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    • 14 hours, 27 minutes ago
      kristina blake likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      With all technical advancements there are good things and bad things. The bad things (unforseen consequences) could be deadly like Hallucinations for the user, getting over doses of insulin. So, carefully thought out guard rails need to be developed and thoroughly tested. A good thing must be the accumulation of scenarios that KSannie mentioned. However it can not be completely autonomous. The current accuracy of Dex G7 and other sensors introduce error in to the calculations. This is similar to "self driving cars." The Robo taxi experiments have shown the unusual events that could become dangerous. Either audible situation commands or textual inputs like "goin to bed" or "driving" or "exercising" may be required at the beginning for a new user. As an example, after wearing my smart watch for a year now, it recognizes exercising without me having to tell it I'm exercising. This drives a more advanced and improved user interface. The other perceivable advantage might be accumulating changes over time, such as sicknesses, weight gain or loss, or changes in activity. Changes in food intake might be difficult to overcome. Something like "Under my Fork" app. Personally, I would like to see a reminder to bolis before eating! With all that said, we do we need all that? Probably not. Evolution of modified closed loop control may eliminate the need for AI control. The reality may be somewhere in-between the two.
    • 14 hours, 29 minutes ago
      kristina blake likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I believe that AI may very well become a great tool - but at this time it still makes too many errors for me to be confident in it.
    • 14 hours, 29 minutes ago
      kristina blake likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Here's my concern. I've used AI when meeting new clients to take notes of my meetings while I'm talking with the client. Ostensibly, this frees me up from having to jot down notes while talking - allowing me to give my full attention to the conversation. (Very good benefit of AI) Then, when reviewing the notes, AI literally fabricated scenarios that weren't discussed (AI Hallucinations are a very bad side effect). Not knowing when AI will fabricate a fact pattern gives me great concern that AI will fabricate a glucose reading and then act on that hallucination. AI has great potential, but it's not ready yet.
    • 14 hours, 29 minutes ago
      kristina blake likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I’m uncomfortable not knowing when and when it isn’t being used, but I’m not sure why really. A “singer” named Benny Rivers popped up in one of my feeds. I really liked the music, until I found out it was a total AI fabrication. Then I was uncomfortable. Why? I felt “taken”, like someone pulled a fast one on me, pulled the wool over my eyes. I liked the music less then. I didn’t like that I couldn’t find a tour date, things like that. But I was most uncomfortable not truly understanding why it made me uncomfortable. The music was still enjoyable.
    • 16 hours, 4 minutes ago
      Natalie Daley likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Having recently dealt with ongoing tech issues involving our heat and electrical-use notifications for more than six months — and it’s still not fully resolved — I’m not always a fan of too much technology. That said, I am interested in advances like the Twist Insulin Pump potentially detecting scar tissue or helping with infusion-site issues. But then reality kicks in: taking devices off for MRIs, replacing failed equipment, and navigating Medicare when it’s primary insurance can become a nightmare of paperwork and delays. And honestly, AI in some call centers has been pretty frustrating. Sometimes it feels like no one can answer a real-world question anymore. I think we should tread lightly and make sure technology actually makes life easier for people living with T1D — especially older adults who already manage enough complexity every day. Some days I think about a less stress free life and going back to a syringe and insulin. over 45 years of doing that, and now 25+ of devices, I'm tired of the challenges in getting replacements, and scar tissue, and mail order supplies and on and on.
    • 16 hours, 6 minutes ago
      Natalie Daley likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      With all technical advancements there are good things and bad things. The bad things (unforseen consequences) could be deadly like Hallucinations for the user, getting over doses of insulin. So, carefully thought out guard rails need to be developed and thoroughly tested. A good thing must be the accumulation of scenarios that KSannie mentioned. However it can not be completely autonomous. The current accuracy of Dex G7 and other sensors introduce error in to the calculations. This is similar to "self driving cars." The Robo taxi experiments have shown the unusual events that could become dangerous. Either audible situation commands or textual inputs like "goin to bed" or "driving" or "exercising" may be required at the beginning for a new user. As an example, after wearing my smart watch for a year now, it recognizes exercising without me having to tell it I'm exercising. This drives a more advanced and improved user interface. The other perceivable advantage might be accumulating changes over time, such as sicknesses, weight gain or loss, or changes in activity. Changes in food intake might be difficult to overcome. Something like "Under my Fork" app. Personally, I would like to see a reminder to bolis before eating! With all that said, we do we need all that? Probably not. Evolution of modified closed loop control may eliminate the need for AI control. The reality may be somewhere in-between the two.
    • 16 hours, 7 minutes ago
      Natalie Daley likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Sorry. I'm not sold on AI. I don't trust the people making it. There are too many reasons it could go wrong and be disasterous (just read the above comments). I'm not opposed to computers helping with things such as Control IQ, but when the computer starts doing the thinking, I think we've crossed the line. An aside: I've listened to AI music, and I think it sounds impersonal. It lacks a humanness. I don't find it pleasant to listen to. I've heard horror stories about AI being used by the military, with the end result being nuclear holocaust. I am a hard NO to AI. I gave it a "5".
    • 16 hours, 10 minutes ago
      Natalie Daley likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I am comfortable using AI as a helpful tool, while fully cognizant of hallucinatory tendencies. If I may paraphrase a famous writer about a week ago analyzing universities (as well as AI): “the over-intellectualized nature of academic culture—the idea that all inquiry should be depersonalized, dispassionate, data-driven, objective. Being a good person is more about having the right emotions, perceptions, and intentions toward others in the concrete circumstances of life than it is about logic-chopping games and dry dissertations.” 𐚁
    • 17 hours, 15 minutes ago
      Kathy Hanavan likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      With all the deliberately misleading information out there, AI cannot discriminate. And, each patient is completely different in their rate of things like food digestion or insulin absorption. AI really is not up to this. And it cannot differentiate between highs due to stress of traveling, which go down as soon as I arrive, and highs due to illness, which can stay high for days, and gradually taper to normal at some variable rate. Once I was high due to illness, got better and then worse. I am afraid of getting too much insulin. It lasts 5 hours in the blood, including the basal amount. And the AI not being able to correct fast enough.
    • 17 hours, 15 minutes ago
      Kathy Hanavan likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I believe that AI may very well become a great tool - but at this time it still makes too many errors for me to be confident in it.
    • 17 hours, 15 minutes ago
