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    • 13 hours, 35 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      The hospital made me disengage my pump and promised to monitor my BG. After 10 hours with an incorrect basal my BG was high and going up. No nurse or doctor was available to administer insulin. I finally reinstalled my pump and forced the hospital to acknowledge that they could not monitor my BG. After appealing to the hospital Board, after my stay, they started using CGM's in all the wards for diabetic patients.
    • 13 hours, 36 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      During my hospitalizations for cardiac issues, my endocrinologist (who does not do hospitals) told the attending endo that I was capable of managing the diabetes. I was allowed to mange pump and CGM without any problems. For one stay, I had a pump-using T1D nurse. This was the premier cardiac hospital in the western part of my state, so their handing of diabetes may be more advanced. There are two rules for handing the type 1 diabetic in a hospital setting. 1) Never separate the Type 1 diabetic from his or her insulin. 2) Let the expert in the room handle the diabetes. And bring your own supplies, because the hospital will not have pump supplies, CGM replacements, or your insulin.
    • 14 hours, 27 minutes ago
      Jan Masty likes your comment at
      Have you (or your loved one with T1D) been diagnosed with retinopathy?
      No retinopathy... But AMD both eyes last 2 years...No treatment available... Unable to wright... bareley able to read only large type... use the talking guy hideing in my computer to read for me... Almost 91 years OLD.... 70 years T1D...
    • 14 hours, 54 minutes ago
      mojoseje likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I didn't have a stopwatch out, but it was about 12 to 15 minutes. There was a lot to go over (new devices, etc.). I probably got everything I needed, but, for some reason, I always feel rushed at this office.
    • 15 hours, 7 minutes ago
      KarenM6 likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 15 hours, 59 minutes ago
      Janis Senungetuk likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was over 20 minutes but since my Endo has me so well Regulated (A1c 5.4 - 5.6) even Medicare is allowing a Visit every 4 Months. Dex 6 and Tandem CIQ is my Cure!
    • 16 hours, 6 minutes ago
      Judy Hampton likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      My A1C is normally in the 5 to 6 range also, but I am lucky to have an Endo who answers any questions I may have and discourse on new technologies. He also checks my feet and eyes. He spends up to 40 minutes with me. I have been T1D for 59 years and have been through a pregnancy (hellish) also. I still have many questions about this disease and it’s effects on the rest of my body as I am very active.
    • 16 hours, 28 minutes ago
      Patricia Dalrymple likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 16 hours, 30 minutes ago
      cynthia jaworski likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 16 hours, 37 minutes ago
      Anneyun likes your comment at
      If you are an adult with T1D, how much has type 1 diabetes affected your thought-process and decision to have/not have children?
      I was diagnosed at age 12 and I don’t remember anyone talking to me about having or not having children. I married at 23, had an unplanned pregnancy that began when I was 24. I was not seeing an endocrinologist at the time (in 1979), but my OB doctor sent me to one. Both of the doctors made comments to me about maybe ending the pregnancy, but my answer was a definite NO!!! It was a hard pregnancy without the better insulin and technology that is available today. I went into labor approximately 6 weeks before my estimated due date. Since a Caesarian had been planned, no one had explained anything to me about going through labor, so that took longer and was harder on me than it should have been. Anyway I delivered a 7 pound, 11 ounce boy. He had jaundice and a slight heart murmur at first , but that cleared up after a short stay in the hospital. My son is 42 now and bloodwork has indicated he will not become a T1D. Same with his 2 children. That was my only pregnancy. I am now 67.
    • 18 hours, 2 minutes ago
      Joan Fray likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 1 day, 9 hours ago
      TS likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 13 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 13 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I tried to donate them to my healthcare system but was told they were not allowed to take them. I tried a couple of other places- same story so I now will have to put them in the garbage
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I'm still looking for someone to give them to.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My other was gave them to the Endocrinologist office to give to people who needed them
    • 1 day, 15 hours ago
      Trina Blake likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 15 hours ago
      Amanda Barras likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 15 hours ago
      Richard Wiener likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 17 hours ago
      Janis Senungetuk likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 17 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 17 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have given most to my doctor to give to someone in need. Some I gave to my chiropractor for his son.
    • 1 day, 17 hours ago
      Sue Martin likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My unused diabetes supplies like meters, that I was given but don’t use, just sit in a drawer. I wish there was someplace to send them. Any ideas, folks?
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    If you use an insulin pump, do you order your pump supplies through a durable medical equipment supplier?

