1.

      2 years ago Log in to Reply
    6. Mary Dexter

      Every few years I have to ask that my medical records say that I am T1/LADA because some fool doctor has changed it to T2 based on my not being a child. The fight for continued access to insulin and CGM is ongoing.

      3
      2 years ago Log in to Reply
      1. Trina Blake

        That is so frustrating! Don’t some doctors realize there is no cure for T1D (not even considering the fact that some adults are Dx’s with T1D, or the LADA situation? Why do you think the names were changed?) Anyway, I have had to tell them that if a child has access to the necessary treatment etc they get to grow up to be adults with T1D>

        5
        2 years ago Log in to Reply
      2. Rafaela

        I hope the doctor who that is not your current one. Good grief!!!

        2 years ago Log in to Reply
    7. Trina Blake

      I’ve asked about using Ozempic, but the Endo says no. His reasoning was that there is (supposedly?) a risk for DKA. That doesn’t make sense to me, I fully expect to still have T1D, and still require active insulin dosing etc. I need to look into that DKA risk thing. The only thing I am somewhat wary of, is that I hear that if you stop (titrate off) Ozempic, the weight comes back rather quickly. Don’t know if I want to add another Rx regimen for the rest of my life.

      1
      2 years ago Log in to Reply
    8. Georgina Sokol

      It’s never been mentioned to me. I have never heard of this.

      1
      2 years ago Log in to Reply
    9. Bob Durstenfeld

      Yes, I have insulin resistance, I use Acarbose. Metformin and Jardiance. They reduce my insulin requirements br 25-20%. I have had T1D for 66 years.

      4
      2 years ago Log in to Reply
    10. Amanda Barras

      About 10 years ago a doc put me on metformin but I discontinued use when losing insurance. Didn’t felt it helped enough anyway.

      My current doc wrote me an Rx for Ozempic, I tried it for 2 months before I stopped taking it due to heartburn and other gastrointestinal distress. I felt it lowered my appetite, but nothing else.

      2 years ago Log in to Reply
    11. Jane Cerullo

      Personally do not need. My A1c has never been over 6. Usually 5.4-5.7. I do not get lows. Use MDI for year and a half and never knees same as with pumps but with less hassle. I use InPen and Iport and happy now to have tubes hanging off of me. Omnipod was ok but too expensive on Medicare

      1
      2 years ago Log in to Reply
    12. Becky Hertz

      I’m in Jardiance (SGLT-2) to try to preserve kidney function.

      1
      2 years ago Log in to Reply
      1. Becky Hertz

        Have also been on Victoza (GLP-1) in the past for insulin resistance.

        2 years ago Log in to Reply
    13. Henry Renn

      Circa 20 years ago T2 dx added to T1 dx(46 yr at that time). High insulin resistance. Put on new T2 med. Bgs evened out. 6 weeks in FDA recalled med & withdrew approval. Never put on another. I’d like even bgs but at this point 71 yrs old & almost 67 yrs T1 I’m on about 10 meds & do not wish to add another.

      2 years ago Log in to Reply
    14. Tracy Jean

      My doctor prescribed me Victozia. My insulin needs went down and I was in range 100% most of the time but it put me in the donut hole in 4 months.

      2 years ago Log in to Reply
    15. Lee Johnson

      My HCP wants to use T2D med for possible help in loosing weight, I am not convinced that is a good idea, especially since my HCP is very overweight!

      2 years ago Log in to Reply
    16. William Bennett

      Jardiance (empagliflozin) and Metformin. Doc put me on Metformin years back when I was doing MDI to help with Dawn Phenomenon. Didn’t really help–only got control of it when I started using a pump–but my endos have said it has other beneficial effects so why not stay with it. Started Jardiance much more recently and it has been hugely beneficial in keeping tighter TIR. I do pay a higher copay for it but it’s worth it to me. Haven’t gotten any pushback from Medicare or my supplement plan about it.

      2 years ago Log in to Reply
    17. Sharon Gerdik

      My Endo determined that I might be insulin resistant and ordered Ozempic, which is Semaglutide. I was able to decrease my insulin needs significantly and I lost 55 lbs in one year.

      1
      2 years ago Log in to Reply
      1. Lenora Ventura

        Hey Sharon, I had the same success using Rybelsus!! Yea for us ☺️

        2 years ago Log in to Reply
    18. Lenora Ventura

      Yes, my Endo prescribed Rybelsus (GLP-1 Receptor) last March and I have had great success with it. I’ve lowered my insulin usage 50%, dropped my A1C by .5 points AND lost the 50 lbs I’ve been carrying around since having our boys, over 20 years ago!!!! Huge win for me. However, with a new insurance company this year, it is appearing to be impossible for a prior authorization. My doc is fighting but we’ll see…….

      2 years ago Log in to Reply
    19. Sandra Norman

      I read about GLP-1’s and asked my endo about it , he was open to giving it a try, I’ve been on it for 7 months (Trulicity), it has lowered my A1C .5 and easily lost 18 lbs. which has been a struggle since menopause, lowered my Synthroid dose also. I am very happy with it, have not had problems with getting it covered under insurance.

      2 years ago Log in to Reply
    20. Valentina Potempa

      My endo is open to prescribing a GLP1 to see if it helps with management, however, my insurance will not pay for it since I have type 1 diabetes.

      2 years ago Log in to Reply
    21. eherban1

      I take all three: a GLP-1 receptor agonist (Victoza); a SGLT-2 inhibitor (Jardiance- empagliflozin.) and, a biguanide (metformin). Thanks to these, my insulin usage went from 120-140 units per day to 24-40 and my weight dropped 65 lbs.

      1
      2 years ago Log in to Reply
    22. Wanacure

      Prompted by this forum (or a link from this forum) , in my last phone visit with my endocrinologist I asked about using metformin or Ozempic to prevent slight after-meal spikes. The disappointing answer: “Using those could complicate the question of why you broke your ankle and may have osteoporosis. We know you have celiac disease. That does not explain why you are not absorbing sufficient nutrients, so I’m referring you again to Gastroenterology.”
      Since there seems to be a correlation between osteopenia/osteoporosis and T1D, I’m surprised I wasn’t prescribed extra calcium and Vit D3 long ago.
      Come to think of it, a previous health care expert in diabetes DID suggest I take calcium carbonate tablets (like Tums) after each meal and I did for a couple of years.

      2 years ago Log in to Reply
    23. Cristina Jorge Schwarz

      In addition to metformin and Ozempic, I take LDN off label for my connective tissue disease, but it actually helps with my T1D a bit, too

      2 years ago Log in to Reply

    Health care providers may prescribe type 2 diabetes medications that might be helpful for a person’s concern or problem with T1D – commonly called ‘off-label use’. Does your provider currently prescribe you any type 2 diabetes medications ‘off-label’? Select all that apply. Cancel reply

    You must be logged in to post a comment.




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