      Kathy Hanavan likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I am comfortable using AI as a helpful tool, while fully cognizant of hallucinatory tendencies. If I may paraphrase a famous writer about a week ago analyzing universities (as well as AI): “the over-intellectualized nature of academic culture—the idea that all inquiry should be depersonalized, dispassionate, data-driven, objective. Being a good person is more about having the right emotions, perceptions, and intentions toward others in the concrete circumstances of life than it is about logic-chopping games and dry dissertations.” 𐚁
    • 17 hours, 53 minutes ago
      John Barbuto likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Sorry. I'm not sold on AI. I don't trust the people making it. There are too many reasons it could go wrong and be disasterous (just read the above comments). I'm not opposed to computers helping with things such as Control IQ, but when the computer starts doing the thinking, I think we've crossed the line. An aside: I've listened to AI music, and I think it sounds impersonal. It lacks a humanness. I don't find it pleasant to listen to. I've heard horror stories about AI being used by the military, with the end result being nuclear holocaust. I am a hard NO to AI. I gave it a "5".
    • 17 hours, 54 minutes ago
      John Barbuto likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      With all the deliberately misleading information out there, AI cannot discriminate. And, each patient is completely different in their rate of things like food digestion or insulin absorption. AI really is not up to this. And it cannot differentiate between highs due to stress of traveling, which go down as soon as I arrive, and highs due to illness, which can stay high for days, and gradually taper to normal at some variable rate. Once I was high due to illness, got better and then worse. I am afraid of getting too much insulin. It lasts 5 hours in the blood, including the basal amount. And the AI not being able to correct fast enough.
    • 17 hours, 56 minutes ago
      John Barbuto likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I believe that AI may very well become a great tool - but at this time it still makes too many errors for me to be confident in it.
    • 17 hours, 57 minutes ago
      John Barbuto likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Here's my concern. I've used AI when meeting new clients to take notes of my meetings while I'm talking with the client. Ostensibly, this frees me up from having to jot down notes while talking - allowing me to give my full attention to the conversation. (Very good benefit of AI) Then, when reviewing the notes, AI literally fabricated scenarios that weren't discussed (AI Hallucinations are a very bad side effect). Not knowing when AI will fabricate a fact pattern gives me great concern that AI will fabricate a glucose reading and then act on that hallucination. AI has great potential, but it's not ready yet.
    • 17 hours, 58 minutes ago
      Mike S likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Here's my concern. I've used AI when meeting new clients to take notes of my meetings while I'm talking with the client. Ostensibly, this frees me up from having to jot down notes while talking - allowing me to give my full attention to the conversation. (Very good benefit of AI) Then, when reviewing the notes, AI literally fabricated scenarios that weren't discussed (AI Hallucinations are a very bad side effect). Not knowing when AI will fabricate a fact pattern gives me great concern that AI will fabricate a glucose reading and then act on that hallucination. AI has great potential, but it's not ready yet.
    • 18 hours, 21 minutes ago
      Lawrence S. likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      Sure, if you can call it a plan to flush with liquids and take electrolytes and insulin as needed.
    • 18 hours, 21 minutes ago
      Lawrence S. likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      Inject. Inject. Inject. All other considerations are secondary, tertiary, or way down the list. Why would anyone ever rearrange the deck chairs on the Titanic? Might as well strike up the band to play Nearer My God to Thee!. ☹
    • 18 hours, 22 minutes ago
      TEH likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      With all the deliberately misleading information out there, AI cannot discriminate. And, each patient is completely different in their rate of things like food digestion or insulin absorption. AI really is not up to this. And it cannot differentiate between highs due to stress of traveling, which go down as soon as I arrive, and highs due to illness, which can stay high for days, and gradually taper to normal at some variable rate. Once I was high due to illness, got better and then worse. I am afraid of getting too much insulin. It lasts 5 hours in the blood, including the basal amount. And the AI not being able to correct fast enough.
    • 18 hours, 23 minutes ago
      Lawrence S. likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      It would depend on the symptoms and vary.
    • 18 hours, 24 minutes ago
      TEH likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I am comfortable using AI as a helpful tool, while fully cognizant of hallucinatory tendencies. If I may paraphrase a famous writer about a week ago analyzing universities (as well as AI): “the over-intellectualized nature of academic culture—the idea that all inquiry should be depersonalized, dispassionate, data-driven, objective. Being a good person is more about having the right emotions, perceptions, and intentions toward others in the concrete circumstances of life than it is about logic-chopping games and dry dissertations.” 𐚁
    • 18 hours, 24 minutes ago
      Lawrence S. likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      With all the deliberately misleading information out there, AI cannot discriminate. And, each patient is completely different in their rate of things like food digestion or insulin absorption. AI really is not up to this. And it cannot differentiate between highs due to stress of traveling, which go down as soon as I arrive, and highs due to illness, which can stay high for days, and gradually taper to normal at some variable rate. Once I was high due to illness, got better and then worse. I am afraid of getting too much insulin. It lasts 5 hours in the blood, including the basal amount. And the AI not being able to correct fast enough.
    • 18 hours, 24 minutes ago
      TEH likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      2 It already is. But needs to be checked occasionally. I don't want a person inside me every five minutes.
    • 18 hours, 28 minutes ago
      KCR likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Here's my concern. I've used AI when meeting new clients to take notes of my meetings while I'm talking with the client. Ostensibly, this frees me up from having to jot down notes while talking - allowing me to give my full attention to the conversation. (Very good benefit of AI) Then, when reviewing the notes, AI literally fabricated scenarios that weren't discussed (AI Hallucinations are a very bad side effect). Not knowing when AI will fabricate a fact pattern gives me great concern that AI will fabricate a glucose reading and then act on that hallucination. AI has great potential, but it's not ready yet.
    • 18 hours, 33 minutes ago
      Lawrence S. likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Here's my concern. I've used AI when meeting new clients to take notes of my meetings while I'm talking with the client. Ostensibly, this frees me up from having to jot down notes while talking - allowing me to give my full attention to the conversation. (Very good benefit of AI) Then, when reviewing the notes, AI literally fabricated scenarios that weren't discussed (AI Hallucinations are a very bad side effect). Not knowing when AI will fabricate a fact pattern gives me great concern that AI will fabricate a glucose reading and then act on that hallucination. AI has great potential, but it's not ready yet.
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    Has your health care provider recommended taking a statin because of diabetes, regardless of your cholesterol levels?

