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    • 3 hours, 50 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 3 hours, 51 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 3 hours, 52 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 1 day ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 1 day ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 1 day ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 1 day ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 1 day, 3 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 1 day, 23 hours ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 1 hour ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 1 hour ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days, 2 hours ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 3 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 4 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 4 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 2 days, 15 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 2 days, 15 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 2 days, 15 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 20 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 2 days, 20 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 3 days, 13 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 3 days, 13 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 3 days, 20 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
    • 3 days, 20 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Hmmm... I'd almost welcome it, another challenge to enjoy?
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    Health care providers may prescribe type 2 diabetes medications that might be helpful for a person’s concern or problem with T1D – commonly called ‘off-label use’. Does your provider currently prescribe you any type 2 diabetes medications ‘off-label’? Select all that apply.

    Home > LC Polls > Health care providers may prescribe type 2 diabetes medications that might be helpful for a person’s concern or problem with T1D – commonly called ‘off-label use’. Does your provider currently prescribe you any type 2 diabetes medications ‘off-label’? Select all that apply.
    Previous

    If you use an insulin pump, do you order your pump supplies through a durable medical equipment supplier?

    Next

    If you use a CGM, do you look at the Glucose Management Indicator (GMI) available in many CGM reports? If so, how accurate is your GMI compared to your A1c drawn in a lab?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    29 Comments

    1. Ginger Vieira

      YES! And these medications have been so helpful to replace the other FIVE hormones that people with type 1 diabetes don’t produce.
      Read more about here:
      https://t1dexchange.org/semaglutide-type-1-diabetes/
      And here:
      https://t1dexchange.org/t1d-hormones/

      4
      8 months ago Log in to Reply
      1. cynthia jaworski

        Excellent links. Thank you.

        Everyone should be made aware of these facts.

        1
        8 months ago Log in to Reply
    2. Kevin McCue

      Doc prescribed semaglutide as WeGovy however due to cost have been unable to give it a try. The goal was to prevent sharp spikes in glucose.

      1
      8 months ago Log in to Reply
    3. Katrina Mundinger

      Was once prescribed liraglutide but it did nothing for me except make me feel nauseated.

      8 months ago Log in to Reply
    4. TEH

      I asked my Endo specifically if “off label” would help me and he said Medicare would not cover it and as such it would be very expensive.

      1
      8 months ago Log in to Reply
      1. Bob Durstenfeld

        I have no issue with coverage on Medicare. Find a Part D plan with those meds on their formulary. I use AETNA/CVS CARMARK.

        1
        8 months ago Log in to Reply
    5. mojoseje

      I’m on Metformin and wish I were on Trulicity because I lost weight on it and used less insulin. Unfortunately, my new insurance doesn’t cover it because I’m T1.

      8 months ago Log in to Reply
    6. Mary Dexter

      Every few years I have to ask that my medical records say that I am T1/LADA because some fool doctor has changed it to T2 based on my not being a child. The fight for continued access to insulin and CGM is ongoing.

      3
      8 months ago Log in to Reply
      1. Trina Blake

        That is so frustrating! Don’t some doctors realize there is no cure for T1D (not even considering the fact that some adults are Dx’s with T1D, or the LADA situation? Why do you think the names were changed?) Anyway, I have had to tell them that if a child has access to the necessary treatment etc they get to grow up to be adults with T1D>

        5
        8 months ago Log in to Reply
      2. Rafaela

        I hope the doctor who that is not your current one. Good grief!!!

        8 months ago Log in to Reply
    7. Trina Blake

      I’ve asked about using Ozempic, but the Endo says no. His reasoning was that there is (supposedly?) a risk for DKA. That doesn’t make sense to me, I fully expect to still have T1D, and still require active insulin dosing etc. I need to look into that DKA risk thing. The only thing I am somewhat wary of, is that I hear that if you stop (titrate off) Ozempic, the weight comes back rather quickly. Don’t know if I want to add another Rx regimen for the rest of my life.

      1
      8 months ago Log in to Reply
    8. Georgina Sokol

      It’s never been mentioned to me. I have never heard of this.

      1
      8 months ago Log in to Reply
    9. Bob Durstenfeld

      Yes, I have insulin resistance, I use Acarbose. Metformin and Jardiance. They reduce my insulin requirements br 25-20%. I have had T1D for 66 years.

      4
      8 months ago Log in to Reply
    10. Amanda Barras

      About 10 years ago a doc put me on metformin but I discontinued use when losing insurance. Didn’t felt it helped enough anyway.

      My current doc wrote me an Rx for Ozempic, I tried it for 2 months before I stopped taking it due to heartburn and other gastrointestinal distress. I felt it lowered my appetite, but nothing else.