    Home > LC Polls > If you use an insulin pump, do you order your pump supplies through a durable medical equipment supplier?
    Previous

    If you have been hospitalized for a reason unrelated to T1D, how satisfied were you with the hospital’s protocols for managing your blood glucose and insulin levels during your most recent hospital stay? Please share more about your experiences in the comments.

    Next

    Health care providers may prescribe type 2 diabetes medications that might be helpful for a person’s concern or problem with T1D – commonly called ‘off-label use’. Does your provider currently prescribe you any type 2 diabetes medications ‘off-label’? Select all that apply.

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    37 Comments

    1. Sparklee

      I order direct from Tandem.

      1 month ago Log in to Reply
    2. Lawrence S.

      Yes, Edgepark. They are covered by my primary insurance, Medicare, and my secondary insurance, Empire New York State United Health Care insurance programs.

      1 month ago Log in to Reply
      1. Lawrence S.

        All of my durable medical equipment is paid in full by my insurance companies.

        1 month ago Log in to Reply
      2. Lawrence S.

        I use Tandem X2 pump with Control IQ, and Dexcom G6 sensors and transmitters.

        1 month ago Log in to Reply
    3. Lawrence S.

      All of my durable medical equipment is paid in full by my insurance companies.

      1 month ago Log in to Reply
    4. Steve McGuinn

      I order through pharmacy. I use the Omnipod 5 system and the DASH system previously. Using the pharmacy has saved me quite a bit of money and is much easier to facilitate an order.

      1 month ago Log in to Reply
    5. Richard Vaughn

      I have always received my pump supplies from Medtronic.

      2
      1 month ago Log in to Reply
    6. GLORIA MILLER

      I wish I could order mine through DME but Omnipod 5 is by prescription only costing me $500 per year in expenses. When it was under DME I paid nothing.

      1 month ago Log in to Reply
      1. Kathryn Keller

        Same for my daughter, we just switched to the dash where before was paying nothing and now $40 a month cuz its considered a prescription and not dme

        1 month ago Log in to Reply
      2. Lyn McQuaid

        I was considering switching from Tandem to Omnipod but changed my mind quickly when I learned it was a considered a prescription (and would cost me money out of pocket) and not DME (which is covered by my insurance).

        1 month ago Log in to Reply
    7. Mark Schweim

      My Insulin Pump infusion sets are almost the ONLY things covered by my Pharmacy Benefits when ordered through CVS/Caremark mail order pharmacy, but despite their website giving me prices and my having obtained my infusion sets through them for nearly two years, if I call CVS/Caremark Pharmacy, their phone staff will absolutely insist that they can neither obtain or sell any Insulin Pump supplies, yet they DO stock and provide my Tandem Autosoft XC infusion sets with a $70 copay for 90-day supply.

      I had to select “OTHER” since I can get my Insulin Pump infusion sets through my Pharmacy Benefits from CVS/Caremark, but I need to order my pump cartridges directly from Tandem through my DME benefits.

      1 month ago Log in to Reply
    8. Jneticdiabetic

      I order directly from Tandem online.

      1 month ago Log in to Reply
    9. Lynn Smith

      Beginning this year, my Omnipod supplies are available through my pharmacy benefits. CVS Caremark supplies them. I order from a DME provider for my Dexcom supplies.

      1 month ago Log in to Reply
    10. Anne Blayney

      We don’t call them Durable Medical Equipment suppliers in Canada, so I don’t really know how to answer the question. I have to order mine through Diabetes Express, a specialty pharmacy that acts as Tandem’s distributor in Canada.

      1 month ago Log in to Reply
    11. TomH

      I get my Dexcom G6 that way currently, but I order my pumps and insulin through a military pharmacy (I retired and got dx’d afterwards). If/when I switch to G7 I may see if I can get them thru the pharmacy as well.

      1 month ago Log in to Reply
    12. Rosalind Kopfstein

      My local specialist pharmacy supplies me with my DME

      1 month ago Log in to Reply
    13. Carole Ludwig

      When I was diagnosed with T1D 5 years ago my Endo suggested using SOLARA Medical Supplies. In the first year the service was up and down but then they got their act together and now they are very efficiently about sending supplies. I get Tandem pump supplies and also Dexcom sensor supplies from them. I am on Medicare. I buy my test strips wherever the price is good. Lately eBay has been my go to.