    Home > LC Polls > Has your health care provider recommended taking a statin because of diabetes, regardless of your cholesterol levels?
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    Have you ever experienced elevated ketones without high blood glucose levels?

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    If you wear a CGM that does not require regular calibrations, on average, how often do you choose to calibrate your CGM with a blood glucose meter reading?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    " At T1D Exchange, we’re proud to announce our Medical and Research Advisory Team — an accomplished group of leaders in endocrinology, research, and quality improvement. Together, they are redefining what’s possible in type 1 diabetes (T1D) care through rigorous data analysis, innovative research approaches, and real-world implementation. Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. T1DX-QI is a remarkable resource for centers that are using continuous process improvement to improve the quality of care for people living with diabetes.”  “Diabetes centers working with T1DX –QI have done amazing work using QI methodology to make care accessible and equitable for all people with diabetes,” she said. “It’s inspiring to be a part of a collaborative in which centers have been creative and thoughtful with initiatives to address individual and systemic challenges to care, improving clinical outcomes as well as the patient experience."  Looking ahead, Dr. Sherr highlighted the opportunity to build on the existing strong foundation. “I’m very excited to be working as a Medical Advisor for T1D Exchange,” she said. “It’s a privilege to help shape what comes next for a group that’s already doing such impactful work.”  “Sharing what’s happening in clinical practice, benchmarking across centers, and understanding outcomes is how we figure out what’s working, what’s not, and where we go next,” she said.      The future of T1D care   With this team’s vision and expertise, T1D Exchange is positioned to accelerate progress in T1D care — bridging research and real-world practice to drive meaningful, measurable impact.  Together, we look forward to advancing innovation and improving outcomes for everyone affected by type 1 diabetes.   "

