29 Comments
Health care providers may prescribe type 2 diabetes medications that might be helpful for a person’s concern or problem with T1D – commonly called ‘off-label use’. Does your provider currently prescribe you any type 2 diabetes medications ‘off-label’? Select all that apply.
You must be logged in to post a comment.
YES! And these medications have been so helpful to replace the other FIVE hormones that people with type 1 diabetes don’t produce.
Read more about here:
https://t1dexchange.org/semaglutide-type-1-diabetes/
And here:
https://t1dexchange.org/t1d-hormones/
Excellent links. Thank you.
Everyone should be made aware of these facts.
Doc prescribed semaglutide as WeGovy however due to cost have been unable to give it a try. The goal was to prevent sharp spikes in glucose.
Was once prescribed liraglutide but it did nothing for me except make me feel nauseated.
I asked my Endo specifically if “off label” would help me and he said Medicare would not cover it and as such it would be very expensive.
I have no issue with coverage on Medicare. Find a Part D plan with those meds on their formulary. I use AETNA/CVS CARMARK.
I’m on Metformin and wish I were on Trulicity because I lost weight on it and used less insulin. Unfortunately, my new insurance doesn’t cover it because I’m T1.
Every few years I have to ask that my medical records say that I am T1/LADA because some fool doctor has changed it to T2 based on my not being a child. The fight for continued access to insulin and CGM is ongoing.
That is so frustrating! Don’t some doctors realize there is no cure for T1D (not even considering the fact that some adults are Dx’s with T1D, or the LADA situation? Why do you think the names were changed?) Anyway, I have had to tell them that if a child has access to the necessary treatment etc they get to grow up to be adults with T1D>
I hope the doctor who that is not your current one. Good grief!!!
I’ve asked about using Ozempic, but the Endo says no. His reasoning was that there is (supposedly?) a risk for DKA. That doesn’t make sense to me, I fully expect to still have T1D, and still require active insulin dosing etc. I need to look into that DKA risk thing. The only thing I am somewhat wary of, is that I hear that if you stop (titrate off) Ozempic, the weight comes back rather quickly. Don’t know if I want to add another Rx regimen for the rest of my life.
It’s never been mentioned to me. I have never heard of this.
Yes, I have insulin resistance, I use Acarbose. Metformin and Jardiance. They reduce my insulin requirements br 25-20%. I have had T1D for 66 years.
About 10 years ago a doc put me on metformin but I discontinued use when losing insurance. Didn’t felt it helped enough anyway.
My current doc wrote me an Rx for Ozempic, I tried it for 2 months before I stopped taking it due to heartburn and other gastrointestinal distress. I felt it lowered my appetite, but nothing else.
Personally do not need. My A1c has never been over 6. Usually 5.4-5.7. I do not get lows. Use MDI for year and a half and never knees same as with pumps but with less hassle. I use InPen and Iport and happy now to have tubes hanging off of me. Omnipod was ok but too expensive on Medicare
I’m in Jardiance (SGLT-2) to try to preserve kidney function.
Have also been on Victoza (GLP-1) in the past for insulin resistance.
Circa 20 years ago T2 dx added to T1 dx(46 yr at that time). High insulin resistance. Put on new T2 med. Bgs evened out. 6 weeks in FDA recalled med & withdrew approval. Never put on another. I’d like even bgs but at this point 71 yrs old & almost 67 yrs T1 I’m on about 10 meds & do not wish to add another.
My doctor prescribed me Victozia. My insulin needs went down and I was in range 100% most of the time but it put me in the donut hole in 4 months.
My HCP wants to use T2D med for possible help in loosing weight, I am not convinced that is a good idea, especially since my HCP is very overweight!
Jardiance (empagliflozin) and Metformin. Doc put me on Metformin years back when I was doing MDI to help with Dawn Phenomenon. Didn’t really help–only got control of it when I started using a pump–but my endos have said it has other beneficial effects so why not stay with it. Started Jardiance much more recently and it has been hugely beneficial in keeping tighter TIR. I do pay a higher copay for it but it’s worth it to me. Haven’t gotten any pushback from Medicare or my supplement plan about it.
My Endo determined that I might be insulin resistant and ordered Ozempic, which is Semaglutide. I was able to decrease my insulin needs significantly and I lost 55 lbs in one year.
Hey Sharon, I had the same success using Rybelsus!! Yea for us ☺️
Yes, my Endo prescribed Rybelsus (GLP-1 Receptor) last March and I have had great success with it. I’ve lowered my insulin usage 50%, dropped my A1C by .5 points AND lost the 50 lbs I’ve been carrying around since having our boys, over 20 years ago!!!! Huge win for me. However, with a new insurance company this year, it is appearing to be impossible for a prior authorization. My doc is fighting but we’ll see…….
I read about GLP-1’s and asked my endo about it , he was open to giving it a try, I’ve been on it for 7 months (Trulicity), it has lowered my A1C .5 and easily lost 18 lbs. which has been a struggle since menopause, lowered my Synthroid dose also. I am very happy with it, have not had problems with getting it covered under insurance.
My endo is open to prescribing a GLP1 to see if it helps with management, however, my insurance will not pay for it since I have type 1 diabetes.
I take all three: a GLP-1 receptor agonist (Victoza); a SGLT-2 inhibitor (Jardiance- empagliflozin.) and, a biguanide (metformin). Thanks to these, my insulin usage went from 120-140 units per day to 24-40 and my weight dropped 65 lbs.
Prompted by this forum (or a link from this forum) , in my last phone visit with my endocrinologist I asked about using metformin or Ozempic to prevent slight after-meal spikes. The disappointing answer: “Using those could complicate the question of why you broke your ankle and may have osteoporosis. We know you have celiac disease. That does not explain why you are not absorbing sufficient nutrients, so I’m referring you again to Gastroenterology.”
Since there seems to be a correlation between osteopenia/osteoporosis and T1D, I’m surprised I wasn’t prescribed extra calcium and Vit D3 long ago.
Come to think of it, a previous health care expert in diabetes DID suggest I take calcium carbonate tablets (like Tums) after each meal and I did for a couple of years.
In addition to metformin and Ozempic, I take LDN off label for my connective tissue disease, but it actually helps with my T1D a bit, too