      1 month ago Log in to Reply
    14. Bonnie Lundblom

      Yes, CCS is my DME supplier.

      1 month ago Log in to Reply
    15. John McHenery

      I order through a national Scottish ordering system which then orders the supplies from the manufacturer.

      1 month ago Log in to Reply
    16. Bob Durstenfeld

      Not by choice. TANDEM no longer ships direct for supplies. My current supplier is much better than the last one.

      1
      1 month ago Log in to Reply
    17. Denise Carter

      I use Byram. So far no problems!

      1
      1 month ago Log in to Reply
      1. Robert Brooks

        Mostly no problems. There have been screw-ups (shipment of cartridges but no insertion sets) and delays (failure to realize 3 months had passed since previous pump supply order, shipment of a Dexcom transmitter 4 days after previous one stopped working).

        1 month ago Log in to Reply
      2. Rose Lentzke

        I’ve had no issues either;)

        1 month ago Log in to Reply
    18. Mick Martin

      I order directly from Medtronic/MiniMed, but they are paid for by our NHS (National Health Service), which is financed via direct taxation of all working people who earn more than a threshold as put out by our Government. (I live in the United Kingdom of Great Britain and Northern Ireland.)

      2
      1 month ago Log in to Reply
    19. stillarobyn

      I order directly from Medtronic

      1
      1 month ago Log in to Reply
    20. Janis Senungetuk

      Using Medicare as a secondary insurance allows no other options. I use Edwards HCS for Tandem and Dexcom supplies.

      1 month ago Log in to Reply
    21. Bill Williams

      Since Insulet has not been able to get the Omnipod defined as DME under Medicare regulations, they now tell everyone how great it is to be able to get it through Part D plans. It puts you in the donut hole about January 2nd AND means that your insulin isn’t covered under Part B either.

      1
      1 month ago Log in to Reply
      1. John McQuaid

        Re Insulin for OmniPod 5 – depends on how your prescription is written.

        1 month ago Log in to Reply
    22. Carol Meares

      I have just switched to Omnipod 5 and can get both my pods and cgm through pharmacy mail order.

      1 month ago Log in to Reply
    23. Jennifer Wilson

      I used to get my pump supplies through a DM supplier, but that became more expensive and more complicated (less efficient and reliable) than getting it from my local pharmacy. Now, I solely get the supplies from my local pharmacy.

      1 month ago Log in to Reply
    24. Jillmarie61

      I switched to the OmniPod5 four months ago. It’s available thru Pharmacy benefits, so I get it a my local pharmacy. But my Dexcom G6 CGM is paid thru DME, so I’m assigned to a company that supplies that.

      1
      1 month ago Log in to Reply
    25. Pauline M Reynolds

      Other. I have an HMO and order my supplies directly from the manufacturers.

      1 month ago Log in to Reply
    26. StPetie

      Local pharmacy.

      1 month ago Log in to Reply
    27. PamK

      I have to do this with my current insurance. I hate it! On my previous insurance, I could just go to the pharmacy, but this policy doesn’t allow that. I’d take the pharmacy over mail-order any day!

      1 month ago Log in to Reply
    28. LizB

      Currently using Medtronic and I get everything directly from them. I am trying to switch to Tandem & Dexcom and I know I will have to use a DME supplier for Dexcom but I think I can go directly to Tandem for the pump/supplies.

      1 month ago Log in to Reply
    29. John McQuaid

      I use the Omnpod 5, which Medicare does not consider DME. So my answer is no. However, Blue Cross covers it under the mail order pharmacy benefit.

      1 month ago Log in to Reply
    30. Lisa McBride

      My insurance has carved out some/all?DME and has Express Scripts, the PBM, handle it. So, I have to order from Express Scripts. It is a HUGE problem because they don’t understand that issues can arise occasionally so one MUST order a few more than the allotted number of supplies/day in case an issue arises and one has to throw away an unused supply . I ask my physician to order more than the normal 90 days supply so I have extras on hand – otherwise the PBM tells me “it’s too early to reorder” when I run out before day 90 and then I spend HOURS on the phone trying to get up their management chain until I can get to someone who will approve an override. It is a nightmare! I dislike having Express Scripts handle DME for this reason.

      7 days ago Log in to Reply

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