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    42 Comments

    1. Wanacure

      When I asked, “Why?” despite no evidence of cholesterol problems at yearly lab tests, the answer was, “It’s a preventative measure (strokes, heart attacks) because you have diabetes.” Same question, same answer re: ACE inhibitor, though no signs of high blood pressure, nor kidney damage. Both pills are only 10 mg, free, minimal side effects. Supposedly these drugs won’t interfere when you’re trying to get your exercise heart rate up for aerobic benefit. For some of us baby aspirin is no longer recommended. See online articles JAMA 21 June 2021 and BMJ 13 Jan 3021. These articles convinced my dr to cancel his Rxd baby aspirin.

      2
      5 years ago Log in to Reply
      1. William Rone

        I continue taking 81 mg of aspirin every day. I have taken every new statin given me, although I have had muscular problems that worsen with each “better” statin. I even lost the feeling in my fingers with my last prescription. If the only tool you have is a hammer, every problem is a nail.

        1
        5 years ago Log in to Reply
    2. Sahran Holiday

      All my cholesterols are perfect and no other indications of any heart problems. I’m active, weight good, BMI good. So if any doctor recommended statin I’d stop seeing that doctor.

      5 years ago Log in to Reply
    3. Mary Dexter

      I was on statins briefly, but now I refuse them. With LADA, my blood sugar is already unpredictable. Statins increase insulin resistance and decrease insulin production. They also cause muscle pain. Why make things worse?

      5 years ago Log in to Reply
    4. Mick Martin

      No. I was prescribed statins because I had high levels of LDL cholesterol present … and still do have after 40+ years of taking statins.

      5 years ago Log in to Reply
    5. Lawrence Stearns

      The first time I met my Endocrinologist, he recommended that I start on a statin a preventive measure. I am in great shape, a runner. I have excellent lipid numbers, low cholesterol, etc. No heart issues. I refused to take the statin. That was about 5 to 7 years ago. I’m still not taking statins. My philosophy is to not take any drugs unless it is NECESSARY. Almost all drugs have negative side effects.

      4
      5 years ago Log in to Reply
    6. George Hamilton

      I do take a statin with no noticeable side effects. I have bee on that program for many years, but I have had moderately bad LDL throughout. T1D seems to be an additional risk factor but not the driving reason for my statin

      5 years ago Log in to Reply
    7. Mark Schweim

      I’ve been put on 4 different statins in the time I lived in Alabama, from 1996 to 2018. Then when I returned to Minnesota and saw my Endo at the local Clinic, I mentioned my leg cramps and how much the cramping in my legs improved after my statin prescription ran out and I had stopped taking them for about 3 months. He said muscle cramps is a very common symptom to most statin allergies so he added all statins to my list of known medication allergies that until statins were added was previously only Acetaminophen, aka Tylenol.