      8 months ago Log in to Reply
    11. Jane Cerullo

      Personally do not need. My A1c has never been over 6. Usually 5.4-5.7. I do not get lows. Use MDI for year and a half and never knees same as with pumps but with less hassle. I use InPen and Iport and happy now to have tubes hanging off of me. Omnipod was ok but too expensive on Medicare

      1
      8 months ago Log in to Reply
    12. Becky Hertz

      I’m in Jardiance (SGLT-2) to try to preserve kidney function.

      1
      8 months ago Log in to Reply
      1. Becky Hertz

        Have also been on Victoza (GLP-1) in the past for insulin resistance.

        8 months ago Log in to Reply
    13. Henry Renn

      Circa 20 years ago T2 dx added to T1 dx(46 yr at that time). High insulin resistance. Put on new T2 med. Bgs evened out. 6 weeks in FDA recalled med & withdrew approval. Never put on another. I’d like even bgs but at this point 71 yrs old & almost 67 yrs T1 I’m on about 10 meds & do not wish to add another.

      8 months ago Log in to Reply
    14. Tracy Jean

      My doctor prescribed me Victozia. My insulin needs went down and I was in range 100% most of the time but it put me in the donut hole in 4 months.

      8 months ago Log in to Reply
    15. Lee Johnson

      My HCP wants to use T2D med for possible help in loosing weight, I am not convinced that is a good idea, especially since my HCP is very overweight!

      8 months ago Log in to Reply
    16. William Bennett

      Jardiance (empagliflozin) and Metformin. Doc put me on Metformin years back when I was doing MDI to help with Dawn Phenomenon. Didn’t really help–only got control of it when I started using a pump–but my endos have said it has other beneficial effects so why not stay with it. Started Jardiance much more recently and it has been hugely beneficial in keeping tighter TIR. I do pay a higher copay for it but it’s worth it to me. Haven’t gotten any pushback from Medicare or my supplement plan about it.

      8 months ago Log in to Reply
    17. Sharon Gerdik

      My Endo determined that I might be insulin resistant and ordered Ozempic, which is Semaglutide. I was able to decrease my insulin needs significantly and I lost 55 lbs in one year.

      1
      8 months ago Log in to Reply
      1. Lenora Ventura

        Hey Sharon, I had the same success using Rybelsus!! Yea for us ☺️

        8 months ago Log in to Reply
    18. Lenora Ventura

      Yes, my Endo prescribed Rybelsus (GLP-1 Receptor) last March and I have had great success with it. I’ve lowered my insulin usage 50%, dropped my A1C by .5 points AND lost the 50 lbs I’ve been carrying around since having our boys, over 20 years ago!!!! Huge win for me. However, with a new insurance company this year, it is appearing to be impossible for a prior authorization. My doc is fighting but we’ll see…….

      8 months ago Log in to Reply
    19. Sandra Norman

      I read about GLP-1’s and asked my endo about it , he was open to giving it a try, I’ve been on it for 7 months (Trulicity), it has lowered my A1C .5 and easily lost 18 lbs. which has been a struggle since menopause, lowered my Synthroid dose also. I am very happy with it, have not had problems with getting it covered under insurance.

      8 months ago Log in to Reply
    20. Valentina Potempa

      My endo is open to prescribing a GLP1 to see if it helps with management, however, my insurance will not pay for it since I have type 1 diabetes.

      8 months ago Log in to Reply
    21. eherban1

      I take all three: a GLP-1 receptor agonist (Victoza); a SGLT-2 inhibitor (Jardiance- empagliflozin.) and, a biguanide (metformin). Thanks to these, my insulin usage went from 120-140 units per day to 24-40 and my weight dropped 65 lbs.

      1
      8 months ago Log in to Reply
    22. Wanacure

      Prompted by this forum (or a link from this forum) , in my last phone visit with my endocrinologist I asked about using metformin or Ozempic to prevent slight after-meal spikes. The disappointing answer: “Using those could complicate the question of why you broke your ankle and may have osteoporosis. We know you have celiac disease. That does not explain why you are not absorbing sufficient nutrients, so I’m referring you again to Gastroenterology.”
      Since there seems to be a correlation between osteopenia/osteoporosis and T1D, I’m surprised I wasn’t prescribed extra calcium and Vit D3 long ago.
      Come to think of it, a previous health care expert in diabetes DID suggest I take calcium carbonate tablets (like Tums) after each meal and I did for a couple of years.

      8 months ago Log in to Reply
    23. Cristina Jorge Schwarz

      In addition to metformin and Ozempic, I take LDN off label for my connective tissue disease, but it actually helps with my T1D a bit, too

      8 months ago Log in to Reply

    Health care providers may prescribe type 2 diabetes medications that might be helpful for a person’s concern or problem with T1D – commonly called ‘off-label use’. Does your provider currently prescribe you any type 2 diabetes medications ‘off-label’? Select all that apply. Cancel reply

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