      3
      5 years ago Log in to Reply
      1. kristina blake

        I wish my PCP ( it isn’t the Endo that Rx’d the statins – probably cuz the PCP did). would hear me about the cramps: full body cramps. Heaven forbid I should try for a god long, first thing in the morning stretch. Even changing seeping positions can trigger them, I have to get out of bed and do plies (former ballet dancer here) to make them go away.

        5 years ago Log in to Reply
    8. James Hoare

      On statins 25 years. First to decrease cholesterol which was around 180. Now my cardiologist and intervention specialist both require continuing and larger dose of this drug. Fortunately it appears I tolerate this ok.

      1
      5 years ago Log in to Reply
    9. rick phillips

      I have low cholesterol, but I take a statin as a result of two stents. Cholesterol is one marker – but diabetes is the overriding marker.

      5 years ago Log in to Reply
    10. Trish Seidle

      Well, I’ve been on a station for years and my cholesterol has been great. I honestly don’t know what would happen if I stopped

      5 years ago Log in to Reply
      1. Trish Seidle

        Don’t know why my answer posted under this question.

        5 years ago Log in to Reply
    11. Retired and glad

      Been taking statins for years which brought a not-so-high cholesterol down to acceptable levels. I thought this would be good for my heart, but as it turns out I had a heart attack in June, with 100% blockage on one artery and 90% in another. Four stents later I’m wondering why we worry about cholesterol if lowering it doesn’t seem to keep the heart from having issues..

      3
      5 years ago Log in to Reply
    12. Steve Rumble

      I am not sure. I have been T1D for 50+ years and have been taking Statins for many of those years. I do know that my PCP wants my cholesterol levels lower than typically recommended due to my T1D.

      5 years ago Log in to Reply
    13. BARRY HUNSINGER

      I briefly took several different statins years ago. Due to the negative side effects I refuser to ever take them again. My Endo My endo and My cardiologist keep harping on me to take them. My ldl is not that high, like around 130, overall cholesterol is around 170. I had all the cardiology test and all is clear, so I am ok with not taking them. They say that it “saves lives”. but the truth is it only saves lives in about 1% of cases.

      2
      5 years ago Log in to Reply
      1. John Williamson

        Same here. My cholesterol WITHOUT statin runs between 135 and 150. My HDL in the high 80’s. My endo and primary care push me to take a statin. Checklist standards of practice?

        .

        5 years ago Log in to Reply
    14. lis be

      My doc prescribed a preventative statin years ago, I only took them for a couple weeks, had terrible leg cramps. Now my cardiologist says I shouldn’t take them as medicine has advanced and there are now better or other options. (I don’t know what that means, or why he said it, I was just happy to not get leg cramps after stopping!)

      1
      5 years ago Log in to Reply
    15. George Lovelace

      On Statins since the Mid 80’s and no longer having issues with Meds, for awhile cramping was severe with some but started with CoQ-10, currently Total CHOL 166, HDL 77 and LDL 67

      5 years ago Log in to Reply
    16. jlagueux

      I’ve been taking a statin for many years, long before my T1D diagnosis.

      5 years ago Log in to Reply
    17. Daniel Bestvater

      I took statins for about a year. My hips and legs were very stiff but I kept taking them until one of my leg muscles(quadricep) actually ripped. So I stopped all statins about 10 years ago.

      5 years ago Log in to Reply
      1. James Goldman

        Daniel,

        I had the same problem with the statin I was taking. My Cardiologist (G-d Bless Him) started me on Livalo which has brought my numbers down to around 150.

        5 years ago Log in to Reply
    18. Janis Senungetuk

      Yes, but after trying every version on the market with debilitating side effects, I’m now taking a non-statin drug that has effectively lowered my elevated cholesterol levels.

      1
      5 years ago Log in to Reply
      1. M C

        May I ask what an alternate medication to a statin would be? I’d be interested in looking to see if it might work for me. Thanks!

        1
        5 years ago Log in to Reply
      2. kristina blake

        I’d love to see the answer to MC’s question. The body cramps from statins for me are debilitating

        1
        5 years ago Log in to Reply
    19. Pauline M Reynolds

      I marked “Other” because I do take a statin, but it is because of high cholesterol.

      1
      5 years ago Log in to Reply
    20. connie ker

      Yes, and I was reluctant, but am a compliant patient. I take 10mg daily with CoQ10 and cholesterol numbers are excellent. Sometimes the lower dosage of a statin are more tolerable without the side effects.

      5 years ago Log in to Reply
    21. Becky Hertz

      Other, started statins because of my cholesterol levels. Although I suspect my hcp would have recommended one regardless.

      5 years ago Log in to Reply
    22. Carol Meares

      I put other because I am unsure. I was put on Statins very early on but I don’t know if my cholesterol was high at the time. My family has heart disease and I have tried going off statins recently and now my numbers clearly rise too high. Ezetimembe helped but not enough. My current Endo is also a lipidologist and insists I should stay on statins although he put me on a different one.

      5 years ago Log in to Reply
    23. Angela Naccari

      I answered “no” because the reasons I take it are because high cholesterol levels and a history of heart disease in my immediate family. 60 years with TD1.

      5 years ago Log in to Reply
    24. M C

      It was recommended that I take a statin when my cholesterol numbers were slightly rising – and I have been on them since I was in my 30’s (about 15+ years after being diagnosed, in my teens, as having T1D). Since I’ve been on the statin medication (25+/- years), my cholesterol numbers have remained in the normal range.

      5 years ago Log in to Reply
    25. Jan Masty

      I’ve been on a statin for at least 30 years .. never had high cholesterol. My numbers are 138 total, 92 HDL. Triglycerides are 39. In spite of having great numbers I still had a heart attack 3 years ago and now have a stent. The surgeon did say my arteries look good otherwise. Will stay on the statin! No issues with it.

      5 years ago Log in to Reply
    26. Kristine Warmecke

      I was on one and an ACE inhibitor, for preventives, when I had my first CVA. I’ve always had low blood pressure and awesome lipid number’s. Once I was correctly diagnosed, 6 years later, I was taken off the ACE inhibitor to try and keep my BP high enough, and eventually the statin due to side effects. I’m currently only on 81 mg of ASA, per my neuro team, to keep my brain graphs open, from my Moyamoya surgeries.

      5 years ago Log in to Reply
    27. Abraham Remson

      My Internist had me on statins for a long time for a long time until I developed an allergy to them. Now I try to keep it down with diet alone

      5 years ago Log in to Reply
    28. Lisa Shandalov

      Long-haul T1D plus a family history of heart disease (My dad had several “incidents”and ultimately died of heart disease.) equal a no-brained for me: I’ve been on statins since my early 40s.

      5 years ago Log in to Reply
    29. GLORIA MILLER

      Yes, my primary recommended it but my cardiologist said do not take it. There can be side effects to statins and my cholesterol is very good so don’t chance it.

      5 years ago Log in to Reply
    30. Amanda Barras

      OTHER: Mine was because of cholesterol levels not regardless just because I was diabetic.

      5 years ago Log in to Reply
    31. Cheryl Seibert

      My endo put my on the ‘cardiac’ regimen (statin, blood pressure “pril” and low dose aspirin), nearly 30 years ago. I’ve never had high BP or high cholesterol. He said research showed an 80% reduction in long-term complications for T1Ds if they were on the cardiac regimen. It’s worked very well for me so far (55 years of T1D since I a child).

      5 years ago Log in to Reply
    32. ConnieT1D62

      It has been discussed, but I have refused because I my cholesterol levels are WNL range. I do take an ARB as a kidney protectant and I practice healthy lifestyle choices. My preference is to maintain my health with balanced healthy eating to meet nutritional needs, and hormone replacement therapy – like insulin, thyroid, GLP1 – with as little other pharmaceutical interference as possible.

      5 years ago Log in to Reply
    33. Bonnie Lundblom

      I take atorvastatin 20 mg twice a week because I couldn’t tolerate the effects of daily dose of a different statin medication. The endocrinologist who changed my statin Rx said there was clinical research done which confirmed effectiveness when taken 1-2/week. My cholesterol was around 180-200 when I started therapy and on this dose it’s 150 with good HDL/LDL

      5 years ago Log in to Reply
    34. Donna Clemons

      Yes

      5 years ago Log in to Reply
    35. Molly Jones

      “other”
      My endo suggested both aspirin and a low dose of a statin because while my cholesterol is good, my bad cholesterol is slightly elevated and heart conditions are in my family.

      5 years ago Log in to Reply

    Has your health care provider recommended taking a statin because of diabetes, regardless of your cholesterol levels? Cancel reply

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